Sjogren's Syndrome: Dry Mouth Treatment Options
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- Опубліковано 11 бер 2023
- If you are struggling with dry mouth due to Sjogren's Syndrome, this video offers practical tips for effective relief. Discover the latest treatment options and lifestyle changes to manage your symptoms and improve your quality of life.
#sjogrens #sjogrenssyndrome #naturalremedy #drymouth
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LINKS (discuss with your physicians if these are appropriate for your medical needs)
Floride toothpaste amzn.to/3XxqbyZ
Sugar Free Chewing Gum amzn.to/3Iav5w7
Xylimelts amzn.to/3xvQkn0
Dry Mouth Lozenges amzn.to/3YAMBjX
Humidifier : amzn.to/3HVcMed
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👩🏻⚕️ About me:
Dr. Diana Girnita is a double board-certified physician in rheumatology and internal medicine. With a Ph.D. in immunology and training at Harvard and top universities, she founded Rheumatologist OnCall, offering integrative medicine to broaden rheumatology access. With a focus on personalized treatment, Dr. Girnita incorporates proper nutrition, exercise, and stress management. Experience her passion for helping patients with autoimmune disease and arthritis. This video provides general information and is not a substitute for medical advice. Views expressed in comments do not reflect the opinion of Rheumatologist OnCall.
Important Notice: Medical advice, opinions, or diagnosis cannot be provided through email, phone, or social media. Our clinic serves patients in various US states. Check our website to confirm if we are accepting patients in your state."
* The information in this video is not intended nor implied to be a substitute for professional medical advice, diagnosis, or treatment. All content, including text, graphics, images, and information, contained in this video, is for general information purposes only and does not replace a medical consultation. Any comments and/or recommendations made in the comment section by anyone other than Rheumatologist OnCall do not reflect our opinion or recommendation.*
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Thank you for all information you sharing
Thankyou so much for doing these videos so helpful💕
Thank you very much for your informative videos
I’ve never been given this information from any of my providers in the States
wow! you are such a blessing. no doctor discuss this
Thank you so much for all this information!
I have been using the biotene toothpaste and lozengens!
It's so comforting to find good advice about Sjogren's! I will be returning to your site often! Thank you for the support!
I'm glad you found the advice helpful! Feel free to reach out if you have any questions.
Thank you Doc. ❤❤❤
You're welcome! I'm glad I could help.
Thanks so much ❤
You're welcome 😊
Thank you so much for making like this video. I diagnosed Autoimmune disease Sjogren syndrome last June 2022 & followed diagnosed breast cancer...
thank you!!!
Drink more water they keep telling me… it makes my mouth dry I kept saying … so frustrating
After 5 min my mouth is dry again.
The symptoms are so vast it’s extremely frustrating!
I do better with hot drinks rather than cold,find it to work better.
@@graceacuna7673 Agree totally.....!!!
Try Dr Ellie Phillips’ (dentist 40 yrs) Complete Mouthcare System., works on dry mouth.
Thank you mam.
Most welcome 😊
I have suffered from this syndrome for many years and had the dry eye problem so severely for more than a year that I was lucky to get 2 hours of interrupted sleep a night. The eye irritation felt like someone had thrown sand in my eyes and it was impossible to get it out! My eye doctor put me on Restasis eyedrops twice a day and after about 9/10 it provided relief. I also used moist eye packs twice a day. Once the dry eye started to come under control the dry mouth problem got worse. I tried chew gum, etc it it didn't help very much. Been using Bioteen mouth wash multiple times a year for many years and it really helps! I literally tried every single brand of over the counter eye drops for my dry eyes (in addition to Restasis) and all but one of them actually made my dry eyes worse. I even tried the expensive Oasis eye drops and they actually irritated my eyes. The only over the counter drops that help me are TheraTears preservative free in the individual ampules. These really work for me and I use them 10-15 times a day! My guess is everybody's eyes are unique and people should keep trying different brands of drops until they find the one that is right for them.
Thank you for watching my videos and taking the time to comment! subscribe and share my channel to be able to help other people!
Great video! Thank you for bringing up Cervilimine, not enough can be said about this wonderful RX that has given me saliva again. Couldn’t live without it! More doctors need to help their patients with this wonderful drug.
Thank you for watching and support! Share with others!
Chào bác sĩ ạ.tôi muốn mua cervilimine ạ,cảm ơn bác sĩ ạ
YOU ARE GREAT! THANK YOU for this VIP Info! I have have Sjorgren’s-mixed connective tissues lupus for over thirty years! It’s a long road! You are a breath of Fresh Air!! I’ve had a brain bleed, with resulting paralysis ( from? Vasospasm), lost all my natural teeth, trying to keep dentures in my mouth between the extreme, dry mouth, osteoporosis of my jaw, chronic/sporadic canker sores, & an allergy to adhesives. I’ve lost Four & 1/2 inches in height, now have lung, renal, & cardiac involvement starting💥 There are days when it really gets ‘OLD’. But, listening to you on your channel helps me not feel like ?? ‘This is all Just pretend’ You give me some affirmation that I have a very ‘REAL’ illness as do MANY, MANY OTHERS! Thank You SO MUCH!
Thank you 🙏🏻
Hello, I was diagnosed with lupus 41 years ago and since then the "companion diseases and syndromes just keep piling on. I had been mentioning Sjogren's to my various specialists (don't we get an awful lot of them!) for years, but only after my regular dentist and oral hygienist talked with me about the weird mouth symptoms I complained about, did I finally get sent to the correct specialist. Thank God for dentists who are thorough. The new specialist is having me do lots of blood work and later this month a salivary gland biopsy to confirm Sjogren's. Who knows, with my "never a dull moment" medical history, it may turn out negative. But I doubt it. There's a lot of garbage on UA-cam and false information, but I think Dr. Girnita knows her stuff. At least, I've compiled a list of questions to discuss with my Rheum. doctor and the oral specialist thanks to the information on this video. I'm a singer, so having a mouth problem really hits hard. So many of my physical abilities (and brain function!) have been prematurely either taken away completely or greatly dimenished over the years. I'm trying very hard, with the help of God and some good doctors to hold on to my ability to sing. That one would be hard to lose. Jen, I pray you get the help you need as well. It's a tough row to hoe, but I'm living (sometimes painfully) proof, it can be done.
Everything you just explain is exactly what I have been dealing with. I am 54 years old living in a Skilled Nursing Facility. NOT FAIR! I have been here for three years. I had a stroke in January 2021 a long with Guillain Barre Syndrome, C Diff, and was sepsis and more. I have not walked since then. Also have Neuropathy in both feet. I can move my legs but can't stand. I also diagnosed with Calciphylaxis, which put me in the hospital for two and a half months in 2022. I'm still trying to recover from that and also I've had Shingles 3 times. I will NEVER give up! The Lord has more for me to do here! People to help! So hang in there. Stay strong, God bless
Thank you Dr. G. Your videos are very informative, I am currently taking cevilline a day. I keep forgetting the afternoon dose which I know doesn't help. I do use Biotin and just started mouthwash. I am having more issues with my eyes and getting ready to do the eye plugs hoping this helps.
Thank you for your kind words! I'm glad my videos have been informative for you.
I was diagnosed in 1998 with Sjogren’s and lupus. My doctors now say it’s primary Sjogren’s. For a few years now, my dentist has been fixing old fillings, some cavities, but in the last 10 months, things have gotten worse in my mouth. I have this unusually dark staining on some teeth. I also have a sore throat at the end of the day (I’m a school based speech language pathologist) so I trying some different things. I’ve ordered some mouthwash with extra fluoride, my doctor said he also wants to get me a tray to do fluoride treatments at home. He suggested going every 4 months for cleanings. He’s going to initiate discussion with my health insurance since all my current issues are 100% related to my dry mouth/Sjogren’s. Gotta say, I 🥰 my dentist. Most knowledgeable dentist regarding Sjogren’s I’ve ever been to! I guess he got a little “extra instruction” because he’s the son of my recently retired rheumatologist. So your suggestions here are helpful. Thank you !
i think fluoride causes cancer be carful
Try Dr Ellie Phillips’ (dentist 40 yrs) Complete Mouthcare System., she speaks directly to your issues.
Very helpful, I am drinking a lot water in the morning a full glass, in the afternoon and at night 1,5 glasses and found working. Thank-you dr. Iam from Tanzania, welcome to tour our Kilimanjaro mountain, the roof of Africa!!
Thank you 🙏🏻
Thank you so much, Dr Girnita. I just ordered the ultrasonic Humidifier. I am so excited to have found this video, and I am going to check out all your other videos. I have all the horrible symptoms and I was told by my rheumatologist some years ago “oh, you have Sjogren’s Syndrome and it sometimes develops after you’ve had Psoriatic Arthritis for some years.” No treatment ever offered; it was brushed off as nothing much. Just an inconvenience to put up with. I have to say I like and respect my rheumatologist and therefore I don’t want to put him in a bad light. Anyhow, I am now wondering whether I had Sjogren’s to begin with because I have had candida in the mouth for years. I am going to check out all of your advice and am grateful I have found you.
I'm glad you found the video helpful! Wishing you all the best on your health journey.
Some time after drinking water my mouth even more dry. I use mouth spray( Spry) and lozenges ( Thera Breath). It help me.
Thanks for the info! I use the xylimelts but when I was on a pain patch for three months, it was very difficult to keep up. When I stopped the patch, I didn’t need the nighttime xylimelts. Now, just once in a while. It could have been only a flare, but literally - the next day after stopping the patch - 100% improvement so I’d add that prescription pain meds (narcotics) will dry many people out, even without SS too (and that can be a nightmare in the bathroom…). If you have ever had surgery or need to be on them for more than a week, you know.
Yes All narcotics will cause dryness
Ok - I think this is the right video LOL (I posted this under another one of yours…) 🤷🏻♀️
“With regards to the sugar free items, I totally can not have many types of “no sugar added” beverages or foods that contain sucralose aka Splenda or aspartame bc of how it turns stool into water…even Or especially in me (ileostomate) and can consequently cause dehydration but I haven’t had that reaction from monk fruit or erythritol so I try to stick to those as my alternatives to sugar.”
Very true!!! Thank you for sharing!
Good information mam
Thanks a lot
I had so bad eye dryness that it took me up to 30 minutes in the morning to see clearly, my mouth was so dry that I almost could not eat anything without lots of extra liquids, I had joint pain, and even problems with very dry stools no matter what I ate. Only thing I found that works for me are Sea-buckthorn berries or oil. I have stopped and started a couple of times and if I stop, all the dryness comes back in 2 days. Nowadays I buy dry berries and eat 2-3 tablespoons each evening as a "snack", the tart taste has grown on me. I found this help through reading a medical study done in Lund Sweden some years ago regarding eye dryness. For me, it's become a quality of life-savior.
Thank you so much for your kind words! I'm glad that you find my videos helpful, and I appreciate your support. It's always rewarding to hear that I'm making a positive impact and helping people learn and grow. Thank you for watching and for being a part of my community!
I take sea buckthorn capsules. Where you getting berries? Thanks
@@lanamos1094 I buy them from a company in Germany called Koro (since I live in Europe).
Hydroxychloroquine has helped my dry mouth significantly. Thank you for this informative video.
Glad it was helpful!Thank you for supporting my UA-cam channel!
Thanks a lot for your videos, very helpful. I’ll try the humidifier. I take hidroxicloroquina (100mg by night) and Pilocarpine (5mg twice a day)
Does it work?
You're welcome! I'm glad to hear that you found my videos helpful.
It's great that you're considering using a humidifier to help with your symptoms. This can be especially beneficial if you live in a dry climate or spend a lot of time in air-conditioned environments. All the best!
@@rheumatologistoncall l😊
Thank you for the comments about the ultrasonic humidifier! I use Biotine and it is helpful. I have been drinking in small sips. I will adjust that as you recommend and see how that may be helpful. Thank you!
Thank you for watching my channel!
Please share with others to share the knowledge!
Thank you for sharing. 😊 Sugar free candy effects my digestion unfortunately and gives me diarrhea and bad cramping. Do you have any information on natural remedies for medicating sjogrens besides what you have listed?
Me too! My body cannot tolerate any artificial sweeteners. Every once in a while I'll have a small amount of 'sweet n low' but that's it.
Have you tried ZolliCandy? It has xylitol and erythritol.
I unfortunately discovered years ago that sugar free is not good. All sorts of nasties instead. Very depressing!
Thank for your help, my question is why is my mouth only dry at night please help ???
Thanks a lot !! Does this dry mouth cause coughing too?
Yees!!
Yes, I know everyone is different, but when I am having more than a normal amount of coughing, my primary care doctor is good to prescribe Tessalon pearles for me. I use them sparingly though. This channel has been amazing, and I love the information that Dr. Girnita puts out there. I have severe seronegative RA, and I feel like my Sjogren's gets overlooked with everything that is going on with me. I had no idea until I watched her videos, that Sjogren's could be a very serious disease with complications, and I'm a nurse! I have learned to really dig when you are needing to find out about a disease process to learn everything you need to know. I also use Osphena for vaginal dryness, but that's an expensive drug if your insurance doesn't pay for it. I have other complications that don't allow me to take any hormones, per se.
I take hydroxychloroquine and pilocarpine. I use Biotene products. I especially like the gel overnight but it has become hard to find locally and online sources are marking up the price 2 to 3 times the normal cost. We also put in an aprilIaire humindifier on our furnace/air conditioner. It has helped tremendously
Thank you for watching my videos!
That’s in quinine water
Many thanks for your video. I am SS positive. 1:04
Very good!thank you for watching my videos
I have a dry mouth and I sense I do affect others to catch and feel the same dry mouth?
Thanks a lot . and how to treat dry nose ?
use a humidifier
Am descoperit sindromul sjogren primar din 2012 ma confrunt cu crapaturile la coltul gurii ce ma sfatuiti rcomandari fara lacrimi fara salivă.
Multumsc!
aveti info in videourile mele
Gum really helps but it gives me a gas stomach ache so I only chew 1-2/ day.
thank you so much for the video. the humidifier needs to be hot or cold?
Cold
Cold/ room temperature. See the link in the description of the video
What if your glands don’t work anymore? All they do is course pain? Can they be removed?
Thank you so much
thank you!
I was diagnosed over 2 decades ago. Of course, my eyes and mouth stay dry, and I’m having trouble swallowing because I’m so dry. At night or when water isn’t handy, my lips and tongue crack and bleed. Teeth problems, too. I’m about to have total knee replacement surgery, and the anesthesiologist was completely dismissive of my issues with the old npo after midnight (even though American Society of Anesthesiologists dispute that). Is there some research related to preoperative considerations, particularly the npo? Where can I find it? I’d love to discuss this problem further with the anesthesiologist and provide literature, not just my argument.
@misty6697; WOW! So sad to hear about your anesthesiologist’s ‘poor attitude’:((! Wishing you all GREAT OUTCOME with your surgery!🍀
hi dr.diana ,I diagnosed auto immune system deceased,but my doctor doesn't know about this,if it's lupus ,or Sjogren
My symptoms are drying left eye,back pain, fatigue,dry lips joints pain and bloated stomach.
Please give me advice or information about this illness
Thank you
Thank you for watching my videos! subscribe to support my educational efforts and share with others
Yes, all that and more.
My doctor and dentist have no answers. So frustrating!!!!!! Extreme dry mouth and throat 24/7 for the past 6 months, headaches, fatigue. Can’t find any wrong. Doctors are no help. They just want to give you a pill that never helps.
You should still keep hope!
Que se passe t-il lorsque les glandes salivaires 'e produisent plus de salive ? Merci !
done...
I drink water, which really helps but I pee all night which doesn’t help my fatigue. I gargle and have sugar free candy with xylitol. I don’t eat sugar, I’m teaching myself to breathe through my nose, especially when I sleep.
Thank you for watching my videos!
Yes we but theare buy1 get1 today march 29 when we buy
I have been taking Cevemylin for 3 months now and I finally have saliva again!
thank you for sharing and watching my videos!
What are the side affects of Cevemylin?
Coconut oil is very helpful for dry mouth especially at night.
Yes it is!
I take gabapentin for anxiety and depression and it helps a lot with itchiness. Why is it not good for sjogrens? Some articles recommend it? So frustrating 😢
Gabapentin is good for pain management.
Thank you for watching my videos!
Xylimelts changed my life. I drink less liquid because I had lost my potassium and sodium through urine. I still have to drink more liquid than the average human. I have to be very careful with it all now.
Thank you for sharing your experience! Share with others the video to spread the knowledge!
Mee too bern losing Pottasium controlled that. Then salt decreased.. eye opener!!
Mine is mostly at 4am dry mouth! During the day I’m fine…
thank you for watching!
Me too!
Have you found anything that helps or stopped your dry mouth at 4am?
Hello I was diagnosed with Sjögren’s last year and my eyes are dry and red almost every day my eye doctor suggested Systane eye drops what else should I try ?
A video will be published this Sunday
I have found great results from Retaine MGD drops of Amazon!
I use Refresh drops. After Systain my eyes feel burn.
I am on Idroflog and Oftaial plus
I took an iodine supplement and by day 3 I was salivating like a baby. I read a study on it, and tried it. I had never experienced a mouth with saliva. Unfortunately, it was after I had lost almost all my teeth to dry mouth expedited decay. However, it is not 12 years out, and I supplement once in a while, and I have not had dry mouth since. In conjunction with vitamin D - this has reduce my symptom 80%?
Thank you for watching my channel!
Hello, my friend. Could you please provide me with more detail about this supplement? I'm willing to try. Been battling with this unpleasant dryness for so long. I'm about to lose it! Thank you in advance.
What iodine supplement did you use and what is dosage? Your response would be very helpful for people suffer8ng from dry mouth. TIA.
I take xxidra for dry eye. Very expensive even with insurance, but it’s the only thing that works. The cost is probably prohibitive for many. I have tried everything in the world for dry mouth. Nothing really works. Pilocarpine gives me flushing, which is like a hot flash. I literally am drenched. I find the dry mouth, the worst part of the whole thing. I might be switching over to the other dry mouth medicine. I wonder does anybody know what the side effects are for that one.
Correct! Thank you for sharing
Fluoride? I've been reading more and more research regarding it's use and it is not good. I've been doing oil pulling ( swishing with coconut oil for at least 10 min per day) , and it is helping.
Thank you for watching my channel, share the videos to spread my educational content!
I am tamilnadu mam
Thank you for watching my videos and supporting my channel!
I take Cevemeline. It takes 2 hrs to take effect and it makes me sweat but it does help. I take no more than 2 a day. I have chronic fatigue every day. A simple task is difficult for me. If there is anything to help me with my fatigue would be greatly appreciated
Thank you for watching my channel! Share the information with others in need!
High blood pressure medications routinely cause dry mouth in the patients I see in my practice.
It's a common side effect, but there are ways to manage it.
has anyone found high dose vitamin d help them
Not scientific proven!
Maybe doctors should listen to there patients more and report it to the right place plenty of people all over the net has got help with high dose vitamin d from auto immune disease to skin issues keeping the flu away curing there back pain ect there even a book on amazon of it any plenty of stories of it on you tube i been doing it for 10 years i have nothing but good things to say about it i call it the miracle vitamin and i don't understand but i do understand why we are not told about the good effects it can have because it is about money period and this needs to change 30,000 for a month of pills says it all @@rheumatologistoncall
Biotene mouth wash is the best
I'm glad you think so too!
Xylimelts worked.
excellent! thank you for sharing!
I agree with you 100% . People just don't understand my doctors don't know my dentist doesn't want to help. I have just about had enough now.
En français ? (Commentaires) ! Merci !
done...added
I’ve been using extra virgin olive oil and Vaseline using w a Q TIP THAT HELPS more then water for me😊
You should consider my online course www.wellnessarthritis.com/
Thank you for watching
I'm curious how you use the oil and the Vaseline? Where, how, and how often?
how about we stop finding ways to treat life long but to cure
that will be great!
Thank you for supporting my UA-cam channel!
My biggest problem is dry mouth and above all swallowing.....😢
Thank you for watching my videos!
I’m the same 😢 been 5 mths
Why don't they make these without bad products that give us stomach upset? Even Zylitol is a no go for me. Every product has artificial or substitute sugars which have bad side effects.
Artificial sweeteners are used in many products for taste, cost, and health reasons. If you're sensitive to them, consider natural sweeteners, homemade foods, and reading labels. Thanks for watching!
Flouride is really poisonous. I started getting less mouth sores since I stopped using toothpaste and instead use baking soda.
It's great to hear that you found a solution that works for you!
My mum also caused this syndrome any medicine mam
Thank you for watching my videos and supporting my channel!
I am seronegative and am on year 5 . Miserable to be gaslite!
I understand how difficult it must be to deal with being seronegative and feeling gaslit. Hang in there, you're not alone.
I am seronegative also, but thank God I found a good rheumy who did extra tests, now I'm on my first week of pilocarpine (first I started slow with half dose) - now I'm just waiting to see how it'll work to stay on pilocarpine or change to cevimeline... Don't give up until you find a doctor who really validates You!
There is nothing that has brought my saliva back, and it won't come back only maricle from God. I lost my saliva in 1994 after having rediation to my neck to me. I can't use what they mouth moisture or the flavors , lemon 🤔 mint 🤔 they are the flavor they couse me blisters in my mouth in side I did spend lot lots to keep the teeth I have so all cavities cleand whole mouth reconstruction my God that's a hell treatment I had it done 5 times all new crown but finally no more to be done and the teeth started getting loose and all my lower teeth got removed and long treatments and long healing process long months and it's wired no things as moisture or gel that helps becouse I'm 100/100 dry it's long hell process and realty lots things it's just t try but non works
thank you for watching!
JESUS CHRIST HEAL YOUR WOUNDS🗻
@@rheumatologistoncall ... Isn't there anything that can help her ?!
My question also. Bless her!!!
I'm So Sorry You Have And AND YOU ARE STILL GOING THROUGH THIS SUFFERING. You Are Not Alone, I Too Suffer Along With You In This Fight For Survival! Always Have Faith In God And Trust HIM 🙏 ✨️ 🙏 Because To Be Honest, Everything, No Matter What It Is, It's ALL In HIS HANDS Anyway! ❤✝️❤️
8:42 ❤❤❤Amen! 🙏✨️🙏
Doctor, I tried everything even took a new drug and it made me sweat- no saliva. My big salivary glands are dead .
I'm sorry to hear that you're experiencing this. It must be really frustrating for you.
@@rheumatologistoncall First - thank you. Besides my PSS I suffer from fibromyalgia and have a heart condition , spine problems... so I am in a very dark place. Wish YOU all the best and thanks for your support by giving us attention.
None of this topical, pills, gels, mouth washes, avoiding things. Eating fruit etc……. Nothing cures it!
But you can manage it better!
She lost me at fluoride
I understand that not everyone agrees with the use of fluoride. It's always good to do your own research and make informed decisions about your health.
Your goning to lose you teeth your family's thinks your not really having a problem and your doctor has no answers for you good luck if pilocarpine or cevimeline will help much but will keep you from going of the deep in.
Thank you for watching my videos!please feel free to share the knowledge with others!
Which area mam your mobile num plz
Get serious.