The guy asking about cataplexy and brainlessness at 42:00 needs a hug. I can relate to what he said bigtime, yet it sounds like he feels alone and quite frightened.... It does get super bad, and super scary. When he says "my brain does not function AT ALL", there is NO HYPERBOLE to his statement. Others usually do not perceive how bad my operating system is malfunctioning.... and the relativity of our language leads a statement like "I cannot think at all, everything is... gone" to receive a reply like "yeah, I forget things sometimes too". This is different than simple memory recall errors and "forgetting", instead- my mental landscape is often a black hole. Working memory won't hold 2 or more thoughts without short circuiting due to not having enough energy to perform those brain functions. From my viewpoint- the circuit breaker analogy seems dead on. Information bit one goes in, Information bit two goes in- and SNAP- all black. Can't remember info bit 1, info bit 2, or the goal I was trying to achieve. anyhow- Thanks for your content! You turn my frown upside down. :)
“Yeah, I had this crazy dream one time too” 😂 Not realizing it’s not even in the same ball park. Having a crazy dream every once in a blue moon isn’t the same as having vivid scary dreams every time you close your eyes lol I also get the, “I feel groggy in the morning too, but that’s no excuse to be late” not knowing I have 6 alarms to get me up because I’ll sleep through them or if I can get up early, I’ll doze off again before it’s time to go to work. The brainlessness is hard to explain to people. They think we’re stupid, lazy and unmotivated.
I understand! I am a 66-year-old African American woman diagnosed with narcolepsy at 18 years old. Life has been a struggle I would not wish on anyone! Around the age of 50, I started having more serious episodes the cataplexy, paralysed, and hallucinations. What bothers me most is the loss of vocabulary! All eyes are on me and nothing is there to say! I 42:00 am left feeling where is the whole for me to climb into! It is only getting worse and I fear my future!
Also I find myself self screenshots ngveverytime some on walks in a room! Why thefeling if fear I don't know. It could be my mother with h whom I live or my manfriend and I look the same m in the tac and scream! 42:00
The guy asking about cataplexy and brainlessness at 42:00 needs a hug. I can relate to what he said bigtime, yet it sounds like he feels alone and quite frightened.... It does get super bad, and super scary. When he says "my brain does not function AT ALL", there is NO HYPERBOLE to his statement. Others usually do not perceive how bad my operating system is malfunctioning.... and the relativity of our language leads a statement like "I cannot think at all, everything is... gone" to receive a reply like "yeah, I forget things sometimes too". This is different than simple memory recall errors and "forgetting", instead- my mental landscape is often a black hole. Working memory won't hold 2 or more thoughts without short circuiting due to not having enough energy to perform those brain functions. From my viewpoint- the circuit breaker analogy seems dead on. Information bit one goes in, Information bit two goes in- and SNAP- all black. Can't remember info bit 1, info bit 2, or the goal I was trying to achieve.
anyhow- Thanks for your content! You turn my frown upside down. :)
“Yeah, I had this crazy dream one time too” 😂 Not realizing it’s not even in the same ball park. Having a crazy dream every once in a blue moon isn’t the same as having vivid scary dreams every time you close your eyes lol
I also get the, “I feel groggy in the morning too, but that’s no excuse to be late” not knowing I have 6 alarms to get me up because I’ll sleep through them or if I can get up early, I’ll doze off again before it’s time to go to work.
The brainlessness is hard to explain to people. They think we’re stupid, lazy and unmotivated.
I understand! I am a 66-year-old African American woman diagnosed with narcolepsy at 18 years old. Life has been a struggle I would not wish on anyone! Around the age of 50, I started having more serious episodes the cataplexy, paralysed, and hallucinations. What bothers me most is the loss of vocabulary! All eyes are on me and nothing is there to say! I 42:00 am left feeling where is the whole for me to climb into! It is only getting worse and I fear my future!
Also I find myself self screenshots ngveverytime some on walks in a room! Why thefeling if fear I don't know. It could be my mother with h whom I live or my manfriend and I look the same m in the tac and scream! 42:00