as someone who list my sight only a year ago, I've found that being around other VIP's really helps me. It's one of the only times I feel "normal" again. It's a good way to beat the isolation and they all just get me. It's a good idea to look for local charity groups that may have coffee mornings. In my case it was my mum that forced me to go to one as I was very depressed and just knowing that I am around people that are or have gone through similar experiences really helps.
Thank you! I've been dealing with legally blindness for five years and complete blindness in my left eye . I have my ups and downs but just deal with it the best way I can.
I was born with primary congenital glaucoma but they didn't find out that I had it until I was three years old so in the first three years of my life. I've lost quite a bit of sight and at the age of 18 the glaucoma took the sight in my left eye completely I am now 35 years old and still deal with all of those feelings even now for the most part I am okay but I still have those days just like you said I often think what life will be like when I completely lose my sight but I guess it'll be much like it is now I will just get up and leave each day to its fullest I'll just cherish the little bit of sight I have now though it is dwindling and again I know I've told you this before I just want to thank you for your videos they are so uplifting and helpful so Keep On Keepin On😊😊😊
Thanks for all your good advice, some of it comes in handy. I have come to terms with a lot of changes in my life, although I am visually impaired & not completely blind, I still have bad days, and it's comforting to know I'm not on my own! Thanks again 😊
I’ve been losing my sight due to keratoconus. I’m an academic and it’s unnerving thinking of all the ways my job has gotten harder. You said it- I’m angry and sad.
I definitely understand what you mean. And thank you for sharing that you are angry and sad. So important to share what we are dealing with. I'm sure there are things that can help you accommodate different things, but it's first important to face the hard things we feel. Thanks for the comment!
We all in this position have those days and we need to own those feelings, but coming back to the reality of our life to make the best of what we have and be grateful.
Hi Derek - yes I loved your video. I am going through some serious things right now with my eyes. I am a senior and retired. I have glaucoma and have had it for going on 14 years now. I found out recently that I have epiretina membranes. The combination of both the glaucoma and the epiretina membranes is something pretty serious. I am seeing both a glaucoma doctor and a retina specialist surgeon. Both floaters and flashing light are occurring. My glaucoma is stable but I have been told that surgery for the membranes could wreak havoc with the progression of the glaucoma. Also I am experiencing dry eye disease. My eyes are alway blurry and sore. On drops for the dry eyes. The culmination of all this has me so totally concerned and worried that I am at some point I am going to lose my vision. There are changes in my vision now. Floater and flashers and I feel major changes in my eyes. I am so scared I am going to lose my vision. I am in a need to talk to someone that has gone through it all. My right eye is worse then my left. Both glaucoma and membranes in both eyes. As a result of this I am having a lot of feelings you mentioned. Just so scared at the my vision going. Thank you for your video. It helps to hear others go through it and I realize even now that I have to start now to deal with it. Thank you.
I often go through changes on a routine basis but the only thing that provides me comfort is my spirituality and my belief that we were all made unique. In God eyes we are perfect and his opinion is the only one that should matter to us. Just my opinion! 😂
I am visually impaired due to cerebral palsy I'm near sighted and my vision gets worse every year and I go through the stages of grief often. I had many surgeries on my eyes but none of them helped me see better apparently they are just to staighten them when I was hoping that the last one would help. I tend to like to write down my feelings and if I want someone to know I'll let them read it. It been hard my glasses got broken by someone and it's been a year now
Hi. I'm 2 yrs in this new blind world I lost my mom and vision in a 3 month span and ice even grieving her and now my vision. Where am I, well I never leave my home unless it's an emergency. I cry all day because I cant see my dogs or pics of my mom. I have no drive to take any classes. I'm not in a good place it's very dark.
very dark i can understand man. try stress reduction. and mainly relax when ever possible as stress can make life worse than it seems. try to adopt stress reduction and how to calm your self.
Hi guys,me having a bad sight day,😒😒 I live alone in France,it’s very hard,and I am worried about the winter nights,as I have to carry my firewood upstairs,😔 This is the first time ihave made a post,about the feelings,I am having right now,😒😒 Bonjourne,guys,🤠 XX
I am turning 17 this year and going through my final exams in high school but since birth I've been gradually losing my eye sight i was born with optic nerve hypoblasia but the doctors cannot find out what is causing this and quite recently I've lost even more sight and i can no longer gain access to text i am wondering if anyone else has any advice they could give me
It must be difficult going through that! You should definitely be able to read your text using different screen readers and try to keep your side as much as you can and as long as you can, my heart goes out for you
I have days when i cry all day as im so frustrated at what is happening, yes, im grieving my sight loss
How are you doing now? Learning to cope at all?
as someone who list my sight only a year ago, I've found that being around other VIP's really helps me. It's one of the only times I feel "normal" again. It's a good way to beat the isolation and they all just get me. It's a good idea to look for local charity groups that may have coffee mornings. In my case it was my mum that forced me to go to one as I was very depressed and just knowing that I am around people that are or have gone through similar experiences really helps.
I know what you mean. Being visually impaired since birth, being with people you can relate to feels energizing
Thank you! I've been dealing with legally blindness for five years and complete blindness in my left eye . I have my ups and downs but just deal with it the best way I can.
You are welcome! We all find the way that help uw deal with it the best way we can. Thank for sharing!
I was born with primary congenital glaucoma but they didn't find out that I had it until I was three years old so in the first three years of my life. I've lost quite a bit of sight and at the age of 18 the glaucoma took the sight in my left eye completely I am now 35 years old and still deal with all of those feelings even now for the most part I am okay but I still have those days just like you said I often think what life will be like when I completely lose my sight but I guess it'll be much like it is now I will just get up and leave each day to its fullest I'll just cherish the little bit of sight I have now though it is dwindling and again I know I've told you this before I just want to thank you for your videos they are so uplifting and helpful so Keep On Keepin On😊😊😊
Thanks for all your good advice, some of it comes in handy. I have come to terms with a lot of changes in my life, although I am visually impaired & not completely blind, I still have bad days, and it's comforting to know I'm not on my own! Thanks again 😊
I’ve been losing my sight due to keratoconus. I’m an academic and it’s unnerving thinking of all the ways my job has gotten harder. You said it- I’m angry and sad.
I definitely understand what you mean. And thank you for sharing that you are angry and sad. So important to share what we are dealing with. I'm sure there are things that can help you accommodate different things, but it's first important to face the hard things we feel. Thanks for the comment!
We all in this position have those days and we need to own those feelings, but coming back to the reality of our life to make the best of what we have and be grateful.
Awesome message!
Hi Derek - yes I loved your video. I am going through some serious things right now with my eyes. I am a senior and retired. I have glaucoma and have had it for going on 14 years now. I found out recently that I have epiretina membranes. The combination of both the glaucoma and the epiretina membranes is something pretty serious. I am seeing both a glaucoma doctor and a retina specialist surgeon. Both floaters and flashing light are occurring. My glaucoma is stable but I have been told that surgery for the membranes could wreak havoc with the progression of the glaucoma. Also I am experiencing dry eye disease. My eyes are alway blurry and sore. On drops for the dry eyes. The culmination of all this has me so totally concerned and worried that I am at some point I am going to lose my vision. There are changes in my vision now. Floater and flashers and I feel major changes in my eyes. I am so scared I am going to lose my vision. I am in a need to talk to someone that has gone through it all. My right eye is worse then my left. Both glaucoma and membranes in both eyes. As a result of this I am having a lot of feelings you mentioned. Just so scared at the my vision going. Thank you for your video. It helps to hear others go through it and I realize even now that I have to start now to deal with it. Thank you.
I often go through changes on a routine basis but the only thing that provides me comfort is my spirituality and my belief that we were all made unique. In God eyes we are perfect and his opinion is the only one that should matter to us. Just my opinion! 😂
Amen I agree with you!
I am visually impaired due to cerebral palsy I'm near sighted and my vision gets worse every year and I go through the stages of grief often. I had many surgeries on my eyes but none of them helped me see better apparently they are just to staighten them when I was hoping that the last one would help. I tend to like to write down my feelings and if I want someone to know I'll let them read it. It been hard my glasses got broken by someone and it's been a year now
Hi. I'm 2 yrs in this new blind world I lost my mom and vision in a 3 month span and ice even grieving her and now my vision. Where am I, well I never leave my home unless it's an emergency. I cry all day because I cant see my dogs or pics of my mom. I have no drive to take any classes. I'm not in a good place it's very dark.
Hi my name is David and you are in a very tough spot if you need to talk to somebody I am here I am vision impaired myself
very dark i can understand man. try stress reduction. and mainly relax when ever possible as stress can make life worse than it seems. try to adopt stress reduction and how to calm your self.
Awesome video
Following son and I have amblyopia and very depressed
Hello I lost my vision 2 yea ago today I’m very emotional , my daughter had her first school performance an I was not able to see it
Was this before audio description was around?
Hi guys,me having a bad sight day,😒😒 I live alone in France,it’s very hard,and I am worried about the winter nights,as I have to carry my firewood upstairs,😔 This is the first time ihave made a post,about the feelings,I am having right now,😒😒 Bonjourne,guys,🤠 XX
Can you please make more videos 💞
I am turning 17 this year and going through my final exams in high school but since birth I've been gradually losing my eye sight i was born with optic nerve hypoblasia but the doctors cannot find out what is causing this and quite recently I've lost even more sight and i can no longer gain access to text i am wondering if anyone else has any advice they could give me
I'm going through the same thing I'm 15 and they don't know how much time before I go blind
It must be difficult going through that! You should definitely be able to read your text using different screen readers and try to keep your side as much as you can and as long as you can, my heart goes out for you
@@wethemboizzz6779 You two close in age, maybe you two can be friends in the real world.