Cory Woodall's Story of Wilson Disease
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- Опубліковано 20 лис 2020
- Cory Woodall was living his dream of being a US Navy pilot when he started experiencing mysterious symptoms. Finally he got the diagnosis of Wilson disease and was relieved to finally know what was causing his symptoms. He immediately began searching for a treatment and the Wilson Disease Association led him to a clinical trial evaluating a new therapy. Here he talks about his recovery and how he's getting his life back.
Cory, thanks for sharing your journey. It is hard, it’s humbling to have a chronic health issue - you will never know all the people who will be inspired to keep fighting in their experience with Wilson’s because of seeing your video. You are more than a conqueror!
Thank you for sharing, you are an inspiration to find answers and to be an advocate for your own health.
Prayers for you and your family.
My brother is diagnosed with wilson disease ,the major symptom is that he cant speek although he was topper student in school .need prayers .we have started trientine hydrochloride 250 mg capsule 3 times a day and many more medicines .
this is the point exactly: you can't ignore the neurological symptoms because they become so apparent and then the psychiatric label slowly stops holding so much power in determining which medicines you're allowed to take. I'm not so sure about complete psychiatric recovery after you've been chelated well. But I'm hopeful the psychiatric symptoms will one day disappear and I'll be normal. "Is she normal yet?" "No, but she's trying!" haha. Thank you for sharing your story mr Cory. seeing yourself lose the abilities you thought were always with you just feels heartbreaking. Medicines should sort out and hopefully there shouldn't be any psychological trauma or damage before you can get back to the abilities that made you who you are.
I take zinc for my Wilson’s disease 50 mg 3 times a day for the past 7 years And I’m 54
Misdiagnosis and refusal to help people with obvious and dangerous symptoms and evidence is a huge problem in the medical world where Wilson's Disease is concerned. I was left to die a very horrible death from this after having typical symptoms and blood tests showing I had it. I even have a genetic report stating I carry the two pathogenic genes and still no one is helping.
Same. So I made an eye appt. See if I have the rings of copper in my eyes. Sorry you suffer.
@@Lemoncare sorry to hear that, I hope you find some answers.
Omg. Same here. I don’t think that I can accept this misery.
@@rebeccapadmore8528 so the rings, the tests, I can’t figure out why no doctors will prescribe penicilimide
I’m toast.