When she said you don’t watch the babies you watch the monitor I instantly started crying because that’s what I useto always do and I felt her pain in her voice being a nicu mom is so heartbreaking and every little improvement they make is like a big celebration.
Our son was born at 26+4 weighing 2lb 2.. emergency c section from a placenta abruption, they wanted my partner to do it naturally but she refused for the fear of further damage..he was rushed to Birminghams womans Nicu..started off with chronic lung disease quite badly, after about 2 weeks his infection markers was sky high, they done all the scans they could,but nothing was showing, he wasn’t showing signs of NEC and the lady doctor told us hes very poorly but they just dont know what it is, another day passed and boom a different doctor luckily diagnosed him with NEC he had no bloating and no real sign of it, so it was a case of treat him till i think the following day when they transferred him to Birminghams children hospital and the doctor comes in talks you through it all and we signed paperwork, was told the normal procedure was to cut the bad out fit a stoma leaving it open so it repairs quickly, and the operation take around 3 hours, i will always remember the words one of the nurses said wether its right or wrong i dont know but im glad my partner didnt hear it although we have spoke about it now.. “if he makes it, we will bring him back here” i remember going dizzy as i was walking out and my partner was in front of me, we got out or the poorly room doors and i was expecting her to turn and break down but she turned none the wiser so i had to pull myself together pretty quick and not tell her what id hear the nurse say. 4.5 hours we are still waiting with no updates but only ourselves wondering why its been 1.5 hours longer than they said and thinking the worst.. a Doctor came to our waiting room and said he is a very strong fellow, and that the best case scenario happened, his bad bit of his intestine was localised and so they was able to cut it out (20cm long) and stitch him back up there and then.. the following day he was transferred back to Birminghams womans with a long line fitted… he went under 2lb at this stage..not sure precisely how many days after he got sepsis from this,lots and lots of blood transfusions he eventually gets over it.. until they finally do the lumbar punch and find,i cant remember the colours but the cells being there meant his body was fighting meningitis and thankfully he beat that, the nurses and doctors up there are the real deal..real professional, a different class to hereford hospital. He spent 9 weeks in total up there and we went up everyday, and 7 weeks in the scbu hereford.. here it was about getting his oxygen right cause of his lungs.. he came home on oxygen for a month even tho the staff there was adamant it cost the nhs too much money to send him home like that.. he needed it, we weaned him off it.. other than his scar and being slightly smaller than his peers you really wouldn’t think he had the start in life he did.. he turned 6 july just gone, no health issues no nothing,no eye sight problem no hearing problems nothing.just a handsome little boy who aged me 100 years.. it feels like a dream like it didn’t really happen. We was one of the lucky ones and i wish every single person who goes through this has all the luck in the world! Unless you’ve been through it you will never really know.. so sad for the ones who didnt quite make it.. little worriors❤
Our baby John 💙died of NEC on the 8th of January 2019 😞 he was 1 month old. Me and my wife experienced a horrific trauma due to the passing of our love. Now we are afraid of trying again for a baby due to what happened 😢😞💙❤️
My son is also suffering from NEC. small intestine is being cut due to infection and now only 36-38 cm is left. Still in NICU and praying 🙏 to God all the time.
@Shipra Gupta can't say anything. Still in border line. Current in mumbai at SRCC Hospital.stoma operation is performed 2 days ago, we can't do any thing else except to wait
@@deepaktripathi6418 how is your baby now. They performed this surgery on my niece today. She is only a day old. Any information from you makes big difference to our family. Please let me know
I lost my little princess to Nec on 5/30. She was a 22weeker and she was so strong but the doctors didn’t catch it in time and she didn’t show any symptoms of Nec.
When she said you don’t watch the babies you watch the monitor I instantly started crying because that’s what I useto always do and I felt her pain in her voice being a nicu mom is so heartbreaking and every little improvement they make is like a big celebration.
I just lost my only son last Monday to NEC. He was a 28 weeker. He lived for 34 days
So sorry for your loss 😢
Im so sorry for your loss. Hope it gets better ahead❤️
I’m so sorry for your loss hun
Oh my God I’m so sorry for ur loss plz pray for my baby he was born on 24th week and now he’s three weeks he’s diagnosed with nec😭😭😭😭😭😭🙏
Im so sorry for your loss. 😓
What a beautiful baby god bless you baby your so handsome wow strong mother god bless you as well
bless dear darling darling sweet mami 1000000times. With all my heart Johana.
Our son was born at 26+4 weighing 2lb 2.. emergency c section from a placenta abruption, they wanted my partner to do it naturally but she refused for the fear of further damage..he was rushed to Birminghams womans Nicu..started off with chronic lung disease quite badly, after about 2 weeks his infection markers was sky high, they done all the scans they could,but nothing was showing, he wasn’t showing signs of NEC and the lady doctor told us hes very poorly but they just dont know what it is, another day passed and boom a different doctor luckily diagnosed him with NEC he had no bloating and no real sign of it, so it was a case of treat him till i think the following day when they transferred him to Birminghams children hospital and the doctor comes in talks you through it all and we signed paperwork, was told the normal procedure was to cut the bad out fit a stoma leaving it open so it repairs quickly, and the operation take around 3 hours, i will always remember the words one of the nurses said wether its right or wrong i dont know but im glad my partner didnt hear it although we have spoke about it now.. “if he makes it, we will bring him back here” i remember going dizzy as i was walking out and my partner was in front of me, we got out or the poorly room doors and i was expecting her to turn and break down but she turned none the wiser so i had to pull myself together pretty quick and not tell her what id hear the nurse say. 4.5 hours we are still waiting with no updates but only ourselves wondering why its been 1.5 hours longer than they said and thinking the worst.. a Doctor came to our waiting room and said he is a very strong fellow, and that the best case scenario happened, his bad bit of his intestine was localised and so they was able to cut it out (20cm long) and stitch him back up there and then.. the following day he was transferred back to Birminghams womans with a long line fitted… he went under 2lb at this stage..not sure precisely how many days after he got sepsis from this,lots and lots of blood transfusions he eventually gets over it.. until they finally do the lumbar punch and find,i cant remember the colours but the cells being there meant his body was fighting meningitis and thankfully he beat that, the nurses and doctors up there are the real deal..real professional, a different class to hereford hospital. He spent 9 weeks in total up there and we went up everyday, and 7 weeks in the scbu hereford.. here it was about getting his oxygen right cause of his lungs.. he came home on oxygen for a month even tho the staff there was adamant it cost the nhs too much money to send him home like that.. he needed it, we weaned him off it.. other than his scar and being slightly smaller than his peers you really wouldn’t think he had the start in life he did.. he turned 6 july just gone, no health issues no nothing,no eye sight problem no hearing problems nothing.just a handsome little boy who aged me 100 years.. it feels like a dream like it didn’t really happen. We was one of the lucky ones and i wish every single person who goes through this has all the luck in the world! Unless you’ve been through it you will never really know.. so sad for the ones who didnt quite make it.. little worriors❤
He was born 01/01/18
(01/07/18 rather)
Our baby John 💙died of NEC on the 8th of January 2019 😞 he was 1 month old. Me and my wife experienced a horrific trauma due to the passing of our love. Now we are afraid of trying again for a baby due to what happened 😢😞💙❤️
😢😢😢 I’m so sorry for your loss.
I am so sad. God bless
My son is also suffering from NEC. small intestine is being cut due to infection and now only 36-38 cm is left. Still in NICU and praying 🙏 to God all the time.
@Shipra Gupta can't say anything. Still in border line. Current in mumbai at SRCC Hospital.stoma operation is performed 2 days ago, we can't do any thing else except to wait
@@deepaktripathi6418 how is your baby now. They performed this surgery on my niece today. She is only a day old. Any information from you makes big difference to our family. Please let me know
@@indukpavankumar I lost my child on 18 Feb 2022. He is no more with us.
@@indukpavankumar how much intestine left with your baby, please confirm with the doctors.
Hi Deepak,
My daughter is in nicu, underwent NEC surgery on 28th March. Can you provide some guidance.
I lost my little princess to Nec on 5/30. She was a 22weeker and she was so strong but the doctors didn’t catch it in time and she didn’t show any symptoms of Nec.
I’m so sorry for your loss I cannot imagine.
Was she on a formula ? If you don’t mind me asking.
@@mokc816its genetic, we thought that
What we need to do with this
My baby also suffered from Nec. He died at 2months. 😭
We're so sorry for your loss xx
So sorry for your loss 😢
She born on 16 November 2021
Still my baby girl suffering from nec😭
Same here plz help me what I do with my baby 😭😭
Hi Ritu,
My baby had nec surgery on 28th March, she still NICU. She is in Aster medcity Kerala. Can you let me know your contact,need some guidance.
My son enitire smll intestine removed now he is losing weight and surviving without tpn
How many months he can survive please reply