🏥 TRIP TO THE HOSPITAL & A TERRIBLE HEADACHE 🏥(3.1.18)
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- Опубліковано 7 вер 2024
- We had bloodwork at the hospital & the day ended in a lot of pain...
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Wowzy! That was a super long day! But we did it, and we are moving on! How was YOUR day? Let me know if you’re in a rainy area- it’s super rainy here, so we are thankful for a dry, warm home! Sending you guys a high five, whatever you’re up to today!
The Frey Life I’m over in western mass and it’s super rainy where I am too. I’m thankful my area isn’t getting all the snow the Berkshires are getting! They had 6 inches at 8 a.m. already. I’m also thankful for my dry cozy home, and my warm jammies. Stay dry! 😊
I'm in a rainy area! I'm in a tiny little peninsula in Massachusetts, and it is CRAZY here! Both entrances to my town are closed, and when there are severe wind storms like this, the flooding can be so bad near the ocean that streets end up turning into waterways/small rivers! Sometimes, waves get so high, they end up going over telephone poles!
Freezing cold here in Norway (-8°C today), lots of snow , blue and sunny skies. I do not mind waiting a little longer for spring if this keeps up 😍
The Frey Life
SUPER sunny and very warm here in Wiggins Mississippi. But it's a beautiful day!
Your channel is my go to for when I have to rest due to my annoying and inconvenient diseases.
Too many body issues to mention. But I play it off pretty good when I'm out and about. Only my husband knows... and he doesn't even know some of the details/symptoms of some of my diseases. He is a towboat captain and gone for 28 days at a time. So I'm pretty much on my own. But I've learned to deal and I have learned to listen to my body.
Out of 6 siblings, 3 of us have autoimmune diseass. Unfortunately, one of my sisters passed away 2 years ago at the age of 51. She had broncilitis obliteration and another disease. She did get a diagnosis at the Mayo Clinic and then lived as projected...5 years. We miss her.
So Thankful you allowed the continuance for us to see Mary feeling better! Terrible migraine like headaches are brutal. Changing up my prayer from no headache to answers from the doctor and upped platelets!
Headaches and coughs do not mix well, feel better 💜💐
Is it just me or was there a repeat clip at around 3:40 and then at around 4:00? Editing error due to a sleepy Peter? 😴
Love you guys btw and so appreciate your positive outlook on life and that you share your journey with us 💖💖💖
peter did say he was tired lol
lil cc haha I did immediately think of that too! Poor Peter is on overdrive 🙃💙
I did notice that . . . thought at first that I accidentally 'rewound' the video a bit.
Lauren W nope- that was me (Mary). Ah! I was trying to be helpful and did a little bit of editing... or rather, mess up editing :( my bad. Peter is trying to fix it now.
Kate Evans haha me too! I rewatched that part a few times thinking I bumped something on my phone 😂 So I tried to look at the time stamps to make sure.
Hey Mary were covering CF in our mature students class in college I recommend your channel for everyone to watch!I've learnt so much about CF from ye guys :)
I have chronic migraines and headaches. I get them all the time and sometimes they are so bad. I totally know what you mean by clinic headache. Those are the worst. The bright lights can give me headaches instantly.
Trisha B you would think by now since fluorescent lights are horrible for a lot of people in hospitals they could try other lighting by now. Stores, workplaces, clinics. Can’t get away from it. But they do make some expensive glasses for it now.
Love watching your positivity and faith. My cerebral palsy, and esophagus problems give me hard days but you help me every day. Also just got a few things to remind me to be grateful from the your shop. Have a wonderful day
Blue is the ocean and coconut is the relaxing on a beach
I hate when I can't sleep!!
My mind has racing thoughts. I can be fine all day, no problems, and I go to bed... And WHAM!! my mind starts thinking of all these crazy thoughts!! My husband gets a song in his head, and it keeps him awake!! Great Vlog today!! 😄
Your mom should have an etsy shop! That's such a cute Map Bag!
MARY don't forget to put more Zofran in your purse. Our purse is our emergency kit. lol
Keep the faith Mary. I love you all.💜💙🐕
Young cancer patient here. Can’t leave the house without my zofran!!!! Even though I hardly need it. There was ONE TIME I did........never going without again.
I love watching your videos everyday! My whole family knows about you guys because I was talk to them about how inspiring you guys are. Thank you for sharing your story each day! 😊
I love Oliver! He is a beauty!! Feel better Mary! 💜
Oh, Mary, I'm sorry about the awful headache! Not fun when you cough, especially!!
This video I think really gave us a glimpse into what a hectic day it was for y’all! I hope your headache clears up, Mary and both of you are able to catch up on some sleep!
Grateful your blood results are looking better. Oliver looks so regal sitting up in the backseat. But then again he does have a chauffeur! LOL Dogs are such a gift from God.
Hospital headaches are the absolute worst. Most hospital days I get home and go lay down with a migraine and then end up throwing up before my migraine will even think about subsiding. I totally understand the “Wong Wong Wong” feeling when you cough or hear something loud or even have to be in a bright room. It’s awful. Silent darkness is the only answer.
My cousin Katie has CF & also goes to Children's Hospital (she's 34). Children's has changed their policy several times over the last few years. They forced her to go to another hospital, which she hated. There was a huge issue with the insurance too. After fighting tooth & nail & being her own advocate, Children's has taken her back. Phew! Thanks for the videos. Keep up the good work. Let's all continue to raise CF awareness.
LOVEEEEEE the new sweatshirt style and especially that logo with Mr. Oliver!!
Answer to the Children's Clinic Q: Because you're a child of the King! And you're a child @ heart.❤️ Praying you feel better! Long day & you got a lot accomplished!💪
So sorry you were hurting Mary! I hope today is better sweetie!
Mary and Peter You two are a source off inspiration to so many including myself. And you manage to find joy and laughter each day. I thank you for sharing your life with me. I am 63 year old and I've had back surgery in 2010. I hurted my back again about 3 weeks ago. I'm back in physical therapy. l live in pain. pain. I try not to take a lot of pain medication I use ice and heat compresses which help to substitute the pain medication somewhat. l thank you guys for sharing your life! Your UPS and your Downs.💕
I really hope you are feeling better by now!
Mary you will start feeling better soon have faith because God is very powerful He will see you through all this
Ollie is sooooo cute!!!
Lupus Warrior live love Laugh Ain’t that the truth 👍
Mary, I just want to say that I am so inspired by your Vlogs because you are always smiling even when you are feeling terrible. God is using this horrible disease to inspire people all over the world. you are amazing. keep swimming. you got this.
I hope you feel better soon Mary
I get nasty headaches due to my sinuses and I can't reccomend acupressure enough for them.There are lots of videos on UA-cam xx
I was rolling laughing at Peter's facial expression when his 'straw attacked him' that I actually watched that moment about 5 times. #dontforgettolaugheveryday
Whenever I am having Flairs of my Chronic illness's I watch your videos and feel so much less alone in the world!
COMPLETELY off subject but I was wondering how Mary's parents Tiny home was coming along. = )
I'm glad you updated that her headache was gone. I love happy endings.
We got the snow part of Riley here in Albany, NY. All day yesterday. We lost power for half an hour and had a couple surges. Praying for The Freys.
I am glad that everything is going good. Lots of prayers and love.
Feel better MAry!
Andrew and I's fav. Slush is the blue berry cream slush!!!!
You two are amazing! A best friend of mine has CF so I know everything about it. I wish I could be more helpful for my friend, now he's under oxygen therapy almost all the day long but he's so strong calm and gentle. I wish you all the best.
Greetings from Sicily.
I am living in the north of Bavaria. It has been very very cold the past days, maybe a week, but now it's starting to warm up. This morning i had to shovel snow off the sidewalk and now(lunchtime) it's all gone, melted, and the temperature rises up so fast. I had a terrible night either, I am sure because of the weatherchanges yet to come! But I am going to take a rest after watching your new video! Have a nice weekend! love from Bavaria/Germany! Britta
I just want to say that your vlogs have inspired me so much that now i am pursuing my way to study biochemistry with genetics at university. It is so interesting (for me) how genes and DNA works and how unfortunately people have genetic diseases such as cystic fibrosis and I really want to help with the CG truth we have here in the UK. I also want to say it is so heartwarming how optimistic and positive you both are, dealing with a disease that is not easy! Restores my faith in humanity after what's happened in the world recently.
Yay! I'm glad you got hoodies now! I'll be ordering one soon!
Hooray for Zofran! Im frequently ill at night and I panic if I am running low. Grateful to hear your good news, hope you feel better soon! I laughed at your it's only 9 comment - I'm tired by 7 and in bed and usually asleep by 8!
I love to watch your videos while I lift weights. It helps me stay strong enough to lift my 11 year old special needs girl when she has a seizure and needs to be carried to the floor in a spasm safely. my arms are sore now but a good sore. I am sorry about your head. Head aches are the worst! my friend just got the special ear piercing with a holo needle not a gun, at a tattoo parlor to stop migraines permanently and it worked for her! it is a huge hit in our town. hope your head is better by now though
Cathy Kauffman I feel you. My daughter has special needs and I'm feeling the need to start lifting so I can continue to care for her. She will be 4 next month.
my daughter is genetically pretty small for her age. Not dwarfism but smaller and she is going to be 12 this summer and 67 lbs right now. I have not had to lift her as much except to get in the bath or out of the car if needed BUT there are those moments and I need to be strong. I just bought some small weights and started with 3lbs and right now I can lift a 10lb in each arm and do many moves slowly for about 15 min and I can see muscles getting cut on my arms! I don't look like a body builder by any means but for my thinner frame it is something. I can tell when vacuuming and carrying it up and down the stairs I am using more of my arm muscle and not leaning things on my side or stomach to help me carry and of course the ultimate goal is to lift my child any time she needs it. our child has a genetic deletion and autism with a swallowing and toilet severe delay, and epilespy. She walks, talks, and eats by mouth and is super duper smart. she was reading at age 3 and we are so proud of her! If you want to lift just go for it! make sure you are slow and gentle and use SMALL weights and do NOT swing them. we want to lift with our muscles and not get hurt. it does not matter how big the weight. it matters that we are safe, doing as many reps safely as we can and fueling appropriately meaning hydrate, and we need good carbs for fuel and extra protein for muscle growth. also if you skip a day or 2 it does seem like we lose it. I have found I have to do my lifting every single day to stay strong but if life happens I may miss one or 2 days a week and we can fret over things we can't control. I like the weights that are bumpy rubber so when my hands sweat i don't drop them.
Cathy Kauffman thank you! 👍
Feel Better Mary-We ❤️U. 😎
I absolutely adore you guys. You both give me so much hope. I’m always sending an abundance of strength, joy, healthy vibes and love your way.
A little side note, I have an Oliver too! He’s such a sweetheart. Although he’s a different breed, (Boxer), than your Oliver he reminds me a lot of your Oliver. 🐶🐾♥️
Hope you are feeling better now, Mary.
Glad blood work is better, but I feel so bad that you have such a headache.
Oh yahoo that blood counts are coming up some!!!! That’s great news. Do you get a post antibiotic test for MRSA to see if they got a handle on it ?
You guys need a long long sleep before Sunday’s service.
its hot and dry here, summer, no, actually, autumn now, but still hot. a weird combination you should definitely try when its warmer there is ice cream- a scoop of lemon sorbet and a scoop of a really rich chocolate ice cream.
feel better Mary :) your the best !!!!! Soooooo strong ❤️❤️❤️❤️❤️❤️❤️
Mary, your hair looks so cute now. So sorry you had to go to the hospital.
I have those same leggings .. when my head pounds like that the only thing that helps me is Excedrin for migraine ..I have bad headaches all the time.. pray that you feel better
Mary sorry your not feeling good. I have not been felling good for 3 days now with my right hip hurting and not being able to walking good or being able to sleep at night. One thing we do have in common is that God is on our side and he is there to help us get through the bad days.
Lord help us and those around with problems get through the rough days.
Sarah Bender NM
I have insomnia, so I totally get the feeling of needing sleep, but not getting it :( Also, there's a repeat clip when you guys first got into the bloodwork room at the hospital. Just an fyi. :)
Hannah Wiersma I go thru cycles of not sleeping ew thankfully this week has been a good sleep week
Hope your headache has gone away today Mary. ❤✌✝️
The sign behind yall in the hospital says dialysis! Srry that excited me cuz i have kidney failure and am a dialysis patient! Its the little things i guess lol. Love u guys and yall are an inspiration to me to keep going and fighting my type 1 diabetes kidney failure diabrtic retinopathy and heart problems. God bless u guys!!
I love you all so very much!!! Hugs love and prayers 💕💕💕💕💕💕💕💕💕
Mary and Peter you too are such inspiration thank you for sharing your life with me your UPS on your Downs. 💕
I am a CF patient and I find it very hard to cope with it, I also have to quit school soon because of the germs I am so sad about it. I love you guys so much and I love your sweatshirt.
I hope you feel better, Mary. ❤
What do you two say about the health system & it's struggles at times?? "A thorough (?) makes the system work." It's so catchy, and I really like it.
Hey guys, I have been watching for a few months. After much consideration, I have decided to get a Poodle for a Service Dog. She will arrive on 3/8/18. Seeing how Ollie braces and helps with walking, I see this would be a great addition to my life. Additionally, I will train her to fetch the phone if I fall. I have heard the perspective of being a responsible service dog handler. Thanks for those tips. I will carry the cards that help explain the laws with the references to the DOJ. Thank you so much for all your encouragement. Chronic Illness is real and we need to have a very healthy proactive approach to our health. May you endeavors be blessed 🙏🏼,
Robin
room tour clip was played twice just fyi. i hope you feel better mary
They fixed it!
I have only ever spent 3 weeks in America but I so fell in love with Cherry Limeade.
It's because in the past, most CF patients didn't make it to adulthood so the treatment centers all ended up at children's hospitals.
Feel better! Coughing with a headache... yuck
I’m almost 30 and went to a pediatrician in a children’s hospital. I’m part of Yale’s Pediatric Genomics Discovery Program.
Headaches are so so horrible ....I hope you feel better soon!
GOING UP!!!!
Thanks Mary
So glad your platelets are starting to behave. I’m hoping and praying that you’ve had a nicer Friday. Shabbat Shalom guys! xxxxxx
your hair looks great!
Many people do not understand what a "precaution patient" is ir means. They just assume someone's getting special treatment without understanding there is a need why they are not left in the waiting room with all the other patients. Nor do some understand that's the wait can be or is just as long in a room where we are separated from everyone else as those in a waiting area depending on emergencies room status.
To hot for sleep... someone has a healthy dose of self-love :P
I’m watching old videos and Peter is finally growing his beard! ( Easter 2016) Did it take a while to get used to?
NO WAY!! Where is there a sonic around us??! Hope you feel better soon, hopefully that yummy sonic goodness helped you guys wake up and feel refreshed! (:
Krisanne DeVries in Stoughton :) it's near the Ikea in Massachusetts
Mary, zofran is notorious for bringing on bad headaches...i had to switch to phenergan because of that.. keep that in mind. Praying for you xxx
Frey life rules get better soon
My body immediately went back to my senior year of high school when you mentioned the feeling of the day after a youth group all nighter/ lock in (what we called it).
Have you ever needed to go to an ER/ other hospital that didn’t have a precautions procedure in place like when you were in Scotland?
Glad you were feeling a little better by the end of the night Mary. I wanted to share with you guys how you helped me today. My latest ultrasound showed signs of liver damage and that my spleen is enlarged. I don't have CF but I am battling other chronic illnesses and this news was unexpected as the ultrasound was actually to check on my stomach. :s Anyway, while I am waiting with a lot of nervousness as to what this might mean for me (more imaging/test to come).... I was able to take solace in the fact that I 'know' someone else who has those two issues and that she is so awesome and joyful. I know that I will be alright too, and I will keep doing what I think I can't do. Thank you both for always giving us hope and companionship through these vlogs. I hope you know how much you mean to all of us out here in internet land.
Well thank you for the new bundle. I will combine the bottle/backpack and Ollie bundles into a shoebox for Operation Christmas Child with some other goodies. Thank you for having items that will make some child's day happier and share the love of Christ with them.
I would love an update on how that new probiotic is working! And if it's working, what it is :)
I hope you slept better last night!
Try at Sonic Coke with Blue Coconut and lime. SO GOOD!! It's called a Dirty Coke!! They don't know it by that though!!!
I always say Sounds like a plan, Stan. I think it was from a song my dad sings.
I'm pretty sure I understand your "whaa whaa whaa" pain... I get horrible migraines and I have chronic bronchitis so when I have them both together it is horrible. Unfortunately I cannot take oral meds so thr only thing to do is go in for IV ones which I try to avoid at all costs... hope you are feeling better!!
Mary, do you have a constant sore throat?
Where do you find your blankets Mary? They are super cute and look like they are super comfy and would be easy to take on hospital trips with us!
I couldn't sleep either.. looked at the clock and it was 430.. it's in the air
hey there we had a snow storm and we had a blackout but as you can see The electric is back
Hi Peter and Mary, sorry your day was so long.
But it was a good news day on your Platelets.
And hello Ollie boy.
Where I live in Western Washington, we get more rain than sunshine.
And, it is Rainy season here. As with your part of the world you get some snow and harsh weather. But we get rain and wind. But this year in forever we did get a few days off and on of a little light snow. Well thanks for taking us all along with you today and like you two always say, Good night and we will see you tomorrow.
Peace and love to you both.
I love watching you videos my son was in the hospital the past couple of days and I was watching your videos he says “mommy is that my hospital and that is cool she comes here too” he is 5 and was at BCH. I hope you are feeling better today?😀❤️
I'm so happy to hear that your platelets are up yay!!! It feels like there's a jackhammer in your head that's the best way I can describe it.
I have a long day tomorrow to get blood work done. I am rather overwhelmed because they decided to book all my medical appointments the first week of March. I had to cancel my Mammogram and my MRI. My doctor insisted I get blood work done before seeing her this upcoming week. I am just trying to wrap my head around it all. That MRI will happen soon or I will go postal on someone. I can't do it without the meds though. AND I just ranted. I apologize. LOL
I'm assuming the children's hospital you go to is Boston Children's, in which case, I don't blame you....that hospital is amazing. Also, I have had a cough lately, and when I'm like uggg, I hate this, I think of you and how you cough every day and it makes me realize how lucky I am. Hope you feel better soon!
Ollie is da cutest!! 🐶❤️
I love the Sonic soft serve ice cream. We have one 6 miles down the road from us.
today I played board games with my girl and hide and go seek followed by her doing some computer time while I exercised. today is her last day of antibiotics for a bladder infection and she is thrilled as the meds make her almost throw up every time.
You guys reminded me to call in for a refill of my Zofran😂Thank youu
ACTUALLY (from my family owning an ice cream store for 26 yr knowledge) Sonic PROBABLY used real strawberries, BUT they come with a strawberry type jam, a red color, and usually a HUGE amount of sugar/water. Just so u have a good mix of it all.. ;) for slushes!!
Hi The Frey Life how are you doing
What do they have to do, special, to have a room ready for you? ...besides the normal cleaning that's done to hospital and clinic rooms?