Lung transplantation and Cystic Fibrosis

In this new informative capsule on #CysticFibrosis we are joined by Dr. Amparo Solé, from the Transplant and Cystic Fibrosis Unit at La Fe Hospital in Valencia and to whom we awarded the Rosa del Mar 2022 award.
On this occasion we talked about the importance of taking good care of ourselves to avoid having to undergo a transplant or, if we do, to be in the best possible shape to be able to face the recovery.
Dr. Solé talks about the challenges faced by teams of professionals who perform transplants. The most important is knowing the right time to enter the transplant program.
It is important to keep up with advances in treatment and to consider the scenarios that may arise with the new modulators. People taking these new modulators still have bronchiectasis and this can be a reason to end up in a transplant.
Another challenge is the management of multidrug-resistant infections and nutritional status.
One of the things that most worries Dr. Solé is that people taking the new modulators, having changed the risk factors, may not perceive the severity in the same way and may have the problem of missing the transplant train.
At La Fe Hospital in Valencia, people with low lung function are followed more closely and monitored more closely for infections. This is because people who had been taken off the transplant waiting list, thanks to the new modulators, have had to re-enter because they had neglected their treatment.
Therefore, the advice is not to relax with respiratory physiotherapy even when taking Kaftrio. It is necessary to continue the treatment in order to continue as well.
On the other hand, nutrition is very important in the transplantation process. Muscles must be well nourished and in good condition to make the new lungs work and overcome the post-transplant with guarantees.
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