This looks amazing. I was diagnosed with Syringomyelia in 2008. It seems to have been caused by a very similar accident to that which you describe in 1994, but for which I didn't seek any medical assistance. Over the intervening years, it seems, that two Syrinx developed that MRI scans revealed were pushing on the base of my brain, & extended down to my lumbar region. The Neurologist, who has a special interest in Syringomyelia said that I was the most extensive & unusual case in it's history. In 2010 I was operated on with a T1/T2 laminectomy & Hyperplasia. The Syrinx subsequently collapsed, but there has been no improvement in my symptoms & I am still seriously disabled by them. I will be seeing the Neurologist again in a few weeks & shall be asking about this as a possible course of treatment. Thank-you for posting this video - it has given me a hope that had long since been subsumed by the terrible pain & terrible medications that have had me merely existing. Any further advice you might be able to offer would be greatly appreciated. Thank-you again!
I was diagnosed in 2014 with syringomyelia and haven’t found a doctor to help me. Do you know of any doctor that has worked with you to help me and might be out here in Chicago?? Or surrounding Illinois areas
This looks amazing. I was diagnosed with Syringomyelia in 2008. It seems to have been caused by a very similar accident to that which you describe in 1994, but for which I didn't seek any medical assistance. Over the intervening years, it seems, that two Syrinx developed that MRI scans revealed were pushing on the base of my brain, & extended down to my lumbar region. The Neurologist, who has a special interest in Syringomyelia said that I was the most extensive & unusual case in it's history. In 2010 I was operated on with a T1/T2 laminectomy & Hyperplasia. The Syrinx subsequently collapsed, but there has been no improvement in my symptoms & I am still seriously disabled by them. I will be seeing the Neurologist again in a few weeks & shall be asking about this as a possible course of treatment. Thank-you for posting this video - it has given me a hope that had long since been subsumed by the terrible pain & terrible medications that have had me merely existing. Any further advice you might be able to offer would be greatly appreciated. Thank-you again!
SMax how are you doing now?
I was diagnosed in 2014 with syringomyelia and haven’t found a doctor to help me. Do you know of any doctor that has worked with you to help me and might be out here in Chicago?? Or surrounding Illinois areas
Hello- You can find a CBP doctor here: idealspine.com/directory/ The doctors are sorted by certification: either none, basic, or advanced certified.