My goodness dad you are hands on and so great with her. Alyssa’s needs aren’t as much as Raelynn but bath time is hard for this single mom. She is so pretty and clean. I hope she feels better soon. Dang seizures.
I Luv How it looks likes she wuzz try'n to help move her Arms When Ya's Put her in Her in her Chair just before School🥰 That's so Awesome Raylynn, Keep-Up the Awesome Job Beautiful Young Lady🩷 You are doing Great at Try'n to Help Mommy-n-Ðaddy when they Move You🩷🥰💋
@@HopeAndSunshine I used to have them pretty bad now they are controlled by meds in one video that I watched of yours you touched on CBD oil. Do you have a link
She must be very tired after that seizure. She seemed in pain in the begining of it. So sad may God be with you all especially with reaylnn such an innocent Angel 😘💕
Nice to see Raelynn’s shower routine, the space heater and towel warmer are wonderful 🌞❤️ Just seeing her teacher for a bit is probably good for Raelynn, even without doing any schoolwork. It must have been a day mostly of seizures and resting. “It’s said”🧐 that the action of facial muscles smiling, even if forced, will produce a positive physiological effect. Hope maybe that’s the case for Raelynn. Aww, Inalmost drifted off too, watching Raelynn drift off 💤 💙
My son has a girlfriend with a child just like your daughter she also has seizures but not so strong like Raelynn she’s a child of God and I when I see her I hug her and I kiss her and I hold her tight in my arms and I would like to do that to your daughter give her all the hugs and the kisses you’re such great parents dad you are so terrific with your daughter God bless all of you my prayers are with your precious Raelymn
I don't think it actually works at all, but it's just a way of sympathizing with her. Although, I know of at least two others who have seizures who try to tell their seizures to "go away" as they are having them.
@@HopeAndSunshine When I'm post ictal, I talk out loud about what I need, what I want, etc, even though I'm usually by myself. I've finally trained myself to have Alexa call someone. Major achievement ! You are a great dad.
I hope the next time Raelynn has school she has a better day learning! Bless her heart going a full day without seizures yesterday and having to go through 5 seizures today
Omg my mother has epilepsy so I know how it feels like and I hope she’s okay and your a very kind dad too her and you love her so much and your such a caring dad I bet she loves you 😇🥰🥰
Her seizure really upset me! What about if she is saying, "I can not take this anymore!" We do not know her thoughts! I panic for her! The pain! Torture! Too much! Something seems so inhumane!
Seizures are definitely a difficult part of her life, but she's also a beautiful member of our family. We all have struggled. Fortunately, her VNS has recently helped her seizures significantly, and she hasn't had any tonic clonic seizures in over a week. ❤️
She is beautiful! I just had trouble feeling for her! I am glad to hear, that the seizures are not as much! I hope they continue to dwindle. I still am, panicking for her. 😨
I know in one video you mentioned she has rescue clonazepam. How many seizures does she typically have before that’s administered. I would probably over medicate if I saw my child seizing! You are all amazing!!
Thanks! You're so kind. We give it to her if she has three or four seizures within an hour or two. Without it, she will typically continue to have more and more all day long.
I’m sorry I just have a little question!I was wondering why raelynn always has an oily face?Also I think you are doing great and making people aware about serious medical disabilities that you can help them live their live to the fullest but they just need that little extra help!I think you and you family (including raelynn) are truly inspirational!!Best wishes to you all!
First off hi 👋 from my family to yours , that was super hard to,watch even as a stranger I cannot imagine how hard it is to watch her in so much discomfort, you have a beautiful family , thanks for sharing your life with us 💕
Aww she has school bless her. Her face when mum brush her hair imagine her for a second being a usual 8bor 9 year old saying mum don't pull lol. Sorry to see you seizing you will help lots of people sharing it though. Lots of love always to you lil girli brothers and sisters and mum and dad
My BC Tess let me know when my glucose was too dangerously high or low before my dr. diagnosed me. One of her sons became a service dog for a young girl with CP and Epilepsy. Maxwell Smart-also a BC- predicted her seizures. I told her he was smarter than his namesake and her mother agreed.
She makes a certain noise when she's about to have a seizure. Kind of like a gasping for air. We are very used to listening for that noise all the time.
Ours came with the rolling stand. It sure is helpful for our backs! We thought we'd use it to roll her from her room to the bathroom and back, but we forgot her shower has a small lip, so we couldn't just roll into it with her on the chair. Plus, rolling back to her room would leave a water trail. 😂 We learn as we go!
Since I am blind, I have no idea what visual signs I display. Usually, I will feel them happening. I Also, the Carolina dog lets me with advance warning.
I think it's normal for her sometimes right to smile after her seizure I don't want to sound mean or weird or anything but it can to me seem a little creepy when she smiles after her seizures only because like you have a bad seizure and then all of a sudden you're smiling and it's like it's like one of those things that just never happens seizures can be confusing at times a real again and I of course love to see that smile more Smile as is always the best and sorry if I sound like weird talking about how she smiles after seizures but I don't know if my opinion like I don't know I don't do it I don't know many people do it so I was just under the statement of like more like a misunderstanding
I just don’t want her getting sick 🤢 because she’s sick 🤧 she has no choice else to go home 🏠 with him she doesn’t want her home I don’t know 🤷 it’s not fair for me to go out with you if she has any issues with me or anything like that and I’m sorry 😞 but you know what you do you know how to deal I just can’t understand why you’re going through this with a
I think 🤔 I’m going back and reading this again and again now I think what type and what it looks like 👍 thanks 🤩 for eee and for sharing the link to the article about how it works and what you do with it and how it wears you out and how you feel www and how much of it weighs down and how weight changes and how you look in your life so that way I ewe remember we’re ewwoi we and not a person that doesn’t have to be on earth 🌍 to be in our world 🌍 anymore ether and we don’t want
Is it frend,suffer for inocent that u and i see as gather because of suffer witness every day,nite,our job witch Proud of,reach,and why?faith true we have,job 4 real?How are your technique,perseverance witch my and i do,day,today basis when little one gets best suply,smart she is! Also tourrettets snyndrome,cussis us and we sustain because she is love instead,really hardesed that i have ever seen!WHAT CAN WE DO!!!!!!!!!@@@@
She has school?What for? Just wasting resources . She will always be like this. There is no cure for cerebral palsy. I know you want to make her better but ............
She is a beautiful girl and I pray that realynn has an amazing day and please tell her that she is my favorite UA-camr 😊💚
My goodness dad you are hands on and so great with her. Alyssa’s needs aren’t as much as Raelynn but bath time is hard for this single mom. She is so pretty and clean. I hope she feels better soon. Dang seizures.
Yes, my wife and I make a great team. Abby does all the poopy diapers, and I do all the heavy lifting. 🤣 You're doing a great job, mom!
Thank you. You guys have a plan then. Lol! No poops for dad!
There''s, has to be, therapy for
Seizures!!
@@HopeAndSunshineI have epilepsy seizures too
@@HopeAndSunshine and can you try to give me a shout out
Awesome job 👍 bless 🙏🙏 y'all 😊
This is no way for this poor child to live. She's in constant pain. I pray that God will soon take her into His arms to stop the awful suffering.
She has these seizures everyday, but she is not in constant pain thankfully.
I Luv How it looks likes she wuzz try'n to help move her Arms When Ya's Put her in Her in her Chair just before School🥰 That's so Awesome Raylynn, Keep-Up the Awesome Job Beautiful Young Lady🩷 You are doing Great at Try'n to Help Mommy-n-Ðaddy when they Move You🩷🥰💋
Hi Raelynn! I’m sorry that you have serious seizures. You have a nice dad who there with you to help you out! 😊
We're grateful for her ❤️
@HopeAndSunshine I love raelynn she is so beautiful I love the way she smiled
Just know daddy is there is a comfort to her and that makes her happy
I think she does ❤️
@@HopeAndSunshine I used to have seizures I have spina bifida. Now I’m seizure free it’s been over a year I’m 32
@@whitneypritchard6292 That's awesome that you haven't had any seizures for that long!
@@HopeAndSunshine I used to have them pretty bad now they are controlled by meds in one video that I watched of yours you touched on CBD oil. Do you have a link
Here's one video where I talk about it and how it helps Raelynn. ua-cam.com/video/b5tXFfBUCvI/v-deo.html
I’m sorry to see that little girl suffering. Parents do a great job though. Kudos
We're grateful to have her in our family to take care of her
Aw bless her it luks like te end was a hapy part. Hope she feels beta soon. Love & hugz 2 uz all x
We definitely prefer when she smiles! ❤️
She must be very tired after that seizure. She seemed in pain in the begining of it. So sad may God be with you all especially with reaylnn such an innocent Angel 😘💕
Thank you! Yes, I think the beginning of it was very difficult. But I'm glad she was able to rest afterward. God bless!
Beautiful girl and lovely name too! God bless you all!
Thanks so much!!
Nice to see Raelynn’s shower routine, the space heater and towel warmer are wonderful 🌞❤️ Just seeing her teacher for a bit is probably good for Raelynn, even without doing any schoolwork. It must have been a day mostly of seizures and resting. “It’s said”🧐 that the action of facial muscles smiling, even if forced, will produce a positive physiological effect. Hope maybe that’s the case for Raelynn. Aww, Inalmost drifted off too, watching Raelynn drift off 💤 💙
Lol, as much as I don't envy her seizures, sometimes I wish I could fall asleep that fast!
@@HopeAndSunshine ffghjj
My son has a girlfriend with a child just like your daughter she also has seizures but not so strong like Raelynn she’s a child of God and I when I see her I hug her and I kiss her and I hold her tight in my arms and I would like to do that to your daughter give her all the hugs and the kisses you’re such great parents dad you are so terrific with your daughter God bless all of you my prayers are with your precious Raelymn
Thank you so much. God bless you and your family!
I like how you tell her to tell the seizure to go away. I'm going to try that when I have my next seizure.
I don't think it actually works at all, but it's just a way of sympathizing with her. Although, I know of at least two others who have seizures who try to tell their seizures to "go away" as they are having them.
@@HopeAndSunshine When I'm post ictal, I talk out loud about what I need, what I want, etc, even though I'm usually by myself. I've finally trained myself to have Alexa call someone. Major achievement ! You are a great dad.
Wow, that's amazing!!!
I hope the next time Raelynn has school she has a better day learning! Bless her heart going a full day without seizures yesterday and having to go through 5 seizures today
Yeah, it wasn't a great day for seizures. She will have school today, hopefully it's better!
Omg my mother has epilepsy so I know how it feels like and I hope she’s okay and your a very kind dad too her and you love her so much and your such a caring dad I bet she loves you 😇🥰🥰
She's a huge blessing to us ❤️
Her seizure really upset me! What about if she is saying, "I can not take this anymore!" We do not know her thoughts! I panic for her! The pain! Torture! Too much! Something seems so inhumane!
Seizures are definitely a difficult part of her life, but she's also a beautiful member of our family. We all have struggled. Fortunately, her VNS has recently helped her seizures significantly, and she hasn't had any tonic clonic seizures in over a week. ❤️
She is beautiful! I just had trouble feeling for her! I am glad to hear, that the seizures are not as much! I hope they continue to dwindle. I still am, panicking for her. 😨
Good morning RaeLynn a great big hug and a big kiss just for you Love your friend Annie wall
{{hugs}}
I know in one video you mentioned she has rescue clonazepam. How many seizures does she typically have before that’s administered. I would probably over medicate if I saw my child seizing! You are all amazing!!
Thanks! You're so kind. We give it to her if she has three or four seizures within an hour or two. Without it, she will typically continue to have more and more all day long.
I’m sorry I just have a little question!I was wondering why raelynn always has an oily face?Also I think you are doing great and making people aware about serious medical disabilities that you can help them live their live to the fullest but they just need that little extra help!I think you and you family (including raelynn) are truly inspirational!!Best wishes to you all!
Her oily face is probably either genetic, or side effect from a med. It doesn't get quite as oily anymore
First off hi 👋 from my family to yours , that was super hard to,watch even as a stranger I cannot imagine how hard it is to watch her in so much discomfort, you have a beautiful family , thanks for sharing your life with us 💕
Thank you, blessings to you!
m
Praying that she has better days. Reaylnn is so sweet!!
Thank you!
Does Raelynn always need changing after she has a seizure?
No, only sometimes
Good morning. Sending hugs
Thanks!
i know how that is dealing with the seizures. I have them daily and the meds take away some of them. Praying for you all
Thanks. Hope you're doing well 🙏
Aww she has school bless her. Her face when mum brush her hair imagine her for a second being a usual 8bor 9 year old saying mum don't pull lol. Sorry to see you seizing you will help lots of people sharing it though. Lots of love always to you lil girli brothers and sisters and mum and dad
Yes, she's finally feeling well enough to have school again. She generally likes it, but sometimes she pretends she's asleep! 🤣
@@HopeAndSunshine ha ha that's hillarious!!! Lmao
Hope she have a good day and hope she feels better from the seizure
Thanks!
@@HopeAndSunshine your welcome
I have the same seizures and I don’t notice any change of words I’m coming out of that looks like everybody’s different rate I love you Raelynn
Hope you're doing ok
My BC Tess let me know when my glucose was too dangerously high or low before my dr. diagnosed me. One of her sons became a service dog for a young girl with CP and Epilepsy. Maxwell Smart-also a BC- predicted her seizures. I told her he was smarter than his namesake and her mother agreed.
im lucky i only had syncop i really feel for you guys hope she gets better
Glad to hear you've only had one. 👍❤️
She went to school. She looks happy! What's the name of the school?
It's our local public school. They send a teacher to our home.
@@HopeAndSunshine wow good her good studying~
Epilepsy is so hard to live with I am so sorry 🥺❤️
It's ok! It's just part of life for her. She's a beautiful part of our family! 🥰
@@HopeAndSunshine Very beautiful ❤️
Thank you!
I had a seizure before now I'm 200 days seizure free hopefully she gets seizure free
She's been having a lot less lately ❤️
Love ❤️ 😍 💖
How do you know that she is having a seizure when you are in a different room? Also are there signs that let you know. She is fixing to how a seizure?
She makes a certain noise when she's about to have a seizure. Kind of like a gasping for air. We are very used to listening for that noise all the time.
So beautiful
Thank you ❤️
She's home schooled?
Kind of. She's homebound, so her teacher comes to our house from the public school.
Can raelynn mouth be closed?
Yes, but she most often has it open.
I love your videos. I have just find out I have seizures in my brain
Sorry to hear that. Praying you find an effective treatment.
@@HopeAndSunshine they have me on keppra
Does it help?
Type of seizure: generalized tonic, with postictal transition
Wow, really? Thanks for letting me know!
Omg is she ok
Yes, she's doing fine.
How do I find a pharmacy photo of gabapentin on Google?
Why would you need a pharmacy photo of it? If you need a refill of your prescription, talk with your doctor.
What grade is she she looks like she is 5th grade
She's in the 4th grade
What age is u daghter
She's 9
Maaaan, we need them legs that are on the bath chair. We have the same chair though!
Ours came with the rolling stand. It sure is helpful for our backs! We thought we'd use it to roll her from her room to the bathroom and back, but we forgot her shower has a small lip, so we couldn't just roll into it with her on the chair. Plus, rolling back to her room would leave a water trail. 😂 We learn as we go!
@@HopeAndSunshine We do indeed!
I just found your channel. I also have a very special little girl ❤️
Yes, you do! Your kids are cute! 😁
Since I am blind, I have no idea what visual signs I display.
Usually, I will feel them happening.
I Also, the Carolina dog lets me with advance warning.
Glad you have a dog to give you that warning. How long before you have the seizure does it warn you?
Fight pretty girl fight ❤️
She's a fighter 💪
Hello cutie girl ❤️
Iloveyou somuch miss you
I think it's normal for her sometimes right to smile after her seizure I don't want to sound mean or weird or anything but it can to me seem a little creepy when she smiles after her seizures only because like you have a bad seizure and then all of a sudden you're smiling and it's like it's like one of those things that just never happens seizures can be confusing at times a real again and I of course love to see that smile more Smile as is always the best and sorry if I sound like weird talking about how she smiles after seizures but I don't know if my opinion like I don't know I don't do it I don't know many people do it so I was just under the statement of like more like a misunderstanding
I totally know what you mean. It is odd to smile after a seizure. But I'm glad she does :)
Првет милаярэллиннятваикосищезатемкаю
Залезунаплечи❤😊😁
Hello how are you all doing
We're doing a lot better now. How are you?
@@HopeAndSunshine we are recovering from the flu and getting ready for Christmas
I just don’t want her getting sick 🤢 because she’s sick 🤧 she has no choice else to go home 🏠 with him she doesn’t want her home I don’t know 🤷 it’s not fair for me to go out with you if she has any issues with me or anything like that and I’m sorry 😞 but you know what you do you know how to deal I just can’t understand why you’re going through this with a
She's doing ok now
I think 🤔 I’m going back and reading this again and again now I think what type and what it looks like 👍 thanks 🤩 for eee and for sharing the link to the article about how it works and what you do with it and how it wears you out and how you feel www and how much of it weighs down and how weight changes and how you look in your life so that way I ewe remember we’re ewwoi we and not a person that doesn’t have to be on earth 🌍 to be in our world 🌍 anymore ether and we don’t want
Me to I was fucked up
Hope you're doing ok.
Wow
She's doing ok now
I hate serizures I never have one if I did that be scary and I meant there seizure medicine will help seizures.
Yes, they are scary, but she gets through them 👍
Just like the Nazis, huh? Eugenics-"kill off the imperfects".
Hadn't thought about it like that.
PFFFFFFFFFFFFFFFFFFFFT-
Hmm?
Is it frend,suffer for inocent that u and i see as gather because of suffer witness every day,nite,our job witch Proud of,reach,and why?faith true we have,job 4 real?How are your technique,perseverance witch my and i do,day,today basis when little one gets best suply,smart she is! Also tourrettets snyndrome,cussis us and we sustain because she is love instead,really hardesed that i have ever seen!WHAT CAN WE DO!!!!!!!!!@@@@
Just continue to be her loving parents. That's what God does for us. He loves us all the time. ❤️
She has school?What for? Just wasting resources . She will always be like this. There is no cure for cerebral palsy. I know you want to make her better but ............
Are you saying no one with cerebral palsy should be in school?
@@HopeAndSunshine Yes. Only taking up resources with no result.
So are you saying no one with cerebral palsy contributes anything to society?
@@HopeAndSunshine What? Just name one thing.
@@HopeAndSunshine Tell me one thing.
Is it really fair to video her seizures.?. Poor girl.
Our videos help people identify what seizures look like, and help people going through similar things.
She can’t talk she can’t speak
Erŕtty