Correcting the CMT Foot: What You Need to Know
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- Опубліковано 8 вер 2020
- CMT advocate Elizabeth Ouellette interviews renowned orthopedic surgeon Dr. Glenn Pfeffer, the director of the foot and ankle surgery program at Cedars-Sinai in Los Angeles. Dr. Pfeffer has dedicated his life to CMT feet and the people who own them. Surgically correcting the CMT foot, he helps individuals of all ages walk with less discomfort and more stability.
Dr. Pfeffer and his colleagues have just published an informative paper about CMT foot surgery, which includes everything you and your medical team need to know about recommended procedures for CMT feet.
www.cmtausa.org/living-with-c...
I'm going to have foot/ankle surgery for my CMT foot at Duke this spring. Type1a.😮
How do you know if your orthopedic surgeon is familiar with this?
HI MY name is Maricel My Son has CMT tape 2 . and He is lot of pain every day He can't run, jump walk a lite bit is so painful for him the DR We see they don't know too much of a CMT
At 42 & twist my left 3 year ago toe walker too my foot dr say too late for me i use afo for drop feet nerolgy problem too spine shot in cervical & lumbar facet joints numb from waist down for last 4 year then a week later one my pain dr gyncolgest female say may have this & my son just had sugery & us gentic test im wait on them send to primary because i trying get foot sugery so bad cant walk & dr wont give me a chair or scooter in 4 wheal seat walker chair & still fall use that help only 42 !!!
HELLO
I am a Newly diagnosed CMT patient. I feet are looking worse than the ones here. I can not walk the pain is so severe. So severe from the deformities that are soooooo painfully getting more and more. Can you stop this horrible thing? I have just ended in a wheelchair as of today. 7/5/2022
Please 🙄 🙏🙏🙏🙏
I am 69 all my life I never knew what was wrong. Too late 😪
Hi Teresa! We hear you and we are here for you. Email us at info@cmtausa.org to connect with resources near you.
I am Tim mcnulty 64 years old have battled this deformity and disease my whole entire life was a marine a body builder And remained very active and healthy until my sixties all of a sudden overnight I'm almost in a wheelchair as a direct result of Barrack Obama and his afirdabke health care And as I was a small business owner almost my entire life I now cant afford or receive any kind of medical care. I make it through the day by using a surgical boot My hands are so weak I can barely hold anything There has been no help for me anywhere as I have no kids and I'm a single white man I am fighting as hard as I can to stay out of a wheelchair and still have a happy life but the pain is overwhelming every day. I do find it offensive that you giggle and laugh at this extraordinary serious talk back could one of you please offer some solutions where I might get help.
The foot surgery ended my health and my life.
Can you explain what you mean by this?? How can I contact you for more information about your experience?
Hi C Tass, how are you? The surgery I did was a surgery called varizant osteotomy of the calcaneus, to "correct", flat foot. When they saw the bone, as it is a very aggressive procedure, the bone no longer sticks as before. It is not like a fracture, which the bone then glues normally in place. He doesn't let go, but he keeps sliding and sinking with time. They saw pra sawed half the heel bone and put it 1 cm in. This is wrong because the heel is not the cause of the flat foot. He is healthy and in surgery they spoil him. Now as he sank more than 1 cm inward he started to overload all the bones in my body and they started to bend. Mainly, the leg and hip bones. I am in great pain now. These osteotomy surgeries in which they saw the bone and then move it, are a medical error, just as there are errors in any profession. This was the surgery they did on me and I regret it forever, I am much worse than before, I wanted to get my feet back as they were before having this surgery. When they saw the bone, the bone does not stick as it used to, either because the bone cells get weaker, or with less blood supply at the site, or with a bone scar where they saw it. The bone never comes back as it was. And the person ends up with this problem forever. Therefore, these osteotomy surgeries are dangerous and should be prohibited. It puts an end to people's health. In my opinion you should be like this, with your foot flat. Just wear a shoe with a little jump that already gives a good relief. It is normal to have your foot like this. But if you feel pain because of it. It is better to use orthoses or to do physical therapy or to use a bandage on the plantar fascia of the foot, which is the one that bends or flattens the foot more. If it is more elongated, the foot is flatter, and if it is more shortened, because of the strengthening of this region, the foot is more curved. Don't do this surgery, it will end your health and life, just like me. Health is very important and very precious. What I'm going through and suffering every day because of that is enough. A hug.
In addition, I forgot to mention the other comment, like the bone where they move, they put it more inward, the nerves in that region leave the place and also go further inward. Then you just start to feel negative things and you don’t feel good things like the person did before doing that. Both in the environment and in your body, because the nerves leave their original place and sink. And they never go back to normal, unless they go back in place, undoing the surgery. But this surgery cannot be undone, unless the screws are still on your heels and you sit on the floor squatting and force your heel on the floor, so that the heel goes out again. That as the bone doesn’t stick any better and sometimes slips, it will slide out, more to its original place than before. But the bone never sticks right. Without the screws, you can't do that. These osteotomy surgeries are in my opinion a medical error, just as there are errors in other professions. People get worse than before. Be careful. Hugs.
The bone where they saw
or sawed itt remains a bone scar, it is not like a common fracture that later the bone returns to normal and is as before. When sawing it is different. It then doesn't actually come loose or break afterward, but keeps slipping little by little and sinking inward over time. your posture gets all crooked or starts to bend every other bone in your body little by little.