From Skin Lesion to my Diagnosis: Understanding Cutaneous Lymphoma Pt2 (with photos)

With photos you'll be able to actually see what these cutaneous lymphoma rashes and lesions can look like, on myself, and others. When a rash isn't always a rash. Internal Medicine is King (you'll see why). Nurse educational on this skin topic, with sarcasm here & there. Example of a doctor's broken, unforgiving care. How I got to a specialist. Explanation of what Cutaneous T Cell Lymphoma is, what it is not, and how to get support. You'll see real photos of my skin lesions and other people's cutaneous lymphoma condition. Patient story.
#cutaneouslymphomafoundation #patientstory #ctcl
Click here to view my other videos: / @lisa_rnhealthhub
Photo of MF CTCL - MDAnderson.org
Cutaneous Lymphoma Foundation - www.clfoundati...
Photo of MF on trunk and hip - mynotes4usmle....
Photos - doctorhoogstra...
LyP photo on back of legs - www.researchga...
Cutaneous Lymphoma Foundation - www.clfoundati...
www.leukaemia....
Lymphoma Research Foundation - www.lymphoma.org
City of Hope (California) - www.cityofhope...
Yale Medicine - www.yalemedici...
www.ncbi.nlm.n...
www.ncbi.nlm.n...
HOW IS PRIMARY CUTANEOUS ANAPLASTIC LARGE CELL LYMPHOMA TREATED?
There are many options for treating PCALCL available, but localized treatment with either radiation therapy or surgical excision are the preferred therapies for single lesions of PCALCL. Radiation therapy is most commonly used, and has a response rate of 100%. Radiation therapy has been shown to be more effective and longer lasting than using multi-agent (“traditional”) chemotherapy.
For multiple or widespread lesions in which radiation therapy or surgery aren’t good options, there are several possible alternatives for treating PCALCL. As research is continuously changing, there may be other options that are not listed here:
• Bexarotene (Targretin®) capsules
• Brentuximab vedotin
• CHOP (cyclophosphamide, doxorubicin, vincristine, prednisone) chemotherapy
• CVP (cyclophosphamide, vincristine, prednisone) chemotherapy
• Imiquimod
• Low doses of methotrexate (Trexall)
• Nitrogen mustard (Mustargen topical)
• PUVA (Psoralen and ultraviolet-A light)
• Thalidomide
All of these therapies are effective in treating the disease, although relapse is common and, therefore, long-term follow-up care is required.
Photos: dermnetnz.org/...
DermNet - All About the Skin
Cutaneous diffuse large B-cell lymphoma photo - link.springer....
Cutaneous Lymphoma Foundation UA-cam - / @cutaneouslymphomafnd
Derm PA I spoke about who has Mycosis Fungoides - • Story of Hope - Cathy P.

[@The5grands]

Love you my dear friend ❤️🙏❤️

[@donnawvidrine3811]

Thank you from Louisiana.❤

[@gail9982]

Thank you! A very similar thing has been happening to me in CO. I’m a recently retired RN who’s had 4 separate crops of recurrent papulosis (my diagnosis) for over ten years. I also always have the stabbing itchy scalp lesions. I can’t get in for a skin biopsy for 3 months.

[@Lisa_RNHealthHub]

Hi @gail9982, thank you for watching & for all your years helping others as an RN. WOW! So how did they give the diagnosis of papulosis w/o a biopsy? I really think it's crazy it takes that long to get into any specialist, I'm sorry for your wait. Be sure when you get the biopsy, it's w/o any use of steroid cream for a while as it can alter the diagnosis of CTCL. Lymphomatoid Papulosis & Large Cell Anaplastic T Cell Lymphoma look very similar, & as my derm said, they are related. Keep me updated in your final dx & plan of care. Especiallly if they give you something that works for the scalp lesions, it's awful we have that & it seems to never go away for good. Take care Gail. Lisa