LIVING WITH LEWY BODY DEMENTIA EP. 8 | NEW MEDICATION, PAIN CLINIC, AND 30TH WEDDING ANNIVERSARY
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- Опубліковано 8 вер 2024
- LIVING WITH LEWY BODY DEMENTIA EP. 8 | NEW MEDICATION, PAIN CLINIC, AND 30TH WEDDING ANNIVERSARY.
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I don't even know how to say this... last fall (2020) I happened on your channel thinking I would see an enjoyable episode that would give me a few minutes respite from worry and anxiety over my husband's strange health problems. What I watched was the first 4 episodes of your and Jason's journey. I broke down sobbing as I realized the undiagnosed symptoms my husband has been experiencing for the past few years mirrored those of Jason. It was both terrifying and a huge relief to at least know there was a name for this disease process. My husband is also a vet so you will understand when I say that we have begun the Very Long process of seeking a diagnosis amid many obstacles. I think we finally have a good medical team who are interested in my husband's health. I feel you guys were sent directly to my eyes, by God, just at a time I was ready to give up hope. Thank you. Thank you. Thank you. Best wishes for your anniversary and your life from the Hash family in Texas.❤
This is amazing. I hope you get the necessary diagnosis and treatment for your dear husband.
I’m so glad our videos have helped! Sending big prayers for you and your family ❤️🙏🏼
@@heatherthepainter2925 God bless you on your journey.
@@ACharmingAbode This is Dan. Do you know of any VA facility that has a good reputation dealing with dementia issues?
@@hashfamilyfilms5723 Our VA sent us to The KU Memory and Alzheimer Clinic ( they pay for it) because they did not feel equipped to handle Jason's dementia. So unfortunately, I do not have a VA to recommend!
Jason reminds me of Sargent Carter on Gomer Pyle , Jason you make me laugh, you are so cute and funny, love you both
He does....a cute version!
He does look like Sgt. Carter! I've been trying to figure out who he reminds me of for the longest time!
Yes he does ! 😀 Happy 30 th Wedding Anniversary and Happy Mothers Day .
He sure does!!
Anne, that is who I thought of too! Good old Sgt. Carter
Jason is so cute and entertaining . You two make such a cute and loving couple. I pray he will get help to be able to get the sleep he needs. God bless you and Jason🙏🏼
My husband passed a few months ago. But I wanted to share this with you. I tried really hard to be gentle and patient when he would have one of those mean moments that comes out of nowhere. But with my husband, I found that when I told him that he was being not nice and that I would not tolerate it, the response from him was good. I think he didn’t realize that he was behaving in a hurtful way. Every couple is different but this worked for us. Thank you so much for sharing your experience with others. It meant so much to me knowing I was not alone. It was an honor to walk him home to Jesus.
🌺💐
Becky. I lost my dear husband in January to LBD As well. He only got angry a couple times. Usually when he was in the hospital. I cried and he eventually calmed down. He was the sweetest most caring man ever. That’s why I couldn’t not react. It was a long hard road but we remained happy just to be together. I always remained patient with him and truly cherished every day we had together. The hardest part for me was when he’d have paranoi and didn’t think I was his wife. I too had the honor of caring for him and helping him fly to Jesus. We had 27 beautiful years together. We truly honored our vows In sickness and in health, til death do us part.
Honestly, I think we love Jason ALMOST as much as you do. Praying daily for you all.
I just love Jason’s positive attitude! He’s of the mind that he can either cry or laugh and he chooses laughter. And, the Bible says that a merry heart doeth good like a medicine. So, he’s giving us our daily dose of medicine! Much love to you both! ❤️ And, Happy 30th wedding anniversary! ❤️
I love Jason. He is a great guy in all of this. My late hubby suffered from Alzheimer’s and Lewy Body dementia. It is a hard, hard thing to see someone so special suffer and to know that they know what is going on and what is coming. Hugs and prayers for you both.
You two are adorable!God bless you both🙏🙏😂
Jason you are so funny, I love how you can still make your beautiful Leslie laugh. Happy anniversary I am sure you had the best day. YEAHHHH lol
For everything you guys are going through at least you can still laugh. That’s what life and marriage is all about
My Mom has Alzheimer's and you never know what you are going to get from one minute to the next. She can be loving and kind and then switches to anger and frustration. I feel for you. It is so hard not to take it personal. Thinking of you both with Love and compassion.
My mom had Lewey Body demential like Jason...so I know! God bless all!
It’s not easy my companion has Dementia and he gets frustrated sometimes and angry but sometimes he’s himself. I need to be more patient.
Yes ! My Mom has Dementia too.
That's how my great grandpa was before he passed away
Love Jason's sense of humor ❤️
Our daughter started Parkinson’s at 50. Beautiful girl. A flight attendant and ballet teacher. We look like sisters now. She started into dementia a while ago.
I can see you smiling thru your tears as only those who goes thrust the process knows. I’m so happy you are going forward with your lives. It takes so much courage and perseverance and love.
To think you have shared it is over the top with compassion for others. I hope everyone. And I think they do..
How you are giving straight out of your gut. I think you know what I mean
You have chosen to laugh where you could choose to cry
You are beyond the beyond to think of others
All my love
You guys are such a cute couple. I love how Jason just loves to make you laugh. I can tell that you guys have a good marriage, happy anniversary
This is such a personal journey, please only share if it is cathartic for you, we truly can’t understand, as every story is different, we can sympathise, but I sense it is getting harder and will only get harder still. I felt proper emotion from this vlog, perhaps it was the 30th anniversary milestone, it’s a big one, when you know you know, Jason knew you were the girl for him, so lovely, enjoy each other 💚.
It’s a rough road 😥 my husband has Dementia and some days I want to throw in the towel. God help us all
@@judymapston5508 Sending prayers for you and your husband Judy. It is a very tough road and I wish you strength in this battle.
Thank you for posting these updates. They are invaluable. You’re helping so many people. Thank you.❤️NanaJanet❤️
I love you both. You are so sweet, sooooo funny. Hi from Greece
Honestly Jason brings us so much entertainment! And I love how he makes you laugh!
My husband has dementia and I can identify with a lot of your journey. He is a lot older than your husband. I really admire the way you are open about the whole illness.
We too are very open . We too are dealing with pain issues . Unfortunately because I am not young either we both have pain issues. We deal with a lot of doctors appointments
So when I get a day with no appointments I really rejoice. Keep up the sharing as long as you feel like it.
Thank you for sharing.
My husband had atypical Parkinson’s and LBD. He died in February after a 7 year struggle. He had trouble with sleeping, but as his dementia worsened, he started sleeping better. He also seemed less stressed and happier.
I miss him so.
He has a great sense of humor! Awww you guys are so cute and sweet together!
The unpredictable is tough! On everyone. Thanks for continuing to share. Your sharing makes me understand we are not alone in this dementia struggle.
"My back hurts alot". OMG I cracked up at him and his deadpan expression. So happy every time I see y'all with an update. Congratulations on your anniversary too!
Thank you for making these videos. My husband was a Vietnam vet and when I happened to come upon your videos I finally realized that my husband 's illnesses were from a diagnosis of Lewy Body Dementia that a Dr had mentioned to us about 5 years before. It is a very strange illness that is so hard to deal with if you don't know what is going on. I finally understood all the different things my husband was going through , no fault of his own. Unfortunately it wasn't long enough for us to really understand what was happening before he started having strokes and passed away in December 2020. It helps to know that this is getting out and there are reasons for these behaviors and many other problems that are caused by this illness.
Nobody can truly understand what you're going through unless they have been through it themselves.
Jason's wellbeing is so important, but so is yours. I hope you have reached out to support groups.
Sending you much love ❤️
A great site on UA-cam is Dementia Careblazers. Loads of information and guidance. Both of my parents had Lewy Body. This site helped me immensely. You’re both in my prayers!! ❤️🙏🏼❤️
I hope Jason's sleep medication works. I was an unmedicated awful insomniac for years. Sleep deprivation wreaks havoc on everything in your life. Mentally, physically and emotionally!!
Happy anniversary. Don't forget the caregiver needs to take good care of themselves!
Wow, how dare you both look so great after 30 years of marriage!! One hint about the Dairy Queen blizzard. Everyone in the world knows I only want the butterfinger blizzard! No discussion needed!
Body align also has a wrist band...you can actually wear one on both arms at the same time. I will be trying these soon. They also have a "patch" to put on your phone,one for your computer, etc.
I lived with this for eight years. What you are stating with his behavior is a true fact. My husband was a great and kind man . We were married for 48 years and the nastiest behavior is hard on you. Your responses are correct bring it to his attention and leave the room. My husband has since passed and I miss dearly the man I married.
I like when Jason is funny, but I like even better when he explains things because he's so honest and makes clear sense of things by his insight. Thanks guys! Big hugs.
I love to see how much Jason makes you laugh. It’s wonderfully sweet.
You two are just the sweetest. Laughter is the balm and glue of marriage! 30 years is quite an achievement! Congratulations! ❤️
Happy Anniversary and much respect to you both. I was the Care Giver for my wife who had Alzheimer's Disease. I saw some of the same behavior with her. God bless.
Thank you so much for sharing your journey. My grandfather and great uncle succumbed to Lewy Body, and now my dad is suffering from it. My dad is only 61, so watching your videos really makes me feel like we are not alone. Thank you so much Jason sharing the good, bad and ugly. Sending you both much love from Illinois 💜
Your statement to walk away is the best medicine to give. I am at the point where I can watch the videos. Your insight is great. The hardest fact to accept is the loving man you had disappears every now and then. When he is up and good we are happy and forget the bad behavior. When the mystery man returns we slip into sadness. Both stay well and enjoy the holidays. I love your home videos your decorating skills are enjoyable to watch.
Happy Anniversary! It is joy but it is work. I have been married for 53 years. We started dating when I was 16 married at 18. He was 21. babies. Right. But that is common back then. You 2 are experiencing something that no one would want. I know you try and keep up. And your smile is so pretty. I think the hardest thing about this is the not knowing the future. We feel just dodging the Covid for my husband has been a plus. So we move on. This year has to be better. I am going to take back some of my old life. I lost my Mom last August she was 94. I miss her but do not want to go back. So Happy Mothers day. I know you have grand's and they make life worth living. Love and Peace to the 2 of you. Joyce
I love that you guys have a great relationship filled with love! So happy that the va has been doing well for you.
It is so hard. My husband was in Vietnam. He is easily 20 years older than Jason. He has some of the same symptoms. He can still pull it off most of the time when we are out. when we are alone, it is another story. You guys are the Best! Thank You for sharing.
Thank you, so much! I'm a nurse and my grandfather had Lewy body, we suspect my father is beginning to show signs of Lewy body. I can read the all the pathology but seeing how Jason is doing and how you are coping is a HUGH help! I can't tell you how much your videos help me to prepare for what will unfold for my father. Your relationship is so beautiful and real, raw! The happiness and love you share is apparently on screen. Thank you for being transparent and sharing so much of this journey. I can't express how much I appreciate your candidness. Sending you both wishes and blessings for good days and sweet moments to cherish the love and life you've built together! Jason, keep being silly! We love it!
I am so so sorry for what you are both going through. I know the helpless feeling of watching someone you love fade away and not being able to do anything about it. I pray your strength remains steady God bless you both.
Happy anniversary to you both. My husband and I have been married 48years and he has been tormented by Lewy Bodies with Parkinson’s for the past few years. Unfortunately he has become extremely delusional and believes I have been having affairs all our married life, which is so untrue. We are battling with getting him the help he needs and deserves, I so agree with you ,Neil you live it you have no idea what it is like. We have the Mental health team coming in on Monday to hopefully schedule him for a full medical assessment. I can see so happiness and peace in Jason, but unfortunately my husband has no happiness or peace in his life. Lewy attacks the whole family. My best wishes to both of you.
I totally understand the out of left field. My husband has dementia. Thank you for these updates and your regular podcasts.
Jason is so funny and I love how he makes you laugh and giggle. Happy Anniversary! 30 years is a true blessing. Please keep making these videos as long as it's beneficial to both of you. They have been very encouraging to me and the info is helpful.
Thank you both for sharing Jason’s update. You both are such an inspiration. HaPpY Blessed Anniversary! 🥰
You are such a wonderful couple. I truly admire your strength. Thank you for letting us in. This can’t be easy on either one of you. Jason continues to have such a great sense of humor.
Jason is soooooo fun!!!
His sense of humor is AWESOME!!!
Girl, you are blessed!!!
Beautiful family!!!
My MIL had Parkinson’s & Alzheimer’s
My mom suffered dementia after a massive stroke.
Life can be so tough.
You both seem to be handling this quite well.
God bless you all!!!🙏🏼🙏🏼🙏🏼
Hello how are you doing 😊😊😊
Congratulations on 30 years! Good to see you laugh and love 💕
It's so awesome how much Jason loves to make you laugh! You can see it in his face how very much he loves seeing you crack up. I wish I had as beautiful of a relationshop as you have together. You are so lucky even with your struggles. I love you guys. God bless you.
The super happy, satisfied look on his face, every time he makes you laugh. 🥰🥰🥰
Lol 😂 he is to funny 😄… at least he has a sense of humor and keeps you in the same mind set … God bless you both 🙏🏼🙏🏼🙏🏼 Happy Anniversary !!! 🥂🍾
My father had this diagnosis it was a difficult journey to go thru and I know it was rough on him. But I’m sure they have made great break through since he pasted. My prayers with you and your husband
read some of the entries, Leslie you and Jason touch a lot of people, God has put where you need to be. Bless you both. I praying for you both.
Jason, you’re so funny! Just love you guys. Hope the sleep meds work.
Happy 30th Anniversary!!
Happy Anniversary Wow Thirty Years is A Fantastic Accomplishment! Wishing you two many more! Jason keep making her laugh!
Happy 30th Anniversary, Jason and Leslie! Leslie, you look fantastic in yellow 💛 Jason, thank you for the laughter you never fail to provide. 💙
I started watching about a year ago a while ago after my husband was diagnosed with Alzheimers and Jason's forthrightness about his experiences helped me so much. Tthank you both for your vulnerability and honesty. Please continue making videos, you're help people deal with very difficult illnesses. Much love to you both. ❤
You both make me laugh and smile.....yet.....you definitely speak about the seriousness of Jason's illness.......thank you both for using humor in your lives.....because life is real......
Jason thank you for expressing yourself. You are a true hero & none of this is easy. You are bringing awareness to so many. 🙌🏻
Sweet sweet couple! Happy 30th Anniversary! Has Jason always been a comedian? 🙂🙂❤️😂
💝Happy 30th Anniversary Jason&Leslie!💝💐 Love when you do videos together - you guys crack me up. I can’t thank you enough for sharing both your perspectives on LBD. It’s not an easy journey for the patient, caregiver, family or friends. It’s a cruel disease and very hard for our loved ones to experience. I wish I had your videos when my mom was going thru her journey with LBD. There weren’t many when she first got diagnosed. Thank you for helping to bring light, love and patience to a very much needed community under the dementia umbrella.
CONGRATULATIONS ON 30 YEARS! You are a great couple. Love to watch your channel. You are admired for sharing your story and appreciate you keeping us up to date. We don't know you personally but we still care about you both and worry about you. Love your interaction with each other.
You are both so sweet and so cute! I know how difficult it is to talk about Jason's illness. My mother had Alzheimer's and her sister had Lewy Body. Good luck with the new sleep med and the pain clinic. Cherish every moment. Happy Anniversary! ❤️
Well happy anniversary to you! Not the best way to spend the day, at the doctor... but I've realized the important stuff... being together. Thanks for the update. 💛
God i love watching you two together!
Happy Anniversary. Giggles. That’s right. Keep laughing. .
I’m glad you guys are fighting through!!! Prayers for you guys! You should do a day in the life with him once a month, the first one was eye opening. Love knows no limit 💙💜😇
Happy Anniversary 👩❤️👨🎊 Jason’s sense of humour cracks me up 😂
Has your doctor suggested PCA . Posterior cortical atrophy.
My husband has this
With Lewy Body. As you described Jason’s experience It’s like you are describing our life. Praying for God’s power over you. The struggle is overwhelming, yet you remain sweet and kind❤️
Wishing You and Jason a wonderful Anniversary!! May God continue to bless you both with lots of love, patience, and most of all slowing down this horrible disease. Sending hugs full of love to such a beautiful couple!!
Happy Anniversary! My brother-in-law has the same disease. He and my sister have also been married for 30 years. Its a journey for sure. God bless you both!
Happy Anniversary! We are reaching out 50th this year. My husband has been diagnosed so far with nonspecific dementia leaning towards Alzheimers or Lewy Body. Your updates mean the world to us. You touch us to our soul.
50 years!nThats amazing! Sending hugs!
Thanks for the update!! Blessings and happy 30th anniversary!!
You two are the cutest! I just went through a month and a half saga with my husband (42 days in the hospital), now home recovering. It really makes you stop and think about what's important in life and what isn't. Happy, Happy Anniversary! xo
My father was just recently diagnosed with Lewy Body. He has been battling this for years with no diagnosis. He was finally able to find a doctor who was willing to help him and get to the bottom of the issue. My mom has been his rock through it all. She was shattered by the news. Your videos give me hope and comfort. My dad is 55 and has severe symptoms. Thank you for sharing your journey.
Thank for your postings and videos. It really helps that others feel these frustrations too. The up downs and inconsistency of not knowing what moods the loved one will be in is very hard. It's very hard to describe to someone who hasn't seen it first hand. Sometimes others can think you are exaggerating because they cannot understand the complete turn around of your loved one. I send love and complete understanding. 🤗❤
Happy and Blessed 30th Anniversary, love your channel. Continued 🙏🙏 for you both.
God bless you!! My grandpa had Dementia, it was hard so hard on my grandma, he would call her "the lady that takes care of me" , he was never was mean, he was just very, very quiet.
Happy Happy Anniversary! Laughter is the best medicine! So happy to see both of you enjoying your anniversary together! Continued prayers🙏🏻
I love your showing this journey , love how you’ve both accepted the diagnosis and are so positive, Ive worked with dementia for many many years and I see people in the later stages of dementia so it’s fascinating to me to watch and listen Jason and see how it affects him in the early stages. This will help so many people as your keeping it real. Stay positive xxx
You guys are fantastic, your sense of humor, mutual love for one another, coping with the good and not-so-good days. Congrats on your Wedding Anniversary 🎈🌼
Happy Anniversary! Enjoy the good times and weather the bad. You are both amazing people. Sorry he was dealt this hand and sad that you are having to be the primary caregiver. Been there, done that. Really love is what will carry you through this.
Prayers and happy thoughts for you both.
Congratulations Jason and Leslie! You have had such an incredible journey, and have dealt with it through humor, love, and grace and your faith. Thank you for sharing, Judy
Happy Anniversary! I’m glad Jason still has his sense of humour at least for this video! Good luck with the new medication! I hope they work!
Im living a very similar story, mom has Luey Body dementia so i look forward to your videos so so much. Helps me not feel so alone! Looking forward to another update soon! Hugs
It is good Jason can explain what he is experiencing.
You two are so beautiful! It’s wonderful you are still able to laugh, because you will need lots of laughter and love to remain strong. May God continue to walk this difficult journey with your family and grant you peace!
I just found you on UA-cam today and knew that there was something that I loved about you,I know that you're a beautiful person and I enjoy looking at your videos.I wish you and your husband the best !!!
Continued prayers!!
You two are the absolute cutest! ❤️ Congratulations on your anniversary! 🎉 Jason, thank you for making us laugh! 👍😃 Enjoyed this update, thank you for sharing!
Happy 30th Anniversary! We Love your channel but most of all we ( myself & my husband) love your commitment to one another. Congratulations and Prayers for you both. Tina from NC
Happy 30 th Anniversary! ❤️🥂🍾❤️ I am praying that they find a cure for this because you two are such an Inspirational Couple. You make us always smile. Your Honesty is so Genuine. I hope all your UA-cam videos take off and you do well because of anyone you two are so deserving of the Best! Happy Mother’s Day! ❤️❤️
Omg I love you two,you both are so special.Jason looks good.Thank You for sharing your life.
Happy Anniversary! You two are such a great couple. Jason cracks me up! I hope you can get the sleep problem sorted out.
Omg I’m yawning away every time Jason does, it’s soo contagious 😂. Happy anniversary 🥳
Happy Anniversary! Hope Jason finds the new drug helpful and you find it makes a difference. He is a bright, funny guy and deserves the best. You both do.💕
I have gone through so many back treatments . Pilates has been the best. I’m sure it’s from strengthening my core but please consider giving it a try.💕
The two of you are so much fun to watch. Thanks for sharing!
Thank you 😊
I have been watching your videos and I am living in the same world you are. My husband of 54 years was diagnosed with Alzheimer’s Dementia and he is in stage four. Thank you for explaining in detail the problems dementia patients go through.
Amazing couple... so generous of you to share your experiences in an effort to help educate others.
Wow. I am so proud of you and your husband for sharing this serious health journey with viewers. You are helping so many people by doing this. I think Michael J. Fox was the pioneer of doing this. My hat is off to you both. Applause, applause!
There's no other way to describe you two, other than to say your are a real blessing. To know what you're going through and still have a great sense of humor is remarkable. I have a family member with LBD and to see his what his wife goes through and she is holding it together better than anyone I know even though his LBD has really gotten bad. I pray for all of you, and hope your light keeps shining. Thank you for sharing your time and your story. ❤️ Happy Anniversary to you both! 🌹
So good to see you both. You both are so sweet and pleasant. Thank you the updates. I know someone with LBD so this helps me understand him.