Marfan Syndrome (2/4), Diagnosing & Living w Marfan Syndrome
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- Опубліковано 16 вер 2024
- A video about Marfan Syndrome by The Canadian Marfan Association (CMA) featuring renowned Marfan Specialists and CMA Directors. More information about Marfan Syndrome can be found at www.marfan.ca
yes, the heartbeat in the background is REALLY annoying.
My daughter was confirmed to have Marfan Syndrome today. She's two and a half. Even though we suspected she had it.It's devestating to find out for sure. We are trying to educate ourselves as much as possible. Videos like this help.
The heartbeat in the background is not necessary :(
Didn’t get diagnosed till 50 had mitral valve prolapse at 34yrs since aortic root repair.
After an aortic dissection in 2010. I have had fautige. 4 aortic surgeries. Do anybody know why i have so much fatigue?
@CdnMarfanAssociation hi i am a man and i may have this , gnna find out very soon , does this mean u cant have children cuz i will cry if i cant ??
I've had a prem baby through Marfans syndrome
@sarahmarie1450 - THANK YOU! I totally agree... this stupid sound effect had me on the verge of a panic attack - I had to stop watching. :(
I've had Marfans syndrome since 14 I hate it
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