The Association for Frontotemporal Degeneration with Esther Kane & Debbie Elkins (AFTD)
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- Опубліковано 11 жов 2024
- All Home Care Matters and our host, Lance A. Slatton were honored to welcome Esther Kane and Debbie Elkins from The Association for Frontotemporal Degeneration (AFTD).
About AFTD:
Online at theaftd.org, AFTD is the largest national nonprofit devoted to providing resources to help families affected by FTD today, and advancing research to foster accurate diagnosis, treatments, and a cure. Our volunteer founded organization - driven by thousands of volunteers and donors - reflects a community's profound determination to #endFTD. With the FTD Disorders Registry, we are proud to partner with families, researchers, biopharma companies, state and federal policymakers, and health professionals across the country to improve care for people and families facing FTD - efforts that could ultimately be importance to all facing dementia or neurodegenerative disease.
About Esther Kane, MSN, RN-CDP:
Esther Kane, MSN, RN-CDP joined AFTD as its Director of Support and Education in November 2020. Previously, Esther served as Director of Wellness at CareOne Management, a company that provides elder-care services throughout the Northeast U.S. She brings clinical, educational, managerial, and marketing skills along with a passion for quality care for those who are living with neurological conditions. Her work reflects a strong commitment to the importance of education and training throughout the spectrum of diagnosis and delivery of quality care.
At AFTD, Esther ensures that support services and educational programs advance early diagnosis and improve access to quality care and effective support, and that that clinical information provided to healthcare professionals and the AFTD community is current and evidence-based.
Debbie Elkins, RN and AFTD Ambassador for West Virginia:
After her husband’s journey to an FTD diagnosis, Debbie became an AFTD volunteer and hosted her first Food for Thought fundraiser. With a passion to raise awareness in her community and to make connections with others in rural areas of West Virginia and southeast Ohio, Debbie was invited to become an Ambassador in 2023.
Working with AFTD staff, she began provider outreach visits hoping to connect the local medical community and others to AFTD. As a registered nurse, Debbie hopes to use her voice to bring FTD awareness to the public, provide education, and point families to the “gold mine” of resources and support that AFTD offers.
#dementiacare #dementia #frontotemporaldementia
Connect with The Association for Frontotemporal Degeneration (AFTD):
AFTD HelpLine (with translation services available):
Phone:
866.507.7222
Email:
info@theaftd.org
Diagnostic Checklists for those concerned that they or someone they love has FTD:
www.theaftd.or...
Support groups led by AFTD-affiliated volunteers across the country:
www.theaftd.or...
UA-cam:
@TheAFTD
SOUNDSTRIPE:
DCZC3BWSGVJXIHCL
I appreciate AFTD's support of families with FTD.
I appreciate your commitment to enhancing FTD education and care.
We adore All Home Care Matters, both on television and radio, and the fantastic information you provide.
Thank you Lance and All Home Care Matters for everything you're doing to support caregivers!
Thank you, AFTD, for supporting families dealing with FTD. Great interview!
We love watching and listening to All Home Care Matters and the really great resources you have
Very educational. Appreciate the resources provided by AFTD.
Powerful stories and insights. Thanks for bringing this to light.
It is very easy to see how much Esther is invested in helping the FTD community
Thank you, Debbie and Esther for all the work that the two of you are doing to help
Lance - Great job helping to get these resources and organizations on to share with others!
Love the dedication to improving FTD care and education. Wonderful video!
educational video Thank you for your efforts in spreading the word about FTD.
Thank you for the resources that AFTD has offered.
I sincerely hope that as more and more well-known individuals speak out, awareness will increase.
I truly like watching this show since there are always incredibly helpful people and knowledge! Thank you!
Debbie’s advocacy is so inspiring. Thank you for your dedication!
Good knowledge for those who provide care! much-needed resources and assistance.
We all need to speak out about these problems and find ways to support family caregivers in their educational endeavors.
I really appreciate how concise and direct each of your tutorials are.
Every county in the nation should have a resource that family caregivers can use.
Thanks you to Esther and Debbie - we need more voices like yours to help share hope and tips
Giving voice to these issues and a way to help family caregivers with education is so vital to us all
I appreciate how all of your videos are brief and to the point.
I adore how succinct and to the point all of your videos are.
I adore how succinct and direct each of your videos are.
Really fascinating to listen to Debbie's story and to see how she's turned it around to help others
Esther Kane and Debbie Elkins are truly inspiring.
It's amazing to hear Debbie's tale and observe how she's changed it for the better.
I appreciate your assistance very much.
When we can say goodbye to dementia I think it will be one of the greatest days in my life
Informative video! Appreciate the efforts to raise awareness about FTD.
This was incredibly helpful. Thank you for the detailed discussion on FTD.
Great work, All Home Care Matters! Keep up the good work.
I really hope with more and more notable people speaking out that it will help raise awareness
I appreciate your thorough explanation of FTD.
I really enjoy watching this show they always have really helpful information and people on thanks!
Everyone is genuinely impacted by this problem, thus we must help one another.
Well done, Every Home Care Counts!
Absolutely nothing is impossible for God.
I wish there was more awareness and attention to this when we went through it with our mom
Much needed support and resources.
Extremely well-done. Thank you!
I appreciate your help very much.
Debbie Elkins and Esther Kane are amazing role models.
A better strategy for helping family caregivers and their dementia-affected loved ones must exist.
I appreciate you pointing this out.
I believe the day we can bid dementia adieu will be among the best of my life.
I respect the effort you put forth.
Thank you very much for this information
We are dealing with Lewy-body right now with our mother and wish more people understood it.
I'm very grateful.
Valuable information for caregivers!
There needs to be a resource in every county in the country for family caregivers to turn to
I appreciate you sharing.
For GOD nothing is Impossible
thank you so much.
I appreciate you very much.
Thanks for sharing and such a beautiful, love it
I'm extremely grateful
Outstandingly well-done.
Debbie is an amazing advocate.
I cared for my dad for over 8 years daily and I felt so alone but I never felt resentment of any kind
We wish more people understood Lewy-body, since we are currently dealing with it with our mother.
I adore this crucial information
I really appreciate it.
This really does sound wonderful.
It was very helpful!
That is just wonderful.
Definitely fantastic, this.
strong narratives and observations.
Excellently done.
This does sound incredible.
This information helped me alot
This does sound amazing.
Keep up the awesome video!
This was quite beneficial.
No task is too difficult for God.
This looks so good!
fantastic video, keep it up!
Love this important content
I have had so many in my family diagnosed with dementia that I am just waiting for my turn it's sad
The doctor didn't have any assistance or provide any at first, which was one of the most difficult things for us.
Highly accomplished.
It's unfortunate that I am waiting for my turn to be diagnosed with dementia because so many people in my family have had it.
One of the hardest parts at the beginning for us was the doctor didn't have or offer any help for us
Very informative
super cool video keep it up!
This will all be a memory once a solution is found-that sardonic remark never fails to get under my tongue.
I would like to know if Esther or Debbie think we could see a cure in the next 10-15 years?
Can you have a little of each or several forms of dementia?
What do you all recommend for getting our healthcare professionals aware of resources and info?
When there's a cure this will all be a memory - I always think about that ironic statement
Esther What led you to work with dementia and AFTD patients?
Do Debbie or Esther think a cure will be available in the next ten to fifteen years?
Esther - what brought you into working with AFTD and dementia?
Are there any recommended or online support groups for the aftd?
It is awful having to watch your loved one deteriorate right before your eyes
Does the aftd have online support groups or groups that they recommend?
Can you have a small amount of dementia in one or more forms?