NF2-SWN Accelerator Meetup: A Conversation with Matt Hay

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  • Опубліковано 29 кві 2024
  • In this NF2-SWN Accelerator Meetup from the Children's Tumor Foundation, author Matt Hay joined us for a conversation about his new book, Soundtrack of Silence. In his poignant memoir, Matt shares his personal experience with a diagnosis of NF2-related schwannomatosis and the impending loss of hearing. His book beautifully encapsulates the power of music and its role in Matt's life before the onset of hearing loss due to NF.
    What is the Children's Tumor Foundation?
    Founded in 1978, the Children’s Tumor Foundation (CTF) began as the first grassroots organization solely dedicated to finding treatments for NF. Today, CTF is a highly recognized global nonprofit foundation, the leading force in the fight to end NF, and a model for other innovative research endeavors.
    Visit our website at www.ctf.org/
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