The Mental & Emotional Hell of Living With Chronic Pain
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- Опубліковано 13 кві 2020
- The mental and emotional effects of living day after day, year after year with chronic pain are very real and can a lot of times be just as bad or even worse than the actual physical pain. The inability to be WHO you want to be and do the things you love can really strain a persons identity and sense of self-worth.
Many of our clients have said one of the hardest parts of living in chronic pain is not knowing what is causing the pain, the feeling of randomness, and the resulting fear can lead to a feeling of powerlessness and is a mental emotional constant drain.
We created this video, to help those living with chronic pain, better communicate with their friends, family and loved ones, what it is they are living/going through.
If you are struggling to explain your situation, to your wife/husband, aunt/uncle, mom/father or even your child or grandchild, send them this video.
And then tell them what it is you need, it could be as simple as understanding and not being upset if you "say no" to going to the baseball game, concert or even a trip to the grocery store; it could simply be to please stop asking you "are you ok" and trust that you will tell them if there is anything you need.
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I:m crying now. I:ve been in pain so long now so I don:t remember how it feels to be a normal person. I.m just so tired.
Ditto here. I feel like I’m on the inside looking out at everyone else living life. I feel dead already.
Me too. Lower back pain is screwing up my life.. no one understands
You are not alone!
Me too , i had a car accident 2 years ago , since that day , i had pain in my shoulders , lower back , hips and ankles , i also quit running, painting, i don t go out with my friends anymore because of this , i spend my days lying in bed instead ... my life is nothing like i thought it would be and i m so sick of it
Sending Love
It’s even worse when you are not being taken seriously.
So sorry to hear that
200 percent
Sometimes it’s not even the pain but the reality that the pain will never ever get better or leave you once and for all, and the scary morbid thought of always being in a state of disability. Then when you look outward to other peoples happy healthy lives, it can incise you to your core. “Why Me” is the mental chorus that plays in your head. “Why Me...” That is what chronic pain is.
Facts
Why turned into kill this year.
@@shamanculture780 I know what it feels like to have hatred for everything build up inside. It turns into a monster. Sometimes I can accept things for what they are and other times I can't. I try to think of it in terms of embracing the absurd.
@@ohmbasa I quickly started trying to look back on my happy life leading up to the last two years and tell myself you lived man, you already had your cjance and you did live. You put it all out there and be proud. Going foward i decided life as i love it is dead. ..but in the last three weeks my spinal stenosis and level ten Spasm finally decided to reduce. I discovered two simple but disrespected (by me) forms of pt. ICE. STATIONARY BIKING... ICEEEEE... Clam shell machine at planet fitness for Piriformis syndrome! HIELO. ICE. HIELO. ICE. BABY. I AM NOW FUNCTIONING AT 70%. AND AM NOT HAVING SUICIDAL THOUGHTS. I am still hurt though..
@@shamanculture780 Man I'm glad to hear that. Last few days for me have been at a 9. Woke up today feeling a little better.
I feel so useless and hopeless when my pain flares, like today. Chronic pain is like not wanting to die, but also not wanting to live anymore. :(
😔😔💚
I know I feel the same when I'm down
Exactly 😔🙄
♥️ you are not alone
There is a good way out, just search your inner core for the answer (maybe only God knows)
Just because pain doesn't show up on an x-ray or because no one can see your pain doesn't mean it isn't real. It's real, very real.
It is so real, that a physical evidence of it is not possible.
@@arjanbogaers8003Nerves cannot be imaged.
The living for years with chronic pain and sensitivity and being disabled is no joke! It’s worse too when family do not believe you. I still did not know after all the years of much suffering that fibromyalgia can affect so many different areas of the body, Even your eyes, due to the nerves and weak muscles. Your limbs and particularly your neck and shoulders. As I now have bladder problems too, imam now thinking is all this part of these illnesses? Shooting nerve pains are common too with irritation, Unable even to take blood pressure as you cannot tolerate the extreme pain if the b.p. Machine is taken on the upper arm. Incan only bear it on the wrist. Drs wont accept that.
My back is so wrecked its hard to even breathe. You can’t even imagine the torment of living like this. Please be patient with ppl suffering from pain
I wish science could just fix these sort of issues. I hate being, and seeing other people in chronic pain.
Chronic pain ruins your life especially when you know that there is no hope for it to ever get better. The depression and anxiety that comes with it is hell.
i swear , everytime i have a little pain my mind haves 1000 thoughts and cause my anxiety to tear me down and stress
@@jacolewatson7199how are you?
Well what helps me at isiah 33:24 soon no one will say i am sick in jehovah gods new world here on earth like in the garden it was jehovah gods original purpose for mankind. Thats a fact speak with one of Jehovah's witness to find out more.
No hope... Just a long painful road to the grave... I'v lived with chronic pain for 30 years and it ruined my life. I am hated by almost everyone... I am being bullied. I just want to be left alone. People that love with no or minor pain have got no idea how devastating chronic pain can be.
Thank you so much for this:) im crying so bad tonight and have been isolating myself because so many don’t understand
😔
I understand! I’m doing the same thing, and it’s affected my entire life and relationships. It’s been 17 years. 😢
It’s day by day, but it never goes away. I wish there was a group for support. I’m so isolated, and this video is spot on!!!
I have been isolating for almost 5 years. Noone understands.
@@jackie9867 I do! Geez! I don’t even want to go to the grocery store, so I have my groceries delivered. I can’t seem to get out the door!
This explains everything that has been my life for 18 years now, I don’t know how I have not lost my sanity. I live in the U.K.
I’m 53. Had a near fatal truck accident when I was 20 yrs old. I have literally had head to toe moderate to severe pain every second of my life since 1989. Wouldn’t even know where to start telling you what it’s been like. I feel like I can’t relate to anyone on earth. I get up every day and do what I can. Some days it’s not much, some days I overachieve and that creates this scenario where everyone looks at you like faking it when you can’t do those things. I’ve lost a wife, 2 kids, and all of my friends. Nobody wants to deal with me, heck I don’t want to deal with me. I can’t deal with doctors anymore. I’ve been passed around and misjudged by way too many. I walk nearly every day and I’m proud of that, but don’t think every step isn’t painful, because it is. Again, “oh if he can do that he could work” *sigh*... I’m a basket case. Family and friends judge me daily and don’t have a clue. I suffered the first 18 years medicine free by my own ignorant choice. Then however many years of oxy, dilaudid, etc. Pain dr got shut down. The current pain dr I have is anti-pill bigtime. I asked if I could try cannabis, and shockingly he agreed. I’m into the 3rd year. It’s amazing for PTSD, it does not take my pain away, but it gives me a mental disconnect so I can cope. My problem with it is I’m type II diabetic, and the munchies are killing me. I’m reluctant to tell the doctor because if I lose my card, I’ll have nothing to help me cope. I can beat the munchies but it’s extremely difficult and causes me more stress. I starve myself for days/weeks/months and then I revert back to eating everything in sight. There are other drawbacks but nothing too terrible except the price is astronomical. Because I was young and dumb, and didn’t want a handout, by the time I filed for disability I was no longer eligible because it was more than 5 yrs since I had worked at that time. Got a lawyer, he confirmed. Haven’t had a paycheck of any kind since 1996. Have been with wife #2 for 25 years and thankfully she has a good job, but that also made it where we don’t qualify for any help. She pays over $1000 per month for my health insurance. $400+ per month for cannabis. We don’t have much of a life due to all this. Everyone looks down on me, the pain gets worse every year and I’m down to 4 hours of broken sleep per night. It truly is a living hell. Why I’m still here I don’t know. I’ve contemplated suicide since 1989. I don’t even have the confidence to pull it off. I know there’s little kids in cancer hospitals so I just act like I’m ok because it’s easier then talking to people who view me as worthless. I don’t want sympathy, I just want to be left alone. Anything happens to my wife who is also in poor health, I’ll be living under a bridge somewhere. So there’s that to look forward to. I laugh everything off, because otherwise I’d cry and behind closed doors I’ve done my share of that for a grown man. My life is about fear and suffering, and apologizing constantly for what I’m unable to do. Hope this doesn’t upset anyone, I wish everyone the best.
Thank you for sharing this man. Im 20 and recently had my life changed by an eye injury. Reading your story is helping me try to tough it out through my own struggles.
Just believe God sir it will be well
I feel your pain bro. I know what hell is as I'm living it too. People can disappoint, but a dog will always be there for you. Get a dog if you can and watch your life change.
Thank you for writing this. I've been having a hard time and needed this, you've helped me so much. I promise to look at my life differently now.
I resonate with your story, and I want to say thank you for sharing the honest truth of your life. There are many parts I connect with, feeling judged by others, running out of money to do literally anything because I can't work and the medical costs are so high, the fear of losing my husband who is the only person that understands me and supports me. We really aren't alone... even though it feels like that every single day. My wish is that we can let go of other people judgements. People who live free of this hell should have no power over those of us suffering. I also pray that we can see our own worth and the value of our lives in every small moment of happiness, every beautiful little thing we get to see, every laugh or smile. They prove that we struggle on for a good reason. And we matter. ❤ I wish you the best. Even if you don't get better, I still wish you the best, that the small joys keep finding you from time to time.
i’m 15 and have chronic pain, along with other chronic illnesses.
i’m always in pain non-stop, thank you for this video.
I literally cannot handle it anymore,I’m in so much pain,I’ve been to so many doctors,everytime they give me medicine,it never improves and I’m so tired
Don’t let anyone tell you you’re too young to have this issue. I began having my myositis problems at 15/-16 and nobody believed me or understood or could diagnose me until I was 27. I’m 29, and I have my CK levels under control MOSTLY. Still have awful days but I know what my problem is, so I am not as insane or insecure anymore. Keep looking for solutions, keep getting blood tests, keep looking for solutions. It tooks dozens of doctors to help me and even now it’s never gonna be 100%
But at 15 you’re going to take a lot bullshit from ignorant people who don’t understand, keep looking for solutions and ignore them
God bless, good luck
@@justtryingtobebetter6032 keep looking marvel. It may not ever get back to normal but you may find some solutions to keep loving forward. God help yoi
They might have injured you as a baby/child. I believe they gave me a spinal tap at birth and that's why I've had chronic back pain and illnesses all my life until I quit working, quit driving and sold or gave away everything. I'm 44, destitute, & spend most of my days in bed just waiting to die. Keep trying to have fun and enjoy each day as best as you can.
@Greatest Ever ....I drink vodka everyday and I quit 10 yrs ago but the doctors keep accusing me of drug seeking...if I was truly drug seeking , I would go to a drug dealer (much cheaper on the streets anyways) but I wasn't drug seeking, I was seeking help that never came
It should be a crime for a doctor to accuse anybody seeking HELP for pain of drug-seeking !!!!!! Where do they get off !!!!????
This is so true. I was diagnosed with Fibromyalgia, the intimate shitshow of chronic pain. Drs don’t seem to really care. No offense. But our healthcare system as a whole is dismissive of chronic pain. Do you do teleheath? I have changed as a person because of chronic pain.
I have fibromyalgia too. Recently, I saw a Utube video on thiamine deficiency in fibromyalgia patients. I ordered some, it’s inexpensive and it is helping me. You have to start slow. I feel abandoned by traditional medicine. I also eat organic and did find green drinks like barley juice powder give energy. If I take to much though the energy turns into anxiety. But the thiamine is calming. I cleaned a lot and was actually really sore (not all fibromyalgia pain but real normal muscle pain which felt good or hopeful) I think there is something in this treatment. I know it’s not a placebo effect-I long burnt out on being hopeful trying this and that. I hope this is helpful. The vid is by Elliot -I forget last name off hand -but is very interesting as he explains the dysfunctional processing path ways in fibromyalgia of this nutrient and it’s importance in pain regulation. A search for ‘thiamine for fibromyalgia Elliot’ should bring it up..
@@thistree9028 Thank you. I’m doing ok right now but I go through periods of flares. I just started a new job and I’m on my feet a lot and I’m pretty sore when I get off work. I’m not sure how long I’ll be able to do this. I will definitely try this treatment! This is something I haven’t tried. I’ve spent probably thousands on supplements and vitamins, home treatments and naturopathic medications etc. It’s so hard dealing with this condition. Traditional drs. just don’t understand this. I do think Long Covid research is helping get more funding and more attention for this condition though.
I think it's a case of " if you can't see it, then it doesn't exist" . If you had a broken leg, at least it could be fixed. There's also a huge correlation between physical health and mental health ( and the reverse). If you have issues with both, which are ,Def, closely linked, what the heck do you do then. You're already in unbearable pain, but, Noone believes you,and, if you fall into a deep depression,it could be just enough to push you over the edge. You lose the ability to think rationally, and, before you know it, it seems like a great idea not to be here, AT ALL.
@@VisciousMatt much love n care from fellow sufferer 20 years now...I def get it. Wishing you the best, we are mighty warriors indeed!! 🙏💙
Hi Sandy, I too live with day to day severe chronic pain. It wakes me up in the morning and keeps me up at night. I am a registered nurse who had to stop working at 59 because I cannot get out of bed on half of the days. I have fibromyalgia and lupus with Sjogrens Syndrome. Wishing you well.
I’ve been dealing with fibromyalgia and chronic fatigue syndrome 4:34 for years now, idk how to live without being in pain. My family doesn’t understand how I can be in so much pain all the time and all I can do is cry in bed because moving is to excruciating. My friends think I’m making it all up so I don’t have to leave my house. My mental status is fragile and no one cares!!!
Have you been tested for Ehlers Danlos? Just wondering because many ppl are diagnosed with only fibromyalgia, when they also have Ehlers Danlos
This discussion can be had til WE are blue in the face! Others WILL NEVER UNDERSTAND!!! That includes Doctors, mothers, fathers, brothers, sisters, husbands, wifes or strangers for that matter!!! At this point, it’s like clapping with one hand! I’m so over it all
I'm 17 and I have been dealing with chronic pain for 4 years and the fact that I'm so young is the hardest part because no one believes me and tells me I'm just lazy or out of shape even tho I have to wear a series of different braces every day so it will be bearable. I'm so glad it's not just me going through this hell
God bless you. I know the suffering. You can reach us all out. 🙏🏻
You arenot lazy you are not out of shape. Ive been in chronic pain for 10 years it has been coming and going. And ppl will never stop judging you for your pain. Its frustrating how you even have to make ppl believe you are in pain when you are suffering so much. I just stopped explaining myslf. Those that support you will be thr for you, those that think you are just being lazy will always think that way. Its their problem not yours. Only you can understand yourself the best.so believe in yourself take one day at a time. Rest when you must, and love yourself. ❣️
It breaks my heart to hear you say this. I'm so sorry you're having to battle your pain and those around you. You're in my thoughts, and I hope some day you can have a pain free existence. 🤗
16 yrs old here with rheumatoid arthritis and degenerative disc disease, i feel you. proud of you for making it this far🖤 keep going ❗️
💙💙💙
I can totally relate to this , but i fear to even share this . People might look at me differently, they might see this as a call for sympathy. And some might even say that i should stop wining about my pain. All i want is for people to i understand that i don't choose to live like this. I am living a certain way not being who i actually am and that bothers me every minute every second more than the pain itself. The only motivation i have is listening to my doctors ,try my best to come out of this loop and one day i ll be me again. :)
One day you will not let others influence what you think and surrender your self to true change
Yeah there are so many mental facets to it all. I've had all that crap too with people thinking it isn't real... My life if two hours a day stood up. Its been like that since I was 25. I'm 47 now.... and a doctor had the nerve to say to my face AFTER 16 YEARS of fentanyl patches that "its not all about pills you know". I asked if she'd read my file and she said "pssssh well thats a lot of stuff isn't it" and this is my life....
This is THE most spot on video I have ever seen about chronic pain. I’m sobbing.
I did too.
I am 23 years old and I have arthritis. Lately the pain has become unbearable, at the point that I cannot even sleep bc the pain keeps waking me up at night. It's heartbreaking :')
Heating pad and Voltaren gel.. it helps you somewhat if you can relax the area and its muscles to bare it
I feel you. 24 years in constant pain. I cant even breathe without feeling like I am getting stabbed in ribs. My eds was diagnosed as arthritis initially and I ate wrong medication for 6 years which caused me constant migraine. How I am still sane is almost miraculous
@@hollyharvey1986 thank u, will try it 💖
@@mikkovalle7944 don't forget you are really strong for enduring this, let's keeps our hopes up and wait for the best, hope you can start feeling better soon 💖 in 2 weeks I will be visiting a doctor which does Chinese medical treatments to cure chronical diseases, he supposedly has cured people with arthritis before, I used to be really sceptical to these kind of things but tbh I am desperate and want to try anything than can save me. In a few Weeks I will let you know how it went 🩷 please take care of yourself.
Try carnivore diet
I’ve been crying nonstop after watching this video. My fiancé walked out me because I was so irritable, depressed and anxious for the past few months, and I’ve said some things to her that i wish I could take back. I tried everything I could to get rid of the pain, physically and emotionally. I was wondering why I was in such a depressed and angry state. I’ve never been so angry and depressed in my life. I used to play basketball 5-6 days a week. After my injury, I struggled just going to the courts to shoot around. I got a steroid injection & I felt good for about a month and a half, then the pain returned. I was so frustrated & I felt so hopeless. I started eating like shit & I couldn’t exercise like I wanted to. Still at the time, i didn’t know why i was feeling these emotions. My fiancé tried to stick by my side but it was too much for her to handle. Now that I’ve lost weight & I feel almost no pain, I’m trying to get her back. I pray for anybody that’s going through this because I know exactly what you’re going through. You aren’t alone.
Going through very similar situation. It's absolutely awful.
❤
❤
Similar situation.
Don't get her back!
Thank you for validating exactly how I feel. I'm 21 and I've had severe chronic pain in my abdomen for three years. I tore a muscle there and it has never been the same. The pain has completely taken over my life and I can't do anything that I used to enjoy doing. I've been to many doctors and specialists but no one can figure out what's wrong with me. I feel so helpless and depressed, and I fear that I will never be the same again. And no one takes me seriously because I'm so young. I'm so sorry to anyone who is also going through debilitating chronic pain and feel like they have no way out. It is the worst feeling in the world and I wouldn't wish it on anyone.
Hey man I feel for you. If you don’t mind me asking how did you tear a muscle? Is that what caused and is causing the severe pain? It’s not easy I know. We all have something that ails us and trying to get the right mindset is hard sometimes but we just gotta fight. It’s scary to think these things will last forever but things usually get better even if it takes more time than normal. I wish you the best.
Did u check and see if u had a hernia
Hi, I’m so sorry to hear this. I’m 29 and have been in pain for 9 years since I was 20. Not to scare you! You could totally find out what’s wrong eventually and get better, I have seen that! I just want you to know you’re not alone and docs used to dismiss me for being too young to be in that much pain. Drug seeking when I wouldn’t even mention drugs, just that I wanted my life back!
I have CRPS in my feet and frozen shoulder rn, it sucks. TbhI hate it when people suggest a diagnosis, but I just have to say CRPS usually starts with some sort of injury, and then never fully recovers. I got CRPS on my feet from tendinitis, I used to run cross country, I miss running dearly. Just a suggestion because it took them 8yrs to diagnose me properly. I got a ton of relief from Ketamine infusions for CRPS, but they’re crazy expensive and idk if I’ll be able to keep it up.
Just wanted to reach out and let you know you’re not the only 20 something in pain, it’s so hard because we’re supposed to be getting our life underway. The misdiagnosis hurt me for many years. I hope you’re at least doing better now, I wouldn’t wish what I’ve been through on anyone.
I have chronic abdominal pain, my diagnosis was ACNES (anterior cutaneous nerve entrapment syndrome). It took me I think two years or so to get diagnosed. Look into nerve entrapment and "carnett's test" if you haven't. I hope you find some relief! I am currently feeling burning and stabbing in my abdomen, and I'm just 25 and have had this since 20, so I feel for you.
Ask your dr to send you to a rheumatologist! I hope you got help. I have lived with pain for so many years i just thought it was normal until now it got so bad I had to tell my dr and now waiting for results for Rheumatoid arthritis. How are you doing now?
I'm trapped in this personal hell
Hey there cellmate, how long you been in?
@@mrguy1141 I’m 22 and been in pain for 2 years, I can’t walk for a week out of every month, sometimes two weeks. I had a body count of 60, went to gym every day, and drove a boosted 300zx, now I just wanna die
@@defyzx6817 you described my situation though I've only had the pain reach the point of chronic pain about a year ago, I'm 20 and I have pain in my feet, knees, lower, and upper back. It's hell, I already had isolated myself prior to achieving chronic pain
@@mrguy1141 7 years.
@@mrguy1141 I don’t tell anyone this, but I’m trying my own method, fuck psychical therapy, all those gay ass books don’t do shit besides more pain. I am going to take large doses of deer antler velvet with IGF-1 and other growth factors, so I can regenerate some of the disc, along with new blood vessel formations. There are study’s of this being successful but it’s very rare.
I have EDS and Right now im in so much pain and I'm in pain every day 24/7 and I will be in pain for the rest of my life and I'm only 15.... I have so much life and pain left. Chronic pain is a prison physically and mentally...
I have EDS too. I can relate to this. Sending love
Prison. Absolutely. In solitary confinement.
It sure is honey. Ive been dealing with this since I was 11. I'm 42 now &its very hard .you need at least 1 thing to hold onto to give h strength.
@@RainHavok1111 thank you so much for making me feel not so small in this large world. I believe I was the same age you where when I started to notice it, I know it will get somewhat better because the longer I have it, the more I will learn about what helps me. Thank you
@@Slothz_how are you now bro
It’s like living trapped inside of your body and you can’t feel free but you do want it so bad - to be free
This video is everything I wish I could say to people who don’t understand especially since I’m 17 and just got diagnosed with degenerative disc disease and facet arthropathy but everyone has been saying it can’t be that bad when I literally can not get out of bed most days.
Oh my love, I'm struggling over here with the same thing, but at 40 years old. You must share this with your friends and family. I came here today through desperation, as a way to help my family understand. Because we look healthy on the outside for the most part, it's hard for people to see what lies beneath. Please get yourself to a good pain management Dr. You're too young to be suffering with that much untreated pain. Sending you much love. Remember that the universe is forging our path. Even if it's hard for us to understand. 🤗
Take each day as it comes. Not everyone wants to accept that you are in so much pain at 17 years old. Some of them just love you too much to accept it. My best friend not only did not want to believe me, "she" was in denial about it, because it was just too horrible. She didn't want that for me, she was very sad. There can be many reasons for it, please don't take it personally. It isn't you! It is definitely them!
same :/ i’m 15 with rheumatoid arthritis and degenerative disc disease. it’s hell.
I’m so sorry you’re dealing with this so young. I’m 29 and have been in pain 9 years about. If Anything, I wish people would be more understanding, and just continue to be there for us. Be our friend, our family again without all the distance and judgement. I know how you feel. I hope you find something that helps!
@@dingleberryjones09 I'm SO SORRY. 15?? Just beginning your life.Im 53,and, since 36,have suffered from Psoriatic Arthritis, DDD and D Joint Disease. There's not room on the page for everything else,but, keep going,love? At 15, there's a good chance that they will find,if not a cure, a way to better manage these illnesses/ pain. Chronic pain,the effects it has on your mental and physical condition should never be underestimated. I can't believe I'm saying this
( IM SORRY) but, exercise , physical therapy, in a warm pool,( where you are weightless) as much as you can,while you can. I WISH I had pushed myself,while I was able to!! I HATE people who say that,but,moving,while you can,even a little,is key to staying mobile. My Rheumatologist has been PREACHING that ,for 17 years. NOW, I can't move,but,at your age, don't give up, not yet?You still have your whole life ahead of you.If you HATE me,I'll understand,but, if I had gone to Phys Therapy,while I could bend ( a little), maybe I'd still have my family, with me?of course, it may still have turned out this way? After 17 years, I haven't HARMED any Dr's,YET. That,in itself, is a minor miracle.I HAVE, however, requested a Rheumatologist who has a Rheumalogical disease??
I would be more inclined to take the advice of a Dr who suffers,like we do, on an hourly basis??
The worst part is when you cannot get a clear disgnosis of what is causing your pain and they pretty much say you are crazy..😢
I have so much chronic pain and PTSD from 30 years in the military and it’s practically my identity now. If I was somehow miraculously healed I’d be terrified. I don’t know who I am anymore if not for all of the pain. I can’t even leave the house without having a panic attack from all the pain and over stimulation…😖
So sorry to hear that 😔
I have a similar issue with the over stimulation and the panic attacks from the pain. I'm only 38 and it feels like my life is over.
Just try to believe and feel that it can miraculously get healed and rather getting terrified just thanks God....keep believing...God will heal you🕉️
Ive been a hard working man all my life. Disabled now and only 42 yrs old. Pain is so bad its criminal. You 100% hit the nail on the head. Its even worse when you refuse to be a slave to opiates, you physically and mentally can not hide from it. For everyone out there in the same boat... I'm praying for you friend.
Thank You. Sitting in the hospital yet again. We would never make animals suffer the way we let humans. Don’t get me wrong I love animals but I at least want to treated as well as one. We would never ask animals to live through this suffering.
I agree completely...it is unbelievable that we have to go to Switzerland to be put to sleep.
Thank you for your understanding. I am so angry all the time. I’ve lost time and I can’t even deal with my own home. I don’t want to burden everyone but I’m so tired of not being able to do things on my own and never having help.
Pain started in nov 2011 and still to this day it still the pain is still there if not even worse. 😢 talk about emotional pain..depression/sadness/dark deep thoughts! I HATE it!!! 🤕🤧
I know what you mean! I have diabetes and nerve pain in my feet and toes. I'm about ready to ask to have my right big toe amputated. I can't take it any longer 😭💔
Hey guys, good luck. Nita try alpha lipoic acid also called vitamin B17 against peripheral neuropathy (nerve pain in extremities) 600mg-1800mg. Daily coconut oil for sugar imbalance
For the nerve pain itself, CBD/THC helps and there is a non-opioid painkiller gabapentine that block the pain signals. Treat yourself right
@@nitalightell336 so sry honey. I have horrific rls it even gets in my arms sometimes so I can only imagine what you go through. Godspeed friend
Mine started in 2003, when I got saline breast implants. I was lied to by the medical profession, until an angel mentioned this to me, and I was so sick I could hardly get them removed. I did, but I’m still suffering, but not as bad. I’m sure I would have been dead of lymphoma by now.
That is such a real description
I was diagnosed with Lupus and EDS 5 years ago. The chronic random daily pain, especially in the morning, is brutal. I went from being a dancer and cross country runner to bedridden. I handle the pain better than most, but it's robbed me of my self confidence which is an unexplainable loss.
Chronic Pain is exhausting, too and the reality of not engaging in meaningful work or fun activities with family and friends is deeply disappointing. 😢
it's so hard. Life becomes so boring and depression makes the pain even worse.
U are the first person that I’ve found that actually understands what I’m going through. It makes u feel so alone bc people don’t understand what u really go through
🙏
Exactly... The fear of "what will be the next" is debilitating... I m living with chronic pain for 10 years...lets be strong.. Love to all who are reading this 🌼 lets continue to fight!
I'm a mum to a 10month old and a 2 year old
I have to lean heavy on my hubby and inlaws to look after my kids it torchures me that I can't be the mum I want to be and I hate watching my poor husband working himself to death always exhausted carrying so much for our family I just want to help him 😭
I'm also blessed though he never complains and I do have wonderful supportive inlaws
Still it's an emotional roller coaster I want to cry and complain but also feel bad complaining because it could be worse 😭
... over 3 decades.
The days spent sobbing .
Loosing ANOTHER day of life.
Most people can count how many bad days they've had.
We remember the handful of good days.
Thank you for voicing our thoughts. And to everyone here, you are not alone. I won't give up if you don't. I need you. All of you❤
🙏
chronic pain destroyed my life.
Sorry you are going through this as well, it has destroyed my life too now for 18 years now.
@@lauraann4014 and mine
@@johnmitchell2741 yes it is a terrible way to live your life, and it’s never going to get better for me.
I have fibromyalgia and I don’t see many other people talking about it here… But yes, although fibromyalgia may not be as bad as other chronic pain issues… it really takes a toll on my mental health, I freeze and can’t move sometimes a week/day because it hurts
I am 63 and I have fibromyalgia and arthritis I do understand.take care
Fibromyalgia is just as bad if not worse than some of the other painful diseases out there. Been at it since 2003, and had CRPS since 95'. As the years have gone by so the infection and Diseases were added to problem list. Lyme Disease, Kidney infection, cellulitis a d the like. I'm destroyed and going for 60 &they want me in PT. Come on please stop the insanity
A 39 year case of CRPS is not getting well. I'm just Advocating for others and trying to get through the hour. You all please take care !
When I was 19 I was in a car accident, hit by a drunk driver. I broke my neck. Ever since then I have lived with this pain. Day in day out, every moment. I try so much to distract my self. But it mentally exhausting just to do day to day things. I'm always mindfully aware it's there. I'm 25, is this how it's gonna be forever? Will I have to face this for the rest if my life? This is my biggest fear, there is no escape. My doctors do listen, they don't think the pain is there. They say I'm fine, they send me to physical therapy and they teach me to "work through the pain" but they don't understand what it's like. No one takes me seriously no one is listening to me. I just want to feel like I did. I'm so young, my whole life is still ahead of me, and I'm so tired. I'm scared of my future, and growing old, because if it hurts THIS MUCH NOW what is is gonna be like when I'm 50?
Worse. It exhausts you for so many years and finally when 3 top surgeons from 3 different locations tell you, you just have to live with it. It wrecked me. Now it being your neck, I would think that you could get surgical help? I don’t want you to have to go through life like me. I’m 45 and I’m not trying to be mean, I’m just not sugar coating it. I’m a hopeless case, please keep searching for an answer, your too young. I also have sever ptsd along with being crushed and shot multiple times. I shouldn’t be alive and I wish I wasn’t. I live a lie. No one likes complainers. They start running you out. Even if they don’t try to. It’s a lonely life. Please keep trying. If your gut tells you this dr is a money grabber, listen. It’s probably true. I hate seeing anyone go through a miserable life. Good luck, fight!
The epidemic is that they aren't treating people with pain like they desperately need. My step brother had terrible back pain from abuse he suffered as a child & couldn't get his pills so he killed himself. My roommate has chronic pain after a botched surgery but they refuse to raise his pain meds a measly 5 mg. They are making him go thru all sorts of invasive procedures and putting him on other meds with bad side effects. It appears the drs just want him dead. I have fibromyalgia and became destitute looking for help with my pain. Now I spend most of my days in bed but also trying to support my roommate. Thank goodness for the help I get my from sister. It's a wicked world we're living in, that's for sure. No matter what, dont let them take away your joy, laughter, or love.
Are you paralyzed now? Is it nerve pain?
Thank you. This is so difficult. Unbearable chronic pain. I've been in a state of fear. This is me.
Of physical pain you could only wish for one thing,that it should stop.In the Face of Pain there are no Heroes.
Thank you so much for speaking out on this. Diagnosed aged 12 with 2 chronic pain conditions and only collected more dibilitating conditions over the years despitedesperatly wanting to get better and pursue my dreams. I am now 39, and very lucky in many respects, i have a beautiful son and husband and loving friends (who i rarely see but always know they are there). I look on the brightside of life and still see how beautiful it is, but, pain has effected every facet of my life, which i mostly spend bed bound and in agony. The worst thing is constantly trying to keep mentally balanced and strong to cope with it everyday and night and those people who would deride, degrade and dismiss people in this state are insanely cruel, they wouldnt last 5 minutes living like those of us in this predicament.
Worst bit for me is trying to get a good night's sleep. Thankfully after about a year I think my body is on the mend.
This captured my feelings perfectly, I just started crying. God i wish I could just make it go away even for one day. I’m only 15 I should still be able to run around and walk with my friends and play all the sports I used to love I just wish I could be normal I just wanna be able to go on my feet again, I was such a active kid why can’t I still play soccer why can’t I still walk down the stairs. It hurts so much why can’t it go away I want it to go away I wish it could go away why does it have to hurt so much to walk why do I have to live like this the pain is forever and that’s the only thing I can be sure of
The worst part for me along side the pain and everything its taken away from me ie; my life my business , my social side of life, the worst part for me is people saying well YOU LOOK OK!!! Please do one if you dont want to understand please do not judge or assume bcos thats not fair! Lots of love to all who are suffering i feel you xxxx
💙🙏
I am so sorry. I completely understand it as I’m into my third decade of debilitating chronic pain. Everyone always complimented me because I was thin and attractive. At least you look good. It was no compliment. But now that I am nearly 60 I miss looking good. So try to at least enjoy that while it lasts because you become very invisible to doctors and other people when you get older. Take care
I was injured badly and permanently from my daughters breach delivery. Excruciating pain from many injuries. Pelvic ring injury that also caused damage with sacrum, si joints, lower vertebrae, sciatic nerve damage and many other muscle, ligament damage. Been stuck with the pain from it all for 29 years now. I have no life. I battle this pain around the clock. It NEVER STOPS horribly throbbing, aching , burning. I hardly ever leave the house because I never feel up to it. Who wants to go out when you’re in pain? Exactly. In all these years I have never found a way to somehow live better. Pain can take you down when it’s beyond a certain level and it a constant battle trying to get it to a tolerable level….then I don’t have much time and it starts all over again trying to beat the pain back down. Basically, my life is a nightmarish living hell. There aren’t enough things in place for people who suffer with physical pain in their bodies. It would help mentally just to be able to talk to someone who can relate. My PC doctor just doesn’t “get it”. The only reason I made it to the appointment in the first place was because I started 8 hours ahead of my appointment time trying to get the pain down so I could show up. I had to re-schedule many appointments! You can’t manage heavy pain in some kind of timely fashion 🤷🏼♀️🥴or atleast, I have never been able to. She wrote in my Visit Summary that I “seemed nervous and anxious”!! 😮 Well, I wasn’t nervous or anxious, I was HURTING and couldn’t wait to go home AND I have never been able to discuss everything I need to in their 15 minute session!! I don’t know which problems to put first, leave off until next time and also, it’s quite obvious that she doesn’t really like people, sits with her arms crossed and frowns the entire time. I have a hard time opening up to this kind of person even if they were just a next door neighbor. I’m just FRUSTRATED with MY LIFE. Period. No future except more of the same. They can’t solve or cure my pain problems. I’m just STUCK in permanent pain mode until I’m dead. Sorry for the vent. I don’t have anyone to talk to. Thank you for posting this video!
Could you try to get a zoom appointment so that you don’t have to spend so long in preparation and getting out this has been a godsend for me
@@giovannaprice3181I’m sorry that I just saw your reply. Can you tell me how this has helped you more specifically? I just want the heavy nerve pain to STOP throbbing.
All I can say is THANK YOU. Thank you for saying all I want to say to my family and friends but can't say because I know they won't understand and I know that it's not their fault that they don't. Thank you.
you just told my life story, the pain, fear and hopelessness. I need help, I can't get it due to cost..... hell for me is everyday.
I know I am 63 and need help I moved in June and my new place is still in shambles.I don't know what to do
@@pursedelighted9020 💙
I am in therapy to cope with the never ending pain and no offense to her but she has not said anything that i have not heard on UA-cam. Suffering is a torment.
I had to try a handful of therapist's before I found someone who specializes in chronic pain because she too is in chronic pain. Life saver.
This is so true it’s tormenting me now
OMG, you are in my head. How do you understand so well? It's been 4 years but it feels like my entire life. Its constant, it's never ending, its demoralizing and I've become stupid because of it. I've tried it all. I'm only 54 but I've become a fat invalid.
I'm 61 I have been dealing with lower back and neck fusions pain and now for 12 years .Now L4 vertebra has dropped compressing my disk into the sciatica nerve.I have chronic dry eyes from RK surgery back in the 90s.I have severe tinnitus ,my right knee is killing me because of the nerve being compressed ,My right arm is now tingling off and on throughout the day probable due to my neck fusions 6 years ago,So always be grateful because it can always be worse 🤕
@@johnmitchell2741 you are absolutely right and I'm so sorry you have to go through that. Everyday I try to help myself because as you said, it can be worse and I'm trying to ward off the worst. I am here if you want to talk, anytime 🤗 not an empty promise. 💖💖
What a great description of my life. I have shared this to members of my family, I know they try but they cannot truly understand.
🙏🙏🙏
Mine don’t even try. They’ve just deserted me.
@@Tinyteacher1111 I feel that way too! ( I'm alone,in the US,which is where my estranged husband and I chose to raise our family)Family are in the UK. My son ( 18 ) collapsed on the sofa today, saying, ohh, I feel awful!!! I made him tea with honey,and, said, Imagine your TODAY,multiplied by 1,000? Thats my BEST day,out of 365,every year.
@@Tinyteacher1111 I THINK that people ( even family) get " fed up " listening to " the pain shared". You can't help it, I can't either. It consumes your whole life. Noone,other than another chronic pain sufferer,can,possibly " GET IT". I'm sure that they love you,but, it's impossible for them to comprehend how all consuming CONSTANT, never ending pain is??
I'm sure that they love you.
No one can ever understand unless they live through what we do. 😞
I've been crying in my bed that I rarely ever leave anymore and I'm so tired of feeling like a goddamn burden on my parents or to my ex-husband whenever I ask for something because it hurts to move and being accused of overdramatizing or even making it all the fuck up. It's been 11 years and I've been feeling s*icidal again. People say they want to help you, but they don't. The truth is, people get tired of you being sick. Well, imagine how we f*cking feel.
I can't even begin to describe the overwhelming validation and relief I feel when I hear other people actually _getting_ it.
I went to buy a ball of yarn today. I had to leave after standing a long time waiting to pay, but told the shop lady I'll be back a bit later. About an hour later, I went back (after going home just to sit down for a while) but I ended up back in line having to wait for everyone else in the shop to get help, because they thought they were there before me. To buy this yarn would have taken under a minute. My pain was eating me up and again, I left empty handed and in tears. The old fart in front of me in line, the one who absolutely insisted that she had to get help, not only to buy yarn, but also for her miserable old pattern, well I hope and wish the very worst of pain for you too. You deserve it! That's what pain does, it makes you HATE other people and it makes you hate your life and yourself. I've really had enough today. It's been 12 hours since I came home and I'm still crying. I've had chronic pain for 30 years, but the past year and a half, has been so miserable that I can't remember the last time I actually was happy to wake up in the morning. It's a curse from the devil this pain thing.
How are you today?
Thank you for validating my hell for 30 years. Oddly enough I took myself off of all but one medication for pain as well as the antidepressants the Docs were trying to get to work. I began nutritionally to treat my inflammation..I dropped 40 pounds NO EXERCISE --hell, I couldn't even use a recumbent bike. Well after the inflammation began to subside and the weight came off...I now exercise daily. Three years later I still take only one medication a day. A big positive change after 30 years taking on average - 5 medications a day.
That gives me hope. Im on a lot and I swear it's made the pain much worse
Thank you so much for this video. I’m 23 now and have incessantly headache for 3 years now. I don’t know how I can live with it for longer. I haven’t done school and couldn’t study or work, because I’m in pain every second. I’m just so tired, depressed and anxious. In this speech you give people like me a voice that they to tired and hopeless to use. I try everyday to think that I’m gonna be okay. Thank you so much❤
@alaskablue8934 I'm trying to cope with daily migraine. I'm sorry this has happened to you. If you like biographies, you may enjoy a book called 'All in my Head' by Paula Kamen.
@@francesholliday5427 hello:) thank you for your message. I’m really sorry too that you are dealing with it too everyday. It’s just really so terrible to live in a body like that. Thank you for that biography. I will look for it :) I can recommend the novel blindfold by Siri Hustvedt there is a part that’s about a woman that is dealing with migraine. I don’t know many novels that contribute a illness like that so much.
@@alaskablue8934 Hi, Thank you for your message too. I will also look that book up, I have read other novels of hers, but did not know about that one. Just yesterday I found an article/interviews with both that authour and the one I mentioned to you. I'm going to read it later when I have a bit more time and can concentrate. I can pass it on if you like. I have another fiction novel on my to read list called The Pain of Pleasure by Amy Grace Lloyd, so that is one more novel that is based around migraines. I guess the good thing is I may have missed out on how good those books are, if I did not have migraines, as I may not have been drawn to them. I'm wishing you a good day, with whatever small pleasures you can find. I do feel more isolated among my immediate family, friends, community etc as I am the only one with daily headache. I do have one friend with chronic migraines but envy him in that at least he has some days off! But I can remind myself that there are fellow sufferers around the world going through the same thing, and it is good to be able to say hi!
I’ve had 38 years of horrible pain and very few understand.
I am in unimaginable pain. A surgeon maned me. There is no cure. The pain is constant.
I just hope you lived man. I know i did
Im 32 and i feel like my life ended at 30 im just waiting for my gf to give up and abandon me. Nobody wants to help me. Im here with you.
I'm with y'all... I refuse to commit suicide but I just want this to end. It's been about ten years... I hope y'all get some relief today. ❤️
@@shamanculture780 same here😢 the dwp stopped my pip and dont belive me in spite of all the meds im on and drs report so it's going to tribunals and will take up to a year or so,ive had multiple traumatic experiences since early childhood and accidents beatings etc you name it,its only my faith in GOD that's keeping me almost sane.
@@ohmbasa Please hang onto life , ive suffered for 54 years and most days its getting worse,it could be cancer but hospitals aren't checking people anymore because of this covid,plus i don't trust them anymore either,drs don't know what's wrong with me so they've just labled it as fibromyalgia hypothyroidism cfs depression ptsd etc, my life has been Hell, maybe one day we'll understand why we went through this, Gby 😢
God bless you 🙏🏻
Thank you so much for making this video. I recently passed the 15 year mark of dealing with CRPS (Complex Regional Pain Syndrome) -- I also have Fibromyalgia, Small Fiber Polyneuropathy, Erythromelalgia, Migraines, and more... people do not understand at all -- one thing you did not mention is that the government does not recognize severe intractable pain as a disability very often thus leading people to suffer greatly financially, emotionally, spiritually, and physically... -- ...the inability to be who I want to be......oh my gosh....that is so much how I feel and grieve the loss of myself...and the father I want to be to my child....
In 2000 I took one really bad step. I fell and fractured my spine. I have lived with chronic pain for more than 20yrs. I have had every form of pain management that there is. From epidural to RFAs. I've even spent 60days in in patient rehab for pain. My VA therapist believes I have PTSD from the waves of pain I experience. I'm 54 yrs old and feel like my life is over. That my life will revolve around what ever the next proceedure is. My life has been radically altered. My health is wrecked, my wife left, my marriage has ended. I've lost virtually everything
I have a connective tissue disorder (Ehlers-Danlos Syndrome) and it has caused many things that have damaged my central nervous system. In this video, she hits the nail on the head about the emotional side of it. My concern is the end and its promise of hope and how we can "fix" it. I'm not saying that we can't, but we can't in all cases. But she kind of says that too. So any family members watching this, please understand that she's not saying that any of us can just fix ourselves. If it were a matter of will alone, it would be easy. But it's not, in many cases.
I think she is refering to occupational therapy - ie assistance devices and gentler ways of moving that reduce body strain and pain flares. Its not about fixing the pain but fixing your environment so you can do things again.
I can totally relate and often feel so isolated because only a couple I know understand. It leads to many episodes of depression.
Thank you as a former firefighter who suffered a horrific injury that I never bounced back from after all those surgeries and years of physical therapy I never was able to cope with going from living life to it's fullest to not being able to get out of bed alot of times and getting frustrated at people who don't understand chronic pain or just think I'm lazy.. Therapist always get it wrong with me and that's a problem and why I quit therapy and medications for mood enhancement which only made me feel worse.
I'm suffering with adhesive arachnoiditis at L4 level of my spine, likely caused by a spinal fluid leak after a spinal laminectomy (surgeon said one of the bone spurs must have "got loose and burrowed into the dura lining, tearing it apart"). I spent 6 weeks post-op in agony, trying to get my surgeon to take my complaints of severe pain serious, but not until my head felt like it was about to explode and paramedics transported me to ER (where I was for some odd reason accused of DRUG SEEKING 😢 -- I am mixed race American female), but still released WITHOUT CARE until later same day with SUSPECTED MENINGITIS until MRI showed CSF LEAK WITH 9" SACK OF FLUID @ BASE OF SPINE.
To this day, following the dura repair, 2 spinal fusions later and the diagnosis of arachnoiditis, there is NOTHING more frustrating than the physicians that say they cannot provide more pain medication because of FEDERAL GUIDELINES 😢
So so sorry yo hear this
I don’t relate with someone who hasn’t been through it. So dr’s tell you there bs and haven’t walked our walk. Your right. So I’m listening. I’ve had dr’s tell me the most ridicules things. The commenters, help me more, because they relate. Years of dr’s I don’t go anymore.
If my family will even watch this! 13 years and still they don’t believe me!! 😭😭😭
😔
People would be shocked if they knew how much pain I’m in when I’m just standing chatting to them pretending I’m ok. It’s just that I have no choice
So sorry to hear that
@@Life360Summit ❤️
I hear ya
30 years for me. The first 12 were so destructive. I have overcome parts of it in phases in a story that would blow you away. In truth, recent successes involve the pandemic and cancer both providing a benefit in the most ironi. Of stories....
Being a musician helped me recover my self-confidence as well.
I've had hip replacements knee replacements back surgeries shoulder surgery skull reconstruction surgery I've bn in chronic pain for over 10 yrs. Nobody wants to help me I sometimes dnt wanna live. It's even hard to cry about it anymore don't nobody see my tears but me anyway I'm only 52yrs old. Help me pray for me
I’ll pray for you
Only one person in my family gets me & understands the reality of flares & pain.I have fibromyalgia & lupus.I am almost 65 now and have really struggled with horrific pain.Being on low income doesn't help at all.Thank you for your channel and this video, it helps.
Going on 7 years in this nightmare! I have watched a few videos that described me and made me cry, but I ended up bawling from this video! Thanks for sharing this video, because for some reason it just makes me feel a little better hearing that someone understands!
The story of my life.. I really don't anymore what to do and who to talk about it..
Thank you for your comment and openness about your feelings. It completely expresses where I’m at today. Nearly beside myself with pain. I’m so sorry that your hurting. Praying that you find peace in the storm and healing. ❤️
We endure it and persevere and I feel the same I don't know who to talk to about it either. Can't go a day without it can't sleep without it how do you explain it to someone. Some people excuse your pain or try to give you things that don't work I hate that
@@kelviannaepperson3677 I’m sorry your in so much pain all the time😢 it sounds like each day is very difficult for you. I understand what you’re saying about dealing with people concerning your pain. It’s exhausting. It requires so much energy to convey to others the difficulties you’re dealing with each day. And even then they don’t get it. I must say there is something beautiful that can come from our suffering and that is we have the power to have compassion and empathy for others that are suffering. So , on the days that we just can’t take the pain anymore, we curl up in our beds and hope for death. But like you said we persevere. But then on the days when we actually find the strength to go on we go out into the world and we choose to love more deeply, kindly, and gently. The world needs our kindness and understanding of what it feels like to be broken with pain. People are hurting everywhere. I will be praying for you just like Eli ❤️ Praying that God brings you someone into your life that can understand what you’re dealing with and gently care for you when you’re hurting. ❤️
There is a scene in the last Twilight movie when Bella is transforming into a vampire on the table. That scene is what it's like in our heads 24/7. Whoever directed that scene knew what pain was like. Thank you for advocating for us ❤
I'm 15 and I've been in constant pain since I was 7 - I had scoliosis and then the surgery and the pain died down when I went on stronger meds but they took me off them because I was too young and it's only been getting worse and worse. I'm tired of hearing "it's just growing pains" and "it'll get better when you finish puberty". They don't understand how hard it is, and this video explains it
I started wearing a back brace at 15 because of scoliosis. I would exercise for a month but it hurt me so intense. Find exercises that you can start doing and work your way though some more. It helped the pain in the long run because it strengthened my back for at least a year. I did this every year. No pain no gain is true. I am 50 now and have endured terrible pain. I have cryed myself to sleep many nights and almost ended my life many times. Strength both mental and physical will get you through the pain. You are capable to enduring more than you know. My heart goes out to you but there is hope. Dig deep and work though the pain. Find as many doctors that you can that will listen to you so you FEEL better. Talking this out helps. Distracting the pain works well for me. Music or a hobby like art is the most helpful. Most of my back is fused but I'm still kicking rocks. Fuck it. You can get through it one day at a time.
Much love n care...💙🙏
I have had chronic pain in my face for 35 years, it's got worse in the last 8 years. There is no cure and very little help for my condition. I find it more and more difficult to be positive.
It is a shitshow!!!!!! Over 5 years of this internal multiinfinite burning hell and crazymaking! Too many cruel doctors! Too broke to afford medication and I can't function without it! I'm going to email as soon as some of this internal burning goes down, thank you for being an advocate
I’ve been living in progressive and now very Severe chronic pain for 20 years this May. I also have mind-numbing peripheral neuropathy. It’s like being tortured every minute of my life even in my sleep (when I CAN sleep). I am an Artist and a Singer/Musician and I can’t do either anymore. I have lost ME. If I didn’t have my husband son and dogs I wouldn’t be here. I try to count my blessings but my very core is in nonstop excruciating pain even with medications. I don’t know how to keep living like this. Bless u all. ♥️♥️🙏🌹
know this reply is a year later but I relate to this. I have had some injuries and progressing pain that is turning more severe and affecting myself. Also a musician who is mourning the loss of playing guitar. The constant burning and neurological pain I feel is so distracting from life.
@@smilingiscontagious709 I am so sorry. I sure do understand. Here it is a year later. I am now well into 21* years of chronic pain and illness, too. I have lost so much. The past year plus, I've been working really Hard on trying to get some of my SELF back. I am now working each and every day, as much as I can with my Art, again. I am just about to open my website. It's NOT easy, but I've been thinking so much about what Life is about and what it looks like/how much I have left, etc. If I DON'T dedicate fully to my Art (and hopefully music again, soon, too), then the Disease Wins. I am not about to let that happen. It is so very hard just moving thru each day, but I have found that working consistently, as little or as much as I can, keeps me feeling less depression and that my life still has meaning. I have a pity day, not too often, but now and then, and then I get back to work. I hope you can get back to your guitar in some capacity soon. I want to get back to singing, piano and guitar, too, even if it's just for "me". Bless you! * Keep Fighting the Good Fight!! xo
I have small fiber neuropathy. Want to die every day.
Made me cry instantly, because this hits the nail on the head. I don't get to make choices based on what I "want" to do anymore. After 9 years of not getting to behave how I want, it's like watching the real you die. That person is inside, but they don't get to act in the real world anymore. Only the person suffering in pain gets to be present. And the heartbreak is your friends and loved ones saying they still care about you no matter what, even if you don't show up to events or hang out or answer the phone, because you can't... but you WANT to. But you can't, because the pain will bring you to your knees if you do.
This
Thank you for this, pain every second of every minute of every hour of every day of every week of every month of every year for 10 + years, I was very athletic, had many hobbies loved seeing and doing with friends..loved helping people..I've been in a mental and physical prison..watching people live their lives and do things they love with the people they love..I pray for each of you watching this that you receive healing in the name of Jesus
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My life is pain. I have learned not to cry because it makes the pain worse. The Drs have told me and my family that there is no hope. I find myself just existing. I think personally, the hardest thing is the guilt I feel, for getting sick. My family is very supportive but there is no peace from the pain.
I’m sobbing as I watch this… I don’t leave my house at all unless I absolutely have to.. I’ve lost over 50 lbs and wasn’t overweight to begin with (went from 155 to 105 lbs…) and now everyone I know and in my small hometown thinks I’m a drug addict because of it.. I also have severe chronic anemia as well and it doesn’t matter what I do I’m always tired and because of rheumatoid arthritis I’m always in pain…. I’m 35 with school age kids and my son has severe adhd and they are homeschooled per my husbands insistence….. and I have to force myself just to get to the couch. My house is falling down around me also because my kids and husband don’t help me… I’m in my own personal hell….
What health issue u having?
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This is so true. Have been living with chronic pain for years. DMSO has brought me quite a lot of relief - brings the level of pain down from feeling like twisted razor wire spirals forcing their way through your body to more manageable. I can actually formulate thoughts and words properly often now. Pain levels less. Not expensive either. It really has helped me to move out of the torture zone
Thank you for shining a light on this topic.. I've felt pretty alone ever since I injured my lower back in 2017. I was 19 when I hurt myself doing a deadlift and I never knew that I'd never fully recover from the injury and that it was going to flip my life completely upside down.. I'm still trying to adjust mentally to the things that I cannot do that other people my age can.. or should be able to do. It sucks and nobody I know really understands the pain so I just keep it tucked away and feel the emotional pain as it comes.. Everything you said here was 100% true.
So sorry to hear you have been dealing with this Kelsi 🙏
@@Life360SummitThanks for the kind words. We all have a story
I been in pain for 9 years since i had a thoracic hernia surgery, and the pains keep adding up, now i have neck pain and sacroiliac pain, my family thinks i invent my pains and anxyety, cant work, im in constant fear and extreme depression and anxyety, i feel so alone and sometimes i feel its all over, the worst is the loneliness and that nobody understands and the lack of empathy from friends and family, other thing is that i look totally fine from the outside, but my back, neck and hips are on fire 🥴🥴 24/7, it gets exausting.
Hiatal hernia?
I hate when people compare my condition to others conditions. I understand others are going through pain but constantly undermining what I’m going through makes me feel even more like shit.
It's true. The fear of not knowing what's going on with my body, why I am in such pain, worry about it all the time, for me right now is my biggest challenge
Exactly. Finally somebody knows what exactly what I've been going through.
Multiple back injuries have destroyed my life. Thank you for your research and understanding... It helps knowing somebody understands.
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It's pure Hell everyday for me. You're so right about everything you've said.
Nearly every word she said was SOOOOO true 😪 it broke my heart 😪 she described it exactly how it is 😪 I carnt stop crying 😪 how long can I keep going 😪
I know how you feel, I’m not sure how much more I can handle this it’s been 23 years now and I’m about at the end of my rope. I wouldn’t wish this on anyone.
@@deepwoodscountryboy8261 same, not much longer
@@deepwoodscountryboy8261 i'm 17 and it's been 3 years... i'm afraid it'll keep going and end up being 20 or more years :( I already feel like hell so i cant imagine what you're going through
Same!
@@taliaszabo2017 Going on 7 for me! When my accident first happened I remember researching and seeing people talking about this pain going on after 20 years...I was so scared, and now after 6 going on 7 all I could do is wonder if someday I'll be having this same discussion and inserting 20! I don't want to give up, but it's so difficult to not give up after feeling this chronic pain for all of these years! IT'S CRAZY, and I'll never understand how this works!
Loss of health, especially substantial health, requires going through the grieving process. I have this to be the case for myself.
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Hate to say it but the grieving process will never end as long as you remember who you used to be😪
@@johnmitchell2741yep :(
I can relate to this. Been dealing with pain for almost 15 years or better. This video has me in tears with how much its so true.
OMG this is me! I live in a personal hell for 23 years and this video hits harder at my core anything else I’ve ever seen before or been able to compile by myself. Thank you
When I was 17 I was diagnosed with a massively herniated disc at L4 / L5 the pinched my left and right sciatic, it is a center location. In addition to that at age 17 I also have slipped discs above and below L4/L5 and my very bottom Dess is slipped.
I’ve had many MRIs over the last 23 years. And with principal therapy, yoga, core exercise, daily weed smoke, cold showers, meditation, stretching, breath work, focus daily routine I have a reduce my herniation from 9 mm is 7 mm. The doctors are shocked by this
Thank you for saying all this. All I can say is that's exactly how I've felt going through pain everyday since 2002. I shared in the hope of people I know understanding better but somehow I don't think they will.
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I’m tired of being considered lazy. I want to do so many things other than lay on the couch. My whole body hurts and just started out of the blue at about 38. I just took my first shower in a week and I could stand for over 10 minutes and in a cool shower I sweat buckets. I don’t want to live the rest of my life this way. Chronic pain dr can only do so much. Added on top I have had depression/anxiety since my teens. I have 2 elderly parents I’m helping daily plus a daughter that’s 15. Her father works hard yet I’m lazy but I push myself past my limits and have to pick and choose what I do. I’m tired of being silent and being treated as lazy or just making up the reasons why I can’t do things. If people only really knew. I don’t look forward to becoming elderly. I can’t live much longer like this.
You described me to a T. 😢. Exactly 20 years pain. I was in a nursing home, now assisted living. 4 grown children. 5 grandchildren . Oldest visits few times /year with grands. About it. I would love for them to know this.
Great. You brough more sufferers into the world. I hope your kids are not in pain. I don't have children. I would never bring a life into this hell.
@@CBT5777 my oldest is 36 yrs old. None of them are in pain. Thank you for your concern. I was not diagnosed until my kids were little. Now grown, I told them about it, hereditary, how to lift things, etc. My 2 boys, the oldest, go to the gym every day to strengthen their bodies, after telling their coaches about me. He targets the areas to prevent them from this debilitating pain.
I feel your pain. Going to the gym is not an option. Depression sets in some days. Only we know what it feels like. Not much to smile about. Only my 36 yr old understands cause he had a period of severe pain.. in bed.. I took care of him. Nothing after that. I don't think the Drs even understand, UNLESS they had severe pain for some reason. Done writing, pain getting bad. Thank you for your reply. I really hope you can get comfortable & pain free for a little this week. Take care.
I have a mild case of celebral palsy
But i am often in very much pain
And i am sometimes affraid for asking help because people cant see what i am going trough.
Sometimes they ask me:cant you do it by yourself
Those people make me angry and sad
😭😭😭 thank youuuu ive been in pain for 12 years ... I am constantly gaslighted by doctors , they dont care & dont find the cause.
Omg I thought it was just me, the worst mental part of chronic pain is when a Dr. had me to the point where I could function then they take it away from you. Now I’m seeing a new Dr. after 20 plus years of suffering that said all they can help me with 4 glorified aspirin a day n no time release meds at all. This is inhumane treatment of a person who has done nothing wrong to deserve this. I have given up on help now I just sit or lay on a couch n watch the sun come up n watch it go down. I no longer sleep or participate in life . So why try any more. At least one person understands n I thank you🙏
look at all the comments we all understand
I tried surgery and no luck. It is the worst feeling. Mentally drain. Its torture.