Hey mate, Just found your channel! really interesting stuff! I've been on Kaftrio for 4 weeks now. I just watched your video where you spoke about the Cyst issues you were having, I've had some similar issues.. I was wondering if you had any updates on whether or not the Cysts shrunk in size when your salt levels evened back out? Is there any connection to kaftrio or just coincidence. Thanks for the content! it's nice watching where this drug can potentially take me.
Hello, thanks for watching. My Cyst continues to grow - I've not discussed whether it is Kaftrio causing it any further as it's just not proven. Funnily enough I went to see the specialist to get it booked in for removal today. I'm going through IVF so it makes it a bit of an issue but I will have it surgically removed in time. It might not apply to everyone but mines just continued to grow!
So true Chris! Loved this video. I can't imagine going back to my old life
Well said mate. Great video well explained!
100% mate! I'm the same with Kaftrio. Glad you're doing well and enjoying life! All the best bro.
Hey mate, Just found your channel! really interesting stuff! I've been on Kaftrio for 4 weeks now. I just watched your video where you spoke about the Cyst issues you were having, I've had some similar issues.. I was wondering if you had any updates on whether or not the Cysts shrunk in size when your salt levels evened back out? Is there any connection to kaftrio or just coincidence.
Thanks for the content! it's nice watching where this drug can potentially take me.
Hello, thanks for watching. My Cyst continues to grow - I've not discussed whether it is Kaftrio causing it any further as it's just not proven. Funnily enough I went to see the specialist to get it booked in for removal today. I'm going through IVF so it makes it a bit of an issue but I will have it surgically removed in time. It might not apply to everyone but mines just continued to grow!
@@ChrisVSCysticFibrosis Thanks for the update mate, guess I’ll wait and see what happens in that case. Best of luck with IVF 👍
not wearing pants must have been cold when you were outside in the winter ...