I got CrossLinking , i don't recommend it if your eye is already poorly ruined , do it only if your eye is still useful , because doing it on a ruined eye doesn't do anything and docs do it just to take money from you .
Getting my cross linking done February 28th and since mine is progressed so bad they are gonna do the next one in Late march maybe if everything goes well.
Underscore sorry to hear that... I was diagnosed 2 years ago and have been using the rigid peramble gas lenses... Cost of it is 80$-170$ depending on the size of bulge of the eye... May i ask in your case what you decided for treatment?
joe matters hey Joe. Insurance has had me waiting still. Two months to get an appointment for this. I am going to see if the cross linking is a possibility if not, hard contacts will be the choice!
Got diagnosed yesterday with it, I will go ta another hospital in a few months more specialized on eys and probably try the cross-linking method. Scary how fast you can lose your eyesight in just one year I got from perfect seeing to hardly able to read letters bigger than 1 inch 5 feet from me. :(
My insurance company still said that cross linking is still experimental even though it’s FDA approved....and my insurance company said they will not cover cross-linking...why is that?
I'm 45 an confused if this will help me or not. (had LASIK 20 years ago) and my eye doctor recommended cross-linking today for my Karatoconus (and my insurance doens't cover it) and my eyesight is quite blurry because of it. At my age a would getting them now be wasting my money?
Military said I had KC then retracted, now say I have subclinical PMD. I have NO symptoms and 20/12 in OD and 20/15 in OS. WHAT ARE THEY TALKING ABOUT?!?!
got my first scleral lenses a couple of weeks ago. its the best lenses iv ever had in terms of COMFORT and vision. rgb is the worst that gave me startbursts/flares and leaves your vision really messed up when u take them off. soft contacts is decent but not as comfortable or good as scleral. the only downside is that they are abit messy to insert.
can you recommend a facility in the San Francisco Silicon Valley or Monterey Bay Area. I wear scleral lenses now. Looking to get cross-linking to prevent further progression of keratoconus it has progressed in both eyes in the last 2 years now. My last eye exam and scleral lenses worst rated in Vancouver Washington I no longer live there.
My both eye have kerataconus both eye one time do c3r but the vision not clear my left eye was very low vision my dr said change the cornea but iam very sad and confused what do? Help me please
Sir i am confused on that....i visit an eye soecialist he said .e that i have keratoconous and after diing my two corneal topography scans with 3 months gap he tell me that your keratoconous is not progressing.. He tell me that you have to wear RGP lenses .it will improve your keratoconous and after a year you will not need to wear them....sir when i goes to doctor whoch provids these lenses.... he tell me it will not improve your keratoconous and after a time you will see the world correctly without them...but they are just like glasses.. the time when you wear it you will see correctly and after remove you will not see correctly...it is for all life...what is fact sir??
Contacts can’t stop the progression of keratoconus. You need to do cross linking as the doctor says in the video otherwise your keratoconus my progress
A lot to digest from this. A lot of problematic facts and statistics provided aswell. I am only newly diagnosed, so have been doing a lot of research but every piece of information I have encountered has said that the rarity of the condition is 1 in 2000 people, and possibly as low as 350, not one set of statistics, besides the one provided in this video states that it is is as common as 1 in 100. Secondly, eye rubbing is not the cause of keratoconus, eye rubbing is the mechanism which makes the deformity in the cornea worse, it is a genetic disease, you can't give yourself keratoconus from eye rubbing, as is suggested in this video. Please correct me if I'm wrong. Just alarmed at the amount of misinformation contained in this video.
Hello friend I am from India, Gujarat I am follow this treatment in civil hospital , Ahemedabad and it's good and free treatment in this government hospital
More than wonderful
I got CrossLinking , i don't recommend it if your eye is already poorly ruined , do it only if your eye is still useful , because doing it on a ruined eye doesn't do anything and docs do it just to take money from you .
excellent summary!!!!
Getting my cross linking done February 28th and since mine is progressed so bad they are gonna do the next one in Late march maybe if everything goes well.
Petey Peterson so have you done the cross linking procedure yet?
Petey Peterson waiting on a reply
joe matters yeah it went good you might feel pain and burning but after that you’ll be good
Was it expensive
I got diagnosed today with it today. :(
Underscore sorry to hear that... I was diagnosed 2 years ago and have been using the rigid peramble gas lenses... Cost of it is 80$-170$ depending on the size of bulge of the eye... May i ask in your case what you decided for treatment?
joe matters my cost 600 euro the lenses
joe matters hey Joe. Insurance has had me waiting still. Two months to get an appointment for this. I am going to see if the cross linking is a possibility if not, hard contacts will be the choice!
Got diagnosed yesterday with it, I will go ta another hospital in a few months more specialized on eys and probably try the cross-linking method. Scary how fast you can lose your eyesight in just one year I got from perfect seeing to hardly able to read letters bigger than 1 inch 5 feet from me. :(
Underscore same bruv
My insurance company still said that cross linking is still experimental even though it’s FDA approved....and my insurance company said they will not cover cross-linking...why is that?
I'm 45 an confused if this will help me or not. (had LASIK 20 years ago) and my eye doctor recommended cross-linking today for my Karatoconus (and my insurance doens't cover it) and my eyesight is quite blurry because of it. At my age a would getting them now be wasting my money?
So that's it huh... You would think there would be so much more progress for this condition.
A lil underwhelming... Diagnosed '91.. Only 20k still?
Military said I had KC then retracted, now say I have subclinical PMD. I have NO symptoms and 20/12 in OD and 20/15 in OS. WHAT ARE THEY TALKING ABOUT?!?!
They wouldn’t let me join
Find another corneal doctor.
What city are u in?
Sir I am Surya from India, my son is 12 year old ,he is affected kerotoconus,i am very upset now, what is the solution
How fast does it change stages
after c3r surgery i feel progressing vision blurring what can i do😭😭..... Left eye 6/6 vision, but now its blurring 😭😭😭😭😭😭
got my first scleral lenses a couple of weeks ago. its the best lenses iv ever had in terms of COMFORT and vision. rgb is the worst that gave me startbursts/flares and leaves your vision really messed up when u take them off. soft contacts is decent but not as comfortable or good as scleral. the only downside is that they are abit messy to insert.
Just got my surgery it’s a healing process lots of eye drops
How is it now? I have done mine 1 week before..
May i know.how.does it goes?
can you recommend a facility in the San Francisco Silicon Valley or Monterey Bay Area. I wear scleral lenses now. Looking to get cross-linking to prevent further progression of keratoconus it has progressed in both eyes in the last 2 years now. My last eye exam and scleral lenses worst rated in Vancouver Washington I no longer live there.
For 13 years kid sight 5 she has keratoconus what was the treatment can I go to improve eye sight
How can help with me
THANKS DEAR
NETHERLAND WITH LOVE
My both eye have kerataconus both eye one time do c3r but the vision not clear my left eye was very low vision my dr said change the cornea but iam very sad and confused what do? Help me please
hello
Sir i am confused on that....i visit an eye soecialist he said .e that i have keratoconous and after diing my two corneal topography scans with 3 months gap he tell me that your keratoconous is not progressing..
He tell me that you have to wear RGP lenses .it will improve your keratoconous and after a year you will not need to wear them....sir when i goes to doctor whoch provids these lenses.... he tell me it will not improve your keratoconous and after a time you will see the world correctly without them...but they are just like glasses.. the time when you wear it you will see correctly and after remove you will not see correctly...it is for all life...what is fact sir??
Contacts can’t stop the progression of keratoconus. You need to do cross linking as the doctor says in the video otherwise your keratoconus my progress
hello sir my both eyes cornea problem doctor say i must transplant cornea its cost money to much i don't have money to operations 😭😭😭
Thank you sir
A lot to digest from this. A lot of problematic facts and statistics provided aswell. I am only newly diagnosed, so have been doing a lot of research but every piece of information I have encountered has said that the rarity of the condition is 1 in 2000 people, and possibly as low as 350, not one set of statistics, besides the one provided in this video states that it is is as common as 1 in 100. Secondly, eye rubbing is not the cause of keratoconus, eye rubbing is the mechanism which makes the deformity in the cornea worse, it is a genetic disease, you can't give yourself keratoconus from eye rubbing, as is suggested in this video. Please correct me if I'm wrong. Just alarmed at the amount of misinformation contained in this video.
I have it.. my brother.. and now daughter 🤦♂️
Raul Olivas my daughter has it. Did you have the procedure
Tabetha White no procedure yet. Right now my brother and I have to use soft contacts. She’s still very young, and it’s not too bad, yet.
Raul Olivas my daughter is 19 and we haven’t seen the specialist yet. We just saw regular eye doctor today.
Tabetha White cornea specialists is the way to go. My whole deal ran me $280 for the exam and the contacts. That was with basic visual insurance
Hello friend I am from India, Gujarat I am follow this treatment in civil hospital , Ahemedabad and it's good and free treatment in this government hospital
hie is treatment free for international patients also or just indian patients?
queen gunde free for every one
is it ok you give me address coz am planning to get transplant but not sure which institutions are good and affordable,you have their email? Please
queen gunde hardikvarmora1996@gmail.com
queen gunde it is in India
State-gujrat
Ahemedabad civil hospital