Thank you. You just validated me. I'm not a bad or stupid person. I wasn't the horrible kid my parents told me I was. Now at 59 I know why I'm in so much pain, my memory is not good, emotional issues, behavioural issues and social behavioural issues an learning...I hated it because of everything involved including my great lack learning.. It could very well not be fibromyalgia. With everything else, you just connected the dots.
My friend with FASD has the exact issues you have. She has the memory/emotional/attention span issues; as well as the body pain that feels like fibromyalgia. She said that life felt like a massive ordeal with her health and behavior. She ended up married four times. In each marriage, she ended up with the worst possible person for her, and was also codependent with each of them. It’s a long story. There are many things that went wrong in her life because of FASD.
I am living with FASD as well. Thank you for the words. I am doing better then i was last year. Starting a band and joining another. Also i have found a job.
❤ ty. This is exactly how it's been growing up. So many including my mom got easily frustrated with the ability to do things one day and not the next. School was always a struggle.
Myles! Love you, dude! You speak truth and you do it from such a good heart! The part that really touches me with this vid is the PHYSICAL aspect of FASD. That's something that I find is more 'amplified' as I get older. And don't get me wrong, I DO feel blessed that I'm getting the chance TO GET OLDER. Not all us folks on the FASD spectrum get that chance.
My beautiful Aunt just passed away she lived with FASD although she died from Covid, my Aunt had the same symptoms but far worse such as Bipolar, Paranoia Schizophrenia, along with disassociate Identity Disorder. She could not even take her own medication to maintain her blood pressure. She is not only the only sibling 5 other ones have it as well. When I look at them I get upset at my grandmother for drinking during her pregnancy
I knew nothing about FASD and this is the first video I watched because I wanted to know from someone with AFSD what it was ACTUALLY like. Thank you for sharing your experience and educating people on this disability! It was really enlightening, especially as a person with an "invisible" disability myself (let's just say that people don't really pay that much attention..). Thank you!
Very true that not everyone with FASD seems to exhibit the signs. But some symptoms can manifest later in life too, like bodily pain. My friend with FASD now has symptoms that seem like fibromyalgia but aren’t. She has asthma, arthritis, bad joints, chronic high blood pressure, dyslexia, ADHD, anxiety, depression, and PAIN. And she doesn’t know why. She said her mother told her that her doctor told her it was safe to drink during pregnancy. Her mother did, and that’s what led to so many problems. It wrecked her career and life. She ended up married four times. She’s extremely codependent on others. It’s honestly hard to watch. She has vulnerabilities that others exploit.
Why do we have sore bones with FASD. I thought it was because I have lots of broken bones from accidents and abuse but maybe it's to do with my FASD. I know how you feel. I was told that too. I was told I the same things from teachers. People would ring my parents and say I am being naughty and my parents had to explain that I can't help it, that I have FASD. It's hard because an art teacher can teach me amazing art and my paintings would sell but a week later I would forget what I learnt and have to be shown again same with my stitching classes. I did amazing beautiful stitching but only once a week. So by the next week I would forget the different stitches that I did. The teacher would get frustrated with me and say yes you can do it look at the lovely work you did and not help me. Then I wouldn't get anything done and I would get in trouble. So I quit stitching because it's pointless if I don't have someone showing me daily how do stitch. I do really well clocking and unlocking things on the XBOX consoles.
I understand completely. I have some of the same. Others don't understand. My brother,sister and I all have it. It's been the hardest thing to deal with. I Want To Do Better! But I'm also SO grateful for what I do have. And people mostly like me if they are able to really get to know me. It's hard being like us,but we are Fighters!
35 yrs old multiple mental hospital visits being in and out of the juvenile system. I could never figure out why I did things that made no sense after the fact. It feels good to finally find the answer to everything. I feel free for the first time.
I was diagnosed with autism and ADHD in my 50s. Up until then, I thought I just was failing out of life. In my way, I understand what it’s like to have a disability that is not consistent. Thank you for telling your story and speaking your truth.
thank you for this!!!! its actually pretty amazing how successful people with FASD, surely it may be a challenge but even with people with depression or bipolar have uphills. keep up the great work, life is never easy and hard work always pays off.
I don’t know anyone that has it or atleast not knowing of it. But wow that’s rough. I’m pretty knowledgeable on most disability-disorders as I have worked with a bunch of people who have them. Just wow I didn’t realize it affected people like that. Much respect for the people dealing and managing with FAS. I can’t imagine how frustrating as you explained people just aren’t aware. You’re not dumb you obviously can do task and handle life just some days are a big challenge. I get that’s extremely frustrating! So like how does this work I’m sure some cases are worse than others but is it in a sense the brain just “short circuits - malfunctions” I’m curious on why it’s easier some days and opposite the other. I’m not challenging that’s it’s tough I’m just not knowledgeable on FAS. This is my first time really learning about it. That’s sad and very tough thing but my utmost respect to you and the ones still pushing through it!
I have fasd but the level it is at, moderate. I understand you and this video and it makes me happy but I wonder off with my moods and emotions general wise
This is a very insightful video. Have you got a strategy to respond to sentences like: "You are so intelligent and reflected, you can't have FASD. You speak so fluently - and I understand you. I have issues too. Everyone has." Still struggle with this, because medical health professionals are still looking for the most likely explanations for everything...
Honestly I was told that I had it, but the most of it affects me is poor memory and a little trouble of constantly doing stuff other then that’s what I can make out of it. Now I’m wondering if I was lied to or not
I have a little FADS but I don't say bad things too me I say I can be successful. I can be very successful. And everyone can live 100% good life with FADS or not. We will find a cure someday it is 2021. Covid19 was for 2 years and it was a little hard for me but I am in college and I am trying too learn how too live in my own and I am happy what I have.
The cure will be artificial wombs which will be the preferred conception path over time as the price comes down. There are still women that die to child birth, drinking culture is unlikely to change, there are more potential concerns such as microplastics affecting the fetus as well. I'd say we are 10-15 years away though it all depends how much you're willing to spend.
I don’t want anyone to have to live with this disorder. Trying to navigate life with FAS is incredibly difficult. If I ever have kids I want to make sure they aren’t like me.
So, it's only if the mother drinks alcohol and not the father? In other words if the father is an alcoholic, it doesn't have a negative effect on the baby during conception?
Simple, mothers and women need to be shamed to the point out of exclusion if they drink when pregnant. I’m noticing that we are treating this as more of a disease rather than abuse from the mother. Honestly, women should have their reproductive rights removed if they have a child with FAS and any of its symptoms.
Hear hear. It absolutely is the most repugnant abuse of a child. It is way more widespread than reported and responsible for way more health issues than we can ever imagine.
*_Be patient, lay out a routine to allow her to feel stable. Don't get frustrated with her but work with her to solve her problems she may have. Be advised there may be a lot. Patience is key with a child with FASD. Success doesn't come without struggle and an action plan. I have FASD myself and I've done this myself with the help of my mother. I'm 17 and I've been successful in my life as well and it all comes down to patience and working through problems to their conclusion. Don't rush into things and don't pressure the child to get a job or get a relationship because the stress often triggers different reactions in the brain of an FASD child. You want them to have the best experience possible and you want to be able to make this child comfortable with their life not scared and stressed all the time._* *_FASD children are different from other children and they always will be. They may look normal from the outside but internally especially neurologically they are scarred for life and they can't recover from it. So you need to understand that._* *_As I said, I have FASD like this man in the video and I've done pretty well in my life despite my struggles._*
I just stopped celebrating everything, my mom has a grudge bc I didn't buy her food when she was living in her car...they had disowned me and say I have a negative attitude. I feel every label of people suck, gay, blk, etc. I don't feel God should love humans at all.
Shy shy, FAS is part of the spectrum. When we are speaking of FASD, that includes FAS. The problems that you experience will not be that different, it is just the diagnostic criteria of showing distinctive facial features and confirmed maternal alcohol drinking during pregnancy that distinguishes FAS from the rest of the spectrum. It is however not about more or less severe brain damage and problems.
Well, there is a cure. Don't drink anything during pregnancy. Don't take anything that isn't prescribed by a physician. Eat well, sleep well, and exercise. And at the end of your pregnancy, you will bring home your beautiful baby. If you are struggling with addiction, get help, and defer your pregnancy until you are clean and sober. A friend of mine adopted, unknowingly, 2 little kids with FASD. It is a monumental struggle.
Yup. I feel that. But never was as successful as you. It's what it does, and people don't help at all. I just wish people would be more aware of this issue. Why is it fair that we should consider people that have the same sex attraction. (LGBTQ) but we don't give a rats ass about FASD people that struggle more then the average person. Then people call us gay for having a high voice. No wonder we need the LGBTQ movement becouse people are too rude. I don't believe in LGBTQ movements at all so don't bother with that
Thank you. You just validated me. I'm not a bad or stupid person. I wasn't the horrible kid my parents told me I was. Now at 59 I know why I'm in so much pain, my memory is not good, emotional issues, behavioural issues and social behavioural issues an learning...I hated it because of everything involved including my great lack learning.. It could very well not be fibromyalgia. With everything else, you just connected the dots.
Im 20 now & still learning thank you for your input!
Hang in there. You'll triumph over this. Just never give up
My friend with FASD has the exact issues you have. She has the memory/emotional/attention span issues; as well as the body pain that feels like fibromyalgia. She said that life felt like a massive ordeal with her health and behavior. She ended up married four times. In each marriage, she ended up with the worst possible person for her, and was also codependent with each of them. It’s a long story. There are many things that went wrong in her life because of FASD.
I am living with FASD as well. Thank you for the words. I am doing better then i was last year. Starting a band and joining another. Also i have found a job.
More people need to know about this!
❤ ty. This is exactly how it's been growing up. So many including my mom got easily frustrated with the ability to do things one day and not the next. School was always a struggle.
Myles! Love you, dude! You speak truth and you do it from such a good heart!
The part that really touches me with this vid is the PHYSICAL aspect of FASD. That's something that I find is more 'amplified' as I get older. And don't get me wrong, I DO feel blessed that I'm getting the chance TO GET OLDER. Not all us folks on the FASD spectrum get that chance.
My beautiful Aunt just passed away she lived with FASD although she died from Covid, my Aunt had the same symptoms but far worse such as Bipolar, Paranoia Schizophrenia, along with disassociate Identity Disorder. She could not even take her own medication to maintain her blood pressure. She is not only the only sibling 5 other ones have it as well. When I look at them I get upset at my grandmother for drinking during her pregnancy
Hebrewprincess, Sorry for your loss. She must of been a wonderful person for you to love her so much. You are wonderful too. God bless you.
When people use the “you’re lazy, you’re not trying hard” it’s get me so damn frustrated 😭😂
I understand. Just keep trucking..You are trying ,and you're not alone. Hugs from me to you.
@@surprisesofjoyfulness8147 don’t worry. I do every day. Thank you so much! 🥺💕
💯
Miles please keep doing videos. Especially talking to the kids themselves.
Thanks for continuing to educate and advocate for those affected by FASD, Myles! You continue to inspire all of us.
You are such an inspiration Miles. Thank you for being you.
I knew nothing about FASD and this is the first video I watched because I wanted to know from someone with AFSD what it was ACTUALLY like.
Thank you for sharing your experience and educating people on this disability! It was really enlightening, especially as a person with an "invisible" disability myself (let's just say that people don't really pay that much attention..). Thank you!
Very true that not everyone with FASD seems to exhibit the signs. But some symptoms can manifest later in life too, like bodily pain. My friend with FASD now has symptoms that seem like fibromyalgia but aren’t. She has asthma, arthritis, bad joints, chronic high blood pressure, dyslexia, ADHD, anxiety, depression, and PAIN. And she doesn’t know why. She said her mother told her that her doctor told her it was safe to drink during pregnancy. Her mother did, and that’s what led to so many problems. It wrecked her career and life. She ended up married four times. She’s extremely codependent on others. It’s honestly hard to watch. She has vulnerabilities that others exploit.
Why do we have sore bones with FASD. I thought it was because I have lots of broken bones from accidents and abuse but maybe it's to do with my FASD. I know how you feel. I was told that too. I was told I the same things from teachers. People would ring my parents and say I am being naughty and my parents had to explain that I can't help it, that I have FASD. It's hard because an art teacher can teach me amazing art and my paintings would sell but a week later I would forget what I learnt and have to be shown again same with my stitching classes. I did amazing beautiful stitching but only once a week. So by the next week I would forget the different stitches that I did. The teacher would get frustrated with me and say yes you can do it look at the lovely work you did and not help me. Then I wouldn't get anything done and I would get in trouble. So I quit stitching because it's pointless if I don't have someone showing me daily how do stitch. I do really well clocking and unlocking things on the XBOX consoles.
I understand completely. I have some of the same. Others don't understand. My brother,sister and I all have it. It's been the hardest thing to deal with. I Want To Do Better! But I'm also SO grateful for what I do have. And people mostly like me if they are able to really get to know me. It's hard being like us,but we are Fighters!
35 yrs old multiple mental hospital visits being in and out of the juvenile system. I could never figure out why I did things that made no sense after the fact. It feels good to finally find the answer to everything. I feel free for the first time.
Dude, you are awesome. Keep doing what you're doing.
I was diagnosed with autism and ADHD in my 50s. Up until then, I thought I just was failing out of life. In my way, I understand what it’s like to have a disability that is not consistent. Thank you for telling your story and speaking your truth.
WOW! Let Me Tell You It Is SO GREAT TO Literatly See Your Own Reflection Of Your Exact Same Life Thru Another Person. Bravo!
So true! My nephew is 21 with Fasd. It’s such a struggle for him and very difficult for others to understand!
thank you for this!!!! its actually pretty amazing how successful people with FASD, surely it may be a challenge but even with people with depression or bipolar have uphills. keep up the great work, life is never easy and hard work always pays off.
I love this video! So insightful. Thank you.
I don’t know anyone that has it or atleast not knowing of it. But wow that’s rough. I’m pretty knowledgeable on most disability-disorders as I have worked with a bunch of people who have them. Just wow I didn’t realize it affected people like that. Much respect for the people dealing and managing with FAS. I can’t imagine how frustrating as you explained people just aren’t aware. You’re not dumb you obviously can do task and handle life just some days are a big challenge. I get that’s extremely frustrating! So like how does this work I’m sure some cases are worse than others but is it in a sense the brain just “short circuits - malfunctions” I’m curious on why it’s easier some days and opposite the other. I’m not challenging that’s it’s tough I’m just not knowledgeable on FAS. This is my first time really learning about it. That’s sad and very tough thing but my utmost respect to you and the ones still pushing through it!
I have a slight touch my FASD I poor learning essential skills I have a hard time understanding things I get Easley overwhelmed and etc
I have fasd but the level it is at, moderate. I understand you and this video and it makes me happy but I wonder off with my moods and emotions general wise
This is a very insightful video. Have you got a strategy to respond to sentences like: "You are so intelligent and reflected, you can't have FASD. You speak so fluently - and I understand you. I have issues too. Everyone has." Still struggle with this, because medical health professionals are still looking for the most likely explanations for everything...
As a person with fasd thank you so much
thank you for talking about your story and the facts of living with a condition such as fsad 👍
Thank you for allowing me to understand FASD better❤🙏
If I had this, I would live in pure rage.
Thank you for this video. It really opens up my eyes.
Thank you.
thank you. Spread the information. Wish you well.
Thank You…..Excellent information!
Honestly I was told that I had it, but the most of it affects me is poor memory and a little trouble of constantly doing stuff other then that’s what I can make out of it. Now I’m wondering if I was lied to or not
Your an amazing person
I have a little FADS but I don't say bad things too me I say I can be successful. I can be very successful. And everyone can live 100% good life with FADS or not. We will find a cure someday it is 2021. Covid19 was for 2 years and it was a little hard for me but I am in college and I am trying too learn how too live in my own and I am happy what I have.
I'm proud of you! So Proud! You keep going, and please know that you can do it!
Thanks Miles
I believe we will find a cure for FADS someday hope is with us stay positive. Never give up
The cure for FADS is for women to stop drinking alcohol while pregnant. For those who already have it then it takes compassion and perseverance.
Not drinking!!!! Drinking while pregnant should be a criminal offense
The cure will be artificial wombs which will be the preferred conception path over time as the price comes down. There are still women that die to child birth, drinking culture is unlikely to change, there are more potential concerns such as microplastics affecting the fetus as well. I'd say we are 10-15 years away though it all depends how much you're willing to spend.
I don’t want anyone to have to live with this disorder. Trying to navigate life with FAS is incredibly difficult. If I ever have kids I want to make sure they aren’t like me.
I am just looking into FASD for a possible reason why I find a lot of things hard.
Can FASD be passed down through the generations.
Yes
God bless you ❤
Thanks, this helped me alot
I have FASD life is very Hard for Me😢
Don't give up
You wanna talk? :/
@@sopsop5654 talking doesn't cure FASD
@@chuckyyes ik but it helps
So, it's only if the mother drinks alcohol and not the father?
In other words if the father is an alcoholic, it doesn't have a negative effect on the baby during conception?
Exactly, the Father can drink all he wants to….
It’s the mom that’s carrying the baby that can’t…. Or rather shouldn’t drink.
Simple, mothers and women need to be shamed to the point out of exclusion if they drink when pregnant. I’m noticing that we are treating this as more of a disease rather than abuse from the mother. Honestly, women should have their reproductive rights removed if they have a child with FAS and any of its symptoms.
Hear hear. It absolutely is the most repugnant abuse of a child. It is way more widespread than reported and responsible for way more health issues than we can ever imagine.
I try to forget that I have this, symptoms blur together with other things...
Looking great Myles, saw your earlier video on UA-cam, glad you are sharing your dreams…. ♥️🇨🇦🌏
How Do I help my child with the FASD to help her succeed?
*_Be patient, lay out a routine to allow her to feel stable. Don't get frustrated with her but work with her to solve her problems she may have. Be advised there may be a lot. Patience is key with a child with FASD. Success doesn't come without struggle and an action plan. I have FASD myself and I've done this myself with the help of my mother. I'm 17 and I've been successful in my life as well and it all comes down to patience and working through problems to their conclusion. Don't rush into things and don't pressure the child to get a job or get a relationship because the stress often triggers different reactions in the brain of an FASD child. You want them to have the best experience possible and you want to be able to make this child comfortable with their life not scared and stressed all the time._*
*_FASD children are different from other children and they always will be. They may look normal from the outside but internally especially neurologically they are scarred for life and they can't recover from it. So you need to understand that._*
*_As I said, I have FASD like this man in the video and I've done pretty well in my life despite my struggles._*
Dont drink.
@@asrieldreemur1764 can i ask you something?
@@sopsop5654 _Sure_
Handsome regardless of the FAS 😘
i cant believe my mom got mad that i didnt text her for mothers day 🤦🤦
I just stopped celebrating everything, my mom has a grudge bc I didn't buy her food when she was living in her car...they had disowned me and say I have a negative attitude. I feel every label of people suck, gay, blk, etc. I don't feel God should love humans at all.
Can you guys make a video like this specifically on ( FETAL ALCOHOL SYNDROME- FAS) not FASD. I have FAS ... not FASD
Shy shy, FAS is part of the spectrum. When we are speaking of FASD, that includes FAS. The problems that you experience will not be that different, it is just the diagnostic criteria of showing distinctive facial features and confirmed maternal alcohol drinking during pregnancy that distinguishes FAS from the rest of the spectrum. It is however not about more or less severe brain damage and problems.
@Shy-shy Janell 🤦🏻 omg u are so.... bruh
You have both
All people with FAS has FASD but not all people with FASD have FAS
So doctors don't give up finding a cure for FADS plz
Well, there is a cure. Don't drink anything during pregnancy. Don't take anything that isn't prescribed by a physician. Eat well, sleep well, and exercise. And at the end of your pregnancy, you will bring home your beautiful baby. If you are struggling with addiction, get help, and defer your pregnancy until you are clean and sober. A friend of mine adopted, unknowingly, 2 little kids with FASD. It is a monumental struggle.
I have fas.
2022 we might have new pills for FADS
❤❤
Yup. I feel that. But never was as successful as you.
It's what it does, and people don't help at all. I just wish people would be more aware of this issue.
Why is it fair that we should consider people that have the same sex attraction. (LGBTQ) but we don't give a rats ass about FASD people that struggle more then the average person. Then people call us gay for having a high voice. No wonder we need the LGBTQ movement becouse people are too rude.
I don't believe in LGBTQ movements at all so don't bother with that
Thier are programs. When I say people don't help, I mean it in a socially way. Thier are programs God bless
Man what the fuck are you talking about 😂