You ARE normal, and brave as well. Please don't feel pressured to be a super achiever to compensate for having a facial difference. You're clearly brilliant, talented, dedicated, and caring.
Being ‘normal’ is overrated. You own your peculiarities and have inspired us to be better despite of the challenges life throws. Keep doing you effortlessly!
Lukas has beautiful skin, eyes, hair, a deep appealing voice, fantastic personality, gorgeous smile, gr8 physique, the list goes on. He is a catch. It saddens me to think of his struggles because of silly things kids habitually say. Wishing him a fantastic, happy successful life.
You, young man, are handsome, articulate, intelligent & have a whole life ahead of you. Make every second count & leave the negativity behind you. You are headed for a very bright future & I wish you all the best. Love from, Southeast Louisiana 😊❤️🙏
They’re both so cute! I’m glad that these two brothers have each other, and that they have such a great relationship. I hope that Lucas’s surgery goes well too.
So true. Just ignore the negative comments. People talked about me behind my back because of my weight and my male sounding voice and I'm all female. 😁 You're a very handsome young man and anyone would be lucky to have you as their man.
@@creatormanualdarytendotmve4748 This video was posted a week ago.🙄 And I bet this young guy can handle a video and dating at the same time. Oh look. He's doing it.
It’s kind of sweet how the unaffected twin sort of pulls his jaw down when he speaks, almost like mirroring his twin. Probably unconsciously learned that just by daily putting himself in his sibling’s shoes. That’s some brotherly solidarity!
@@maidahaltrecht6577 he seems to beeping great since his jaw surgery he is getting another one in late November this time fat grafting and and a facial implant to build up the parts of his face that were affected by his illness
@@SabrinaHawk Do you know him personally? Lucky lady. He seems like the kind of gentleman I’d like my 18 year old granddaughter to meet. I wish him a long happy future. 🥰
"When obviously I'm not normal" WHOA buddy, let's get one thing straight, you are normal and apparently smart, you were at the top of your class for four years straight. That's a magnificent accomplishment. I really hope you get that vocabulary out your mouth that you're not normal, that's insane to think such a thing. I understand why you would think that but it's not true. You're normal and you're informing the world of this syndrome and that's amazing.♥️
This brought tears to my eyes. Although I do not have this exact condition, I am a 3 time survivor of head and neck cancer (5th child worldwide diagnosed with a rare cancer subtype in my infancy and young adult years). I do have facial deformities and stunted jaw/face growth on the radiated side and a speech impairment. I can relate to the self image issues, anxiety, kids and even adults staring and being mean. My energy went towards sports and academics. I am now a doctoral student doing research with head and neck cancer patients. Let's make the world a better place because of our rare condition and unique life experiences! Hang in there buddy! You are a smart, kind, and well spoken young man. You will go far in life!
Very inspiring and great to have so much support. I hope there's an update after you've healed from your surgery. I also hope other procedures can be done to make both sides of your face look more similar and if not that's ok too! You already have a great smile!
No, you are not "normal", you are *EXCEPTIONAL* and don't you ever forget it, young man! Kudos to the mother to have raised two such intelligent, well-spoken and handsome boys.
To live with it has to be even harder when you have a twin and are always looking into "your" face without the changes. Not to become bitter and hateful shows that you have a pure heart and soul. I wish you all the best 💖
Proud of you! Recently a young girl that I met here a girl who was only around 20 was in a car accident. People that have facial trauma or irregularities can be the modern medicine to every day people. So many people are critical of their appearance. I think it is beautiful that you are able to share your feelings and help others.
Your a remarkable young man. You are a lot more than how you look. Your achievements in itself are outstanding. Im glad you have such a supportive brother.I wish you well in your future. The sky is the limit ♥
Such a great and positive set of twins!! Turned something negative to a positive and the family support is awesome!! Prayers going forward toward any medical procedures and recoveries!! Wishing you and the family all the best and God Bless!!
Why Luke if I was in your age group I would definitely ask you out on a date. You are an amazing, brilliant individual. The problem is with society and what their perception of beauty is. Your brother is cool but you exude a different level of confidence. Keep doing you young man
Actually, I think you're quite handsome. Your condition doesn't change that. More importantly, you radiate warmth, intelligence, and wisdom beyond your years.
Actually, the twin without the syndrome has something going on with his mouth. I wonder if he has been evaluated for other conditions? I think both boys are great role models for people who are a little different. They are going to go far in this world.
I know lots of people that have one side of their mouth's paralyzed and i dont remember exactly what it is but it isnt serious and doesnt cause them any harm its just there i guess maybe its that
I was picked on by some kids in school, because I had something that couldn't be seen, but I was lucky enough like you are with your brother, but I had friends who defended me. You're a very handsome young man, and don't let anyone tell you any different. Your eyes are beautiful, because they show so much kindness, and compassion, and understanding. You've learned to be empathetic towards others, like I did, and you're very normal, extremely normal, and if I was a young girl, you'd be my first choice to ask to the prom, or out period, and I mean it, because I always, and still do, go for what's on the inside, and anyone would be lucky to have you as a friend.
Appreciate you guys sharing Lucas’ story. I too was diagnosed with parry Rhomberg syndrome when I was a teenager. Awesome to see more awareness around this autoimmune disease
You are not to be like others. You are meant to Shine like a star. Teaching others and still achieving all you've set out to do is inspirational to many. So keep on Shining! Hugs ♥ 🤗
His face is not normal. Yet. That’s the bad part! It’s 2022 and the world is still not accepting of disabilities or ‘abnormalities’ that people were born with. Don’t listen to them because your face is so beautiful and unique and everyone here is supporting you! ❤
Being yourself makes you different, your condition does not. Don't try to fit in when each of us were born to stand out! You're doing that with all your awards and accomplishments, great job! Congratulations!! No one has time for bullies in their life. Take care!
I do hope Lukas realises he is important even without all the academic achievements. He doesn't have to prove his worth that way. Live a little, have fun, rip up a textbook 😬🤣 You are handsome Lukas 💙
What a wonderful young man you are! Two of my sons are also eagle scouts- 🦅🦅 ! I have no doubts you will do very well in life… Good luck on your upcoming surgery…
I'm so tired of people judging others over something they call not "normal" it's rediculous they don't even realize one day they have to face God and explain the reasons they were so awful 😞 plus when we go to heaven we will be perfect so you have eternity to look forward to 🥰 you are an amazing young man never forget that ! I'm so proud of you 🕊️💜🙏
You are amazing! When you get to college, if you choose to do so, things will be so much better. Never let anything or anyone hold you back (which I don't think you do).
First and foremost you are normal. Any so-called abnormality comes from those who do not understand differences. And therefore choose to bully and disrespect. So you are not only normal but you are so handsome and I'm so proud of you for your academic achievements but more so for your honesty your journey to self love and acceptance and simply being you. Keep being you because no one can do it better.
The more we learn about our differences (we fear what we don't understand and that makes some of us act stupid)) the more we can concentrate on what makes us all alike. Thank you for sharing. And I know this is an older video but you answered a question I had about the progression of your disease. Multiple surgeries will be challenging but I wish you well!
My son was born to look very different. As a mom I had so many worries. I don’t know all of his hidden sorrows and pains of looking different, however the worries I had about his future was unfounded. He met a stunning girl (really) and I got two granddaughters from their relationship. ❤They broke up eventually but we are still family and the dastardly son I worried so much about is as happy as ever as a single father. 😂 So, you do you and things will be fine. 👍
Knowing everything that a person is enduring in their life gives us the true dimension of their challenges and allows us to more clearly assess his value as a human being.
Wow the second I saw his pic I knew !! I have parry Romberg syndrome. Edit… love PRS doesn’t burn out . It can at times lay dormant and not progress physically but you will still be having neuro symptoms . I was diagnosed at 7 . I am 43 now and mine is still going . There are so few cases that docs don’t know much about it . It’s kinda just speculation . Best of luck to you
What a lovely young man and his brother too, I had a similar negative experience at school, only for different reasons. You're very strong, even though at times you may not have felt it, and you're good looking too!
What a beautiful family. Tremendous twin brothers that love each other and support each other and are not embarrassed about 1 of their conditions. I had identical twin daughters 46 years ago, but one died in the birthing process. Be thankful that you were able to bring both boys home is home and healthy. My living daughter has a very close relationship wit's relationship with her twin on the other side of the veil. She feels her presence and support especially in tough times of her life. The soul tie between identical twins is so it's so uncanny and strong. One is alive on this side of the veil and the other is alive on the other side of the veil in heaven. I'm very much looking forward to seeing her sister.
Hey Lukas, you are still better looking than I will ever be and you have a great personality to boot! Smart, charming, articulate. Best of luck with your surgery. Cheering for you.
So happy y’all have the relationship y’all have together! Y’all are great! And there’s nothing wrong with you. Your self confidence will raise. You’re both handsome. ❤️
I'm happy to know your coming out of your shell and im happy you have a brother that is so supportive of you who sees the struggle your going through I love your relationship with your brother there's not one person on this planet that's perfect we all have flaws! God bless you and your Family I wish you health success alot of happiness and love for the rest of your life! Wishing you the best
Thanks for this video You are more normal than most of us Wish you success with the surgery It’s amazing what they can do these days with all the technology You’ll be fine
Identical just means they both came from the same fertilized egg. After that, they don't necessarily have the same experiences developing in the womb. They might have the same susceptibility to things like auto-immune disorders, but only one of them had the exposures and/or random chance of actually developing a problem. Genetics are just the base blueprint, not the final result.
I wont worry about what other people think about you because you are wonderful person and I guess the things we achieved is great and I'm glad that you have brother that support you and is there for u
Healthy twin may have a mild case of the illness BC the left side of his mouth doesn't move when he talks. Mum might too BC her left eye is smaller than her right eye.
Don't worry about what people think. God loves you, and your family loves you. That's all that matters. I myself was bitten by a large dog at 7 years old, and did go through lack of confidence. As I reached my teenage years I thought blow what other people think, either they like you or don't. It really changed what mattered to me. Your a successful student and have everything to be proud of yourself. God loves you as you are. God Bless you 🙏
Hey Lukas! I suffer from a rare, incurable condition that affects all connective tissue in the body, called Ehlers-Danlos Syndrome. At 16, I needed to have a double mandibular osteotomy with titanium implants put in as well. Seeing your maturity, solid head on your shoulders, and that you're clearly a smart guy (and cute too), I bet everything is going to be A-OK. :) The support of family, friends, medical team, and your online fans, will help you get through it and heal. Even when you have your priorities straight, when you're a teenager, you can't help wondering what people will make of you, so I just wanted you to know I'm rooting for you, and to remind you that whatever happens with the surgery, you're already super just the way you are - the final product already, no alterations needed! Very best wishes for a successful surgery, with quick and complete healing, from Canada. :) God bless!
Just remember . Though some people suffer some physical ailments. Everybody suffers internal ailments..not always visible, but we all suffer in someway..We are all in this game together and should not love each other for our perfections, but our inperfections. It's time to imbrace each other for our differences.
Normal is overrated. You are unique and very articulate, I've never heard about your illness before so by you sharing with the world is a huge plus. I love that you have become more self confident, you are very handsome dispite your illness. Kids have no filter so they can be cruel at time.
I’m sure most of his anxiety is about getting and having a girlfriend. He seems like a really descent, humble guy, a nice girl will come along and accept him just as he is.
You are normal just because a few people let you down does not mean that everyone hates forgot about the negative people look into the bright side and positive people. Again you are normal!
Aww love this guy! What a great loving family. I wish him all the very best and hopefully he can have skin grafts and cosmetic surgery to help his face go back to normal
I feel like having an identical twin has it's advantages because for surgery they have a great model to work off of for reference. Literally the same face to help figure out how to make the symmetry work!
You are truly a thoughtful, bright, kind and beautiful soul inside and out. May your future be filled with much love and joy. Thank you for inspiring those around you. Im sure you have touched and made/will make a positive difference for others even if you never actually meet. Thank you!!
Awe kiddo I think your awesome go for gold! And look how smart you are! I have Lupus I was so sick I couldn't finish I had to get my GED so good for you!
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He is so well spoken, i wish him a happy life
Indeed.
Fr I wish him the same
Love that his twin is fiercely protective of him. 💙
My daughter has Parry Romberg and has followed your journey she 15 and doing well. Thank you sharing your journey
Sending love to her and your family from Philly 🙏❤
You ARE normal, and brave as well. Please don't feel pressured to be a super achiever to compensate for having a facial difference. You're clearly brilliant, talented, dedicated, and caring.
Being ‘normal’ is overrated. You own your peculiarities and have inspired us to be better despite of the challenges life throws. Keep doing you effortlessly!
Lukas has beautiful skin, eyes, hair, a deep appealing voice, fantastic personality, gorgeous smile, gr8 physique, the list goes on. He is a catch. It saddens me to think of his struggles because of silly things kids habitually say. Wishing him a fantastic, happy successful life.
I agree 100%
I'm sure he will be successful in life..he has a lot of mental strength...very intelligent also
@@belarte7063 Absolutely.
They both seem like very well rounded boys..great job mom!👏🏾
You, young man, are handsome, articulate, intelligent & have a whole life ahead of you. Make every second count & leave the negativity behind you. You are headed for a very bright future & I wish you all the best.
Love from,
Southeast Louisiana 😊❤️🙏
They’re both so cute! I’m glad that these two brothers have each other, and that they have such a great relationship. I hope that Lucas’s surgery goes well too.
There are people with so called " normal" faces that have not accomplished one iota of what you have. Much respect!
Its hard to be different. Kids are cruel so u grow up feeling like something is wrong with you. Hang in there humans!!
So true. Just ignore the negative comments. People talked about me behind my back because of my weight and my male sounding voice and I'm all female. 😁 You're a very handsome young man and anyone would be lucky to have you as their man.
"Humans are cruel", fixed it for you.
@@librarycard3748 so true it's sad 🥺
Both he and his bro are dating, so please let them have there space.😘
@@creatormanualdarytendotmve4748 This video was posted a week ago.🙄 And I bet this young guy can handle a video and dating at the same time. Oh look. He's doing it.
It’s kind of sweet how the unaffected twin sort of pulls his jaw down when he speaks, almost like mirroring his twin. Probably unconsciously learned that just by daily putting himself in his sibling’s shoes. That’s some brotherly solidarity!
I hope the surgery goes well! 🌻
Lukas very recently got surgery I hope he is healing well
I'm glad he got it. Praying for a smooth recovery for him.
@@maidahaltrecht6577 he seems to beeping great since his jaw surgery he is getting another one in late November this time fat grafting and and a facial implant to build up the parts of his face that were affected by his illness
@@SabrinaHawk Thanks for the update. That's excellent news!
@@SabrinaHawk Do you know him personally? Lucky lady. He seems like the kind of gentleman I’d like my 18 year old granddaughter to meet.
I wish him a long happy future. 🥰
@@barbarachippel3142 no I do not I just saw he posted updates on his TikTok account
"When obviously I'm not normal"
WHOA buddy, let's get one thing straight, you are normal and apparently smart, you were at the top of your class for four years straight. That's a magnificent accomplishment. I really hope you get that vocabulary out your mouth that you're not normal, that's insane to think such a thing. I understand why you would think that but it's not true. You're normal and you're informing the world of this syndrome and that's amazing.♥️
That's right; I haven't met anyone that is so called, 'normal'.
@@shiny2423 very true!
This brought tears to my eyes. Although I do not have this exact condition, I am a 3 time survivor of head and neck cancer (5th child worldwide diagnosed with a rare cancer subtype in my infancy and young adult years). I do have facial deformities and stunted jaw/face growth on the radiated side and a speech impairment. I can relate to the self image issues, anxiety, kids and even adults staring and being mean. My energy went towards sports and academics.
I am now a doctoral student doing research with head and neck cancer patients. Let's make the world a better place because of our rare condition and unique life experiences! Hang in there buddy! You are a smart, kind, and well spoken young man. You will go far in life!
He is so articulate. confident and sweet. I love his spirit and his mum did a brilliant job.
Both boys are so mature and well spoken! I was glad to hear his condition was self-limiting. Hope the surgery resolves the jaw pain.
He is so well spoken for such a young man. I hope he is blessed with success, love and happiness in his life.
Very inspiring and great to have so much support. I hope there's an update after you've healed from your surgery. I also hope other procedures can be done to make both sides of your face look more similar and if not that's ok too! You already have a great smile!
No, you are not "normal", you are *EXCEPTIONAL* and don't you ever forget it, young man! Kudos to the mother to have raised two such intelligent, well-spoken and handsome boys.
To live with it has to be even harder when you have a twin and are always looking into "your" face without the changes. Not to become bitter and hateful shows that you have a pure heart and soul. I wish you all the best 💖
Proud of you! Recently a young girl that I met here a girl who was only around 20 was in a car accident.
People that have facial trauma or irregularities can be the modern medicine to every day people.
So many people are critical of their appearance.
I think it is beautiful that you are able to share your feelings and help others.
Born Different should do an update on Lukas after he recovers from his latest operation!
I think he's very cute .... Must be hard having a twin that's "normal" looking
Good attitude tho ! Good for you buddy ❤️
True.
I hope the surgery goes well for him. He seems like a terrific guy with a lot of potential.
What a terrific young man. Hope he has a very successful and happy life.
Your a remarkable young man. You are a lot more than how you look. Your achievements in itself are outstanding. Im glad you have such a supportive brother.I wish you well in your future. The sky is the limit ♥
Such a great and positive set of twins!! Turned something negative to a positive and the family support is awesome!! Prayers going forward toward any medical procedures and recoveries!! Wishing you and the family all the best and God Bless!!
Truly please give us an update when he has the surgery. I am somewhat invested in this syndrome and will like a future update thanks
You have such a beautiful relationship as brothers, you're truly blessed to have each other!
Why Luke if I was in your age group I would definitely ask you out on a date. You are an amazing, brilliant individual. The problem is with society and what their perception of beauty is. Your brother is cool but you exude a different level of confidence. Keep doing you young man
Actually, I think you're quite handsome. Your condition doesn't change that. More importantly, you radiate warmth, intelligence, and wisdom beyond your years.
Actually, the twin without the syndrome has something going on with his mouth. I wonder if he has been evaluated for other conditions? I think both boys are great role models for people who are a little different. They are going to go far in this world.
Looks like he has a gnarly underbite and lisp
I know lots of people that have one side of their mouth's paralyzed and i dont remember exactly what it is but it isnt serious and doesnt cause them any harm its just there i guess maybe its that
Yeah that’s what I was thinking too omg
Very mature and articulate young men. Nice job mom! Wishing you a healthy and speedy recovery from your upcoming surgery.
I was picked on by some kids in school, because I had something that couldn't be seen, but I was lucky enough like you are with your brother, but I had friends who defended me. You're a very handsome young man, and don't let anyone tell you any different. Your eyes are beautiful, because they show so much kindness, and compassion, and understanding. You've learned to be empathetic towards others, like I did, and you're very normal, extremely normal, and if I was a young girl, you'd be my first choice to ask to the prom, or out period, and I mean it, because I always, and still do, go for what's on the inside, and anyone would be lucky to have you as a friend.
Dude you're exactly as you should be, God bless you and your family!
Him and his brother are both very handsome boys. Bless Lukas' heart. If he isn't hurting, can eat and talk then its fine.
Appreciate you guys sharing Lucas’ story. I too was diagnosed with parry Rhomberg syndrome when I was a teenager. Awesome to see more awareness around this autoimmune disease
I so hope the surgery goes well and that it lessons the pain you’ve been experiencing ❤
You are not to be like others. You are meant to Shine like a star. Teaching others and still achieving all you've set out to do is inspirational to many. So keep on Shining! Hugs ♥ 🤗
His face is not normal. Yet. That’s the bad part! It’s 2022 and the world is still not accepting of disabilities or ‘abnormalities’ that people were born with. Don’t listen to them because your face is so beautiful and unique and everyone here is supporting you! ❤
Being yourself makes you different, your condition does not. Don't try to fit in when each of us were born to stand out! You're doing that with all your awards and accomplishments, great job! Congratulations!! No one has time for bullies in their life. Take care!
You are an amazing young man. Don’t let anyone tell you different. Honestly they are probably jealous of you and your achievements!! 💙
I'm happy you have a nice sibling who got your back! I hope the surgery went well and that you're ok 👍
I do hope Lukas realises he is important even without all the academic achievements. He doesn't have to prove his worth that way. Live a little, have fun, rip up a textbook 😬🤣 You are handsome Lukas 💙
Please do a follow up after his surgery!
What a wonderful young man you are! Two of my sons are also eagle scouts- 🦅🦅 ! I have no doubts you will do very well in life… Good luck on your upcoming surgery…
I've followed him on tiktok for several months, maybe a year. Its great to see him get recognition on a channel like this.
You are amazing. I’m so sorry that people have mistreated you in the past. That just shows how ignorant they are. Wish you the best😊
I’ve had this condition since I was 4 and it encouraging to see the attitude that you have towards it
Amazing brothers! Good luck, Lukas, and congratulations on all your successes.
I'm so tired of people judging others over something they call not "normal" it's rediculous they don't even realize one day they have to face God and explain the reasons they were so awful 😞 plus when we go to heaven we will be perfect so you have eternity to look forward to 🥰 you are an amazing young man never forget that ! I'm so proud of you 🕊️💜🙏
You are amazing! When you get to college, if you choose to do so, things will be so much better. Never let anything or anyone hold you back (which I don't think you do).
What a great guy. Good luck with your upcoming surgery. I hope everything goes well and to plan. God bless 💕
First and foremost you are normal. Any so-called abnormality comes from those who do not understand differences. And therefore choose to bully and disrespect. So you are not only normal but you are so handsome and I'm so proud of you for your academic achievements but more so for your honesty your journey to self love and acceptance and simply being you. Keep being you because no one can do it better.
You will be fine young man you have a loving personality continue the positive vibes
He looks beautiful to me. I bet you heal fast from your surgery. Have fun in college and the rest of your life!!
The more we learn about our differences (we fear what we don't understand and that makes some of us act stupid)) the more we can concentrate on what makes us all alike. Thank you for sharing. And I know this is an older video but you answered a question I had about the progression of your disease. Multiple surgeries will be challenging but I wish you well!
My son was born to look very different. As a mom I had so many worries. I don’t know all of his hidden sorrows and pains of looking different, however the worries I had about his future was unfounded. He met a stunning girl (really) and I got two granddaughters from their relationship. ❤They broke up eventually but we are still family and the dastardly son I worried so much about is as happy as ever as a single father. 😂 So, you do you and things will be fine. 👍
Knowing everything that a person is enduring in their life gives us the true dimension of their challenges and allows us to more clearly assess his value as a human being.
Wow the second I saw his pic I knew !! I have parry Romberg syndrome. Edit… love PRS doesn’t burn out . It can at times lay dormant and not progress physically but you will still be having neuro symptoms . I was diagnosed at 7 . I am 43 now and mine is still going . There are so few cases that docs don’t know much about it . It’s kinda just speculation . Best of luck to you
Still a hansome young man who sounds like he is going to make a great life for himself. 👍👍
Your amazing! Don’t let other people get to you! You are unique and kind and have a giant heart ❤️ And you are very inspiring so thank you!! 😊
What a lovely young man and his brother too, I had a similar negative experience at school, only for different reasons. You're very strong, even though at times you may not have felt it, and you're good looking too!
It's so interesting how other people's perception of us affect us even more that our internal self until we learn to reverse that.
What a beautiful family. Tremendous twin brothers that love each other and support each other and are not embarrassed about 1 of their conditions. I had identical twin daughters 46 years ago, but one died in the birthing process. Be thankful that you were able to bring both boys home is home and healthy. My living daughter has a very close relationship wit's relationship with her twin on the other side of the veil. She feels her presence and support especially in tough times of her life. The soul tie between identical twins is so it's so uncanny and strong. One is alive on this side of the veil and the other is alive on the other side of the veil in heaven. I'm very much looking forward to seeing her sister.
Hey Lukas, you are still better looking than I will ever be and you have a great personality to boot! Smart, charming, articulate. Best of luck with your surgery. Cheering for you.
Thank you so much for sharing your story. And good luck to you for your upcoming surgery
So happy y’all have the relationship y’all have together! Y’all are great! And there’s nothing wrong with you. Your self confidence will raise. You’re both handsome. ❤️
A very well rounded young man. Parents have done right raising both boys.
The love of these two siblings is so sweet! Such a positive message from all ❤
Their house is impossibly clean. These are great kids. Good job, Mom and Dad.
I'm happy to know your coming out of your shell and im happy you have a brother that is so supportive of you who sees the struggle your going through I love your relationship with your brother there's not one person on this planet that's perfect we all have flaws! God bless you and your Family I wish you health success alot of happiness and love for the rest of your life! Wishing you the best
You are so well spoken and confident. Impressive guy ! Will be praying your surgeries go well.
Thanks for this video
You are more normal than most of us
Wish you success with the surgery
It’s amazing what they can do these days with all the technology
You’ll be fine
I'm so Sorry you have to live with this condition!
You are loved!
This young man is absolutely adorable...so happy to hear his brother is by his side!! 🌹🌹
Cute, smiling eyes! Only, how can you be identical twins but only one of you has the condition?!
Identical just means they both came from the same fertilized egg. After that, they don't necessarily have the same experiences developing in the womb. They might have the same susceptibility to things like auto-immune disorders, but only one of them had the exposures and/or random chance of actually developing a problem. Genetics are just the base blueprint, not the final result.
Thanks for having the confidence to share your story! May God continue to bless your life! Your a gift from God and a true living testimony!
I wont worry about what other people think about you because you are wonderful person and I guess the things we achieved is great and I'm glad that you have brother that support you and is there for u
Healthy twin may have a mild case of the illness BC the left side of his mouth doesn't move when he talks. Mum might too BC her left eye is smaller than her right eye.
lisp
Don't worry about what people think. God loves you, and your family loves you. That's all that matters.
I myself was bitten by a large dog at 7 years old, and did go through lack of confidence. As I reached my teenage years I thought blow what other people think, either they like you or don't. It really changed what mattered to me.
Your a successful student and have everything to be proud of yourself. God loves you as you are. God Bless you 🙏
Since the brother is an identical twin (same DNA) does that mean he has a high change to develop this disease too?
When you smile you look like you are a very sweet and caring person. Please do a follow up video after your surgery and wishing you the best!
Hey Lukas! I suffer from a rare, incurable condition that affects all connective tissue in the body, called Ehlers-Danlos Syndrome.
At 16, I needed to have a double mandibular osteotomy with titanium implants put in as well.
Seeing your maturity, solid head on your shoulders, and that you're clearly a smart guy (and cute too), I bet everything is going to be A-OK. :)
The support of family, friends, medical team, and your online fans, will help you get through it and heal.
Even when you have your priorities straight, when you're a teenager, you can't help wondering what people will make of you, so I just wanted you to know I'm rooting for you, and to remind you that whatever happens with the surgery, you're already super just the way you are - the final product already, no alterations needed!
Very best wishes for a successful surgery, with quick and complete healing, from Canada. :)
God bless!
Just remember . Though some people suffer some physical ailments. Everybody suffers internal ailments..not always visible, but we all suffer in someway..We are all in this game together and should not love each other for our perfections, but our inperfections. It's time to imbrace each other for our differences.
Keep it up and u are normal, i hope your surgery goes very success and keep inspiring ❤️❤️❤️
He’s so beautiful, inside and out.
The sweetest smile 💕
Normal is overrated. You are unique and very articulate, I've never heard about your illness before so by you sharing with the world is a huge plus. I love that you have become more self confident, you are very handsome dispite your illness. Kids have no filter so they can be cruel at time.
I’m sure most of his anxiety is about getting and having a girlfriend. He seems like a really descent, humble guy, a nice girl will come along and accept him just as he is.
You are normal just because a few people let you down does not mean that everyone hates forgot about the negative people look into the bright side and positive people. Again you are normal!
Hope all goes well & wish you health & happiness!
Aww love this guy! What a great loving family. I wish him all the very best and hopefully he can have skin grafts and cosmetic surgery to help his face go back to normal
I feel like having an identical twin has it's advantages because for surgery they have a great model to work off of for reference. Literally the same face to help figure out how to make the symmetry work!
he’s has better incentive than the norm most don’t even have a life plan At his age yet he’s has several achievements
You are truly a thoughtful, bright, kind and beautiful soul inside and out. May your future be filled with much love and joy. Thank you for inspiring those around you. Im sure you have touched and made/will make a positive difference for others even if you never actually meet. Thank you!!
Awe kiddo I think your awesome go for gold! And look how smart you are! I have Lupus I was so sick I couldn't finish I had to get my GED so good for you!
They are adorable! As kids and young adults they’re soo cute!