So You’ve Just Been Diagnosed with Lupus

So you’ve just been diagnosed with lupus and you’re looking for more information. This educational webinar was created for you by graduate students in the University of Toronto’s Medical Genomics Program.
We hope we’re able to answer some of your general questions about lupus (e.g., autoimmune
diseases, similar diseases, and lupus symptoms) and medication options your health care provider may offer you to treat your symptoms (e.g., antimalarials, steroids, non-steroidal anti-inflammatory drugs, immunosuppressants, and monoclonal antibodies). We will also go over an interesting research study completed in 2022 that may become a treatment option for you in the near future!
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LUPUS RESOURCES:
Lupus Canada: www.lupuscanada.org/
Lupus Foundation of America: www.lupus.org/
Lupus Research Alliance: www.lupusresearch.org/
The Autoimmune Association: autoimmune.org/
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INFORMATION REFERENCES:
Lupus Basics: www.cdc.gov/lupus/basics/
Lupus Treatment: www.cdc.gov/lupus/basics/diag...
Autoimmune Disease: www.niehs.nih.gov/health/topi...
Autoimmunity: www.ncbi.nlm.nih.gov/books/NB...
Lupus Statistics: pubmed.ncbi.nlm.nih.gov/19136... and
www.lupus.org/resources/lupus...
Medications to Treat Lupus: www.lupuscanada.org/resources...
medications and www.lupus.org/resources/medic...
CAR T-Cell Therapy 2022 Research Study Article: rdcu.be/c0qGe
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MUSIC:
Cory Alstad:
Music from Uppbeat
uppbeat.io/t/cory-alstad/nowh...
License code: OYUXOAZDEKSHPAJC
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IMAGES:
Images from Canva Pro, bioicons.com and icons8.com
In order of appearance:
Tendonitis by Servier smart.servier.com/ is licensed under CC-BY 3.0 Unported
creativecommons.org/licenses/...
Rheumatoid Arthritis by Servier smart.servier.com/ is licensed under CC-BY 3.0 Unported creativecommons.org/licenses/...
Fever icon by Icons8 acidophil-erythroblast icon by Servier smart.servier.com/ is licensed under CC-BY 3.0 Unported creativecommons.org/licenses/... was modified with text, colours, and remixed with the antibody-8 icon by Servier smart.servier.com/ is licensed under CC-BY 3.0 Unported creativecommons.org/licenses/... was modified with changes in colours, used stand alone and remixed with the acidophil-erythroblast icon
SARS-CoV-2 icon by Hanna Vega book.bionumbers.org/ is licensed under CC-BY SA 4.0
creativecommons.org/licenses/...
96_well_plate_cells icon by Marcel Tisch / marceltisch is licensed under CC0 creativecommons.org/publicdom...
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License: Attribution-ShareAlike 4.0 International (CC-BY SA 4.0)

[@kenkwm]

Very helpful info - thank you.

[@lindawalls1568]

I was diagnosed about 6 years ago have been on several different medications and there is so many side affects, it's not worth it all that medication made me feel worse than try he disease

[@sneharahman4433]

Is there anyone who will help me?
My ANA is negative, anti ds dna, crp, protein in urine is all normal.creatinine in blood also normal.but i have anemia,platelets and WBC are normal.Hb is 10.66.but i have low grade fever,knee pain(not so much high), i take calcium for 2 months but it is not totally cured.But the pain is little bit lessen.but recently i also feel the pain on my left hand joint.i have no rashes in my body,no sunlight related problem.But when it is winter i can see red spot on my leg,in summer the red spot becomes vanished.Doctor said i have no lupus.but I'm little bit worried about that.My ESR level is 33.😢😢😢

[@Stonewoods]

I would recommend looking up the SLICC criteria, there are a lot of online resources you can review. Do the test and be empowered with information to present to your physician. Good luck and blessings, it is tough being told “there is nothing wrong with you” when you know your body and what is not right.
Addit: get your ANA tested when you are not feeling great. Same happened to me, I had negative, then 1:160 and a further 1:640. A negative does not mean no autoimmune, it can just be a seronegative arthritis

[@sneharahman4433]

@@Stonewoods i will go to hospital tomorrow. Only Ssb is positive. But no sjogren syndrome symptoms are seen.i Don't know what will happen to me.pray for me😥😥