MELAS is a rare disease

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  • Опубліковано 27 вер 2024

КОМЕНТАРІ • 21

  • @martineplante9124
    @martineplante9124 6 років тому +3

    My Husband is 62, his mother and brother died around the age off 60. He is 85% deaf and he has a pacemaker since his first AVC at 60 in 2016.
    The just had is colon remove. He knows that he has MELAS since 2017.
    We live in Québec Canada.

  • @cay5423
    @cay5423 3 роки тому +1

    My boyfriend's stepmother has this and she's gotten violent. She's super mean and aggressive for no reason. If her things are in the way and there's a possibility of tripping over it and you move it.. she freaks out then becomes violent. Its frustrating bc nobody knows how to handle it or knows what to do.

  • @shellycolson9365
    @shellycolson9365 5 років тому +1

    My friend at 42 was jist diagnosed her mom died 2 years ago we wonder if it was the same reason .my friend has had two strokes and now has some dementia. She is back in the hospital as of mon i am so sad . her stroke was in november it is now january . this is breaking my heart . ! She doenst even know who i am

  • @angelinarobert622
    @angelinarobert622 3 роки тому +1

    What's the name of the "hit compound"/ medication that changes bad mitochondria into good one's? And when will be on the prescription market?

  • @tolgay1158
    @tolgay1158 5 років тому

    hello my wife since 2005 melas patient and now you have a treatment that you know the situation please help me thank you

  • @ソトヤママリアテレサ

    so the hit compound is called Khondrion? Am i , right, am i wrong or Am i just dreaming? 🎶-Erasure's song Am I Right? 🎶☮️ How can i get some khondrion? i live in Japan despite being an American. is it legal in Japan or in America? Are there clinical trials for Kondrion in Japan or America? -J from my wife's UA-cam with her permission of course.

  • @scottmenteith4778
    @scottmenteith4778 5 років тому

    I was diagnosed with MELAS almost 2 years ago. What is the best method of keeping up to date on the progress being made with the medication and breakthroughs noted in this video?

    • @akshatgupta4732
      @akshatgupta4732 3 роки тому

      How u survive plz explain its important for a life message me on 9462536369

  • @Sarah99007
    @Sarah99007 4 роки тому +1

    Hi I need Melas patient karyotype can any one help me.Where can I find it ,please ?

    • @DylanJGehl
      @DylanJGehl 2 роки тому +1

      I'm looking for MELAS info too, but it's kind of rare to find

  • @rishabpal4797
    @rishabpal4797 7 років тому +2

    Hello
    My daughter is also have Melas..... I m worried of her very much..... The doctor from GMCH32 Chandigarh is treating her but not useful.... Can I have any help from u...plz

    • @SegaDisneyUniverse
      @SegaDisneyUniverse 7 років тому +2

      I had a good friend who recently passed away due to MELAS Syndrome. He only lived to be 23...:'(

    • @RobinHood-ki5gg
      @RobinHood-ki5gg 6 років тому

      If it is the tRNA leucine mutation it is treatable with succinic acid.

    • @krunalvaghela5623
      @krunalvaghela5623 2 роки тому

      @@RobinHood-ki5gg can you describe more or do you have any references thanks

    • @DylanJGehl
      @DylanJGehl 2 роки тому

      @@RobinHood-ki5gg any info?

    • @sarvjeetyadav5141
      @sarvjeetyadav5141 11 місяців тому

      Hii rishabh ji my son is patient of melas please tell tritment

  • @jeffjohnson8624
    @jeffjohnson8624 2 роки тому

    the CCs are very off. there's a Cyber Stalker aka hacker harrassing me. who do i contact to make them back off and leave
    me alone. ☮️🖖🎶i have MELAS Syndrome. ☮️🖖🎶 "Everyday is a new challenge."-Jonathan acoustic version by Ice Nine Kills aka INK. ☮️🖖🎶

  • @youstat8249
    @youstat8249 Рік тому

    I am 45 Years .my health problems started 10 years ago .I fight every day to survive .I hope someone can help Al poeple with this evil disease ..I can't do sport because I have intolerance of exercise it's a hell . especially the kids with this disease i really feel sorry for them .where are all the rich poeple who can help to invent a medicine for all these sick children and poeple I hope God will take away this disease out of this world it's an evil disease