Dr. Temple Grandin Discusses her Opinion on the RPM?
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- Опубліковано 30 вер 2024
- Dr. Temple Grandin is asked a question about her opinion about the RPM. Tune in to see what she thinks!
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Sensory jumbling does cause movement difficulties mean that a table or easel may be impossible at first. Dr. grandin might have to reassess this immediate independence thing. I can type on an ipad on the table, but it definitely took time. At first, typing on a held letterboard "grounded" me, and helped me regulated my senses a bit, when I couldn't do it along.
So what he ran around and flapped. My grandson does the same when he needs to release excess energy then continues with what he is doing. What are you inferring. You obviously have no patience. RPM works. If it was not for RPM Tito and thousands like him will not be communicating. The government system does not work. My grandson along with thousands of other children are bullied starting at kindergarden because of government protocol. Children end up depressed because the system is not working. Along comes RPM and look how happy the child becomes. Lady. You really need to go around and meet all the children who are doing RPM. Do not criticise them or the family. Have kindness show respect.
There's no scientific proof FC TAUGHT these kids how to talk. For all we know, they might have always been able to do it, but some people like to monetize false hopes to desperate families by selling books, stencils, and movie rights. Unethical, if you ask me.
I am not too sure about this. Why isn't RPM considered evidence-based practice? If you are a consumer of therapeutic services, please read up and research EBP's.
It's not scientifically based YET because it's too new and is still being studied. When you see it in person, there is no doubt, and you wouldn't even question it. It's just too easy to prove that the child is coming up with the responses. It's amazing how we can reach their voice.
My daughter types and writes completely independently - nobody touches the computer, paper or pencil. It's always on the table. My friend's son still needs support of the letter board because he can't physically hold it or write yet, but he is able to say stuff that the therapist knows nothing about. For example, I went with them to a session once, and he mentioned things from the car ride while the therapist was holding the letter board. There was no way the therapist could've known. There are many rpm communities and camps you can visit where the children actually communicate with each other. Their responses are so adorable and funny.
It's healthy to be skeptical, but I think if you give it another 10 years, it'll have the backing you want.
@@balancingfromtheyin-sideou9180 it is healthy to be skeptical, but the consumer of therapeutic services should be well informed that this is not evidence based, meaning, there's no scientific proof this does what it says it does. Why would you gamble your time and money on something that hasn't been proven effective in the scientific community when there's other proven methods? It doesn't make sense to me.... unless you work and get money from RPM. Time is so important... you would risk early intervention with your kid with something that has no empirical evidence? Do you make money off RPM? And as a side note...Facilitated communication has been shown to be harmful to the individual... not just ineffective...
@@IcanSeeMyselfOutThanks @Rapscallion I think personal experience and seeing things that work with your very eyes are much more valuable than what we read - especially since science changes it's stance all the time. It wouldn't make sense to try a therapy like this unless you see the results from other people. It would be foolish to go in blind with anything. I put my daughter in it because of how mindblown i was when i sat in on my friend's son's session. I couldn't believe what he was able to do! I've known that kid since he was 12 and didn't think he had the sort of intellectual thoughts he did. I was really surprised at how he described stuff from the car ride we were in (stuff the facilitator couldn't have known about). He himself encouraged me to get my daughter in. Before that session, RPM never crossed my mind.
My daughter is now in it and LOVES it. She is higher functioning so she doesn't need someone to hold the board. She is also able to just type her thoughts. I've gotten to know her and am seeing her express herself in a way that I never would've thought possible. She does both RPM and ABA therapy now and likes RPM more. ABA therapy which is considered scientifically backed, started out the same way. They took about 30 years of fighting in court to be considered scientifically proven. The barely got that status. RPM is much younger than that and is getting the evidence now. I honestly think RPM is going to show the world an amazing side of autism it's never seen given another 10-20 years. Of course people have to know it's not scientifically backed now, but i think if you see kids who once couldn't express themselves, finally start to express themselves from this very therapy, it's worth a try just based on other's experience. I would never suggest someone do it unless they sit in on a session or see some real life (not internet or books) before and after results.
@@balancingfromtheyin-sideou9180 I see what you're saying... but facilitated communication and RPM have been scientifically shown not only to be ineffective, but harmful long term. It's called pseudoscience for a reason, there's no scientific proof it actually does what it claims. Science has not been able to say that, for a fact, RPM or FC was the reason a kid started to communicate, and not one of the thousands of other environmental or extraneous variables. For all you know, something else contributed to the results you see today. That book "Why I jump" or the reason I jump? Not the authors ideas, it was the ideas of the facilitator. Sounds like your daughter already had the skills in her repertoire, it wasn't RPM that gave her those skills. I just want consumers of therapeutic services to be well informed, not trying to be a jerk.
@@balancingfromtheyin-sideou9180 also...a red flag for pseudoscience is that the only backing the intervention has is testimonials from people. I don't see any science behind doing the behavior for the speaker, it's not their thoughts. You are speaking for them. It's not independent communication. It would be one thing to say that there's not enough studies for RPM... but there's studies that show it's not just ineffective, but harmful and a waste of time and money.
Good
I respect Temple, but this is wrong and disgraceful on so many levels.. RPM does work. My grandson had the expressive and receptive speech of a two year old and for 12 years he did kindergarten work. He had 3 RPM sessions and could communicate. We just finished the book To Kill A Mockingbird, and using a teachers question booklet, I let him read and answer the questions, without my knowing them. We have cards he reads and gives answers to without us able to guess the answers or facilitate or manipulate the letter board. He is not “cured”, and yes flaps and stems. So what? He did anyway when he wasn’t communicating. I am not sure what you meant by that comment. He believes all non-verbal Autistic people could communicate with this. He says (with the letter board) that he was able to read at a very young age and that he was unable to do simple commands because his body would not do what his brain said to do. He also is unable to control verbal stems and flapping. There is absolutely no science to back up your opinion (unless you go on the internet and read articles written by “scientists” who also have no science to back up their ideas.) It is tedious and slow for the child at first, but becomes faster, then we will move on to typing. Some children have difficulty with eye movement control, or rerouting pathways in their brain to achieve the hand-eye coordination necessary to touch the correct letters, but it comes. I think it is disgraceful for someone paid to give lectures and advice that may prevent thousands and thousands and thousands of people to be locked in a shell for a lifetime, their hopes, desires, dreams and potential never realized. If I were you Temple, I would discuss only things you know. Watching a few people to form your opinion is hardly worth discussing.
Don't be so quick to criticize. The problem with RPM is that it's possible for the facilitator's thoughts to override the actual autistic person's thoughts. This is dangerous and something that care should be taken to make sure it's not happening. Otherwise a technique meant to allow autistic people to communicate could end up silencing their actual communication abilities.
Whether the facilitator is unduly influencing the message can be easily tested by blindfolding the facilitator holding the card or tablet and having another person read off the letters the autistic person points to. Everyone using this method SHOULD run tests like this to make sure the autistic person is genuinely able to express their thoughts.
This is amazing!! Who is the teacher?
RPM is not considered evidence-based practice....meaning there is little, if any, scientific research showing this procedure to do what it claims to do. Do not waste your time and money
@@pardonmyfrench4760 have you ever tried it? Lots of free resources to start and we have had a great time using it to help our son
@@JenniferAnnMcCaffrey I would love to check it out any information you have.
The thing is, FC is not considered an evidence-based procedure. This means there is little, if any, scientific research/evidence in support of it.
When I watch this video, I see the learners not even attending to the keyboard at times. What is going on here? It's just the prompter spelling out what the prompter wants the individual to say. Do these individuals know how to spell? Do they have intraverbal skills to converse back and forth? We don't know. I'm just watching someone physically prompt a person to type while the learner is looking up in the air.
What is this supposed to do? If the individual can really do the behavior independently, tell the prompter to step back and see what happens.
I am against pseudoscientific "therapies" which prey on the hopes of vulnerable families, wasting time and money in the process.
I will look at whatever info you can send me, but I would like for you to research EBP for autism...google it, whatever. There are so many therapies proven by science to actually help, not give the consumer false hope.
I guarantee you will not find FC or RPM on the EBP list.
I don't see how it's any of Temple Grandin's business if RPM works or not.... Kids love it, and benefit from it.
But science shows that kids DON'T benefit from it, rather, it harms them. I think you just don't like the method you love be dashed to pieces by experts and professionals. Keep believing your kid is communicating, but think about what will happen in the future when you are no longer around.
@@pardonmyfrench4760Yep. It is facilitated communication all over again, plain and simple.
ISNT RPM used to make the child type independently???
Every achievement starts with first step. If we have to dig out the talent buried under the dust we need to help them by promoting is it?
Sensory jumble is for the individual to figure out how to solve the maze and come out. As parents and outsiders we can facilitate and support them using these instruments to dig them out of the dust.
And please stop inferring the families are writing the books. You are so negative. Holly cow. Do not touch. How behind in times you are. Tito wrote the book. Are you trying to say. His mother wrote what he was feeling. Please. Ask Tito now. He is an adult. He will clearly tell you he wrote the book and what his feelings are. Come on. Appendices. Too over the top. Just let a child enjoy writing a book. Telling there story without all the bells and whistles that are unecessary
I think what she is saying is that if you watch in literally every RPM video, the prompter is moving the stencil around and throwing the stencil right in the learner's face. Shouldn't the learner be able to initiate themselves? How is this teaching independent communication if the kid can only respond when an adult pushes a stencil in their face? Put the stencil down and see what happens. If they can point to letters on a stencil, give them a keyboard or something and let them go to town...they obviously have the skills to spell out sentences and answer complex questions.
@@pardonmyfrench4760 Have you not seen any of Tito's videos? He's definitely typing and writing things by himself. No one was telling him what to write. Guiding the learner's with the stencil is only a first step to get them out of their sensory jumble. After that the prompts will be faded and he or she will be able to produce their original thoughts.
@@gregorylane5475 where are the videos of tito independently initiating and conversing with others? Did I miss it?
@@gregorylane5475 I would be interested in seeing that as well
@@pardonmyfrench4760 you obviously know very little about autistic kids' brain for you to be questioning these questions. In kids with autism, there's a brain and body disconnect. What comes out of their mouth (if theyre verbal) may not necessarily be what they have in mind. The task of an RPM provider is to connect those two by building up their skills. So no, kids who just start RPM may not automatically able to answer complex questions in the letter board. They have to learn to reason first, then they have to have the motor skills to point to the stencils and if possible later to type. Reasoning takes time and effort to learn, and there are multi steps in it. Just like you won't expect a non verbal child who just starts ABA to be able to answer why, where, how, who questions or have conversations, kids who just started RPM will need to the tools to be able to elaborate their thoughts. A good RPM provider should be able to build upon the skills that are needed for them to achieve independent communication.
Dr. Grandin fooled...I didn't think it was possible!
RPM is a scam. Not an evidence based procedure
RPM has been identified as a scam