Chronic Illness | Hank Green & Kati Morton
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- Опубліковано 1 чер 2024
- I'm Kati Morton, a licensed therapist making Mental Health videos!
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If you or someone you know is in immediate danger, please call a local emergency telephone number or go immediately to the nearest emergency room.
If even someone as successful and hard-working as Hank Green couldn't afford health insurance, then we have a serious problem.
Hank is one of the people who have inspired me to talk openly about my own chronic illness (a rare vasculitis called Takayasu's arteritis) without feeling ashamed or embarrassed about it. It's so important to know that you're not alone when you have a chronic illness and I just have to say THANK GOD for the Internet for existing. Without this community of fellow "spoonies" (what we call ourselves) I would feel completely isolated and trapped in my own body.
Agreed sister! With modern technology we spoonies are super blessed... I can't imagine how isolated I'd be otherwise. Just sitting at home not being able to do shit... Stay strong!
hi. im chronically ill and i hear alot about the spoony community but cant seem to find anywhere online to meet others. can you recommend some places?
Kerouwhack Jack i don't know how'd you feel about this but ik there's a pretty active spoony community on tumblr?
@@kerouwhackjack6717 hey! facebook has heapssss of support groups, just do a search. Just in case you haven't found any yet :)
The part about his wife and guilt is spot on
I have POTS and it’s almost like we feel guilty for someone helping us when we need help. I’ve felt guilty after going up the stairs at school I’d have to sit down and I’d be late to my next class and my friends would be late aswell because they’d either wait with me or go to my next classroom to inform my teacher I’d be late. Thank god we have understanding teachers that don’t mark us late for my medical issues
A friend said to me " you grieve for the loss of the expectation of normal, and then 'reset' and set a NEW normal." It has helped me cope with the depression which comes from living with chronic pain
+lorrane Preach!!
Sometimes it feels like I can never have a meaningful life or a relationship or contribute to society in any valuable way, and on those days the thing that helps me the most is to remember that Hank Green does it. I'm so, so glad that he has been open about his illness. It makes a world of difference to me to know that someone I admire-and someone other people admire-has a condition similar to mine.
*hug*
Me too!!
Annika Victoria ♥︎
One of my main issues with chronic illness is that doctors don't really know exactly what is wrong with me. So if you can't get a diagnosis, you can't get treatment. So as the illness gets worse, you have to accept some things as your new normal and fight some things, etc. the grieving process is never fully played out and I'm constantly kind of between acceptance and depression.
+Sarah Swicegood Hey Sarah! Sadly, the fluctuation between acceptance and depression is something that you'll probably always deal with. I've had degenerative disc disease for almost ten years, but was only recently diagnosed. I deal with pretty severe back pain on a daily basis. Although the pain is never gone, I have quite a few good days. But when I have bad days (or bad weeks), my depression comes back with a vengeance. The best thing I can recommend is to be honest with the people around you about how you're feeling emotionally. Sometimes I call my friend and say, "I'm angry today and I just want to rant about how crappy my illness is" and she listens without comment. Other days I genuinely want advice or support. In order to let other people help you, you have to tell them how to help. Make your friends and family partners in your health. Hopefully this helps. Good luck!
+Colleen Walton I have degenerative disc disease as well. I was diagnosed the second half of my junior year in high school. I was in marching band at the time, and it was a huge part of my life. I had to give that up which was extremely difficult for me. I used to be a very athletic person who played sports all the time. In my senior year it got to the point where I couldn't go to school anymore and was stuck in a wheelchair. Soon I got a couple treatments and was able to walk and function more, which was such a miracle. Four years later I am still in a lot of pain, I take medications to help the inflammation. It has been getting worse, but I fight through it. When I get to the point where I am in so much pain I can't get out of bed I get so frustrated and angry. I hate feeling helpless and it's hard for me to accept help from others. I also suffer from depression, which tends to make it even more difficult. But I have my good days and I try and fight through it.
I'm in the same boat. After developing the strange symptoms of my chronic illness about a year ago, I saw several different doctors but still don't have a solid answer as to what exactly I have. All I know is that I'm tired all the time, and my anxiety got significantly worse. So you're not alone in wanting answers. How I ended up dealing with mine was getting financial support from family so I wouldn't have to work for a while, experimenting with my diet (generally trying to eat healthier homecooked meals), seeking counseling, and working with my general doctor to change meds I was taking for my depression. I still do not have a normal body and mind, but I learned to acknowledge small positive changes as a way to accept my unknown illness. For example, I noticed that I felt better than before, even if I didn't feel awesome.
Sorry to hear that you are going through this . I am so happy to have a diagnosis. After so many years of not knowing what was wrong and blaming myself. Best wishes ro you. Xx
@@RoseAuflick did u ever get diagnosis...kinda sounds like could be thyroid issue. I know that test comes back normal even when people have issues
My boss is the best boss who has ever bossed.
DFTBA!
+thelonelydirector not a bad son either :)
Hank Green just had his first therapy session- and he doesn't even know it!
Omg so true
+K Golight he probably has been in therapy before john green is his brother after all
(i wish john could read this comment)
@@Kazooga-wi5qn 8:37 he says he hasn’t
Kati I could so tell that you were going into full blown therapist mode when talking to Hank haha! You got that listening face on!
+raylo123 yes yes yes!! noticed that too!
+raylo123 I noticed that too! Definitely the therapist Face..haha But I love it!
What can make it even harder to cope with a chronic illness is when people seem to act like your not trying to get treatment or your just using the chronic illness card to get special treatment. So they start giving you all this unsolicited advice about what you can do to 'fix' your condition. And when you say you've either tried all that or that it wouldn't be effective they act like you're just not trying hard enough, it makes you feel like complete crap. I try not to take what other people think to heart. If growing up dealing with bullies taught me anything it was that, but at the same time no matter how hard you try a little bit of that tends to seep in. And it's worse when you're in a setting like a support group and you have people acting like that. It wasn't a support group for chronic illness, it was a support group for another issue but still when you're in what you consider to be a safe space with people you feel you can trust it really hurts when someone starts treating you like you're just a hypochondriac. Or going to the doctor and being treated like a med seeker. I literally had a doctor tell me that she couldn't give me anymore narcotics when I told her that I was still having issues with pain. I said absolutely NOTHING about wanting more pain medication. I merely said I was having more issues with pain. It wasn't long after that I had to change doctors because it had become very obvious that I couldn't share anything with that doctor. If it wasn't her thinking I had med seeking behavior it was the fact that I couldn't talk to her at all about medical aspects of my gender transition. She knew about it but didn't listen at all if I tried to bring it up. Until a friend of mine told me about a trans friendly doctor that she went to that actually accepted my insurance I was really depressed because it felt as if I'd never have any of my medical needs addressed. So thankfully now I have a doctor who listens and it makes a world of difference. It's just the people who think that they're 'helping' by giving unsolicited advice that can really make you feel frustrated or shameful. And it's stupid to feel the shame but it happens anyway...
I can so relate to the guilt about appreciating people being kind to you because your illness. And also the always needing proof that people love you. Amazing collaboration, thanks, Hank for opening up, and thanks Katie for listening and asking the right questions!
a) Awesome collab b) It's so helpful to hear Hank talk about this, especially in terms of dealing with shame related to bodily issues. c) The topic of chronic illness is a great example of avoiding overly positive psychological self-talk. Much more authentic to accept that some situations in life are less ideal than others and to accept that rather than trying to twist it into telling yourself that everything's awesome.
Woop woop, two of my favorite youtubers!
2nd that!
my 13 yr old daughter was just diagnosed with Crohn's and is having a rough time.
Thank you both for this video, it is much appreciated :)
+AngeliaChanel I got diagnosed with crohn's when i was around 13 years old i hope you daughter is okay it can be hard at times but it dose get better when it is under control.
as someone who's been suffering for like 8 years of the same i genuinely feel how horrible it must be feeling for your daughter, but after a while things definitely will get better trust me (it definitely did for me at least with the crohns, i did get fibromialgia a year later but thats a different issue)
Thanks to both of you for doing a video like this! As someone who also deals with some pretty debilitating chronic illnesses (POTS, ME/CFS, endometriosis, etc.) on top of complex PTSD, I would love to see more discussions like this about the ways in which it affects people's lives. Chronic illness can be very isolating, and it's so nice when the public at large gets to become more aware. 💕
+Amy McRae Hey! Just wanted to let you know you're not alone with the multiple chronic illness thing. I have IST, (was originally misdiagnosed as POTS, both such tough conditions!) endometriosis and joint hypermobility syndrome which all contribute to chronic fatigue- so I guess we have some things in common! I think multiple chronic illnesses can encourage such a social stigma - 'you couldn't possibly have all of those, you must be a hypochondriac' etc, but in reality we're just stuck in a complex situation with our health that can be rather difficult for others to understand. Amazing to see conversations like these becoming mainstreamed. Lots of hugs and best health wishes!
Hey ladies, just want to add my voice to the multi-chronic-illness choir. I have CFS, PCOS, Gut dysbiosis, hypermobility, BED, and Complex PTSD. I also really get the isolation thing. I was in bed for 5 years straight. Lost a lot of friends, even family. It's tough going. I send my love out to you.
This is WONDERFUL. I have IBS-D, for 4 years, and it is frustrating, and depressing, and like he said, makes you feel like you have no control. but i loved what he said about accepting the "new normal" and just grieving the old normal. Something I think I still need to do. But man, I felt every single word to a T.
Yay! I go back and watch videos of Hank talking about his illness a lot, because it helps me think positively about my condition when I struggle with flare ups and fatigue. I think part of that is knowing he is a productive person, while still dealing with this stuff helps me see that that's possible. So thanks Hank!
Hank is everywhere on UA-cam....
You should have John come on! That'd be awesome. OCD representation and the interesting contrasts and similarities between dealing with a chronic physical disability and a chronic mental disability. :) Love the video as usual!
Oh my goodness, I can so relate to that feeling of thinking that if I do what I do with my illness, I could be doing so much more without it.
Thank you both for this video. 7 years of fibromyalgia and as of yet no treatment that works. I don't have control over my life, I would really appreciate being able to have that feeling of control back. I literally don't know day to day what I will be able to do. What Hank said about work and feeling worth, it can be hard not to feel worthless when you cannot hold down a job. Maybe I'll come up with something to do that I can work around flares and doctor's appointments.
You’ve gotta look into dr sarno. He saved my life.
Theres always so much guilt when you're chronically ill. Im comforted by the fact that even Hank Green feels inadequate from the weight of his illness, but also sad that such a great man suffers
Boy Hank, you hit the nail on the head about grieving for your old life or the new life you wish you could get, but know you never will. My husband is so incredibly tuned in to me and helps me at every turn. It hit me one day that I need to be super careful to not take advantage of him. While I cannot do much in return, I make sure I acknowledge his hard work, his intents, his help, and that his time is also being rerouted away from his personal time. It is the one thing that keeps my marrange strong (25 years!).
I am dealing with 16 medical/emotional conditions and four of them are incurable. Have been out of work for 27 months and forced to apply for disability. Finally have the court date in two weeks after fighting for over two years. This was not planned. He is lucky he has his other half supporting him, Mine is always on my case and not really there. I have a counselor and on psych meds. Since my dad died three years ago and my career has died, my world has been turned upside down. Would not want my enemy to endure the reality i face day by day.
+Randy R You're so not alone in this. I went through all of this in 2005. I don't have as many conditions as you have, but yes, the ones I do have are invisible, incurable and chronic. And, they include a mental health issue which makes getting depressed so easy anyway, let alone when all this came down.
It became necessary for me to get on SSDI, too and yup, that took 2 years for me as well. Actually, that's what happens for about 66% of people that apply for SSDI, which is ridiculous, right? So, you're definitely not alone in that - in fact, you/me, we're in the majority. I swear, there should be support groups for people just trying to get through the SSDI process.
You're just beginning this journey, but I want to extend to you that there is hope, and amidst all the suffering, you can still have a good life. There really is a big grieving process, especially when you just *can't* work. For me, so much of my self-esteem hinged on the fact of "Well, at least I can work". Phew, that's a freakin' doozy of pain to go through, and I've said the exact same thing..."I wouldn't wish this on my worst enemy".
But, for me, with time, once I'd had some acceptance that "Welp, this is the new norm", I started to focus on what I can do. I started getting into art journaling, because I figured "Hey, free therapy". Made friends with people in the same boat. Got used to poverty, and learned to work within that. Got onto the social programs I need to be able to have a roof over my head, and, ya know, food to eat. Became connected with a higher power, because, damn, I need some spirituality to get through all of this. Basically, just settled into this whole 180 degree switch life pulled on me.
And I can honestly say that, today, I like my life. Ok, not the illnesses, or the fact that with aging, they are getting worse (I was 33 when this all went down). And I am definitely not saying I don't have down/hurting/depressed/"Are you freakin' kidding me??" days. And, I have those days when I get SUPER jealous of people that don't have to go through any of this. It's just that overall, considering what I do have going on, I get amazed, often, with "Wow, I can't believe I not only keep surviving, I'm actually doing that whole thriving thing. Shut the hell up!" Talk about a self-esteem building exercise.
Like I said, for me, it's been over 11 years since my journey into this began. I know how hard this road is for you, how discouraging and depressing and miraculous it is when you survive just one hour of it, let alone a day, a week, a year, etc. I just wanted to let you know, there can be a flip side, down the road, where your life can be good, despite all the crap you're going through.
PS. I hope you won your case.
Yes, disability was finally fully approved after 2 1/2 years and got my first check this month. Attorney got 6,100 but he had to go through 20 doctors reports The hard part is going from 2,100 a month down to 915 @ i am still dealing with my dad's death and three others since April 2012. I have had so many questions going through my head yet,last Saturday, i got 21 years clean and sober by the Grace of God. My other half does not understand. Now i am desperately trying to sell 700 items because i need the money and can't take anything with me.How do you explain to someone, who has never been through it what it feels like watching your dad die in front of you and then have your dream and career die a few months later? Yes i know all to well what pain and grief feels like, I am fighting with myself over whether or not to make my 21 years sober video. Am up and down about it. Thanks for caring. Some day there will be Peace In The Valley.
Just turned 63 and feel closer to 80.. Stress, loneliness, anxiety @ depression can kill a person.
Randy R Trudging that road to happy destiny? And lordy, sometimes, it's a flat-out trudge, yeah? Yup, that is a LOT of pain to handle, especially with a spouse that doesn't get it. But, it is possible. I bet you're surrounded by people who've done it, too - they just don't talk about it openly. Congratulations - that's a really, really, REALLY big deal. See, you're helping folks, and you don't even know it, because they don't say it directly to you. I'm not trying to be all pollyanna on you here, because I really do understand the pain you're in. Just trying to give you some encouragement, that there is another side you can get to. Actually, also saying this to remind myself - having a hard time myself at the moment.
Randy R Also, yes, all of those things you listed - they are silent (and sometimes not-so-silent) killers. I've had to manage all of this with a LOT of help. Therapy, groups, trusted friends who get it, etc. Helps with the loneliness stuff at least. Plus, medications - could NOT do this without them, either.
Hank! It's Jean McCurry! Of all the places to see you again :) I'm sorry you are going through this, I wish you well in the future and pray for your health.
Hey Hank! Thanks for chatting about IBD. I have Crohn's disease and my whole UA-cam channel is devoted to both Crohn's and colitis and so is my website, Inflamed & Untamed. Anyway! Thanks again for being open.
Sara Ringer Checked out your website! Super informative! You're doing some great work. Keep going!
OMG IVE BEEN WAIT FOR THIS COLLAB FOR YEARS
I am crying and laughing and for once in my life I don't feel alone with what is happening to me. Thank you. Just...just thank you.
Yes, me too, just THANKS.
Wow, Hank is such a strong and inspirational person! I'm so thankful that he shared his thoughts and experiences with us and I'm sure that it will help a lot of people. Thank you very much and I wish you all the best for your future ☺️🍀
+Veronika Kruk he made a song about ulcerative colitis cardgamesftw has a harder time dealing with his because he had depression first
Thanks for this.
I have Crohn's (pretty badly) and most of the time I deal well with the curve balls it has thrown over the last 25 years, since I was diagnosed. I have an awesome family and friends.
I am not very good at letting people care for me and it has hurt my relationships.
I am trying to rethink what meaningful work I can do. I miss being able to immerse myself in work. I am depressed which is not helping me think clearly, as well.
This gave me a lot to think about and I appreciate your honesty, Hank. Thankyou Kati for facillitating this forum.
I am dealing with a chronic illness as well, and this is so relatable and so helpful. I recently got the diagnose and I can definitely feel the grieving process. :/ I have struggled so much because I have days when I can't get out of bed and I feel guilty because I am not contributing to society or being productive. But I am working on feeling more okay with it and videos like this really helps!
+Joffelicious While my chronic conditions may be different from yours, I completely get what you're going through. You wrote the same words that flow through my head on a regular basis. I try to just take one small step each day towards doing something I'm proud of and it helps me feel like the day is a success, even if not in the way I originally wanted it to be.
I just love how he talk about how he stoped feeling guilty about being granted help. It's a very hard process and I find him so inspiring. :)
This was really encouraging. I've had chronic back pain since 2008, and I only realized recently that chronic pain can (shocker!) contribute to depression and frustration. And it is comforting to know that many people deal with chronic pain/illness and have productive happy lives.
I'm still grieving 13 years on. I have type 1 diabetes. It's 24/7, constant worry for future complications and constant strive for perfection which is impossible. It's like I have the plan my
whole life for the time I get complications (blindness, kidney failure, amputation, nerve pain, incontinence, delayed gastric emptying, dementia and so on).
Wow. Can't say how right he is! A chronic illness makes you do anything to gain control. Living with one can be so incredibly isolating 💔 thanks Kati x
I love when you collaborate with others, it's so interesting to listen to!
Amazing video! So good to hear honest conversation about such an important topic. I agree lack of control is such a hard thing to wrap your head around.. I know I struggle with it a lot! But it's uplifting to remember that even if you have hardships in some areas of your life it doesn't mean you can't have wonderful things in other areas of your life. Thank you so much for making this both of you. 💛
It's always great to hear from other people with chronic illness. I've had type 1 diabetes for 13 years (watched this while changing my pump site haha). What's made a big difference for me is finding other people who share my diagnosis. My brother and one of my friends have type 1 as well, and it's kind of cathartic to be able to talk about our frustrations so they're actually understood, but then to also share solutions and support. My biggest fear is turning 26. Man, do I depend on my insurance. Thank you for another great video, and thanks for having Hank Green on!
Ahhhhh when I saw these two together I was so happy! Im a long time Hank and John Green fan and a recent Kati fan and I had no idea these guys even knew each other existed!!!
"You have to maintain your relationships for the people you love and also for yourself."
So important to try to put into daily life.
I have IBS, endometriosis and PCOS. It is the precise way these combine with my dyspraxia and OCD (and other MH issues) that makes life so difficult. I barely leave my home. But I am still writing a novel, slowly progressing. I don't see any friends IRL any more, apart from my husband/carer (and we don't live together now). I now have muscle pain too, and that makes life even harder. Yet, I do try to stay positive. Thank you for this video. xxx
Katie! I don't know if you've ever heard of the Spoon Theory, but it relates a lot to this video and applies to anyone suffering from any chronic illness. Awesome article to read if you haven't :~)
The moment he said "I don't wanna be useless" I immediately started bawling, just because that's kinda something I wish I could do, and I've spent years beating myself up to strive to do that. I don't know why I'm putting this in the comments; I just really appreciate that someone who thinks like that can be as amazing as him. Thanks Hank, you certainly arent useless. I just hope I can say the same about myself one day. Sorry for posting this. I'm probably being attention seeking. Bye
Thank you for doing a video on chronic illness! chronic illnesses suck
I have chronic illnesses and share the feeling of not wanting to be useless. I cannot handle working so what I do is make sure to set myself one productive goal and one is your goal every single day to complete. Anything besides that is a bonus so I prioritize, but by being productive and also doing something that is self care every single day I feel like I'm actually doing something!!
can you please talk about "uncertain future anxiety" and "anticepatory anxiety". I constantly think about my future in a pessimistic way and it has caused me into some sort of depression. It's not irracional thought that could go wrong but possible.
example:
I will live with my bf of 3,5 years we are as happy as we could be. But I'm afraid he falls in love with someone else, that we get bored.
I will fail in my carrier or my studies... I'm most of the time happy but I have episodes during a week.. thank you
+Kati Morton (Mental Health Vlogger) thank you darling! should I talk to a psychologist or a therapist?
I thought that I could go to a psychologist and get a diagnosis and then start with a therapist. Thank you! ♡
Hank and Kati nice to see you guys making a video together!
I've lost my large intestine to Crohn's Disease. It was beyond repair and now I don't have it...and that part where you both discussed the grieving process really spoke to me. Letting go and accepting that you can't always be in control is something I've had to learn to do over time. My ileostomy is difficult to deal with but I don't have a choice. It's my life (at least for the foreseeable future) and I need to not beat myself up about it. Instead, I just need to accept that it's how it has to be for now and just "ride the wave". It genuinely has been a grieving process but I am in the latter stages.
.My life and body healing insight:
*Don't get angry at your body, but learn to accept if your anger is a legitimate reaction to your life trauma.*
What took place:
*Lonely feeling. Misunderstood and judged. Lack of support and listening. Forgetting to self-care and self-forgive*
Yes, UC has knocked out my energy and my will to participate many times.
Despite all this, sticking with my resolve to heal and care for my life as best I can - while working - has been a life lesson
I really appreciate all of your videos, Kati. As someone who suffers from mental illness, as well as bowel issues, I get a lot out of them.
OMG 30 days supply for 2500 bucks??? That's insane!!!!
I sooo appreciate what he said about the bell curves... I have recently gotten stuck focusing on the health bell curve! I needed this whole video... thank you! ❤
Thank you, Hank and Kati! I have chronic illness and I am always looking for ways to understand and deal with it and my emotions about it. The best thing I got out of this video was how Hank deals with it, which is to work. I want to publish a book which I think will be helpful to others, and I have been too sick to work on it for the last few months, and I think it's just making me really depressed. So, now that I'm feeling better, I know what I need to do! Pull out the old novel!
holy fuck i have been referring to the experience of having of chronic illness as like a grieving process where you have to grieve for the life you had and what you expected as well as accept your new normal and i cannot believe he said it word for word GREAT MINDS THINK ALIKE
Thank you so much for talking with Hank Green! I have ankylosing spondylitis, and the visibility for chronic (and often invisible) illnesses makes me so happy!!!
I have degenerative disc disease and, at 17, I'm finding it so hard to cope lately.
Thank you both ❤️❤️
Thanks for sharing Hank and thank you for making this video Kati! I have Crohn's and I know that it's awkward to talk about, but when you have an illness that people can't see it's hard to explain why you can't do certain things or eat certain things or why you're so tired all the time, etc.
Hank Green is the bomb, his UA-cam channel gives me so much knowledge I'm so thankful for
Hank is such a genuine, likeable guy.
thanks for the video! I needed that!
The part of about trying really hard and treatments not working is so so hard, that’s one of the biggest mental parts of Crohn’s for me.
It's nice to see someone finally talk about chronic illnesses from a mental health perspective. To be honest they often don't get adressed for some reason. It's like because they can't be healed a big part of society seems to think like "welp, can't be helped, you just gotta deal with it" and that's all. It sucks a huge lot. I've tried finding a therapist who specializes in that and found pretty much noone. Most chronic illnesses don't even have a support group. And if there's one, well, most of the time I already know what they say and I don't think it's only me who doesn't gain anything from talking to people with the same diseases. Cause it simply isn't therapy. In these support groups you just whine and moan about it all or maybe share informations, but it doesn't adress what the illness does to your mental health, like, at all.
Which is very sad because when you have a chronic illness, the symptoms often multiply over time and you have to constantly grieve what freedom you used to have but now have lost due the worsening of your condition. It's also extremely hard to push through your day when you have to deal with side-effects of your medication and the symptoms on top, which means you have these extra stressors in your life you constantly have to deal with. And it thins your nerves, so you're more easily annoyed/you're simply having less (emotional) energy to deal with the challenges of every day life. Then there's the isolation that often comes with the illnesses. Most people can't understand what you're going through very often, sometimes blame your for things you can not help even. And of course some people are so ill, they even are house-bound, which makes taking care of normal friendships actually impossible. And I've experienced not enough therapists having any adivce on how to deal with these and all the other emotional problems that comes out of these challenging situations. There's a huge void there and I wish it'd be more filled. Maybe it's better in other countries, idk.
Thank you so much for sharing this
Thank you so much for sharing :)
On the plus side of having Crohn's, I have really refined my sense of toilet humor. It's definitely helpful to have a good support group that isn't offended by a fart joke every once in a while.
THIS WAS SUCH A GOOD VIDEO!
I would love to see you and Jenni Prokopy the chronic illness Vlogger speak on coping tools for chronic illness challenges. I am happy to suggest ideas also.
This was really good thank you for sharing
I have a chronic illness too and "I can't live the life I wanna live" is a super frustrating part to deal with! Likening it to grieving is really great and actually super helpful. Thanks to both of you for having this conversation!! :)
fantastic content!!!
Oh wow thank you for this video.
I’m so glad I came across this. I was diagnosed with lupus SLE at 16. It’s been rough as I was in a long time of denial. I wish I had agreed to treatment while I was young. I wanted to be “normal” kid. I felt quite alone in this for years and I am 32. I hid from my love ones to save them from my own suffering. But it’s been too overwhelming to sustain. Health insurance...oh thanks Obama for supporting the pre-existing condition! And with work, it’s a bummer as employers make me feel I’m using my health conditions as a consistent excuse. Physical appearance I’m okay. But internally I feel like crap. Thank you!!!
A great team.
Yay, I love Hank. This was a great video.
Thank you Hank and Kati! :-)
Amazing video Kati and Hank! Thank you for sharing this.
Saw Hank tweet this and I'm glad I watched it :) Fantastic video! I'll definitely be checking out more of your channel :)
I love your shirt Kati! it's so cute and fun. Also, love this collab!
HANK YOURE SO USEFUL AND INSPIRING. You've done so much that you could do nothing for 10 years without having to be useful again. Thank you.
Loving all the collabs at the moment! Really helpful and interesting discussion!
I love his crash course videos
Great video, as always! Hope you have a good day xoxo
Very interesting!! Thanks Kati. And thanks Hank for being so open!
Thanks Kati & Hank. I really really needed this video.
Hank you say you have a ridiculous amount of privelage with being able to go into work later in the day. But don't you think it's a necessity. and you're fortunate to have people who understand and are willing to work with you.
and i understand about not having insurance because I've been spending about 1000 or more a month for the last 5 years. And and i just got insurance a couple months ago and now only have to pay approx. 60.00 a month. this alone has changed my life.
And talk some more about doing what you love,being creative, and using your unique experience to help others.
I have a lot of chronic illnesses. I know from my research and seeking help for myself, that FMT is being used to treat things like UC nowadays. Maybe Hank wants to look into that. I dunno. All the best to Hank and you, Kati.
very informative Kati
Thank you. I just have chronic pain but it's nice to be reminded that it's ok to have bad day and that there are examples of what I would call success
I come back to this video all the time.
I am so glad I am not the only one who feels like they have trouble connecting with others or struggle in social situations, I have cealiacs and I feel like I miss out on so much because most of todays social gatherings revolve around food and I have to skip on that,
Ok so, I love and really look up to Hank and John. There's something really special about watching one of them speak on a topic like this (that also happens to relate to me). This is something that is usually pretty private/intimate. I really appreciate the openness. Especially coming from someone I look up to.
I wish I could favorite this a thousand times. :-) Thank you so much Katie for talking about chronic illness and for having someone as young and healthy looking as Hank. Most people have a real difficult understanding that someone who looks healthy, actually isn't and sometimes needs a lot of extra assistance.
Ah, i love Hank Green! And that's a great video! Very informative! Xx
thank you sooooo much for my parcel Kati, it was the best thing ever ❤ totally made my year. You have no idea how much it meant to me, I cried so much, your words were just so important, and I can't ever thank you enough. I have never won anything in my life, honestly, so for the first time to be from you couldn't have been more perfect 😊 Hope you are okay. I will always pledge to your amazing work. you are fabulous.
lots of love from across the pond
Angela xxxxxx
Oh I just stumbled upon this after a couple of John Green videos and a search for chronic pain management. Thank you UA-cam's AI 😀
8 years of Trigeminal Neuralgia has taught me a lot and yet the "grieving" idea here was very new! Thank you 💗 I'm still trying to control stuff and keep thinking I can function like a healthy person, then get frustrated when I can't. I started therapy sessions only this year (at 51!) And I'm glad I did. A lot happens when one gets a chronic disease. Depression can be one of them.
And now I have yet another tool to ease my suffering: letting in grief. Will tell my therapist about this. He'll like it 😊
I love Hank so much and I love you in this. I know I'm late to the video but you've got a new subscriber from this collab. I struggle with chronic illness and with mental illnessand it's such a hard balance to find.
This is very helpful to understand the person suffering chronic illness. Thank you both!
i have ulcerative colitis aswell, i'm glad to see a video like this!! :)
Thank you for sharing. I also suffer from U.C. I am in remission right now.
I have lupus and hearing this helped me a lot ❤️