Dr. Spector lost his battle to Lyme on June 14, 2020. RIP Dr. Spector. We will not forget you and your contributions. We love you more than you will ever know.
With a heavy and broken heart ' the world lost Neil Spector Sunday night. He was a dear friend and a tremendous support for the Lyme disease community. 💔
July 17th is my birthday. That is when he first heard the news of his heart. I have Borrelia afzelii and RMSF. Here in the United States. I have never traveled outside of the United States. I now am having heart issues myself. Thank you so much for long lasting information, being an advocate and being a voice.💚 Rest in peace.
This was an amazing & enlightening speech! I could honestly listen to this man for hours. He's not just someone who gets it...he's HAD it! From one Lymie to another,Thank you!!!
I'm so sorry to tell you that we lost Neil Spector June 14th 2020 to his Lyme Disease. His heart transplant took a toll on him. He died from Lyme Disease. He made a difference in my life and many, many more. I'm sad still, although happy his words are still being heard. - A fellow Lyme Warrior
This disease is an epidemic. We need realiable testing and and new effective treatment. I'm grateful for your experience and your need to make a difference. God bless you!
Cognitive dysfunction is an understatement. Before the disease break out i had a photographic memory. After the disease i can't remember one word. I didn't know the name of my colleagues any more or the name of my mother. And the ignorant doctors tell me: It's psychosomatic.
I've been told "you don't have Lyme" by two separate 'specialists' - My last (and final) Neurologist appt the physician asked me If I thought it was all in my head? To which I replied "Yes! Little worms are in my head. They've crossed the blood/brain barrier. Common Doc, it's 2018, let's move into the new century." He wasn't impressed.
@@miss.conduct8083 That's the experience my wife gets after many years. I go on my wife's appointments as a witness for abusive behavior by doctors who don't believe her that she is really sick and not faking it.
@@miss.conduct8083 -- I've been treated that way by so many doctors that I have lost count. But I have had a number of really good doctors too. Not even all LMDs are good. Probably because of personalities. But at least you can look at idsa.org to find lists of LLMDs. Helps tons if you have lots of $$$$$$$$$$s.
@@wkjeom The IDSA is the false money making group against Lyme disease. Did you maybe mean the ILADS.COM group? They are extremely helpful and on our side.
Great presentation, Doc!! By watching these videos I am able to inform my own PCP - using knowledge and wording (far beyond my knowledge) that peeks his inner/outer science nerd. While I have yet to be treated, I am able to use my own voice and help others. I've gained enough wisdom to know I have Neuro Bartonella, just a lable.. But it doesn't define me. It may "play uncle" more than anyone should bare but I'm still here!
Because I thought I had lyme (diagnosed by natural Dr)the hospital (Sanford in ND) diagnosed me with numerous mental illnesses and tried to have me committed. They based it on ridiculous number of lies- that they did get caught in, refused to allow me to see my medical records, said biofilm did not exist, tried to keep me from any outside contact ( restricting phone use), owned my lawyer who refused to get my med records or allow me any witnesses, and were going to court mandate me to be forced medicated before hearing. After leaving I was diagnosed with lyme and babesia through Igenx. And all the above is not even the crazy parts of the story. It was only through a miracle that I could smuggle a letter out to the judge that I was court ordered to be released.
I’ve heard the same has happened to ppl in Ohio and Los Angeles!! ( Can you believe UCLA and Cedars Sinai?!?!) Be careful out there ppl!! Only NY, Virginia and (NH?) Is safe for now, from the new law re: Lyme Disease must be treated by doctors by law! That law needs to become National Now!!
I got it in Los Angeles, CA and was told “its impossible to be a Lyme tick!” yet the Infectious Disease doctor I saw took my last $300.00 gave me Doxycycline but only by “accident” and not enough.. for 21 days, then told me to find some other doctor! No explanation!! I was so sick I ended up losing everything I owned practically. Do not go to UCLA or Cedars Sinai!!! Don’t go near Ohio either!! Luckily my best gf helped me to keep my home and sell it at a profit 6 years later.. both ended up saving my life!
Now that a number of real doctors have been infected with Lyme disease, misdiagnosed for years with no real medications for a cure, they have started work on Lyme disease on their own. These good doctors are doing real research and perhaps there will be a cure for everyone, including regular people like me some day in the future... and not too far in the future, I hope! I believe this doctor is from Duke Medical Center, which is where my husband worked for 31 years. Crossing fingers and saying prayers... things might actually change!
Your not kidding, I went to Mass General and Mass Eye and Ear for severe vertigo for lyme, the doctor I was seen by at Mass Eye and Ear was downright rude!
Cancer Research gets huge amounts of grant money. I don't deny that it should. I'm glad we've made the great strides we have in treatment. Lyme gets very little grant money for the few who even acknowledge the long term effects. This is because people are terrified of getting cancer. Everyone knows about cancer and that it can be deadly. So donations are rightly made. Lyme needs more awareness, because though it rarely can kill someone, though we know it can. Dr. Spector thankfully received a new heart in time. But though it may not often kill, it ruins lives. I've been sick for a decade with no end in sight and no money to go to doctors outside the Medicare I'll lose if the government takes it away. I can't work, sleep a few hours a week, and spend every minute in horrible pain. Before I was infected I had been told by doctors that I had a high tolerance for pain. Now I'm treated as if I'm exaggerating my symptoms and even drug-seeking. I just want to function and be the mother my children deserve. I'd walk through fire if it would help. If I didn't have children I'm not sure I'd have the will to go on, but I won't abandon them. If that's not a disease that should be researched and taken seriously, what the hell is?
Is there any treatment now ? I am on Doxycycline , as he said and we all know that it will kill gut microbiome. I feel fogged , fatigued and drugged all the time. I was took into psychiatry for various symptoms for 2.5 years... Which ruined me more.
What is sadly ironic is that lyme causes cancer so Neil thought he was talking about apples vs orangutans when it was all the same thing the entire time.
Dr. Spector lost his battle to Lyme on June 14, 2020. RIP Dr. Spector. We will not forget you and your contributions. We love you more than you will ever know.
Rip Doctor 🙏 😪
With a heavy and broken heart ' the world lost Neil Spector Sunday night.
He was a dear friend and a tremendous support for the Lyme disease community.
💔
Beyond sad. Sorry to hear this 💔 why does this always seem to happen once someone steps up to help do the proper research… hmmm 🤔
A doctor willing to go against the grain and stand up for something rather than being scared of loosing his license.
July 17th is my birthday. That is when he first heard the news of his heart. I have Borrelia afzelii and RMSF. Here in the United States. I have never traveled outside of the United States. I now am having heart issues myself. Thank you so much for long lasting information, being an advocate and being a voice.💚 Rest in peace.
This was an amazing & enlightening speech! I could honestly listen to this man for hours. He's not just someone who gets it...he's HAD it! From one Lymie to another,Thank you!!!
I'm so sorry to tell you that we lost Neil Spector June 14th 2020 to his Lyme Disease.
His heart transplant took a toll on him. He died from Lyme Disease. He made a difference in my life and many, many more.
I'm sad still, although happy his words are still being heard.
- A fellow Lyme Warrior
What a wonderful talk by a wonderful man. Wish he were my doctor!
Catherine S. Todd with heavy heart Neil passed away Sunday night 💔
Truly a visionary of what can be done to combat this disease. I hope others are saved by his great works. Rest in peace Dr. Spector.
Thank you for all your amazing work, doctor.
This disease is an epidemic. We need realiable testing and and new effective treatment. I'm grateful for your experience and your need to make a difference. God bless you!
Cognitive dysfunction is an understatement.
Before the disease break out i had a photographic memory.
After the disease i can't remember one word.
I didn't know the name of my colleagues any more or the name of my mother.
And the ignorant doctors tell me: It's psychosomatic.
Lying Press i hope you are better
I've been told "you don't have Lyme" by two separate 'specialists' - My last (and final) Neurologist appt the physician asked me If I thought it was all in my head? To which I replied "Yes! Little worms are in my head. They've crossed the blood/brain barrier. Common Doc, it's 2018, let's move into the new century." He wasn't impressed.
@@miss.conduct8083 That's the experience my wife gets after many years. I go on my wife's appointments as a witness for abusive behavior by doctors who don't believe her that she is really sick and not faking it.
@@miss.conduct8083 -- I've been treated that way by so many doctors that I have lost count. But I have had a number of really good doctors too. Not even all LMDs are good. Probably because of personalities. But at least you can look at idsa.org to find lists of LLMDs. Helps tons if you have lots of $$$$$$$$$$s.
@@wkjeom The IDSA is the false money making group against Lyme disease.
Did you maybe mean the ILADS.COM group? They are extremely helpful and on our side.
Great presentation, Doc!! By watching these videos I am able to inform my own PCP - using knowledge and wording (far beyond my knowledge) that peeks his inner/outer science nerd. While I have yet to be treated, I am able to use my own voice and help others. I've gained enough wisdom to know I have Neuro Bartonella, just a lable.. But it doesn't define me. It may "play uncle" more than anyone should bare but I'm still here!
True hero.
what a lovely man,trust you gut instinct how true for all matters in life.
Does having a complication that results name surgery eliminate the B.b. from the body??
Yes and trust your gut about which doctors are truly working with you or against you!!
RIP
Love this doctor❤🙏
Amazing!
Because I thought I had lyme (diagnosed by natural Dr)the hospital (Sanford in ND) diagnosed me with numerous mental illnesses and tried to have me committed. They based it on ridiculous number of lies- that they did get caught in, refused to allow me to see my medical records, said biofilm did not exist, tried to keep me from any outside contact ( restricting phone use), owned my lawyer who refused to get my med records or allow me any witnesses, and were going to court mandate me to be forced medicated before hearing. After leaving I was diagnosed with lyme and babesia through Igenx. And all the above is not even the crazy parts of the story. It was only through a miracle that I could smuggle a letter out to the judge that I was court ordered to be released.
I’ve heard the same has happened to ppl in Ohio and Los Angeles!! ( Can you believe UCLA and Cedars Sinai?!?!) Be careful out there ppl!! Only NY, Virginia and (NH?) Is safe for now, from the new law re: Lyme Disease must be treated by doctors by law! That law needs to become National Now!!
I got this living in arizona and was told was rare
I got it in Los Angeles, CA and was told “its impossible to be a Lyme tick!” yet the Infectious Disease doctor I saw took my last $300.00 gave me Doxycycline but only by “accident” and not enough.. for 21 days, then told me to find some other doctor! No explanation!! I was so sick I ended up losing everything I owned practically. Do not go to UCLA or Cedars Sinai!!! Don’t go near Ohio either!! Luckily my best gf helped me to keep my home and sell it at a profit 6 years later.. both ended up saving my life!
Can I ask a question. Could mitral valve prolapse be caused by lyme?
Will you be participating with the newly formed Federal lyme disease working group?
Videos are also on UA-cam.
I think they need you! (WE need you!)
Now that a number of real doctors have been infected with Lyme disease, misdiagnosed for years with no real medications for a cure, they have started work on Lyme disease on their own. These good doctors are doing real research and perhaps there will be a cure for everyone, including regular people like me some day in the future... and not too far in the future, I hope! I believe this doctor is from Duke Medical Center, which is where my husband worked for 31 years. Crossing fingers and saying prayers... things might actually change!
Don't go to Boston Medical Center or Lahey if you have Lyme. Lyme is a dirty legal word to them. They wont take you seriously.
Your not kidding, I went to Mass General and Mass Eye and Ear for severe vertigo for lyme, the doctor I was seen by at Mass Eye and Ear was downright rude!
they are demonic satanists ; no doubt about it
Look up the case of Justina Pelletier....
It's that way everywhere.
Don’t go to UCLA or Cedar’s Sinai or Ohio Cleveland Clinic either!! Seems only NY and Virginia is safe to find help esp from Hospitals!
Cancer Research gets huge amounts of grant money. I don't deny that it should. I'm glad we've made the great strides we have in treatment. Lyme gets very little grant money for the few who even acknowledge the long term effects. This is because people are terrified of getting cancer. Everyone knows about cancer and that it can be deadly. So donations are rightly made. Lyme needs more awareness, because though it rarely can kill someone, though we know it can. Dr. Spector thankfully received a new heart in time. But though it may not often kill, it ruins lives. I've been sick for a decade with no end in sight and no money to go to doctors outside the Medicare I'll lose if the government takes it away. I can't work, sleep a few hours a week, and spend every minute in horrible pain. Before I was infected I had been told by doctors that I had a high tolerance for pain. Now I'm treated as if I'm exaggerating my symptoms and even drug-seeking. I just want to function and be the mother my children deserve. I'd walk through fire if it would help. If I didn't have children I'm not sure I'd have the will to go on, but I won't abandon them. If that's not a disease that should be researched and taken seriously, what the hell is?
Is there any treatment now ?
I am on Doxycycline , as he said and we all know that it will kill gut microbiome.
I feel fogged , fatigued and drugged all the time.
I was took into psychiatry for various symptoms for 2.5 years... Which ruined me more.
Always take anti-fungal pills
(~ a week) following antibiotics!
What is sadly ironic is that lyme causes cancer so Neil thought he was talking about apples vs orangutans when it was all the same thing the entire time.