OMGOODNESS! I feel like crying right now! I have never had anyone explain my experiences to me so well. I’m like, “She gets me!”😢 Typically, ppl don’t understand unless they have been here before. (Here meaning my current stage)
So helpful!! I've been tracking symptoms and this is so helpful to know what to look out for. Would you consider doing an episode on cyber sickness as it relates to vestibular disorders? It's my most disruptive symptom since I work mostly on a computer and I'd love to understand it better.
I have vestibular migraine, and my prodrome may take a week, not two days. It starts with fatigue, dizzy spells, bad sleep, feeling of pressure in the brain, headaches, and an aura migraine - this I have had from my twenties on as a separate symptom, with a very light headache, and the more complicated VB started 7-8 years ago. Then comes the major attack, first 15 seconds of feeling of ”visual shift” and brain acting funny and then very suddenly a severe vertigo and nausea and light and motion sensitivity and strange smells and a strange taste in my mouth for 2-4 hours with violent vomiting, and after that a crushing headache (plus light sensitivity) for 3-4 hours. During this I must keep my head in position and myself still in a dark room. Then I feel very weak and aching for the next day, and the dizzy spells, headaches, bad sleep and fatigue go on for some days. If I cannot rest but must work, the postdrome goes on and on until I rest. Luckily I have a preventive medicine nowadays.
@The Vertigo Doctor, would you speak more to how to find the right kind of doctor to come up with both rescue medications and emergency room plans? Neither are things my neurologists or ENT's ever mentioned and I wonder if maybe there's a better type of doctor that would be aware of such things. Perhaps a great topic for a vid if you don't already have one (I am new to your wonderful channel): what practitioners are best to have on our care team (and which types may not have adequate training) and how to filter through what to look for in credentials. It's so refreshing to find your content. It's the first time I've heard things explained so clearly after turning over many a stone.
Thank you Madison. This is a great video. Super helpful. One thing I need to learn is to rest more. I am still not totally accepting of the fact that I can't go full on all the time anymore.
@@thevertigodoctor thank you. I am aware of your group and get your emails and follow you on IG and YT. I just find it overwhelming having to do all kinds of things on top of what I already do. Living on a horse ranch, I get plenty of exercise just living my life (20-30'000/day), I do strength training, cardio, somatics, physio exercises. Vestibular exercises were increasing my chronic neck pain, so I've developed my own way of dealing with PPPD; I have developed coping strategies and identified all my triggers, so I can manage them as best as possible. I am doing so much better than I was two years ago. I went from up to a 100 micro dizzy spells a day on a bad day (I also have vestibular paroxysmia) and barely functioning to 6-12 dizzy spells on an average day. I am learning to pace myself, which hasn't been easy, as I would be full on for 16-18 hours a day. I probably still do more now than the average person despite all these disorders. Anyway, I don't expect you to read all this and reply. But if you do, thank you.
@@thevertigodoctor thank you. I am aware of your group and get your emails and follow you on IG and YT. I just find it overwhelming having to do all kinds of things on top of what I already do. Living on a horse ranch, I get plenty of exercise just living my life (20-30'000/day), I do strength training, cardio, somatics, physio exercises. Vestibular exercises were increasing my chronic neck pain, so I've developed my own way of dealing with PPPD; I have developed coping strategies and identified all my triggers, so I can manage them as best as possible. I am doing so much better than I was two years ago. I went from up to a 100 micro dizzy spells a day on a bad day (I also have vestibular paroxysmia) and barely functioning to 6-12 dizzy spells on an average day. I am learning to pace myself, which hasn't been easy, as I would be full on for 16-18 hours a day. I probably still do more now than the average person despite all these disorders. Anyway, I don't expect you to read all this and reply. But if you do, thank you.
I literally kept falling toward my left side every time my head would spin and I said to my dad I just need to tell somebody something is going on and then a day later I went to the ER.
My episodes are dizziness only, some sound sensitivity when really bad, but they come on suddenly and then last for MONTHS so I am not sure this is Vestibular Migraine. My doctors have not called it that and when I suggested it, they said no because it is constant and doesn't go away for months. I describe it as a functioning hell because I can still function and do my job most days but it is maddening!! and exhausting!!. What do you think?
Hi Madison, so when you say migraine attack. Is that the headache (i dont experience), i do have burst head pain on different part area on my head along with the dizziness, but the pain is doesnt stay long. And same time sometimes pressure on my sinus area. And is it normal that there is a day that dizziness will be very minimal
Hi! No head pain required :) And the most common misdiagnosis of migraine is sinus infection/headache!! learn more here so we can help: thevertigodoctor.com/vestibular-group-fit
OMGOODNESS! I feel like crying right now! I have never had anyone explain my experiences to me so well. I’m like, “She gets me!”😢 Typically, ppl don’t understand unless they have been here before. (Here meaning my current stage)
Sending tons of love!! There's tons and tons more where this came from in Vestibular Group Fit! thevertigodoctor.com/vestibular-group-fit
I’ve recently been diagnosed with VMs and this is so helpful, thank you!
Thanks Madison, hope you are well 👍
So helpful!! I've been tracking symptoms and this is so helpful to know what to look out for. Would you consider doing an episode on cyber sickness as it relates to vestibular disorders? It's my most disruptive symptom since I work mostly on a computer and I'd love to understand it better.
Can you elaborate on medications? Like what kind are we asking for? THANK YOU!
I have vestibular migraine, and my prodrome may take a week, not two days. It starts with fatigue, dizzy spells, bad sleep, feeling of pressure in the brain, headaches, and an aura migraine - this I have had from my twenties on as a separate symptom, with a very light headache, and the more complicated VB started 7-8 years ago. Then comes the major attack, first 15 seconds of feeling of ”visual shift” and brain acting funny and then very suddenly a severe vertigo and nausea and light and motion sensitivity and strange smells and a strange taste in my mouth for 2-4 hours with violent vomiting, and after that a crushing headache (plus light sensitivity) for 3-4 hours. During this I must keep my head in position and myself still in a dark room. Then I feel very weak and aching for the next day, and the dizzy spells, headaches, bad sleep and fatigue go on for some days. If I cannot rest but must work, the postdrome goes on and on until I rest. Luckily I have a preventive medicine nowadays.
@The Vertigo Doctor, would you speak more to how to find the right kind of doctor to come up with both rescue medications and emergency room plans? Neither are things my neurologists or ENT's ever mentioned and I wonder if maybe there's a better type of doctor that would be aware of such things.
Perhaps a great topic for a vid if you don't already have one (I am new to your wonderful channel): what practitioners are best to have on our care team (and which types may not have adequate training) and how to filter through what to look for in credentials.
It's so refreshing to find your content. It's the first time I've heard things explained so clearly after turning over many a stone.
Yes I will make an episode on this!
Thank you Madison. This is a great video. Super helpful. One thing I need to learn is to rest more. I am still not totally accepting of the fact that I can't go full on all the time anymore.
taking a step back to take steps forward is needed :) we can help you with this in Vestibular Group Fit! thevertigodoctor.com/vestibular-group-fit
@@thevertigodoctor thank you. I am aware of your group and get your emails and follow you on IG and YT. I just find it overwhelming having to do all kinds of things on top of what I already do. Living on a horse ranch, I get plenty of exercise just living my life (20-30'000/day), I do strength training, cardio, somatics, physio exercises. Vestibular exercises were increasing my chronic neck pain, so I've developed my own way of dealing with PPPD; I have developed coping strategies and identified all my triggers, so I can manage them as best as possible. I am doing so much better than I was two years ago. I went from up to a 100 micro dizzy spells a day on a bad day (I also have vestibular paroxysmia) and barely functioning to 6-12 dizzy spells on an average day. I am learning to pace myself, which hasn't been easy, as I would be full on for 16-18 hours a day. I probably still do more now than the average person despite all these disorders. Anyway, I don't expect you to read all this and reply. But if you do, thank you.
@@thevertigodoctor thank you. I am aware of your group and get your emails and follow you on IG and YT. I just find it overwhelming having to do all kinds of things on top of what I already do. Living on a horse ranch, I get plenty of exercise just living my life (20-30'000/day), I do strength training, cardio, somatics, physio exercises. Vestibular exercises were increasing my chronic neck pain, so I've developed my own way of dealing with PPPD; I have developed coping strategies and identified all my triggers, so I can manage them as best as possible. I am doing so much better than I was two years ago. I went from up to a 100 micro dizzy spells a day on a bad day (I also have vestibular paroxysmia) and barely functioning to 6-12 dizzy spells on an average day. I am learning to pace myself, which hasn't been easy, as I would be full on for 16-18 hours a day. I probably still do more now than the average person despite all these disorders. Anyway, I don't expect you to read all this and reply. But if you do, thank you.
I literally kept falling toward my left side every time my head would spin and I said to my dad I just need to tell somebody something is going on and then a day later I went to the ER.
My episodes are dizziness only, some sound sensitivity when really bad, but they come on suddenly and then last for MONTHS so I am not sure this is Vestibular Migraine. My doctors have not called it that and when I suggested it, they said no because it is constant and doesn't go away for months. I describe it as a functioning hell because I can still function and do my job most days but it is maddening!! and exhausting!!. What do you think?
The only thing I couldn't hear clearly was what you referred to as the stage you are in that needs to go to the Emergency room.
status migrainousus ( attack lasting more than 72 hours)
Hi Madison, so when you say migraine attack. Is that the headache (i dont experience), i do have burst head pain on different part area on my head along with the dizziness, but the pain is doesnt stay long. And same time sometimes pressure on my sinus area. And is it normal that there is a day that dizziness will be very minimal
Hi! No head pain required :) And the most common misdiagnosis of migraine is sinus infection/headache!! learn more here so we can help: thevertigodoctor.com/vestibular-group-fit
Is it possible to have vestibular migraine but not experience these phases?
many people have trouble distinguishing them, yes!
You speak so fast and your statements are so unclear. Sorry
Not my experience at all, but that would be so frustrating! These videos are enormously helpful for me.