Thank you for this video. My infant son has been diagnosed with alagille syndrome. It video doesn't try to scare you and has clear infomercial for someone that is just learning. I just want my son to be able to take care of himself after I am gone.
I have this disease, It really sucks having to take so much medicine every day but im happy because mine is more mild, however i do have Itching without taking my medicine. I hope that medical science advances more so they can grow people new organs so they can function normally.
Sou tia de uma menina linda e essa semana fomos informados que ela é portadora da síndrome de alagille, como faço para participar de grupos de WhatsApp? Obrigada
I an Ethiopian citizn and My baby has identified as he has Alagille syndrome by Manipal hospital in India ,who can help me to provide these comprehensive treatments ?
Thank you for this video. My infant son has been diagnosed with alagille syndrome. It video doesn't try to scare you and has clear infomercial for someone that is just learning. I just want my son to be able to take care of himself after I am gone.
Glad it was helpful! 🙏🏼
كيف هو حال طفلك الان ؟
He is doing great, he loves to eat and play with his toys. I can't believe how good he is doing..
@@hollywoodjkw
الحمدلله 🥺🥺🥹
كيف نموه وتطوره العقلي هل متوافق مع عمره ام لا ؟
شخص ابن اختي بهذه المتلازمة عمره شهرين فقط ونحن في خوف وحيرة من امرنا 😪
@@roofa7149 I'm sorry but it's not translating into English and I can't copy and paste..
That was beyond perfect thank you Osmosis and NORD!
I have this disease, It really sucks having to take so much medicine every day but im happy because mine is more mild, however i do have Itching without taking my medicine. I hope that medical science advances more so they can grow people new organs so they can function normally.
Great video thank you!
Glad you liked it! ❤️
i came here because i want to learn more about rosie ( acacia's daughter), poor rosie.. neglected by her mom
who is that
Sou tia de uma menina linda e essa semana fomos informados que ela é portadora da síndrome de alagille, como faço para participar de grupos de WhatsApp? Obrigada
Can it also cause partially silver hair?
Amazing 👍✨ Crystal clear and to the point 😇😊 Thank You Osmosis ❤
Por favor ayúdenme no se ingles y necesitobtanta información
I an Ethiopian citizn and My baby has identified as he has Alagille syndrome by Manipal hospital in India ,who can help me to provide these comprehensive treatments ?
اخي كيف هو حال ابنك الان وكم عمره كيف وضعه الصحي والعقلي ونموه ؟
طفلنا يعاني من هذه المتلازمة ونحن نجهلها 😢
thank u soo much
Happy to help 🤓🩺 🙌🏼
Thanks alot
Welcome a bunch! 👍🏼💯⭐️
My guess this due to smoking or consuming alcohol during pregnancy
No its a random mutation, I actually have this disorder and have spoken to the doctors who have helped me they say the same thing.