Awesome Toby, thank you. My sleep is finally settling down after years of insomnia, after tapering down psych meds , which many of us get prescribed for cfs symptoms, but which play absolute total havoc on sleep ! They often give you worse insomnia nightmares. Now my sleep is settling, it is so helpful in me focusing on the other areas of healing.
I just wanted to say how amazing the work is you are doing, listening to your podcasts it was like you were talking about me. I was diagnosed with post viral ME/ chronic fatigue syndrome 8 years ago I was so ill and the help was so limited but I was kind of lucky as the lady doctor I saw said although you feel totally fatigued the only to improve is to slowly exercise. So from that day over months I walked from my door to aim for the top of road and each day just go that little bit further it took me 9 months but I got so I could walk 2 and a half miles. Before being diagnosed I ran my own cleaning business cleaning 2 to 3 houses a day 5 days a week so as you can see I was totally burnt out. I now live a much better life through determination but not the same as before diagnosis. I spent endless money on trying to get well too. I still have a way to go and listening to this today it made me realise that I have still been living in the fear of ME returning and its ruling my life. You have changed my life from today as for the 1st time in years I felt relief the panic is over I am going to get well I had butterflies of excitement. You are one amazing person the only person I have ever come across that truly gets it. Thank you from the bottom of my heart ❤️
My story was sadness,grief and desperately trying to find a way to fix myself.....then I found you and since my story has changed!I have an enrollment call tonight and I see this as the beginning to my future being happy and me being well!I am going to do this,I know it's not going to be easy but I'm soooo ready now.Thanks toby xcx
Trust , believe & keep showing up daily it truly works.,... Thank you Toby im on the road to recovery keep on shining the light. Keep going guys all things are possible. You know that tune Dust yourself off & try .... First you dont suceed , pick yourself up & try again. I was in a room with blackout curtains, wearing earplugs & numatic drill over head ear defenders , eye mask , couldn't feed my self alot of the time or crashing from eating a meal , Ended up with suprapubic catheter as i couldn't have carers washing my private areas daily from wearing pads to urinate in i had frequent skin infections from bacteria personal hygiene was almost impossible, i would seizure at being touched or loud noises , even vibration. Am i fully recovered not yet ..... I certainly will fully recover. Im proud of how far ive come & accept this is where im at now , & as Toby says " and that's ok" Acceptance for where im at & this will progress to my next level of recovery & the next level & so forth until ive accomplished full recovery 🎉🎉 Nuff love all .... Stay connected grounded & keep the faith 😁🙏💯
@@michelleperry4585 I started with just turning my head side to side very slowly ( laying flat ) & with a dimmer able moon lamp on the red colour! Also worked on deep breathing techniques to oxygenate ( at 30 seconds a day ) Keep going & keep trying however little it may seem she'll be able to do more in time. Acceptance is key as are positive affirmations & faith . I've recently progressed more by taking a little Celtic salt with alot of spring water & lime juice . Remember my healing journey will not be the same as your daughters.... Seek the answers & they will come. I wasn't able to watch the podcasts, I'd take the advice from the shorts Toby does ... Keep going & keep believing. 🙏🙏🙏🙏
I’m at 80%. Work full time and have 2 small children. I’ve had ME/CFS for 5 years. I’ve been close to full recovery but cannot get the last piece in place.Your words give me hope 💪
I have fibromyalgia, diagnosed in 2019 the symptoms are not so different,everything in the video is all how I feel right now to the point I cried😪 an I could really use the help is this possible 🙏
Hi, I watched the guest panel interview, but on my iPad I couldn’t comment etc. I LOVED listening to Jessica, Bea and Charli. I personally resonated with Charlis “story” . Thank you so much. Also, I’m interested in finding out more about Jessica skincare .. I think it was a business. Once again, thank you so much for your work!
Blecch that victim mindset. I have become so aware of that. I keep waiting for the diagnosis in hopes that someone can just "solve" my health mystery for me. But Michelle's story makes me realize that even if I had the dx, it would probably just allow me to shore up that victim mindset even more. Hmmm
How do I help my daughter?Long story short. She and her family are living with us. She’s 27 and has two kids 2 and 4 months. We were hoping after the baby was born she would get better but she has continued to get worse. Her husband and I are listening to your foundations program. I wish so bad she could listen to it but she can’t handle any noice. We can only whisper to her and in as little amount of words as possible because sound brings her more pain. She can’t listen to you and we can barely even share what we are learning. How do we even get started? I’m so worried so afraid. I can’t even talk to her to know what her mind set is at this point but I would bet it’s not good, even though she’s always been a positive and motivated person. We have to help her every needs 24/7. Bathroom, feeding her through a syringe and as of the last week moving her around (cause can’t move herself) so she’s not just laying one position. Been to many doctors, many tests, still no answers except about 2 1/2 years ago she was diagnosed with POTS. She was functioning and life was okay but she progressively got worst through her pregnancy and has really gone downhill since the birth. 😭🙏
That's so hard, my heart aches for you. I think the best & most important thing for you as a mum, and her family now, is to hold that space, faith and hope for her, where YOU know that she can get better.. as you are learning everything in the program, you take notes, whisper things in her ear etc.. But you also start to help to implement whatever is possible, in terms of daily helpful rutines and structure. Without putting more pressure on her.The most important you can do, is to hold that very loving, resilient, compassionate space for you all, and not give in to despair etc. and also do look after yourself in the process. PS. Personally I'd also look into helping the detoxification pathways of the liver, that may help with the hormonal changes after birth, perhaps (look into detoxification of estrogen).
@@michelleperry4585praying for you guys. This concoction has helped me tremendously (b complex with extra supplemental (b1, b6) with poor digestion these vitamins get depleted and cause a host of symptoms alongside black seed oil bovine colostrum vitamin C-calcium magnesium iodine and vitamin E plus apple cider vinegar to raise the acidity of the gut so that things are more easily digested
@@MsRagrafthere is evidence to show a lot of cfs is really a chronic underlying stressor. Metals, parasites, Lyme etc. which aggravates the immune system
@@michelleperry4585support the body as a whole until you get the right specialist and diagnosis. You don’t just get “cfs” it’s like saying if you have digestive symptoms that doctors can’t describe you have “Ibs” there’s ALWAYS a reason!! Keep in the fight❤️
I have been doing more, but then it catches up with me. I’m not crashing like before, and feeling like I’m going to die. But I get exhausted and I just need to rest and pace again. I’ve been dealing with this since I contracted Covid 2.5 yrs ago
Thank you Toby. Can you please make a video on restorative movement especially if you're pretty much bedbound? Ive also been experiencing POTS like symptoms so its been very difficult to stand up and move around without feeling awful and crashing. Can you share some examples of restorative movement that might help when you're this severe?
sometimes i struggle between what my body and what my mind wants to do. When should I listen to my body versus pushing through it. my mind often wants to go to the gym but my body really isn't up to it.
What is the link between believes and trauma holding you back the other thought that I had was what if I'm just not making it simple enough so I'm feeling overwhelmed and like it's not possible for me to recover any comments are appreciated thank you very much❤
What - Father Christmas isn’t real?! 😂 seriously now - I am really struck by the idea that some of our thoughts and beliefs are so habitual we can’t even see them to change them? Interesting… what am I believing that is keeping me stuck? Maybe that I think I’m stuck but actual I have the freedom to change anything for the better. Thank you :)
Toby Toby Kiaora' are U kiwi..kool? society rules talk...yep all of wat ur saying I mite like U..so far so gud... HEALTH IS WEALTH mind/body/spirit.I'm fatigue cos I have many whom I call vampires, I limit my circle meditation is my time out...Its Peaceful ❤❤ ur site..Thank U Toby/Co✌🏽
Thank for your true humanism and speaking from the heart.. lots of good common sense, not the medical merry go round🙏❤️
Thank you! That’s always been my goal. And always be from my team and me!
Awesome Toby, thank you. My sleep is finally settling down after years of insomnia, after tapering down psych meds , which many of us get prescribed for cfs symptoms, but which play absolute total havoc on sleep ! They often give you worse insomnia nightmares. Now my sleep is settling, it is so helpful in me focusing on the other areas of healing.
Definitely feeling better involves doing things you want t to do rather than what you think you ought to do.
I just wanted to say how amazing the work is you are doing, listening to your podcasts it was like you were talking about me. I was diagnosed with post viral ME/ chronic fatigue syndrome 8 years ago I was so ill and the help was so limited but I was kind of lucky as the lady doctor I saw said although you feel totally fatigued the only to improve is to slowly exercise. So from that day over months I walked from my door to aim for the top of road and each day just go that little bit further it took me 9 months but I got so I could walk 2 and a half miles. Before being diagnosed I ran my own cleaning business cleaning 2 to 3 houses a day 5 days a week so as you can see I was totally burnt out. I now live a much better life through determination but not the same as before diagnosis. I spent endless money on trying to get well too. I still have a way to go and listening to this today it made me realise that I have still been living in the fear of ME returning and its ruling my life. You have changed my life from today as for the 1st time in years I felt relief the panic is over I am going to get well I had butterflies of excitement. You are one amazing person the only person I have ever come across that truly gets it. Thank you from the bottom of my heart ❤️
My story was sadness,grief and desperately trying to find a way to fix myself.....then I found you and since my story has changed!I have an enrollment call tonight and I see this as the beginning to my future being happy and me being well!I am going to do this,I know it's not going to be easy but I'm soooo ready now.Thanks toby xcx
Amazing! So happy for you!
Have you gotten better,since joining the program?
Trust , believe & keep showing up daily it truly works.,... Thank you Toby im on the road to recovery keep on shining the light. Keep going guys all things are possible. You know that tune Dust yourself off & try .... First you dont suceed , pick yourself up & try again.
I was in a room with blackout curtains, wearing earplugs & numatic drill over head ear defenders , eye mask , couldn't feed my self alot of the time or crashing from eating a meal , Ended up with suprapubic catheter as i couldn't have carers washing my private areas daily from wearing pads to urinate in i had frequent skin infections from bacteria personal hygiene was almost impossible, i would seizure at being touched or loud noises , even vibration. Am i fully recovered not yet ..... I certainly will fully recover. Im proud of how far ive come & accept this is where im at now , & as Toby says " and that's ok" Acceptance for where im at & this will progress to my next level of recovery & the next level & so forth until ive accomplished full recovery 🎉🎉 Nuff love all .... Stay connected grounded & keep the faith 😁🙏💯
Well said!
This is about where my daughter is but she can’t listen to us much less the foundations/podcast. How did you get started to heal?
@@michelleperry4585pray for her. And keep believing that one day she will have a breakthrough! I did and so has my daughter!
@@michelleperry4585 I started with just turning my head side to side very slowly ( laying flat ) & with a dimmer able moon lamp on the red colour! Also worked on deep breathing techniques to oxygenate ( at 30 seconds a day ) Keep going & keep trying however little it may seem she'll be able to do more in time. Acceptance is key as are positive affirmations & faith . I've recently progressed more by taking a little Celtic salt with alot of spring water & lime juice . Remember my healing journey will not be the same as your daughters.... Seek the answers & they will come.
I wasn't able to watch the podcasts, I'd take the advice from the shorts Toby does ... Keep going & keep believing. 🙏🙏🙏🙏
I’m at 80%. Work full time and have 2 small children. I’ve had ME/CFS for 5 years. I’ve been close to full recovery but cannot get the last piece in place.Your words give me hope 💪
This was great! Thank you Toby. I loved analogy of stop looking in the review mirror, having a forward focus of where you are going is so important.
You’re so welcome!
I have fibromyalgia, diagnosed in 2019 the symptoms are not so different,everything in the video is all how I feel right now to the point I cried😪 an I could really use the help is this possible 🙏
Sending you love! Start with our free trainings in the description of this video to start to help yourself!
Hi, I watched the guest panel interview, but on my iPad I couldn’t comment etc.
I LOVED listening to Jessica, Bea and Charli. I personally resonated with Charlis “story” . Thank you so much.
Also, I’m interested in finding out more about Jessica skincare .. I think it was a business.
Once again, thank you so much for your work!
Blecch that victim mindset. I have become so aware of that. I keep waiting for the diagnosis in hopes that someone can just "solve" my health mystery for me. But Michelle's story makes me realize that even if I had the dx, it would probably just allow me to shore up that victim mindset even more. Hmmm
How do I help my daughter?Long story short. She and her family are living with us. She’s 27 and has two kids 2 and 4 months. We were hoping after the baby was born she would get better but she has continued to get worse. Her husband and I are listening to your foundations program. I wish so bad she could listen to it but she can’t handle any noice. We can only whisper to her and in as little amount of words as possible because sound brings her more pain.
She can’t listen to you and we can barely even share what we are learning. How do we even get started? I’m so worried so afraid. I can’t even talk to her to know what her mind set is at this point but I would bet it’s not good, even though she’s always been a positive and motivated person. We have to help her every needs 24/7. Bathroom, feeding her through a syringe and as of the last week moving her around (cause can’t move herself) so she’s not just laying one position.
Been to many doctors, many tests, still no answers except about 2 1/2 years ago she was diagnosed with POTS. She was functioning and life was okay but she progressively got worst through her pregnancy and has really gone downhill since the birth. 😭🙏
That's so hard, my heart aches for you. I think the best & most important thing for you as a mum, and her family now, is to hold that space, faith and hope for her, where YOU know that she can get better.. as you are learning everything in the program, you take notes, whisper things in her ear etc.. But you also start to help to implement whatever is possible, in terms of daily helpful rutines and structure. Without putting more pressure on her.The most important you can do, is to hold that very loving, resilient, compassionate space for you all, and not give in to despair etc. and also do look after yourself in the process. PS. Personally I'd also look into helping the detoxification pathways of the liver, that may help with the hormonal changes after birth, perhaps (look into detoxification of estrogen).
@@MsRagraf Thank you for your comment. It was helpful.
@@michelleperry4585praying for you guys. This concoction has helped me tremendously (b complex with extra supplemental (b1, b6) with poor digestion these vitamins get depleted and cause a host of symptoms alongside black seed oil bovine colostrum vitamin C-calcium magnesium iodine and vitamin E plus apple cider vinegar to raise the acidity of the gut so that things are more easily digested
@@MsRagrafthere is evidence to show a lot of cfs is really a chronic underlying stressor. Metals, parasites, Lyme etc. which aggravates the immune system
@@michelleperry4585support the body as a whole until you get the right specialist and diagnosis. You don’t just get “cfs” it’s like saying if you have digestive symptoms that doctors can’t describe you have “Ibs” there’s ALWAYS a reason!! Keep in the fight❤️
I have been doing more, but then it catches up with me. I’m not crashing like before, and feeling like I’m going to die. But I get exhausted and I just need to rest and pace again. I’ve been dealing with this since I contracted Covid 2.5 yrs ago
I'm trying to find info about joining your paid community but I can't find anything. Can you please give me a link? Thank you.x
Hi,
Is there another video to come?
The title was about 5 traits, but I only heard 1 - Mindset.
Thank you Toby. Can you please make a video on restorative movement especially if you're pretty much bedbound? Ive also been experiencing POTS like symptoms so its been very difficult to stand up and move around without feeling awful and crashing. Can you share some examples of restorative movement that might help when you're this severe?
Yes. I would find it helpful too. So hard when long term bedridden to know when, what and how much restorative movement.
I'd appreciate it too x
I could totally use some help on restorative movement as well. My daughter can’t move. We have to do all of it for her, so where do we begin?
sometimes i struggle between what my body and what my mind wants to do. When should I listen to my body versus pushing through it. my mind often wants to go to the gym but my body really isn't up to it.
Exactly
I am stuck because l can't set a baseline no hard that l try and crash.l have never gone 2 weeks with out a crash. It's soo disheartening
Wow that’s interesting as I have spent thousands over last 9 years ! U name it I’ve tried it 😢
Santa Claus isn't real ?!?!
What is the link between believes and trauma holding you back the other thought that I had was what if I'm just not making it simple enough so I'm feeling overwhelmed and like it's not possible for me to recover any comments are appreciated thank you very much❤
What - Father Christmas isn’t real?! 😂 seriously now - I am really struck by the idea that some of our thoughts and beliefs are so habitual we can’t even see them to change them? Interesting… what am I believing that is keeping me stuck? Maybe that I think I’m stuck but actual I have the freedom to change anything for the better. Thank you :)
What was your biggest insight from watching this video? Comment below!
Common sense.. I day at,change mindset..u CAN DO this..accentuate the positive 🤐😻💯..
Nothing can hold me back....except myself.
Thanku
Toby Toby Kiaora' are U kiwi..kool? society rules talk...yep all of wat ur saying
I mite like U..so far so gud...
HEALTH IS WEALTH mind/body/spirit.I'm fatigue cos I have many whom I call vampires, I limit my circle meditation is my time out...Its Peaceful ❤❤ ur site..Thank U Toby/Co✌🏽
Not one thing was offered here. Waste of time.