I'm 22 and I still sleep with a stuffed animal, and one time when I had to go to the ER, I took him and in the ambulance, the EMTs gave him a babies oxygen mask when I had one. They were so sweet
I have a hospital bag too! It's already half-packed. I have a list taped to my desk for my hospital bag. On that list is: electric toothbrush, charger & toothpaste; earplugs; meds for a day; underwear; socks; deodorant; hairbrush; phone & charger; book to read; notebook & pen; medical folder (with all my results); teabags (like green tea and chamomile); pyjamas; jumper (sweater); earphones; ipod; pads; aloe vera tissues (hospital ones are rough); a tangible puzzle; Nebo (he's a little plush wombat); list of my conditions; list of medications; list of my doctors & contacts; mouthwash; wallet; appointment diary; pillow; sunglasses (for those migraines while being stuck under bright hospital lights). .
Circle of Leaves I know this is super old but thanks for posting this. I’m thinking of preparing a list like that and it will give me a really good starting point. I hope you don’t mind! 💜🦓💊🎒
I LOVE TERRY. Now I want to get a medical bear :) I'm getting a port Tuesday morning! I know that you have one now too (now I'm second guessing that by saying I "know" it even though you totally do...), and curious to see if you did something for him for that! Finally catching up on all of your vlogs after following you on Instagram for over a year or so haha!
I pack basically everything like you do! I also take a nightie (sometimes they let me wear that instead of their gowns!) and a sports bra! I agree on having to be comfortable, 100% necessary!
Just to let you know that I am 30 something and I always take a couple of teddies & eeyore when I am in the hospital. I also like having the teddies with me cause it makes other people & children smile while they are waiting to be seen plus it helps me to understand what they are going to do if they do it to eeyore before they do it to me so don't be ashamed to have teddies with you i also take a teddy out wherever I go even if it is only for a ride out in my wheelchair. I was wondering who did you go to see to get diagnosed with EDS as I think that I might have it but in the UK not many people have heard of it so I don't know who to ask about seeing if I have EDS if you have any information about trying to get diagnosed I would be grateful for any information please? Thankyou your video's have really helped me alot. Take care. Xxx
kelli shone I’m in the UK - (North West) and I was told that I had Rheumatoid Arthritis and took meds for that for YEARS! ...but while I was there I was told that they thought I had EDS as I was so hypermobile, but it wasn’t put in my notes. I got really scared of hospitals (fell there one time and was on the floor for over an hour) and doctors, as I always had a horrible time and was told (by a heroin addict) that my meds were the same as heroin so weaned myself off most of my pain meds (...long story!), and learned how to put bones back in place (...another long story!). I wasn’t able to self treat everything, so (was sent, without my consent in an ambulance THAT ARE NOT ALLOWED TO TAKE YOUR WHEELCHAIR even though I’m not weight bearing!) for more tortures in A&E (argh - one time I was laid flat and they put my hands above my head even though I said I can’t do that, for a cat scan and a shoulder came out and they wouldn’t help me AT ALL and I couldn’t get off the machine and the staff just disappeared). After that I asked for EDS to get put on my notes - was told - yeah I think you have it but I’m not going to diagnose you with it, it’s only a name! Two more horrible A&E visits and I saw a different GP and DEMANDED to either be diagnosed or for them to explain why my body was in so much pain and kept falling apart. He found there was nothing in the north west so I was sent to the north east to see a geneticist and he did the exact same tests as all the other doctors and told me in less than five minutes I had it!!! (So has my siblings, and also my dad died aged 46 and grandma at 34, both of aortic aneurysms). So to answer your question - expect it to take a long time, keep asking and avoid A&E! - Billie
kelli shone bless you I’m 52 and hubby brought me a beautiful rainbow coloured bear for my surgery I’m also taking Star Wars slippers and rucksack charger for phone headphones, kindle app with white writing on black, as I’m registered blind.
I have a stuffed monkey named Frances. I got him when I had my knee replaced(he's named after the hospital I was in, ST Francis hospital) . I was 36 years old when my husbands and daughters bought him for me. He's one of my biggest comforts. (I'm 46 now. My dad started joking with me when I was kid saying the bugs bunny line of " I'm only 3 and a half years old" because I look much younger than I am and I've always had a special "lovey/stuffed animal when I go to the hospital) There's nothing wrong with having a lovely/stuffed animal for comfort. I will have one probably till the day I die even if I'm 110 years old. My to go bag always has snacks and drinks so if I'm allowed to eat or drink I have them and so my husband and daughters can have them if they need them. It saves money since hospital vending machines and cafeteria's can be pricey. I also take a book. It helps give me something to do other than watch tv.
First - I love your bear! It's not childish. I had my teddy around still until just recently, even after becoming a parent and marriage. It's a comfort thing for sure. As for me, I don't have a go bag but I do keep prepared in case I hit something unforseen and can't get home. 4 days of medications plus some extra otc, all my needed creams and topicals, the braces I use most often, phone charger, headphones, a few essential oils and my "as needed" meds. Plus my every day medical kit!
I just came across your videos and had NO IDEA this even existed so thank you for the awareness! I will definitely put you and others with this same diagnosis on the prayer list at church! I’ll be praying for you! Keep up all that positivity, love it!
I always take my baby blanket and my teddy bear. My phone and charger of course. I’m seventeen and I still sleep with my blanket. Don’t be embarrassed about having stuffed animals. I have a bunch of them it’s kinda ridiculous. I have a stuffed animal problem lol.
I'm 15 have EDS and sleep with lots of cuddly toys and my parents don't let me take my favourite toys in case they get terms or if I don't stay over night so it's sad but I always feel embarrassed in school when I want to play an but a Teddie but I tend not to feel embarrassed anymore when I found a love for this channel your are a happy person in my life
I'm sixteen too and have had a TON of ER and hospital visits. I have a lot of the same essentials as you but another thing I always make sure to have is stuff that smells good. Like it might sound weird but I always like to have my peach lotion and my rose face spray. It's nice to have stuff that smells familiar and yummy and not like hospital.
I always have a hospital bag that I keep ready "just in case" i have had 100's of hospital visits and even more hospital stays since my autoimmune disorder Acute Flaccid Myelitis. If you never heard of AFM it is like the new polio for kids.
So a way to conserve battery is to turn off your WiFi. This may sound stupid but if the ER has crappy connection, your phone will connect and disconnect In the background. This KILLS your phone!
My er-go-bag is very similar... but I have to pack SNACKS!! I’ve ended up in ER’s before that couldn’t meet all of my allergy needs, so I try to be prepared for that. And I love that you have Terry! I get such funny looks whenever I show up with my tinerbell blanket and Miss Kitty but... ¯\_(ツ)_/¯ Oh!..and some other essentials: - lotion, chapstick, toothpaste, toothbrush, etc. - extra VogMask - ample amounts of puke bags - my medical binder w/my important records
Bueno siempre llevo alguno de mis instrumentos o la flauta o uno de mis saxofones también a Figuereido un tigre que me sirve de cojín y mi celular para escuchar música!! Gracias por tu video!
I bring my journal, deodorant (once I was stuck in the Er 3 days before I got a bed and scrubs are NOT breathable lol) I also invested in noise cancelling headphones so I don’t have to hear monitors beeping and my bunny stuffie.
I love your videos and how inspirational you are I wasn’t aware of these types of medical problems but I love how you bring awareness and are so strong and i love how you don’t give up and you keep going
I pack my turtle blanket, super soft and fuzzy. A pillow. A stuffed turtle. (I collect them.) A notebook because I write everything down. Scenic pics for the staff because I am a photographer. Charger cord for my phone. Throw up bucket. (Gastropareisis life!) That is my ER backpack. I pack more for admissions.
I found your channel by accident, I don’t have EDS but I do have many other conditions tht I was researching about. I subscribed because I think you are very informational about your condition. I have been in hospitals since I was born, I have have had aver 30 brain and spine surgeries and I even tho I just turned 30 and never did it cross my mind to have a hospital/ER bag until I saw this video so thank you! My frequent Er and hospital stay visits will be much better now tht I know to be prepared.
I have a teddy bear that's as old as I am. It's ok to have something familiar with you and if it makes you feel good it doesn't matter how old you are. He's been through it all with you.
I am so sorry your have so many things. I wish, I could do something to help you. Your very positive and very cute too. lol.... I hope God or Meds, or a cure happens. No one needs to go through something like this. (You know what I am trying to say?) Wish you happiness.... ( I am currently in Nursing School - love your videos) Jim in NY............
I used to never have a hospital go bag but since I have got to sick in the past 8 months( I certainly wasn't well before but my health has plummeted further) and my hospital admissions have significantly increased I finally have a go bag. I used to go to the ER a lot more often but now I only go if I am told to by a doctor or if I know I am going to be admitted. When I go to the ER and I have a hunch I am going to be admitted, I wear yoga pants, a comfy shirt, and a jacket or sweater, and I bring my phone and a phone charger. I keep my hospital go bag at home and if I am admitted my dad brings it to me the next day after work. I keep two shirts, two pairs of pants, fuzzy socks, underwear, a laptop, headphones, and some toiletries items. I don't like to bring it into the ER because I don't like being presumptive I will admitted even if I know I am. I actually had my first ever direct admit last month for a central line infection (the joys of being TPN dependent) and I actually packet a good bag instead, they called me when my bed was ready, then we drove to the hospital, and I went straight back to a room. I still go to a childrens hospital even though I am 18 and a half because my case is so complex and I am still in the process of changing to adult doctors, so I am still getting the children's hospital experience.
my go bag includes ipad, phone, wallet, charger cabl es, power socket thingie for charger cables, meds, stoma supplies, change of clothes - if admitted I want something clean to wear when I am discharged.
My ER bag consists of my Nintendo Switch(used to be 3DS), my phone, headphones, 10ft long chargers, my X-Men blanket(I'm 26 and I'm not ashamed to admit I still sleep with it even if I do get weird looks sometimes), my pills(I have the same pill organizer), and a few bottles of water(because I am a water snob and my ER only has spring water). My admission bag normally has clothes, my laptop with mouse so I can play games, at least 6 bottles of water, various snacks if I can eat, and a few books/comic books.
I got phone and charger.my daughters teddy bear. Extra socks panties and a bra. Sweat pants! A journal extra pens. Amd then tooth brush hair brush face wash and lotion. They have weird lotion in hospitals. Lol.
I should have done this when I went to the hospital. I don't have those issues but I had to go to the hospital because something was wrong with my leg. It took hours before I could even eat and even longer till I could go home..we left sometime after school and were there probably till midnight. I hated it in my mind I kept saying "I want to go home I don't want to be here! Please someone... anyone..." . I tend to get home sick and when I get home sick I get stressed. It probably would have gone better if I brought some of my stuff from home so I wouldn't have gotten home sick. Well if this happens again (hopefully it doesn't) I'll remember this. But I luckily didn't have school the next day because I wouldn't have stayed awake
Hey! I just found your channel and was wondering if you have any social medias that I could message you on? Kinda sounds a little creepy but I'm also 16 and trying to find out as much as I can about EDS/Hypermobility as I'm trying to get my diagnosis
Btw I still have my Kermit who got A ALL KINDS of IVS & procedures bc he was stuuffed! Tho moms was NOT TOO HAPPY when I did brain surgery on my brand new Baby Alive & put a L shaped incision in her forhead LOL! I MUST SAY she recovered to live a full healthy life bc she's still around & I'm the bomb surgeon bc the incision was PERRFECT! Lmao gotta play the hand he gave us & make it as fun as possible!!!! #GOdBLESS &BHEALHYEVERYONE!
I take my phone, kindle, chargers for both, a book or 2 then I have a bag of clothes packed that I leave at home in case Someone can just come and grab it for me
In my hospital go bag I have a Booy with all of my medication in it next to the names of my medication I have the amount that I take and then I have my teddy bear and I have my iPad and my MacBook and Chargers and change of clothes a blanket fuzzy socks a beanie
In my hospital go bag I have a Booy with all of my medication in it next to the names of my medication I have the amount that I take and then I have my teddy bear and I have my iPad and my MacBook and Chargers and change of clothes a blanket fuzzy socks a beanie
I'm 22 and I still sleep with a stuffed animal, and one time when I had to go to the ER, I took him and in the ambulance, the EMTs gave him a babies oxygen mask when I had one. They were so sweet
I am 48 and I have my plush dog, Cassie Belle. I take her with me to the hospital and I also have my phone.
I'm 23 and I can't sleep without my bunny. No shame in having something cute to cuddle and make you feel better!
I have a hospital bag too! It's already half-packed. I have a list taped to my desk for my hospital bag. On that list is: electric toothbrush, charger & toothpaste; earplugs; meds for a day; underwear; socks; deodorant; hairbrush; phone & charger; book to read; notebook & pen; medical folder (with all my results); teabags (like green tea and chamomile); pyjamas; jumper (sweater); earphones; ipod; pads; aloe vera tissues (hospital ones are rough); a tangible puzzle; Nebo (he's a little plush wombat); list of my conditions; list of medications; list of my doctors & contacts; mouthwash; wallet; appointment diary; pillow; sunglasses (for those migraines while being stuck under bright hospital lights).
.
Circle of Leaves I know this is super old but thanks for posting this. I’m thinking of preparing a list like that and it will give me a really good starting point. I hope you don’t mind! 💜🦓💊🎒
I have impaled quite a few stuffed animals with insulin pump infusion sites that were the wrong size/type for me
I LOVE TERRY. Now I want to get a medical bear :) I'm getting a port Tuesday morning! I know that you have one now too (now I'm second guessing that by saying I "know" it even though you totally do...), and curious to see if you did something for him for that! Finally catching up on all of your vlogs after following you on Instagram for over a year or so haha!
I pack basically everything like you do! I also take a nightie (sometimes they let me wear that instead of their gowns!) and a sports bra! I agree on having to be comfortable, 100% necessary!
I have that same blanket! Staring at it at my feet right now. It’s the coziest, softest thing ever.
Y'all making me wanna start packing a blankie now! Kirk I if I am 50 lol
i always take something Disney related as it makes me feel better 😊
I put the extra power port supplies on my stuffed puppy Rogerdodger. Now it looks like he has a power port too.
Just to let you know that I am 30 something and I always take a couple of teddies & eeyore when I am in the hospital. I also like having the teddies with me cause it makes other people & children smile while they are waiting to be seen plus it helps me to understand what they are going to do if they do it to eeyore before they do it to me so don't be ashamed to have teddies with you i also take a teddy out wherever I go even if it is only for a ride out in my wheelchair. I was wondering who did you go to see to get diagnosed with EDS as I think that I might have it but in the UK not many people have heard of it so I don't know who to ask about seeing if I have EDS if you have any information about trying to get diagnosed I would be grateful for any information please? Thankyou your video's have really helped me alot. Take care. Xxx
kelli shone I
kelli shone I’m in the UK - (North West) and I was told that I had Rheumatoid Arthritis and took meds for that for YEARS! ...but while I was there I was told that they thought I had EDS as I was so hypermobile, but it wasn’t put in my notes.
I got really scared of hospitals (fell there one time and was on the floor for over an hour) and doctors, as I always had a horrible time and was told (by a heroin addict) that my meds were the same as heroin so weaned myself off most of my pain meds (...long story!), and learned how to put bones back in place (...another long story!).
I wasn’t able to self treat everything, so (was sent, without my consent in an ambulance THAT ARE NOT ALLOWED TO TAKE YOUR WHEELCHAIR even though I’m not weight bearing!) for more tortures in A&E (argh - one time I was laid flat and they put my hands above my head even though I said I can’t do that, for a cat scan and a shoulder came out and they wouldn’t help me AT ALL and I couldn’t get off the machine and the staff just disappeared). After that I asked for EDS to get put on my notes - was told - yeah I think you have it but I’m not going to diagnose you with it, it’s only a name!
Two more horrible A&E visits and I saw a different GP and DEMANDED to either be diagnosed or for them to explain why my body was in so much pain and kept falling apart.
He found there was nothing in the north west so I was sent to the north east to see a geneticist and he did the exact same tests as all the other doctors and told me in less than five minutes I had it!!! (So has my siblings, and also my dad died aged 46 and grandma at 34, both of aortic aneurysms).
So to answer your question - expect it to take a long time, keep asking and avoid A&E! - Billie
kelli shone bless you I’m 52 and hubby brought me a beautiful rainbow coloured bear for my surgery I’m also taking Star Wars slippers and rucksack charger for phone headphones, kindle app with white writing on black, as I’m registered blind.
I have a stuffed monkey named Frances. I got him when I had my knee replaced(he's named after the hospital I was in, ST Francis hospital) . I was 36 years old when my husbands and daughters bought him for me. He's one of my biggest comforts. (I'm 46 now. My dad started joking with me when I was kid saying the bugs bunny line of " I'm only 3 and a half years old" because I look much younger than I am and I've always had a special "lovey/stuffed animal when I go to the hospital) There's nothing wrong with having a lovely/stuffed animal for comfort. I will have one probably till the day I die even if I'm 110 years old.
My to go bag always has snacks and drinks so if I'm allowed to eat or drink I have them and so my husband and daughters can have them if they need them. It saves money since hospital vending machines and cafeteria's can be pricey. I also take a book. It helps give me something to do other than watch tv.
First - I love your bear! It's not childish. I had my teddy around still until just recently, even after becoming a parent and marriage. It's a comfort thing for sure.
As for me, I don't have a go bag but I do keep prepared in case I hit something unforseen and can't get home. 4 days of medications plus some extra otc, all my needed creams and topicals, the braces I use most often, phone charger, headphones, a few essential oils and my "as needed" meds. Plus my every day medical kit!
I was so excited when I was able to stay in my pajamas the whole two weeks. It was a first but so enjoyable.
I just came across your videos and had NO IDEA this even existed so thank you for the awareness! I will definitely put you and others with this same diagnosis on the prayer list at church! I’ll be praying for you! Keep up all that positivity, love it!
I always take my baby blanket and my teddy bear. My phone and charger of course. I’m seventeen and I still sleep with my blanket. Don’t be embarrassed about having stuffed animals. I have a bunch of them it’s kinda ridiculous. I have a stuffed animal problem lol.
I'm 15 have EDS and sleep with lots of cuddly toys and my parents don't let me take my favourite toys in case they get terms or if I don't stay over night so it's sad but I always feel embarrassed in school when I want to play an but a Teddie but I tend not to feel embarrassed anymore when I found a love for this channel your are a happy person in my life
I'm sixteen too and have had a TON of ER and hospital visits. I have a lot of the same essentials as you but another thing I always make sure to have is stuff that smells good. Like it might sound weird but I always like to have my peach lotion and my rose face spray. It's nice to have stuff that smells familiar and yummy and not like hospital.
I always have a hospital bag that I keep ready "just in case" i have had 100's of hospital visits and even more hospital stays since my autoimmune disorder Acute Flaccid Myelitis. If you never heard of AFM it is like the new polio for kids.
So a way to conserve battery is to turn off your WiFi. This may sound stupid but if the ER has crappy connection, your phone will connect and disconnect In the background. This KILLS your phone!
I have to get a feeding tube in December so since I found out that I need one I am obsessed with your channel
My er-go-bag is very similar...
but I have to pack SNACKS!! I’ve ended up in ER’s before that couldn’t meet all of my allergy needs, so I try to be prepared for that.
And I love that you have Terry! I get such funny looks whenever I show up with my tinerbell blanket and Miss Kitty but... ¯\_(ツ)_/¯
Oh!..and some other essentials:
- lotion, chapstick, toothpaste, toothbrush, etc.
- extra VogMask
- ample amounts of puke bags
- my medical binder w/my important records
Bueno siempre llevo alguno de mis instrumentos o la flauta o uno de mis saxofones también a Figuereido un tigre que me sirve de cojín y mi celular para escuchar música!! Gracias por tu video!
I bring my journal, deodorant (once I was stuck in the Er 3 days before I got a bed and scrubs are NOT breathable lol) I also invested in noise cancelling headphones so I don’t have to hear monitors beeping and my bunny stuffie.
You have a very sweet & endearing nature! I’m 30, and love the idea of Terry.
Oatmeal (I can eat 24/7) for missed meals!
My d sewing bag & paperwork so I can work my business from my "hotel rm" lol
#happydisttracttions!
I love your videos and how inspirational you are I wasn’t aware of these types of medical problems but I love how you bring awareness and are so strong and i love how you don’t give up and you keep going
I pack my turtle blanket, super soft and fuzzy. A pillow. A stuffed turtle. (I collect them.) A notebook because I write everything down. Scenic pics for the staff because I am a photographer. Charger cord for my phone. Throw up bucket. (Gastropareisis life!) That is my ER backpack. I pack more for admissions.
I have EDS too!!! and yes I have a hospital bag and I always bring my teddy!
I found your channel by accident, I don’t have EDS but I do have many other conditions tht I was researching about. I subscribed because I think you are very informational about your condition. I have been in hospitals since I was born, I have have had aver 30 brain and spine surgeries and I even tho I just turned 30 and never did it cross my mind to have a hospital/ER bag until I saw this video so thank you! My frequent Er and hospital stay visits will be much better now tht I know to be prepared.
Jo Jo she’s 16 in this video
Terry is awesome. I'm 34 and I have a stuffed animal that I take when I'm admitted lol.
I have a teddy bear that's as old as I am. It's ok to have something familiar with you and if it makes you feel good it doesn't matter how old you are. He's been through it all with you.
Thanks for making these videos .
Art is calming........until you get mad because you mess everything up! xD
So beautiful! Thank you for your help 💜
Mine always has a toothbrush/paste, a portable charger, a brush, a bottle of water, a med list, in addition to the items you've listed 🙂
Your art work is amazing and you have so much great information that useful to so many people. I am guessing your 15 yrs old ?
can you do a video on how to stay positive or what helps with pain 💟💕💞💓💗💖💘💝❣💜💙💚💛❤
Absolutely!
I am so sorry your have so many things. I wish, I could do something to help you. Your very positive and very cute too. lol.... I hope God or Meds, or a cure happens. No one needs to go through something like this. (You know what I am trying to say?) Wish you happiness.... ( I am currently in Nursing School - love your videos) Jim in NY............
SHARED MADNESS SLOTS i agree with you.
I ❤️💜🧡💛💚💙💕❣️🖤💜💞💓💗💖💘you am 9
I have a a bunny i take with me every procedures and a duck also i cant sleep without them im 21 lol
I used to never have a hospital go bag but since I have got to sick in the past 8 months( I certainly wasn't well before but my health has plummeted further) and my hospital admissions have significantly increased I finally have a go bag. I used to go to the ER a lot more often but now I only go if I am told to by a doctor or if I know I am going to be admitted. When I go to the ER and I have a hunch I am going to be admitted, I wear yoga pants, a comfy shirt, and a jacket or sweater, and I bring my phone and a phone charger. I keep my hospital go bag at home and if I am admitted my dad brings it to me the next day after work. I keep two shirts, two pairs of pants, fuzzy socks, underwear, a laptop, headphones, and some toiletries items. I don't like to bring it into the ER because I don't like being presumptive I will admitted even if I know I am. I actually had my first ever direct admit last month for a central line infection (the joys of being TPN dependent) and I actually packet a good bag instead, they called me when my bed was ready, then we drove to the hospital, and I went straight back to a room. I still go to a childrens hospital even though I am 18 and a half because my case is so complex and I am still in the process of changing to adult doctors, so I am still getting the children's hospital experience.
my go bag includes ipad, phone, wallet, charger cabl es, power socket thingie for charger cables, meds, stoma supplies, change of clothes - if admitted I want something clean to wear when I am discharged.
My ER bag consists of my Nintendo Switch(used to be 3DS), my phone, headphones, 10ft long chargers, my X-Men blanket(I'm 26 and I'm not ashamed to admit I still sleep with it even if I do get weird looks sometimes), my pills(I have the same pill organizer), and a few bottles of water(because I am a water snob and my ER only has spring water). My admission bag normally has clothes, my laptop with mouse so I can play games, at least 6 bottles of water, various snacks if I can eat, and a few books/comic books.
YOU ARE SO PRETTY,BRAVE,AND STRONG!
Do you have a shop? I’d love to buy your watercolor! It’s so beautiful
I got phone and charger.my daughters teddy bear. Extra socks panties and a bra. Sweat pants! A journal extra pens. Amd then tooth brush hair brush face wash and lotion. They have weird lotion in hospitals. Lol.
There’s nothing wrong with being 16 and having your favorite stuffed animal, I have one too.
Same
cute teddy bear so brave he is
I have a stuffed cat and that’s exactly what I do to it! It has ivs, g-tube, blood draws, id band, picc😂
We have the same med organizer lol
Don’t worry I’m 21 and bring my stuffed dog 🐶 every time especially during ambulance 🚑 rides!!
Oh yea! I bring my OWN PB&J for the Graham crackers & sometimes rice cakes to use instead of graham crackers
I should have done this when I went to the hospital. I don't have those issues but I had to go to the hospital because something was wrong with my leg. It took hours before I could even eat and even longer till I could go home..we left sometime after school and were there probably till midnight. I hated it in my mind I kept saying "I want to go home I don't want to be here! Please someone... anyone..." . I tend to get home sick and when I get home sick I get stressed. It probably would have gone better if I brought some of my stuff from home so I wouldn't have gotten home sick. Well if this happens again (hopefully it doesn't) I'll remember this. But I luckily didn't have school the next day because I wouldn't have stayed awake
I just started watching your vids and I already subscribed
Hey! I just found your channel and was wondering if you have any social medias that I could message you on? Kinda sounds a little creepy but I'm also 16 and trying to find out as much as I can about EDS/Hypermobility as I'm trying to get my diagnosis
R J she last an Instagram. Ik this is a little late but...
Samantha Jester
Super late
You’re not a 5yr old! I’m 30 and I have a bunny named Rocko 😋 I even take him to my dialysis centre when I’m feeling unwell ☺️
I'm 35 and have a lovie that I take when I have surgeries that will be ended with a night or two stay.
I have almost everything like yours last time I cheeked i am actually in the hospital rn love your videos 💙
I like It
Btw I still have my Kermit who got A ALL KINDS of IVS & procedures bc he was stuuffed! Tho moms was NOT TOO HAPPY when I did brain surgery on my brand new Baby Alive & put a L shaped incision in her forhead LOL! I MUST SAY she recovered to live a full healthy life bc she's still around & I'm the bomb surgeon bc the incision was PERRFECT! Lmao gotta play the hand he gave us & make it as fun as possible!!!! #GOdBLESS &BHEALHYEVERYONE!
I'm 31 with 4 kids and I have a favourite teddy and I'm such a bad mum that my kids know they are not aloud it lol don't have shame for teddies lol
Miss you. When you going to do an updated video
I have a feeding tube too u have had plenty of problems with that too
We have had to have a hospital go for my daughter after 4 hospitalizations in 6 weeks.
I take my phone, kindle, chargers for both, a book or 2 then I have a bag of clothes packed that I leave at home in case Someone can just come and grab it for me
I went to the hospital once and they took everything away from me.
You are pretty
37 and have 5 stuffed toys on my bed.
I'm 29 and I have stuffed animals in bed.
Does your hospital supply both medications and supplements or just medications?
I’m sorry for you but I subscribed and liked how did you get the condition
Harry Potter love its genetic
You should do a “my favorite UA-camrs video” 😃
What is the med ID bracelet you have?
You may have said already, but is your UA-cam name “life with stripes” because of the doctor saying about horses and zebras? ☺️
yes it is. she said in another video that her disease (eds) is rare like a zebra ^^
I L❤️VE.YOU and you are amazing 😇😜 I hope you have a good Thanksgiving
When I have my open heart surgery I get my movie I was little girl
I have diabetes 1 and I also have a teddy bear and its name is Rufus
My fiancee got me a plush raccoon for Valentine's day. He goes with me to the er wheather it's for an injury or kidney stones.
I have over 200 teddies, don’t be ashamed of having a teddy.
Edit: And I’m 18
I enjoy your videos because your videos makes me get tired z z z
In my hospital go bag I have a Booy with all of my medication in it next to the names of my medication I have the amount that I take and then I have my teddy bear and I have my iPad and my MacBook and Chargers and change of clothes a blanket fuzzy socks a beanie
Hi
I have epilepsy
I’m new
Your not a 5 year old
In my hospital go bag I have a Booy with all of my medication in it next to the names of my medication I have the amount that I take and then I have my teddy bear and I have my iPad and my MacBook and Chargers and change of clothes a blanket fuzzy socks a beanie