PAN RETINAL PHOTOCOAGULATION SURGERY / Watch Before Your Appointment

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  • Опубліковано 1 жов 2024
  • I was recently diagnosed with Diabetic Retinopathy. While I was devastated I developed a complication of my type 1 diabetes, I was grateful we caught it early and something could be done to reduce my risk of vision loss. Please watch this video if you are nervous about this procedure. Also, make sure you have an ophthalmologist you trust.

КОМЕНТАРІ • 23

  • @jackschitt6235
    @jackschitt6235 3 місяці тому

    How is your eye health/vision currently?

    • @JillianBoileau
      @JillianBoileau  3 місяці тому

      My retinopathy has completely halted after 3 rounds of PRP treatments. There have been no major changes in my vision. I have noticed just a little more light sensitivity and issues with seeing at night from more lasers.
      Thank you for asking! Have you experienced retinopathy? Have you had any PRP treatments yourself??

    • @jackschitt6235
      @jackschitt6235 3 місяці тому

      @@JillianBoileau I was diagnosed with retinopathy several years ago. They haven't done anything though so I guess they felt it's not that bad. I take my health stuff seriously now but like many I didn't always have the knowledge and technology etc to do a great job. Did u watch the Dr B UA-cam about reversing complications? He turned 90 recently.

    • @JillianBoileau
      @JillianBoileau  3 місяці тому

      Is it on his Diabetes University channel?? I know he talks about being able to reverse many complications in his book.
      Yes, he turned 90 on June 17th. It’s amazing!

    • @jackschitt6235
      @jackschitt6235 3 місяці тому

      @@JillianBoileau ua-cam.com/video/yhpljp_v2aU/v-deo.htmlsi=s91EH_PIsliyOB7F

    • @JillianBoileau
      @JillianBoileau  3 місяці тому

      I’m a member of a Facebook group for diabetics with retinopathy who follow Dr B’s advice. I could give you the information if you are interested.

  • @Anna-mx3xg
    @Anna-mx3xg 8 місяців тому +1

    Hi how are your eyes now, the video was really helpful, waiting to have treatment and I am really nervous ❤

    • @JillianBoileau
      @JillianBoileau  8 місяців тому +1

      Hello! My eyes feel fine now! I’m actually on the second round of treatment now. I had my right eye treated a couple weeks ago and my left eye will be treated on Wednesday. Originally, my doctor thought I’d be good with one treatment, but further testing showed that to not be true.
      They are hoping this will be the last round, but it’s hard to know for sure.
      The most concerning thing I go through with these procedures is my sight isn’t quite what it usually is until a couple weeks later. It’s almost like my vision seems a little dull. You just need to remember that it will take time for your eyes to heal and your vision to go back to normal. You will notice some side effects in that process, but everything will be fine if you give it some time.
      Thank you for the feedback! I’m glad this video was helpful!! Please let me know if you have anymore questions 🤗

    • @Anna-mx3xg
      @Anna-mx3xg 8 місяців тому +1

      @@JillianBoileau just a big thank you for replying ❤️

    • @JillianBoileau
      @JillianBoileau  8 місяців тому +1

      You’re welcome!!!

  • @taylorhughes2380
    @taylorhughes2380 Рік тому +1

    I'm sorry you developed this complication, but thanks for making these videos! Many members of my family have diabetes and these videos are very informative for me to learn more about this disease

    • @JillianBoileau
      @JillianBoileau  Рік тому

      You're welcome! I'm glad I can help you learn more about diabetes! Please let me know about any specific topics you are interested in, Taylor!

    • @taylorhughes2380
      @taylorhughes2380 Рік тому

      I was wondering, when and why did you switch from insulin injections to a pump?
      What are the pros and cons of a pump?

    • @JillianBoileau
      @JillianBoileau  Рік тому

      @@taylorhughes2380 GREAT QUESTION!! I switched from MDIs (multiple daily injections) to a pump in 2019. I was a new mom and having some issues with nighttime lows. I had just started using the Dexcom G6 CGM a couple months prior to help alert me of the lows, but wanted to take the next step and test out the Basal IQ system that Tandem was offering on the T:Slim pump. Since then, I've upgraded to the Control IQ technology. It's a hybrid closed-loop program that adjusts insulin based on CGM readings.
      PROS: easier and faster to dose insulin, you can set multiple basal rates for different times of the day, less math (with the help of the bolus calculator), you can use an Automated Insulin Delivery System (depends on pump) when needed.
      CONS: sites can be ripped out easily, pump failures are scary and can be life threatening, more waste with site changes, getting dressed can be a challenge and so can figuring out what article of clothing to hook the device to. I also get a lot of questions about my "pager". I don't really consider this a true con because I enjoy educating people about my diabetes now. It's something that would have bothered me in the past when I was self-conscious and didn't like people knowing about my illness. I think I'd probably consider the questions to be more of a advantage now!! In addition to this, its so easy to spot other diabetics now and comparing pumps and CGMs can be a great way to break the ice and find someone to relate to as a diabetic!!!

    • @zahrasheikh1144
      @zahrasheikh1144 2 місяці тому +1

      How your eye dose you see everything clear and what about color vision and I retinal detachment​@@JillianBoileau

    • @JillianBoileau
      @JillianBoileau  2 місяці тому +1

      Hello! I’ve had two more full rounds of PRP treatments since this video they have not caused my vision to change. I see colors the same (as far as I can tell) and I have not had retinal detachment. My last ophthalmology appointment went great and I’m due for another check-up soon. The treatments have been very successful in keeping any blood vessels from forming. Thank you for the great questions!!

  • @MsPrettyTags
    @MsPrettyTags Рік тому

    Did you have trouble with night vision before the treatment?

    • @JillianBoileau
      @JillianBoileau  Рік тому

      I was starting to notice a slight reduction in my overall vision a few months before the surgery, but nothing too bad. I feel like since the procedure, it takes longer for my eyes to adjust walking into a dark room. It's something that stood out to me in the beginning, but now I hardly notice it. I don't think it has improved, but I've adapted to the change. Thank you for the question!

    • @dwightl5863
      @dwightl5863 9 місяців тому +2

      I had the extensive laser surgery on both eyes due to bleeds before having the procedure done in 1984. That really complicated things. Thirteen laser treatments in the left and twelve in the right. My night vision was very poor and doing anything in low light conditions was difficult. I carried a double A battery flashlight on my belt all the time. Driving on an asphalt road in the rain was terrifying and I would have my wife drive under those conditions. I had the treatment when I was 35 years old and am now 74. Have had cataract surgery on both eyes. Complication with the lens in the left eye, it was repaired and they put in iris hooks in that eye. Left eye does not dilate or contract very much as a result of the hooks which means wearing sunglasses when the sun is shining and being outside. Appears like when you turn the brightness way up on your television and everything is washed out. Sounds contradictory but that is how it is in my case. I have not had to have any further laser surgeries but my field of vision (peripheral vision) has gotten worse so I'll be losing my driving privileges in a few days. Grateful for the treatment 40 years ago or I would have been blind for those 40 years. Vision is adequate for everyday tasks and can still read a tape measure for my wood working.
      I did not keep near enough diabetes control since diagnosed in 1970. I can say I did not have all the tools and technology as I have today. Currently using Dexcom G6 and Tandem tslim with control IQ. Total game changer as far as control. I will not go without it for ANY reason.
      Sorry for the not all positive aspects. Stay in control as much as you can is my advice. Good luck to you.

    • @Anna-mx3xg
      @Anna-mx3xg 8 місяців тому +1

      So good to hear good stories about Laser treatment. I am waiting for mine❤