HSCT for MS vlog #3 - Stem Cell Harvest

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  • Опубліковано 3 лис 2024

КОМЕНТАРІ • 10

  • @shikari8612
    @shikari8612 Рік тому

    My partner is currently in Derriford Hospital having his stem cell harvest literally as I type this comment!
    Thankyou so much for vlogging this whole experience, it really helped us prepare for what was to come and what to expect, he’s doing well so far and even though it’s scary we are very hopeful for the rest of his treatment 😊 -Tayla

    • @HSCTforMS
      @HSCTforMS  Рік тому +1

      I'm soooo pleased it's been helpful! Cray to think that you're in *exactly* the same place I was a few years ago!!! (Did you find the vlog, or did they tell you about it?)
      I had no idea what to expect, and couldn't keep it in my head, no matter how many times they tried to talk me through it🤦‍♂...which is why I wanted to vlog it all. They'll have so much more experience with MS patients now than what they did when I was in (I remember the nurses being often surprised at my blood numbers 🤣)
      Massive good luck!!!!!

    • @shikari8612
      @shikari8612 Рік тому

      @@HSCTforMS we actually found your videos from researching about the treatment when we were first told he was going to be having it! 😊
      The whole team of doctors and nurses on braken and birch ward are absolutely amazing and so kind, I believe some of them remember you haha (from what my partner has said) I think he might have the same consultant as you had or something 🤣
      Thankyou so much for the well wishes 🌟my partner is home for now until about 3 weeks time when he gets admitted for the next step of the treatment so trying to relax while we can and prepare for the next phase 😊👍🏼

    • @HSCTforMS
      @HSCTforMS  Рік тому +1

      @@shikari8612 Ohhhhhhh, must have been quite a surprise, finding a vlog (one of the *only* vlogs, if nothing's changed dramatically from when I searched 4 years ago) - being filmed at the hospital he was due to have his treatment in!
      Dr Hunter (consultant haematologist) is lovely. And Juan (senior haematology nurse) is also lovely (even if he did get a bit cross as me a couple of times 😂)
      I hope the 3 weeks go ok. I remember the hair falling out, like clockwork... Good luck with activation injections as well.
      I'll be thinking of you both in the coming weeks. Massive, MASSIVE good luck

    • @shikari8612
      @shikari8612 Рік тому

      @@HSCTforMS yes it was a huge surprise, couldn’t believe it was filmed in the exact same hospital as well haha 🤣
      And yes! He has Dr. Hunter and Juan on his team of specialists, I’ve only met juan so far and he is brilliant 🥰
      So far not much hair loss which is surprising but I’m sure that will start happening further into the treatment, and he got on alright with his injections too only started to feel the bone pain on the last day which was good 👍🏼 thankyou so so much again for your well wishes, we both really appreciate it 🥳 hope you’re doing well!

  • @tessabroad1299
    @tessabroad1299 Рік тому

    You are an amazing man, I am due to go for treatment fairly soon. Thank you for this it has really helped me.

    • @HSCTforMS
      @HSCTforMS  Рік тому

      Thanks so much, Tessa - the feedback is very kind, and it's wonderful to hear that the vlogs are even a tiny bit helpful.
      Massive good luck for your treatment. I shall keep fingers crossed for you :-)

  • @samsongao366
    @samsongao366 3 роки тому +1

    Thanks for making these videos 🙂.

    • @HSCTforMS
      @HSCTforMS  3 роки тому

      Very welcome, Samson. I hope they help.
      (It wasn't entirely altruistic though - filming them and jabbering to a camera kept me from going slightly insane!)

  • @titus771
    @titus771 4 роки тому

    Thank you for the videos! God bless you