I have NF. I served in the Army was a firefighter I never let NF control me. My daughter has NF and I love her dearly. One day when I was taking her to school she just randomly said she doesn’t want NF anymore and started to cry. She’s 5 years old and she’s know she is different from the other kids. I when I got her to stop crying. I told her she is a fighter. We just went to our first NF walk. She made a lot of friends and now knows she’s not alone.
I have this condition I have 2 children currently pregnant with my 3rd. It skipped my first and I more than sure it’ll skip my 3rd. My 2cd child has this and I can already see tumor formation also called neurofibromas. Yes, we want change we want to be seen as individuals that need and want help bettering this condition.
Hi I have also NF 1, and currently pregnant at 40 weeks now. Can a pregnant woman with this case delivered safe and normal? My OB suggested me to do a c'section because of my case. Please answer me immediately, I'm very much worried for my baby's safety.
@@cherrymaecerera8369 - Please reach out to our patient support coordinator, Kate Kelts, at kkelts@ctf.org - she would love to speak with you directly. Thanks so much!
@@cherrymaecerera8369 there shouldn’t be any problem with delivering your baby. My sister has NF1 and safely delivered all her children, as well as my aunt and mom. It skipped some of my cousins and none of my sisters children have NF. I had CS because I didn’t progress in labor. But you should be fine.
I have NF. I served in the Army was a firefighter I never let NF control me. My daughter has NF and I love her dearly. One day when I was taking her to school she just randomly said she doesn’t want NF anymore and started to cry. She’s 5 years old and she’s know she is different from the other kids. I when I got her to stop crying. I told her she is a fighter. We just went to our first NF walk. She made a lot of friends and now knows she’s not alone.
Love you my son FOUAD
I was diagnosed when I was about 4 months and my oldest daughter was the same age and was about 6 months when they found a glioma in her brain
I have this condition I have 2 children currently pregnant with my 3rd. It skipped my first and I more than sure it’ll skip my 3rd. My 2cd child has this and I can already see tumor formation also called neurofibromas. Yes, we want change we want to be seen as individuals that need and want help bettering this condition.
Hi I have also NF 1, and currently pregnant at 40 weeks now. Can a pregnant woman with this case delivered safe and normal? My OB suggested me to do a c'section because of my case. Please answer me immediately, I'm very much worried for my baby's safety.
@@cherrymaecerera8369 - Please reach out to our patient support coordinator, Kate Kelts, at kkelts@ctf.org - she would love to speak with you directly. Thanks so much!
@@cherrymaecerera8369 there shouldn’t be any problem with delivering your baby. My sister has NF1 and safely delivered all her children, as well as my aunt and mom. It skipped some of my cousins and none of my sisters children have NF. I had CS because I didn’t progress in labor. But you should be fine.
I have NF1 and an amputee... I am 61 .
I have nf1 love to to everyone with nf from Denmark
Bon courage mon frère moi aussi nf1 je suis d'origine Maroc
My baby he is 3 years old diagnosting NF1 please am living in colombia i need KOSELUGO please 🙌🏼
Did you get the koselugo ??
@@bigtank12345 No