Explanation about achalasia and symptoms like difficulty in swallowing from Upper GI surgeon Majid Hashemi FRCS, animations and patient stories, produced by Achalasia Action charity
I am 1 i 100000, I have had achalasia for about 28 years, had an oesohagectomy, after several balloon dilations , Botox injections still have issues, I can’t eat much in one go & struggle. This is a hard disease to deal with & I appreciate the surgeons & staff who have helped me over the years.
Thanks for such a wonderfully simplified explanation. I’ve had Achalasia for over 40 years. It took years to diagnose and longer to explain what I had to friends and family. This would have been incredibly useful to show them. Once again thanks 🙏
Thank you for a very informative video. It really helps to find a simplified version especially to friends and family. I've had it for 14 years now.. Only got diagnosed 2 years ago which made it hard to explain to people why I can't eat. I've had to isolate myself from living life because of it. Still haven't had any treatment done and it's progressively getting worse. Hope I can get something done within a year of saving up.. It's good to know I'm not alone😭. Let's stay strong while we fight our silent battles
I've been dealing with achalasia for about 3 years now, my first 2 years where full of mystery, and my last year has been filled with surgery and Edoscopies like POEM. It's very difficult as a 17 year old to explain these symptoms to people not loving with the condition and it's even more difficult on the mind to understand that I can't eat like normal people and need spe spacial treatment. I'm definitely sending this to anyone I know who asks about my conditionand definitely subscribing because you guys are doing great work by showing the world about a condition so rare and hard to explain for the common person Edit- my heart goes out to all of those who spent so much longer trying to get a diagnosis, as a sufferer myself I cannot even begin to imagine the pain of living with this condition for so long and unable to explain why it's happening
As a sufferer myself, I found this video to be really informative and useful to show people in my life that dont fully understand the condition. Thank you
I have Achalasia type 2 or A2 and lost 86 pounds before my surgery. I chose the Robotic Heller Myatomy with DOR Fundoplication because it is the gold standard for my A type and age, and has the lowest acid reflux post op. I had it done in San Diego with UCSD with Dr. Santiago Horgan. I'm happy that I found him.
I have been dealing with Achalasia for over 43 years. I was originally diagnosed as having an eating disorder which my mother, a nurse and medical professor refused to accept. It took almost 9 years to get a correct diagnosis. This is a great overview. I wish I would have had this years ago.
Just diagnosed with this today. So I'm reading up on what they are gonna do to try and fix it. I can't tell you how relieved I am to have an answer finally. People were calling me crazy and telling me it was in my head for years. People have made fun of me being skinny for years. It effects my dating and social life. When your 5 yrs old nephew out eats you it's embarrassing. I'd go days with nothing to eat. Or a slice of bread every couple days. Very malnourished. Back spasms that hurt so bad. Throwing up in front of people cause your food is stuck. It just feels good to have an answer and I pray they can fix it.
I’m having the POEM procedure done on Tuesday. Hoping this can cure me forever. I’ve had difficulty swallowing for 2 years. Hopefully they can schedule you for one of these soon, did they request you to go and see a specialist? I had to travel about an hour to see one at the University of Maryland in Baltimore.
@@adamhassan8153 I have my appointment November 17 with my specialist. Luckily it's right near my home here in AZ. I guess we'll see if they want to do the POEM procedure or the Heller Myotomy. Although I'm thinking it will be POEM. My gastro told me that the guy I'm seeing is one of the top in the country. (Hopefully that is true and she isn't just trying to comfort me). I've been dealing with this for 8 years. Only reason I've made it this far is self medication. Even then, it didn't work all the time. I was beginning to accept that this was gonna be for the rest of my life. I started crying when I found out they can help me eat again.
@@blakefrazier3668 I haven’t been dealing with this as long as you have but I was so relieved to hear there is something that can pretty much cure it. My doc told me it was 95% effective. Will def let you know how it goes. I think they would prob do the poem on you if they can, apparently that’s the most popular treatment for it now. Good luck bro
@@jennifernorthcutt6462 like I said above it’s 95% effective. So 5% have reoccurring issues. My surgery went well and I don’t have any issues swallowing anymore. There are now 10 year studies available online if you would like to read about it. Achalasia is progressive if you don’t respond to treatment. I had pain in my chest every morning from esophageal spasms for 8 years. The pain is now gone and has been gone since November 1st when they cut the muscle giving me issues out. Best thing I’ve ever done.
I have all the symptoms including horrible below left breast pain. Had many endoscopies which didn't show the problem. I also had fungal infection Next I am asking for barium endoscopy.
Magnesium is low in many people. I take it daily in Calm or other brand and feel it helps me not to have spams. I think we should be checked for our magnesium and zinc levels.
The worst is the days when it just says nope today you not going to even drink water deal with it.....the grapes it's the skin it becomes like shards of glass so you find yourself coughing hours even the next day and pieces of grape skin are coming out ....... for the spasms in the back I take gaviskon (antacid liquid) and for some reason after a few minutes all is OK
So I have questions after a person have a swallowing test and if is true about food or drinks getting stuck how long does it take get the poem surgery cause some of these doctors need to know and move fast if a person is expecting truble swallowing foods and drinks it shouldn't take for ever to get cured
Does it make you throw up? My husband only some foods he swallows but won’t get pas the esophagus!! He will throw up what he ate. It’s only a few items not everything. But is scary!!!
It's very important to make the distinction between throwing up (touches stomach acid) and regurgitation (sitting in the esophagus tube). GIs do not seem to help people to understand this because the people often do not know themselves. Sometimes food rots in the esophagus so it can be confusing.
I am 1 i 100000, I have had achalasia for about 28 years, had an oesohagectomy, after several balloon dilations , Botox injections still have issues, I can’t eat much in one go & struggle. This is a hard disease to deal with & I appreciate the surgeons & staff who have helped me over the years.
I had my esophagectomy September last year x
Thanks for such a wonderfully simplified explanation. I’ve had Achalasia for over 40 years. It took years to diagnose and longer to explain what I had to friends and family. This would have been incredibly useful to show them. Once again thanks 🙏
Glad it was helpful!
Thank you for a very informative video. It really helps to find a simplified version especially to friends and family. I've had it for 14 years now.. Only got diagnosed 2 years ago which made it hard to explain to people why I can't eat. I've had to isolate myself from living life because of it. Still haven't had any treatment done and it's progressively getting worse. Hope I can get something done within a year of saving up.. It's good to know I'm not alone😭. Let's stay strong while we fight our silent battles
I've been dealing with achalasia for about 3 years now, my first 2 years where full of mystery, and my last year has been filled with surgery and Edoscopies like POEM. It's very difficult as a 17 year old to explain these symptoms to people not loving with the condition and it's even more difficult on the mind to understand that I can't eat like normal people and need spe spacial treatment. I'm definitely sending this to anyone I know who asks about my conditionand definitely subscribing because you guys are doing great work by showing the world about a condition so rare and hard to explain for the common person
Edit- my heart goes out to all of those who spent so much longer trying to get a diagnosis, as a sufferer myself I cannot even begin to imagine the pain of living with this condition for so long and unable to explain why it's happening
did poem help you?
As a sufferer myself, I found this video to be really informative and useful to show people in my life that dont fully understand the condition. Thank you
Glad it was helpful!
I have Achalasia type 2 or A2 and lost 86 pounds before my surgery. I chose the Robotic Heller Myatomy with DOR Fundoplication because it is the gold standard for my A type and age, and has the lowest acid reflux post op. I had it done in San Diego with UCSD with Dr. Santiago Horgan. I'm happy that I found him.
You may have saved my life, I’ll contact this MD 30 years later. Thanks ☺️
Lovely to watched this vedio . 🥰🥰🥰
I have been dealing with Achalasia for over 43 years. I was originally diagnosed as having an eating disorder which my mother, a nurse and medical professor refused to accept. It took almost 9 years to get a correct diagnosis. This is a great overview. I wish I would have had this years ago.
How are you now. How is your health. R u working as normal. My habi is suffering the same problem
Thank you! There are many resources on Facebook, UA-cam, and Instagram if you search for Achalasia or esophageal issues.
Thankyou for making this video it's very informative , especially to see perspectives from a variety of people with the condition!
Glad you enjoyed it!
Just diagnosed with this today. So I'm reading up on what they are gonna do to try and fix it. I can't tell you how relieved I am to have an answer finally. People were calling me crazy and telling me it was in my head for years. People have made fun of me being skinny for years. It effects my dating and social life. When your 5 yrs old nephew out eats you it's embarrassing. I'd go days with nothing to eat. Or a slice of bread every couple days. Very malnourished. Back spasms that hurt so bad. Throwing up in front of people cause your food is stuck. It just feels good to have an answer and I pray they can fix it.
I’m having the POEM procedure done on Tuesday. Hoping this can cure me forever. I’ve had difficulty swallowing for 2 years. Hopefully they can schedule you for one of these soon, did they request you to go and see a specialist? I had to travel about an hour to see one at the University of Maryland in Baltimore.
@@adamhassan8153 I have my appointment November 17 with my specialist. Luckily it's right near my home here in AZ. I guess we'll see if they want to do the POEM procedure or the Heller Myotomy. Although I'm thinking it will be POEM. My gastro told me that the guy I'm seeing is one of the top in the country. (Hopefully that is true and she isn't just trying to comfort me). I've been dealing with this for 8 years. Only reason I've made it this far is self medication. Even then, it didn't work all the time. I was beginning to accept that this was gonna be for the rest of my life. I started crying when I found out they can help me eat again.
@@blakefrazier3668 I haven’t been dealing with this as long as you have but I was so relieved to hear there is something that can pretty much cure it. My doc told me it was 95% effective. Will def let you know how it goes. I think they would prob do the poem on you if they can, apparently that’s the most popular treatment for it now. Good luck bro
@@adamhassan8153 the surgeries are not cures. Achalasia is progressive. Some people never have any more trouble after the surgery but some do.
@@jennifernorthcutt6462 like I said above it’s 95% effective. So 5% have reoccurring issues. My surgery went well and I don’t have any issues swallowing anymore. There are now 10 year studies available online if you would like to read about it. Achalasia is progressive if you don’t respond to treatment. I had pain in my chest every morning from esophageal spasms for 8 years. The pain is now gone and has been gone since November 1st when they cut the muscle giving me issues out. Best thing I’ve ever done.
I have all the symptoms including horrible below left breast pain. Had many endoscopies which didn't show the problem. I also had fungal infection Next I am asking for barium endoscopy.
Magnesium is low in many people. I take it daily in Calm or other brand and feel it helps me not to have spams. I think we should be checked for our magnesium and zinc levels.
Think I have this 😢❤🇨🇦🌎
The worst is the days when it just says nope today you not going to even drink water deal with it.....the grapes it's the skin it becomes like shards of glass so you find yourself coughing hours even the next day and pieces of grape skin are coming out ....... for the spasms in the back I take gaviskon (antacid liquid) and for some reason after a few minutes all is OK
So I have questions after a person have a swallowing test and if is true about food or drinks getting stuck how long does it take get the poem surgery cause some of these doctors need to know and move fast if a person is expecting truble swallowing foods and drinks it shouldn't take for ever to get cured
No one has found a ‘cure’.
Does it make you throw up? My husband only some foods he swallows but won’t get pas the esophagus!! He will throw up what he ate. It’s only a few items not everything. But is scary!!!
Yes you throw up..
You throw up with no stomach acid. ( At least in my case)
It isn't throwing up. It is regurgitation because the food/drink hasn't made it to your stomach.
It's very important to make the distinction between throwing up (touches stomach acid) and regurgitation (sitting in the esophagus tube). GIs do not seem to help people to understand this because the people often do not know themselves. Sometimes food rots in the esophagus so it can be confusing.
@@Caress1972 Now go on and say what can happen to this esophagus
Sp