Ask the Experts - CIDP Session
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- Опубліковано 13 жов 2016
- Learn about CIDP from our Global Medical Advisory Board Members Dr. Richard Lewis, Dr. Ken Gorson & Dr. Peter Donofrio at the Ask the Experts session during the GBS|CIDP Foundation's 2016 Symposium.
Visit our UA-cam page for me "Ask the Experts" videos: ua-cam.com/users/gbscidpo...
Questions about Guillain-Barre Syndrome (GBS), CIDP, or a variant of the condition such as Multifocal Motor Neuropathy? Or perhaps you'd like to request more information? You’re in the right place. Please connect with us below, and a GBS|CIDP Foundation International representative will get back to you within 48 hours:
www.gbs-cidp.org/about/contac...
For more information: www.gbs-cidp.org/
If anyone gets severe coldness in the lower legs/feet/toes, you can use disposable toe warmers. Even in warm/nice weather, my toes can get freezing cold and these help.
love question and answers thank you!
what is the differences between CIDP/AIDP varient
Is there a potential link from having many vaccinations and cidp? Thanks.
My mother suffering from CIDP and GBS
I'm sorry to hear, I was just diagnosed as well and am learning about it and its treatments. Some say plant based diets are important changes to one's normal diet.
Exactly what is DADS and how does it differ from CDIP? I’m so confused right now
agradeceria se tradujera al castellano, es una información muy interesante
Eso mismo digo yo, yo que he vivido este infierno por casi 25anos pero pa lante
algunos casos de cidp con el tiempo remiten , a que suele ser debido?
What are the tests that should be done to diagnose CIDP. My neurologists just stuck some silver electrodes on me and sent electric shock and from the results "
diagnosed" me with CIDP
Spinal tap will show high levels of protein
An EMG test, is all it took to diagnose my CIDP as well. Of course it was obvious from my symptoms anyway. Typically if you have nerve issues, you'll barely feel the shocks, by the time he got to my ankles, I didn't feel anything.
What about "Rituximab"
It was a miricle cure for me!
IVIG NEVER WORKED ON ME!
There are several points you have to take under consideration . 1. what is your diagnose 2. how were you tested for it 3. Did you ever read your test results. 4.How long did you have the symptoms before you were finally diagnosed 5. How long were you prescribed the IVIG infusion for and What was the dosing amount 6. Do you have other Diagnoses and Drugs you are going through .6. In my experience not all the neurologist are exactly on point with there diagnosing and prescribing IVIG and related diagnoses .
Sound is very low I am a CIDP patient from India
since 2013 I am dependent on IVIG Is it safe take IVIG during COVId 19
Yes, covid is a scam.. 99.8 survival rate