Ehlers Danlos Warrior Reacts: Mystery Diagnosis
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- Опубліковано 7 лют 2025
- Ehlers-Danlos syndromes are a group of 13 subtypes of connective tissue disorders that are genetic. They can affect the body in a myriad of different ways (primarily your skin, joints and blood vessel walls) and can be life changing. Join me today as we explore Hypermobile (one of the 13 subtypes) of EDS.
Join me as I react to a "Mystery Diagnosis" episode on the subject of EDS.
If people were able to get diagnosed a lot sooner it could really help with the pain, as well as the feelings of just feeling odd or weird and could it could help when people call you names to know you aren’t the things their calling you, that your not weird just different. It would also help the schools to understand why you were getting hurt so frequently. Luckily for you and me the schools witnessed your klutziness first hand. I haven’t been diagnosed but I do know I was a klutz and remember the school calling my mom quite frequently because I had fallen down the stairs yet again. Many of the other things that are described, describe me as well but I know that doesn’t mean that’s what’s wrong with me but my heart does go out to you and I pray that you get all the help you need and that you can find relief from your suffering🥰
Even growing pains are awful with EDS. My son has cried during growing pains.
I remember those pains well. The sad thing was that I had no idea why it was so excruciating! I would wake my parents up with blood curdling screams because of pain. It hind sight that let’s me know why I was going through that. My heart goes out to your son.
I was 43 when dx but it was good because my kids got dx too. Thankfully my daughter was dx because she started getting POTS symptoms shortly after that and we understood what it was. We would have been lost if we hadn’t had our EDS dx.
I’m so glad you were able to understand your daughter as many do not get that. Unfortunately that means you’re sick too.
Jeez cœliac and ehlersdanlos?
But yeah I wish more people reacted to this series
10:47 why did it start at 15?
I’m not a doctor but I have noticed that a lot of illnesses start with the beginning of puberty.
@@MandasMusings I never thought it could be triggered by hormones
7:26 did you skip?
I did skip around to make the video shorter.