Відео

I ended up saving up and paying to go private. Turns out I am really ADHD, I tick all the boxes child and adult, which the Ed Psych at University had indicated in 2008 when Adult ADHD didn’t exist according to the NHS, so it wasn’t a surprise or wasted money. I just couldn’t wait 5 years on the NHS waiting list. Now I’ve hit another hurdle: I can’t be medicated with ADHD meds because I’m prone to serotonin syndrome but the same clinic still won’t see me (I’m on the waiting list) so all my GP can do for now as a woman in her 40s is give me HRT. Oestrogen is a dopamine carrier and she hopes making more oestrogen available will help until I can see an ADHD specialist.

*2006

I am aged 45. I got a degree in 1999 aged 20 , pgdip in 2000. I was told I had dyspraxia, aged 23. People thought I may have Aspergers. I had an assessment almost 20 years ago , the psychiatrist said “ Aspergers traits not a problem”, means borderline Asperger’s syndrome. One GP, said I could not have an assessment too costly, the other found a loophole closed in 2005. I learned about adult dyspraxia. I got diagnosed privately, May 2012, aged 33, my GP, would not accept the report ( no NHS diagnosis on the NHS). If I had my diagnosis of dyspraxia, I would have had my ADHD detected. I had a nervous breakdown to get my ADHD detected, 4 years ago . I got diagnosed privately, 100 miles away , if I had my diagnosis on the NHS, I would have had to wait 4 years . Many psychiatrists would not assess me because I have dyspraxia and Aspergers traits . At my dyspraxia assessment, my IQ was around 125. My psychiatrist said my was missed because I was well behaved in school, intelligent and driven . My options in life are limited . I had a thorough assessment for ADHD. I looked through my records, I had an assessment aged 8, dyspraxia and ADHD symptoms. I had an assessment, aged 9, dyspraxia and ADHD, a slight assessment autistic , nothing else in my records . NHS, fails neurodiverse people. I am fed up . Good luck.

Actually not too bad right now thank you! I did recover. PEM is horrible but I do recover from it eventually and come out the other side slowly.

It is really difficult. You have my sympathy. Often our hair is part of our identity and how we express it. So it coming out in clumps or drying and crumbling can really get to us xx

@@julietteelisabeth1734 exactly I don't really care about my shoes or clothes but my hair and nails more than I should. My nails have always been pretty bad tho. But my hair never went past my shoulder blades but was still thick and healthy now it's super thin and falls out everywhere with the littlest movements especially when I wash even in cold cool water. I keep switching shampoos but my scalp is showing.... My Drs aren't helping me when it comes to how I can make it better or something..... Clumps locks of hair.... I'm still learning about it as I was told for years It was in my head or I was attention seeking and only diagnosed in August of 2022

@@katreilly3094 huge hugs. Unlearning that rhetoric is really hard. But if you wouldn’t say that to a friend, don’t say it to yourself. Compassion is key

My hairs been falling out like crazy recently 😬 I didn't realise it was an eds thing.

Can you explain more? As this is becoming a fear of mine with the amount of hair I've lost in a few months....

@@katreilly3094 sure, I don't lose a lot of hair but my hair has become very thinner and thinner. So I went to a dermatologist who told me I got Aga (androgenic alopecia)... But I want a second diagnose so I'm going to see another one. I take a lot of supplements: for hormones, intestins (I have inflammation),... I also have lipedema and hashimoto...

Viola skin Argan and coconut oil x

Definely on the biotin, I take that and a really decent multivitamin. It seems to help with the hEDS. So, Palmers Coconut butter shampoo and conditioner are good I’ve found if a little heavy, Umberto Gianni is ok, Burts Bees kids shampoo is quite good too. But for me, I’ve gone the whole hog and I use Function of Beauty who specially tailor make their shampoos and conditioners to what their customer needs. It’s not cheap though so really needs some serious consideration before you get into that as it gets shipped from America. If you do want to go down that road my discount code is www.functionofbeauty.com/images/clipboard.svg

Thank you! It was my natural colour when I was a child to teen before I had children, so it’s a good guess it would suit me 😉

I’m so glad it helped you. That’s the whole point of me making these. I must get round to making some more. But being an EDSer, I’ve been ill.

Yes the wonders of EDS, young faces, old hands! ☺️

In my point of view, long may it continue. Aspie me hates the idea of aging. But there are days I look in the mirror and it’s severely disappointing! Aging isn’t nice when when you’re autistic, so sometimes it’s good to have EDS too to slow it down!

Paul Williams, thank you! It’s definitely having its ups and downs.

Wrote that as you signed off before the addendum. It’s remarkable how your face changes when you crash. You look so weary and drawn and your eyebrows knit together 😔 Hope you bounce back tomorrow.

Samuel Krahl haha! Yes, I think I might have had be rescued! That gel definitely was a lifesaver 😂