My husband is 63 re entry diagnosed with multiple myeloma, along with servere COPD. He was diagnosed about a month ago. The only reason why they found is they seen a spot on his hip after he slipped and thought he fractured his hip. Now back in November 2023 he had been sleeping when he rolled over felt a pop in his chest he popped it so bad that his sternum is coupled. They believe that the myeloma caused his chest to literally cave in. His thoracic spine is basically gone he goes to chemo gets shots twice a week in his stomach and just recently he started chemo at home on a daily basis in pill form. My question to you is will my husband ever live to walk upright again, will he ever be comfortable, and what can his life expectancy be?! He used to be5'10" now he stands at 5' 1". He weighed 170 now he's 116 lbs. He's way too young for all of this, and aggressively fast. Actually they said that his myeloma hasn't gotten worse, but it's only been a month of treatments. I'm so scared for him. He is such a strong man. Can you please please get back to me?! You are appreciated. Sincerely
Thanks for this video. I'm 71 and in the Doctors words very fit at 155 lbs and 5.1 A1c. But what got me to the E room was a fractured spine and I spent 30 days in the hospital and rehab. The advice I give to anyone who listens is keep yourself fit, it goes a long way towards your recovery. I don't want be a burden to my wife or adult children or to anyone. Life doesn't owe me one more minute, I am doing chemo and what the Doctor says, it's all you can do. My best to everyone waging this battle.
Thank you so much for this, my 77 year old father was recently diagnosed with MM and AKI, has prior heart problems, surgery, & continued Pvcs, prior mini strokes, and blood clots run in the family on his side.
I had 4 bypass 32 years ago. 3 of the 4 are now blocked. The veins are not viable to do bypass. Now I have multiple myeloma. The drugs are very hard on my heart. I need to take nitro often with certain drugs. I need to make a few more years to get my 18 year old Aspburger son through college. He wants to be an engineer. After that this 70 year old has made his peace and will call it a bonus!
I have MM & my journey has been a real bitch, there's no polite way to communicate this; sorry. I've had two Bone Marrow Transplants & now my ParaProtein's are on the rise again. I'm only 55 years old & I feel like I have been cheated by life. I feel like this isn't my time. I feel like I contracted this horrid condition 25-30 years too early. Anyway, that's my rant ..... I'll be beginning my next line of treatment in a few weeks, but right now, I'm experiencing extreme fatigue due to the lack of oxygenation in my blood (from an excess of Plasma Cells: not enough Red Blood Cells) .... However, the worstest of the worstest of the worst part of my journey, has been the Peripheral Neuropathy in my feet. It drives me crazy. Crazy to the point where I want ALL LIFE ON EARTH to suffer, then die. I am serious. Sometimes it gets me so angry, I truly wish it would happen ! ..... What HELPS ME, is knowing that other people understand my pain & discomfort from direct experience. Looking at me, you'd think I'm perfectly healthy; but inside, I am dying - this is a fact ..... In addition to this, everyone's journey is unique & MM can become instantly aggressive overnight & finish you off. Just because you hear stories of people living to be 1M years old with MM, doesn't mean that YOU, specifically YOU, will live to be 1M ..... So, what I've learned is --> leave nothing for tomorrow, it may never come. Fulfil your dreams, your desires & your bucket list !!!!!
i am a caregiver for my boyfriend he is 65 was diagnosed in 2019 with multiple myeloma, kidney failure , heart faillure currently undergoing dialysis 3 times a week had 21 treatments of chemotherapy i dont know how to eplain anything to him about his diseases i go with him for all of his dr visits .. but when family members inquire about him im not sure they realizr that he is very ill. it is very hard coping with all of this...
I am 88 years old, quite healthy and energetic. My annual medical tests discovered multiple myeloma in my bone marrow. I immediately went to MD Anderson in Houston. MDA did exhausting tests and confirmed the presence of multiple myeloma. However, I have no aches or pains. I am doing all normal chores and am living a normal lifestyle. I eat and drink well. Sleep well. I have good balance and do not need any walking aids. I can walk up to a quarter mile before I have to rest for a minute or two and then good to go. MDA watches me closely with blood tests. No medications have been prescribed whatsoever. I do have CKD 3 and I watch my diet and the nephrologist checks me out every 3 months. I drive, perform daily duties, and shopping without difficulties but carefully without assistance. I will be 89 in April 2024. WHAT FUTURE CAN I EXPECT? Is my question. I have lived a very active life. Your response will be greatly appreciated.
You are blessed. Keep doing everything that you do with caution & you have a fabulous team at MDA. Enjoy your life until they tell you that you HAVE to do something. God bless you. 🙏💪👍👏👏🙏❤️🕊
Now I’m taking Tavley and now I have no sense of taste and have a hard time swallowing food. My lambda light chains are rising again after having car t therapy. Are there any other options than this bi specific therapy?
I had to stop Zometa after a number of sessions when I developed serious pain in my toes and couldn't put shoes on. Gout. Colchisine knocked that out in a few days, but the list of side-effects from that were so scary that I was taken off Zometa. Myeloma is a balancing act. There's a reason they call it a cancer battle, because with Myeloma it a series of skirmishes (treatments) and then a recovery period between skirmishes. I consider those are my 'holidays' from Myeloma. I do some catch-up on things I've let slide when the old chemo was wiping me out. I try to have fun and nurture my relationships, do shopping and spruce up my image a bit. Try to eat better and exercise, Actually, just getting up some mornings is quite an exercise! I'm busy living, not dying!
My wife has just been diagnosed and they have saved her kidneys and started chemo, I’m scared and angry and confused. She can’t walk at the moment, do you know why? Thank you
Very sorry about your wife's health...I was diagnosed recently with multiple myeloma and have multiple tumors in most of my bones, which of gives me great pain and walking becomes extremely difficult. Has your wife gotten MRI to check for tumors? Sugar feeds cancer, please look into the effects of diet on multiple myeloma, foods that contain sugar, starches, junk food, bad oils, etc. speed up cancer destruction in the body. Please read on the possible benefits of Soursop(Graviola) and Essaic Tea, colon cleanse (colonics), selenium and zinc 🙏
@@emmanuelking9988 she hasn't got any tumours and she's responding really well to chemo, she's started to walk better. Hope you recover soon and it all goes in your favour in these hard times
My sister is having shortness of breath, the doctors said yesterday that there is fluid in her lungs and she has a blood clot. She is already in kidney failure. She has lost a bunch of weight and has no appetite and it looks like her skin may be getting like a very light grey tint to it. She was taken off treatment and is not getting anymore treatment. Once they are at that stage of what I just describe how long do they typically have left? Just a ball park figure.
My Dad died in May 2022. His last symptoms were high calcium Blood clots Fluid in lungs Losing weight so quickly. bloated belly Nose bleeds. Dad breathing was difficult all night, we saw changes different changes 5mins before he died. He was 57 full of life. Miss him every day.
My husband is 63 re entry diagnosed with multiple myeloma, along with servere COPD. He was diagnosed about a month ago. The only reason why they found is they seen a spot on his hip after he slipped and thought he fractured his hip. Now back in November 2023 he had been sleeping when he rolled over felt a pop in his chest he popped it so bad that his sternum is coupled. They believe that the myeloma caused his chest to literally cave in. His thoracic spine is basically gone he goes to chemo gets shots twice a week in his stomach and just recently he started chemo at home on a daily basis in pill form. My question to you is will my husband ever live to walk upright again, will he ever be comfortable, and what can his life expectancy be?! He used to be5'10" now he stands at 5' 1". He weighed 170 now he's 116 lbs. He's way too young for all of this, and aggressively fast. Actually they said that his myeloma hasn't gotten worse, but it's only been a month of treatments. I'm so scared for him. He is such a strong man.
Can you please please get back to me?! You are appreciated.
Sincerely
Thanks for this video. I'm 71 and in the Doctors words very fit at 155 lbs and 5.1 A1c. But what got me to the E room was a fractured spine and I spent 30 days in the hospital and rehab. The advice I give to anyone who listens is keep yourself fit, it goes a long way towards your recovery. I don't want be a burden to my wife or adult children or to anyone. Life doesn't owe me one more minute, I am doing chemo and what the Doctor says, it's all you can do. My best to everyone waging this battle.
Thank you so much for this, my 77 year old father was recently diagnosed with MM and AKI, has prior heart problems, surgery, & continued Pvcs, prior mini strokes, and blood clots run in the family on his side.
I had 4 bypass 32 years ago. 3 of the 4 are now blocked. The veins are not viable to do bypass. Now I have multiple myeloma. The drugs are very hard on my heart. I need to take nitro often with certain drugs. I need to make a few more years to get my 18 year old Aspburger son through college. He wants to be an engineer. After that this 70 year old has made his peace and will call it a bonus!
Good luck ❤
I have MM & my journey has been a real bitch, there's no polite way to communicate this; sorry. I've had two Bone Marrow Transplants & now my ParaProtein's are on the rise again. I'm only 55 years old & I feel like I have been cheated by life. I feel like this isn't my time. I feel like I contracted this horrid condition 25-30 years too early. Anyway, that's my rant ..... I'll be beginning my next line of treatment in a few weeks, but right now, I'm experiencing extreme fatigue due to the lack of oxygenation in my blood (from an excess of Plasma Cells: not enough Red Blood Cells) .... However, the worstest of the worstest of the worst part of my journey, has been the Peripheral Neuropathy in my feet. It drives me crazy. Crazy to the point where I want ALL LIFE ON EARTH to suffer, then die. I am serious. Sometimes it gets me so angry, I truly wish it would happen ! ..... What HELPS ME, is knowing that other people understand my pain & discomfort from direct experience. Looking at me, you'd think I'm perfectly healthy; but inside, I am dying - this is a fact ..... In addition to this, everyone's journey is unique & MM can become instantly aggressive overnight & finish you off. Just because you hear stories of people living to be 1M years old with MM, doesn't mean that YOU, specifically YOU, will live to be 1M ..... So, what I've learned is --> leave nothing for tomorrow, it may never come. Fulfil your dreams, your desires & your bucket list !!!!!
i am a caregiver for my boyfriend he is 65 was diagnosed in 2019 with multiple myeloma, kidney failure , heart faillure currently undergoing dialysis 3 times a week had 21 treatments of chemotherapy i dont know how to eplain anything to him about his diseases i go with him for all of his dr visits .. but when family members inquire about him im not sure they realizr that he is very ill. it is very hard coping with all of this...
I feel for you, my husband has myeloma its such a worry ❤
I am 88 years old, quite healthy and energetic. My annual medical tests discovered multiple myeloma in my bone marrow. I immediately went to MD Anderson in Houston. MDA did exhausting tests and confirmed the presence of multiple myeloma. However, I have no aches or pains. I am doing all normal chores and am living a normal lifestyle. I eat and drink well. Sleep well. I have good balance and do not need any walking aids. I can walk up to a quarter mile before I have to rest for a minute or two and then good to go.
MDA watches me closely with blood tests. No medications have been prescribed whatsoever. I do have CKD 3 and I watch my diet and the nephrologist checks me out every 3 months. I drive, perform daily duties, and shopping without difficulties but carefully without assistance. I will be 89 in April 2024. WHAT FUTURE CAN I EXPECT? Is my question. I have lived a very active life. Your response will be greatly appreciated.
Forgot to mention that my breathing is normal and do not have any crackling bones. My weight is 155 lbs.
Future? You are 88 you ain’t got nothing to complain about you have lived a life way longer than someone like me with MM at age 52 will ever live.
You are blessed. Keep doing everything that you do with caution & you have a fabulous team at MDA. Enjoy your life until they tell you that you HAVE to do something. God bless you. 🙏💪👍👏👏🙏❤️🕊
Can you talk about the type of diet you follow? Particularly as it relates to sugars.
Now I’m taking Tavley and now I have no sense of taste and have a hard time swallowing food. My lambda light chains are rising again after having car t therapy. Are there any other options than this bi specific therapy?
You are great person
Thank you for talking about this!
I have MM since 2020. I’m tested with both these drugs plus Revlimid . They got me in remission now?
Not from the cancer...it was the bone drug Zometa. He is now cracking like a fragile egg head to toe. His numbers have him still in remission.
I had to stop Zometa after a number of sessions when I developed
serious pain in my toes and couldn't put shoes on. Gout. Colchisine knocked that out in a few days, but the list of side-effects from that were so scary that I was taken off Zometa. Myeloma is a balancing act. There's a reason they call it a cancer battle, because with Myeloma it a series of skirmishes (treatments) and then a recovery period between skirmishes. I consider those are my 'holidays' from Myeloma. I do some catch-up on things I've let slide when the old chemo was wiping me out. I try to have fun and nurture my relationships, do shopping and spruce up my image a bit. Try to eat better and exercise, Actually, just getting up some mornings is quite an exercise! I'm busy living, not dying!
My gum and teeth are hurting badly when I brush my gums are bleeding .what should I do about it. I feel fatigue and tired my body hurts a lot.
The fatigue and body ache will get better. It might not go away completely.
My 63 yr old friend has his bones shattering, femurs cracked
Are you still providing consultations through your website??
My wife has just been diagnosed and they have saved her kidneys and started chemo, I’m scared and angry and confused. She can’t walk at the moment, do you know why? Thank you
Very sorry about your wife's health...I was diagnosed recently with multiple myeloma and have multiple tumors in most of my bones, which of gives me great pain and walking becomes extremely difficult. Has your wife gotten MRI to check for tumors?
Sugar feeds cancer, please look into the effects of diet on multiple myeloma, foods that contain sugar, starches, junk food, bad oils, etc. speed up cancer destruction in the body. Please read on the possible benefits of Soursop(Graviola) and Essaic Tea, colon cleanse (colonics), selenium and zinc 🙏
@@emmanuelking9988 she hasn't got any tumours and she's responding really well to chemo, she's started to walk better. Hope you recover soon and it all goes in your favour in these hard times
@@deanthomas3602
Thank you and wishing your wife the same 🙏
@@emmanuelking9988 I watched a youtube video from a doctor that specializes in this type of cancer says best diet is a Mediterrane Diet
Are you still alive
My sister is having shortness of breath, the doctors said yesterday that there is fluid in her lungs and she has a blood clot. She is already in kidney failure. She has lost a bunch of weight and has no appetite and it looks like her skin may be getting like a very light grey tint to it. She was taken off treatment and is not getting anymore treatment. Once they are at that stage of what I just describe how long do they typically have left? Just a ball park figure.
My mother died 4 days ago by suffering from these symptoms
My Dad died in May 2022. His last symptoms were
high calcium
Blood clots
Fluid in lungs
Losing weight so quickly.
bloated belly
Nose bleeds. Dad breathing was difficult all night, we saw changes different changes 5mins before he died. He was 57 full of life. Miss him every day.
@@showbizmedia8754 that was multiple myeloma, I think, it develops quickly in last 2 months and shows sudden syn
Last few days.
Is your sister still there?