Patient experiences: living with dementia

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  • Опубліковано 5 чер 2014
  • Dr Mareeni Raymond talks to this couple about their own personal experiences of living with dementia.
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КОМЕНТАРІ • 40

  • @BloodNote
    @BloodNote 7 років тому +78

    He seems so sweet. My grandmother had Dementia and it was the most horrible experience of my life. She was violent, didn't sleep and was just an all around horrible person. I had to take care of her by myself for years. Because my family wasn't listening when I said something was wrong with her. She passed away 6 years ago. But dealing with her illness has left ME mentally unstable, depressed etc. Though I am better now compared to a few years ago. It leaves a life long impression. I wouldn't wish this illness on my worst enemy.

    • @fatimam5484
      @fatimam5484 6 років тому +5

      #MissKingdomVII that’s really sad and bless you for taking care of her, hope you feel better now.

    • @babajohnson9276
      @babajohnson9276 2 роки тому +2

      I'm going to pray for u and JESUS CHRIST is going to keep your mind

    • @BloodNote
      @BloodNote 2 роки тому +1

      @@babajohnson9276 thank you ♥

    • @BloodNote
      @BloodNote 2 роки тому +2

      @@dianewolfthal704thank you for the suggestion. ♥ I did end up going to theorpy for a few years. Yes it did help along with prayer. It's just an inner struggle sometimes when something triggers it. But I'm far happier NOW and living more. I never got to live for myself or mentally for a while back then. So it's taken me a bit to learn who I am as a person. ♥

    • @dianewolfthal704
      @dianewolfthal704 2 роки тому

      @@BloodNote That earlier reply was not sent by me! But I now deleted it.

  • @marygooge1565
    @marygooge1565 19 днів тому +1

    My husband was diagnosed with early onset Alzheimers in 3/21. Thank you for sharing.

  • @catherinebosley7539
    @catherinebosley7539 2 роки тому +20

    I so understand the loneliness,my Husband has gone,but his body is here.Nastyness and aggression is creeping in and that is so difficult to cope with.This lady is absolutely right,no regular assessments and terrible lack of information and help.

    • @2DarkHorizon
      @2DarkHorizon Рік тому

      Dementia is a very dynamic changing disease most of the time you need to be creative and insightful to solve problems as the situation changes.

  • @rainbowtree5664
    @rainbowtree5664 4 роки тому +20

    What a lovely man. He is still singing and so cheerful. A really sweet couple. Wishing you peace in the future. X

    • @Ghosted_31
      @Ghosted_31 3 роки тому +1

      You know, the last memory for most dementia patients is their favorite song, or some sort of music they liked, and thats really sad imo

    • @elenaalisdinulescu678
      @elenaalisdinulescu678 3 місяці тому

      Super. Doamna❤ o iubesc multo nnice amazingo

  • @henriettahenson
    @henriettahenson 5 років тому +16

    He' s a sweet heart ♡♡

  • @lizzysmith8802
    @lizzysmith8802 6 років тому +18

    Your doing an amazing job, don't give up

  • @fatimam5484
    @fatimam5484 6 років тому +13

    So sad bless them both x

  • @CheriDawn
    @CheriDawn 3 місяці тому +1

    I feel so bad for this couple. They’re doing the best they can. Please don’t say mean things about this woman. It’s very difficult to be a caregiver. She’s doing the best she can.

  • @immyferistakibuuka4418
    @immyferistakibuuka4418 9 місяців тому

    I had to listen to the song again, such a sweet voice❤❤❤❤

  • @lindamcclellan8434
    @lindamcclellan8434 6 років тому +5

    I agree with you...about the patient being seen more often....we caregivers need that information..problem most medical people don't know either...that's the worst

  • @joycedwyer8778
    @joycedwyer8778 Рік тому

    Such a sweet man. So sorry you are going through this.

  • @whatshisname3304
    @whatshisname3304 2 роки тому +6

    i know it's difficult to interview couples separately but should they be talking about him in front of him like that?🤔

    • @MrEccentricities
      @MrEccentricities Рік тому +4

      he is not that far gone im sure he kind of gets it

  • @okomojelepo
    @okomojelepo 4 роки тому +3

    You two are really wonderfull.That is the cure!!

  • @immyferistakibuuka4418
    @immyferistakibuuka4418 9 місяців тому

    Bless you guys❤❤❤❤

  • @helensmith3917
    @helensmith3917 Рік тому +1

    The NHS, is shockingly bad at helping patients and their families with Dementa. My husband was diagnosed with Young-onset Dementia, in December last year. We had waited 14 months to see a neurologist, we originally were told in October 2022, that his scans were normal, then they sent him for a Pet-scan and we were told that he had late stage dementia, get his affairs in order as there was no treatment available, and have a lovely Christmas. We are now in the United States, where he has been diagnosed with Parkinson's disease, in the 3 weeks we have been here, he has seen a Doctor, Psychologist, numberous blood tests, X-rays, brain scans and a 3 hour neurologist appointment scheduled.

    • @justthatgirl-ct4jo
      @justthatgirl-ct4jo Рік тому +2

      Our care is definitely fast here. The unfortunate thing is if you don't have health insurance. That's when there are real problems.

    • @carolemoore8505
      @carolemoore8505 5 місяців тому

      Nhs not fit for purpose, they don't care!!!!!

  • @denisesalmon4496
    @denisesalmon4496 5 років тому +1

    Love is love

  • @karenperrealt3520
    @karenperrealt3520 Рік тому

    Nobody is there to help you as a caregiver, you are on your own

  • @berjaboy
    @berjaboy Рік тому +7

    Not for nothing, but the wife is sitting right next to him and talking about him like he's not even there. He seems mentally fit enough where he's probably finding this quite offensive. Let the man talk for himself for Christ sakes. It almost seems like she's passive aggressively beating him down.

    • @kathykowal3857
      @kathykowal3857 Рік тому +1

      He can't talk for himself.

    • @berjaboy
      @berjaboy Рік тому +2

      @@kathykowal3857 What are you talking about? The video starts off with him singing to her, and every time he opens his mouth after that, she cuts him off.

    • @schmoovle7244
      @schmoovle7244 8 місяців тому

      @@berjaboyshe states he forgets things in a matter of minutes, and while long term he’s fine, it’s still very short term, he’d likely start repeating himself and forgetting.

    • @ronaldamber8865
      @ronaldamber8865 Місяць тому

      ​@@berjaboy he has forgotten that he has even sung already. He doesn't realise what's going on around him, in a constant state of forgetting. He can talk about things but he hasn't got the ability to talk about what's going on with his memory

  • @berjaboy
    @berjaboy Рік тому +2

    What a sweet lovely man. So sorry you were saddled with such a condescending, eye rolling, passive aggressive excuse for a wife. A wife who talks over you like you weren't even there and who cuts you off continually while making snide faces. You deserve better.