From Misdiagnoses to Making Demands: Stomach Cancer Patients Speak
Вставка
- Опубліковано 29 чер 2021
- Two stomach cancer patients share their stories from beginning to end, including stomach removal and having to strongly advocate for themselves when their initial doctors brushed off their concerns.
00:07 Tom Smith, Co-Founder of HOPE for Stomach Cancer and Board Member, introduces patient, Jason Diaz.
01:30 Stomach cancer survivor, Jason Diaz, shares his journey, from the symptoms he experienced, to his misdiagnosis and eventual correct diagnosis, to his choice of treatments, to the removal of his stomach, to finally being deemed recovered. Mr. Diaz stresses the importance of advocating for oneself and securing a gastric specialist, which are two actions he took that saved his life, as well as taking part in clinical trials.
17:40 Tom Smith thanks Mr. Diaz and introduces Branny Carrasco
20:07 Navy veteran, Branny Carrasco, shares her stomach cancer story, from her very different symptoms and initial diagnosis to her testing positive for the known stomach cancer-causing bacteria, H. Pylori, which is prevalent in Japan and which is where she had been stationed for four years. Ms. Carrasco shares her similar experience to Mr. Diaz in regards to having to aggressively advocate for herself in the face of doctors who assured her that stomach cancer couldn't be the cause of her issues due to her being so young. Ms. Carrasco shares her recurrences of her cancer, including having Krukenberg tumors on her ovaries and being given a prognosis of having six months left to live. - Наука та технологія
I had to lie to get taken seriously too, was able to get a gastroenterologist on video call. I’m getting a colonoscopy and endoscopy in 2 months. Sometimes you have to lie to get taken seriously. Hopefully it’s a false alarm, but better safe than sorry.
I was diagnosed at 33 with stage 4B stomach cancer. I was given less than 6 months to live if I didn’t do any palliative chemo. So I did 12 rounds and it was absolutely horrid but still alive after almost 15 months. 95%chance it will become unstable once again but there is no way I’m going back on treatment. So I’m gonna enjoy everyday and whatever happens happens. ❤️
Im in tears. Sadly she passed away 😢 Rest In Peace beautiful ❤️ Going through this now..
Oh that is awful. Poor little thing.
Doctors told me I was too young for heart problems at 42, 3 doctors later I finally found one that listened. He did a nuclear stress test and found I was 100% block in my right artery. I was in surgery the next day.
Have watched around a hundred videos from/on people with cancer. It is disconcerting to hear so many describe how their symptoms were ignored/misdiagnosed by their doctors and after many continued complaints over time. I believe I am in that same boat now. Though my symptoms are vague, they are getting worse. Something is wrong. These videos are helpful on a variety of levels. People are their own best patient advocates.
I think some doctors do not want to know the truth because it horrifies them.
My beloved Papa Carlyle passed away from stomach cancer on June 22, 2010 at just 70...barely a month after being diagnosed with stage 4 stomach and esophageal cancer..how I miss you every day Papa, almost as bad as the day that you left..until we meet again...love you forever.. Amanda
I feel you.
How long did he suffer from it if i may ask, sir?
GOD bless you all ❤❤❤❤
My brother is 31 n just found out he has stage 4 stomach cancer n spread already to liver please pray for him n if any advice n help be appreciated god bless u all
please check out our support groups at stocan.org. We also offer free bags of info.
Turmeric curcumin high dose.
Prayers for you, your brother and family. Keep the faith and keep, walking with Jesus.
My father is also suffering from similar cancer(stage4)..pls go for low carb diet..drink turmeric water.
God help you and everyone 🙏🙏🙏🥺
Yes..doctors should learn how to listen..and in the very least send you for tests 😢
Exactly
My gosh I can relate. Had a pain in my side, heartburn, fatigue, bloating, and off blood counts. Told multiple doctors. Something just made me keep looking for a cause. No one was listening and one dr. told me "maybe this is just how your blood is". Finally 8 months later, I am diagnosed with stomach cancer. Starting treatments in 2 weeks. Now hoping for more extensive genetic testing given I have 1 sister (breast cancer and ovarian cancer), 1 niece (breast cancer), 1 brother (bladder cancer) and myself( breast and Stomach cancer)
Prayers for all of you🙏🏿
Turmeric curcumin high dose with black pepper for absorption.
Prayers for you. How long did you suffer from it if i may ask?
Sounds like a Lynch Syndrome genetic cancer syndrome. Prayers for you and your family
I am very sorry to hear that 😞! Your family history alone should have been enough to get them investigating. Overpaid morons ! Good luck to you !
Drs do NOT always know .
Actually they are wrong a LOT of the time
Yes they are.
Luk (49 yo male) from Belgium here. Almost 1 year ago I was diagnosed with stomachcancer adenocarcenome at the stomach entrance (cardia). Gastrectomy after chemo. All seems fine at this moment. Eating doggybag the next day 😂 is necessary. I had 4 chemo sessions followed by surgery. No follow up treatment because the disection of all extracted tissues (stomach, spleen and 28 lymphs ) showed no spread. When I read up on testimonies I realise I’m very fortunate having had treatment in the finest university hospital. No fizzy drinks on heavy alcohol for me anymore. I lost 21kg of weigth. The only symptomen I had was that I had sometimes black feces and that's how I went to the GP initially.
It's a shame people have to lie to get the help they need. I sadly just lied as well #self advocate
this infuriates me…why don’t doctors discount the worst case scenario first????
I've been desperately trying to get Help for this 5 to 6 years. Multiple doctors say the same thing, similar Scenario As the first story. They just keep telling me They don't think it's anything. But fail to properly check. And I push for months and wait for months for tests fir them to reschedule or cancel the appointment... trying a whole new gastrointestinal practice this coming Monday and I hope they will help me. Through all this I have learned to push, But not enough
Exactly my question
These EXACT words come out of my mouth quite regularly. It’s insane
Because is all about turning over as many patients as possible. Investing takes time. Time to them is money! Healthcare companies that they work for is pressuring them to ser so many patients a day. For profit Healthcare is making Americans sick and killing them. Unfortunately, Americans are to ignorant or stupid to realize that! I am very disappointed with the average American! Most brainwashed citizen in the developed world!
Exactly because it actually makes too much sense 😂😮😔 sad doctors got too listen and do better ❤
They found mine through an endoscopy all they had to do is as simple PET scan to see if it spread
Exactly
We have a different system in the UK. Your primary care doctor arranges everything with doctors and hospitals. Any suspicious cancer symptoms have to be investigated within two weeks. Not perfect but better than what I’m reading here.
People still get fobbed off over here. Misdiagnosed over here.
There is data from Valter Longo at the University of Southern California about the fasting mimicking diet has shown 40% improvement in response to conventional chemotherapy.
I suffered for close to three years before being diagnosed with bladder cancer. Three doctors passed my symptoms off as my urine cultures came back negative for UTIs and my former primary doctor lied on my health notes that my symptoms were due to anxiety even though I said I wasn't stressed but in pain. I'm doing fine after surgery and have one more year of chemo left. I just found out I'm at a 3-fold risk for gastric cancer due to an autoimmune disorder that causes anemia and B12 deficiency. Praying I don't have to face another cancer in my future.
Seriously.... iv been pushing for 6 years now in everyday stomach pain and the docs have done NOTHING. Multiple different docs. Im so scared and in severe daily pain.😢😢
I relate very much with The first guys story. All the docs keep saying they don't think it's cancer but fail to follow through with any tests. I have another appointment this coming Monday with yet another gastrointestinal practice and I very very very much hope they help me. I want to live, I have to much to give
Sometimes you have to exaggerate the symptoms to get taken seriously.
I agree. Exaggerate your symptoms. Tell them it is like nothing you have felt before. Go to gospital er and not.urgent care or a standalone er. I just got diagnosed with stage 4 stomach cancer. I've always struggled with heartburn had hpylor 16 years ago. Dr had not ordered an endoscopy in 10 years. Advocate for your health. Do not accept being told its heartburn or gerd.
❤❤❤❤❤❤❤🙏Another WARRIOR HERE: WELL SAID & GOD BLESS. ❤❤❤❤❤❤❤❤❤🙏
Hispanic people have a significantly higher rate of stomach cancer, even as very young people. All children, especially Hispanic children, who have frequent stomach aches, should be screened for the H. Pylori bacterium, which is the leading cause of stomach cancer.
@AK-fk8zo a simple Google it says people of color are more likely to have stomach cancer I think it's the spicy food but I'm not sure colon cancer is more prevalent in the black community I believe it's from the soul food and seasonings and greasy foods what I find weird is that there are very few UA-cam videos made by black people with colon cancer.
I had H Pylori in 2021. I'm currently having stomach aches and dry heaving.
Dr’s kept telling me the same thing and I ended up having breast cancer
You have to lie, it’s sad but so true
Me going through same how u coping
My ex boyfriend's mother was from Japan. Both her parents died from Stomach cancer.
My condition started the same year and I still have the same pains please I'm Ghanaian and I need a referral to where you got treated
I’m having severe gut pain and I’m getting no results with my doctor been to ER twice on second time they did an cat scan but nothing show up but since then the pain have gotten worse
Same here! Have they found what’s wrong?
OMG my story is similar to Branny's
A huge percentage of people with H Pylori infections have absolutely no symptoms, and no ulcers. And a low percentage of people with stomach cancer test positive for H Pylori, thus, there may be a connection, but I highly doubt the connection is causal.
He has a genetic mutation CDH1. He mentioned in his slide. His aunt died of stomach cancer. I believe his cancer is not caused by H pylori infection but it was genetic. Hope crispr can fix this in the future and other therapies.
there is a shortage of GI’s in US - huge deficit! and most only want to do simple colonoscopy endoscopy
Whst advice can u give me
How did this turn out? Ive been battling a long time with the same symptoms
Would love to hear responses to this
Please I need the speakers contact and his country
how can i contact you guys??please help my boyfriend Jason from Arizona..i think he has stomach cancer too😭😭😭
how can i contact you??please help my boyfriend from Arizona ..i think he has stomach cancer too😭😭😭
Stomach cancer is extremely rare. please email us
🙏🏽🙏🏽🙏🏽
How are these 2 doing today?
The lady is deceased
And the man is a 6-7 years survivor.
Sounds like me 😢
Would urge you guys to talk to *Dr Bastin* about any disease that you are battling with.
He is the best herbal doctor I know.❤
How do we find him?
i HATE doctors. they don't take me seriously either!!!!!!!
Advocate please ❤❤❤
Yeah, the doctors always know you better than you know yourself 🙄
How is it that you can google symptoms of cancer, have all those symptoms and then have a doctor say that cancer doesn't present like that? Where do they get their information from exactly if they're getting it so wrong?? And this idea that folks can't possibly have cancer because they are too young is just plain wrong!! I know that and I'm not a doctor! It absolutely boils my p*ss!! 🤬 How many more people will die because doctors are so uninformed?? There's just no accountability either...
oh no they knew about the side effects but they dont care.
Would urge you guys to talk to *Dr Bastin* about any disease that you are battling with.
He is the best herbal doctor I know.❤