Also want to thank everyone for the support and kind words offered on my last vlog! I'm not great at responding to comments when I'm feeling so poorly, but know that we do appreciate them. P.S. I've watched the Frey Life's NJ experiences - Which is part of the reason I'm nervous about placement. 😅 She was in a lot of pain and puked up both her tubes, and since I vomit so often I'm worried that will happen to me too. But others have gone through with it, so I can as well! 👊
Chronically Jaquie you have to remember, she also has Cystic Fibrosis... that could have also made her throw it up... every procedure is different for every person! We love you!❣️ you can do this👊🏻👍🏻
Back in the day before my time in nursing school, the students would practice placing feeding tubes on each other (or on themselves if they were hardcore) in lab. So glad I don't have to do that, but statistically most feeding tube placements go well, so just try to keep that in mind. Maybe it's not your thing, but it helps me before procedures to remind myself of the stats and numbers behind it.
I was just about to suggest watching the Frey Life's experiences. I am sure that she had said that her vomiting was triggered by her coughing and that the tube triggered her gag reflex when it got looser. I thought she coughed so hard that it triggers her vomiting, but as she has super well worked out coughing muscles it might mean they made her more 'powerfully' able to throw up, and in turn throw up her tube from her jejunum upwards. I would recommend that you request a numbing spray for use afterwards as I recall that she had soreness until her throat got used to it (I use the brand 'Difflam' spray or mouthwash when I have a really bad bout of tonsilitis! Difflam contain Benzydamine Hydrochloride, just incase you didn't have the brand where you were, but could look for the equivalent. If you are ok to have that, it might help you!). (Sorry if my comment sounds abrupt, I have a neurological condition that causes me to have problem finding words, and putting them together in a way that makes sense, and then doesn't sound rude, abrupt, patronising, confusing, etc. I am also trying to work through costochondritis, an anxiety/panic attack, and other non related chest pain).
"I've got my ten right here." Judd is the sweetest guy ever! I'm so sorry that you're suffering so much right now, I hope the feeding tube helps and that it's not a horrible experience! I'll be praying for you!
Because of your spreading awareness I've been able to get diagnosed with EDS and POTS. I know you don't feel well, so thank you so much for continuing to do these vlogs. I look forward to them everyday.
Hi Jaquie, I've had both NGs and NJs placed. Yes the NJ placements are harder and more uncomfortable but they work better in the long run. It takes a few days for your bowels to get used to being fed directly into your jejunum but it's definitely worth getting your body some much needed nutrition and getting your energy levels back up!Maybe ask for a bridal to be placed to which can help prevent the NJ tube coming up when you're sick? I hope everything goes okay! I send my love and prayers to you, Judd and Miss Harlow! 💜💜💜
Also, for your question about the length of the hospital stay- I stayed 2 nights but as you know it could be different for you. If you have any questions, I'd love to help you through my own experience!
Pack for a week. Make sure you have your shampoos and toiletries. Don't overpack though because if you have to stay longer Judd can switch out you clothes for fresh ones whenever he comes to visit.
Judd: I Got A Ten Right There. WOW Judd is smooth and probably the sweetest guy I ever seen. I glad Jackie got someone like him to help her with all she going through. Hope you feel better Jackie. You guy are one of my favorite vlog channels
I'm so happy that you and Judd are being pro-active and proceeding with the feeding tube! I know each day is scary, not knowing how your health will be progressing. Both of you are doing every thing right and I know things will begin to turn around for you. The best of luck in the upcoming week and know that we will be following your progress daily as your on-line support team! Much love to you both.
The admission will be probably be a few days so the doctors can make sure it helps you. :) I really love your videos, i have a mystery chronic illness and although i do not have the same illnesses as you, lots of things are the same. And it helps me seeing how you cope with it so i can try new things that may work better! Thank you so much for sharing your story and helping people like me! :) Also you might want to check out a channel called TheFreyLife. They daily vlog like you showing how a chronic illness can effect you, she had a NJ tube as well so maybe it helps to watch those videos and see what its like.
From my experience for direct admit usually they will just take you up to your room after you arrive at the hospital. You doctor will most likely call the hospital before you go there with instructions on what he wants. I hope it all goes well, really enjoy your daily videos.
HUGE sigh of relief when you said you were getting the NJ tube. This is such good news!!! You will find such relief and every day will not be such a struggle anymore.
I'm glad that with the help of the doctor you at least have a proper plan in place now! It sucks that you have to wait until Tuesday, but I'm certain you can make it 'til then. You're strong, you can do this! I'm sorry to hear your dad wasn't doing okay, but glad to hear he's been discharged. Although of course every situation is different, I understand what it's like to want to be there for him even though you can't. When my dad got cancer I was already chronically ill and even though he never expected me to do anything that my health woouldn't allow me to, I was still upset when I couldn't be there for him or do something to help him. Your dad seems really amazing and I'm glad to hear he understands as well. Hopefully getting the feeding tube will help you improve and allow you to see him soon :) Best of luck!
Try running the ice cube trays under some warm water but flip them upside down. Once they have thawed just enough to release from the mold, put them in a ziplock bag and place in the freezer! Love ya'll and our thoughts and prayers are always with ya'll!
Could you use a little coconut oil or olive oil to lightly grease the ice cube trays before putting in the veggie mixture. I do not know if it would work or not but it is just an idea. I watch your videos everyday but have never commented before. I am continuing to pray for you and will be praying for your dad.
As a nurse we have patients come in for NJ placement a lot. It can be a few days up to a few weeks. It's more than just placing it, your body has been without food for awhile and it can be a process to get the feeding part down. There are lots of different formulas that they can use and everyone's body responds differently. I am hoping everything goes well.
You have the worst luck with ice cube trays lol I'm glad you are trying to get in front of things and have a plan Judd is so sweet I'm glad he's looking after you so well xx
My dad was in the hospital for a few days because the doctors thought it was stroke related. It was scary, but fortunately I was able to visit him everyday. I'm thankful for that. Thankfully it wasn't stroke related though! I hope you feel better soon Jaq! Hugs and love from your fan in Newfoundland!
I'm so sorry to hear that you're struggling so much! Really hope that the next couple of days are endurable. You're so amazing at accepting the feeding tube. Fight the fear and do it anyway! x
Also it helps when the tube goes in if you either swallow water (if you can) or dry swallow, and tuck your head, those things make it easier. The first two days were the worst, i gagged on the tube a lot but your body adjusts eventually, and it was pretty painful but you can request a numbing spray or liquid lidocaine to help with the throat pain. But soon you'll adjust completely and forget that you even have something sticking out your nose! 😂 best of luck, i hope this helps get you the nutrition you desperately need! ❤️
Prayers for you and your dad 🙏🏻 It's great to see you have such a wonderful support system. Some of us are not so lucky. Blessings and love to all of you.
Just want you to know you and Judd, also your family are in our prayers! I'm so happy that your dad is doing better! I know how you feel, we moved to Alaska to AZ and my mom was not doing well and I had surgery and it crushed me to not be able to jump on the plane and go there. But she told me to not cancel my surgery, I did that once before because she was not well. So be strong! Let Judd know we have the same truck and it had the same problems. You can do this you have so many people behind you!! Judd I'm so glad you are there for support! Know you are in our prayers!
so glad you're going to get some proper nutrition. try getting some probiotics like Greek yogurt through your stomach to enable the good bacteria to help your digestion. when I had digestive immobility, everything in my stomach went putrid over night and bloated. when I awoke in the morning, my stomach gurgle a lot and everything rushed through to diarrhea after that. I ate a lot but nothing was absorbed. I know your stomach isn't acting like mine was, but probiotics definitely won't hurt anything. I also took bovine enzymes that digested my food for me until my body kicked in and digested again. I'm sure your gastro doc already considered it if he understands holistic medicine. good luck Tuesday! meanwhile, don't forget to smell the roses. the little things in life are what make it wonderful.
Wow... it's just so tough: at the beginning of the year, your aengiodema (hope i spelled that right) attacks were taking over your life.. now that you got that handled and haven't needed to use an epi pen in weeks, your gastroparesis is flaring up so bad.... i wouldn't know if i could be as strong as you are. you are amazing!!! i really think the feeding tube is going to solve so many problems. praying for it to go as smooth as possible!
Hi Jaquie! I've had a few NG tubes placed before (not the exact same as an NJ, but close) - I'd pack for a week, just because your team will likely want to monitor you and see how the tube works out for you after the placement. The NG tubes I've had were placed relatively quickly, so I hope that gives you some reassurance. I have Crohn's disease, and only just recently found your videos - I hope this hospitalization helps!!!
Walmart carries White ice cube trays, I think they are made from Rubbermaid, they are normally individually wrapped, and they twist pop out. These tend to work very well
Hoping this works out for you and that the feeding tube helps you! I know you're scared to have it placed, but if it helps, try to think of it as a few minutes of intense discomfort in exchange for acquiring another tool to help you get healthier
I'm happy to hear that you're finally going to get real help. I was surprised that they let you go home after two days last time. Plan on at least a week as they'll want to get your rate at a good place before sending you home, especially since you're so underweight now, and need nutrition badly. I wasn't kept inpatient for my NJ placement but was for my GJ, and that was three weeks as I was so sick after the surgery, and could not tolerate my feeds at all, but I don't think you'll be in for more than 7-10 days. Good luck and keep us posted. I'm praying all goes well.
I've had three nj tubes placed and my placement was a little rough but mostly because my GI anatomy is weird it's still totally worth it in the long run! It will help you feel so much better!
I know you hate fully silicon ice trays, but could you get a small tray (maybe oven tray or a plastic one) to sit the silicon tray on. I do that when I use a silicon oven tray to make Yorkshire puddings, makes putting them in and out the oven so much easier!
thats great that judd could take you. thats a huuuge blessing. just forcus on yorself to feel better. hope everything goes well with your life changes from now on. i hope you will survive until tuesday. thats the only thing i'm afraid of. thats great that someone would be able to take care of harlow. lol. that ice cube trays is soooo funny.... and harlow is just super happy about eating he doent care thats its in a container still... judd is super smart to bring your walker upstairs. lots of love.
Jaquie you are so cute! Judd: "I've got a 10 right here" Jaquie: "What? Oh! Awww! *kisses Judd*" LOL Made me laugh and made my heart melt! :)) Praying and praying you make it until Tuesday, Jaquie!!!! So much love to you!!!!
Sending you sooooo much love Jaquie, I know things haven't worked out quite as well as you'd hoped but everything happens for a reason and maybe the feeding tube will be just what you need to get back on track! Hopefully it won't be permanent either you're a real superstar my lovely! ❤️❤️ always in my thoughts ❤️❤️
Really glad to echo others that you aren't waiting around for someone to do something and you're being your own advocate. Sorry you have to...but happy you are! Best!
I'm so sorry you have to go through all of this. I was just diagnosed with gastroparesis and it really sucks. So I can't imagine what you're going through.
Judd really does make me giggle sometimes... also the hospital trip should just be a few days, maybe up to a week - just to make sure your body is adjusting to the NJ okay and getting used to the feeds
hey, fellow chronically ill person with POTS and a gaggle of other things here, also located in florida (though im near orlando)! im also having major issues and looking at hospitalization, so I'm sending you good vibes
hey, i've had one of those placed so the best advice is if they let you drink water while you do it, try. its pretty uncomfortable if you have a decent gag reflex. I wouldn't know how long you'd have to stay as i got it after my kidneys were taken out, so i had to stay for a while because of that either way. I would think it will only be a day or two? to make sure that its working properly.
I've had them placed and it's really different for everyone. I don't do well with NJ's, but I also am in intestinal failure thanks to Crohn's disease and short gut syndrome. I am now TPN dependent which is a last resort. I would take extra things just in case and of course have some comforts from your house. Good luck.
The channel let's talk IBD has a video about placing a nasal feeding tube. I'm not sure if it's the exact type you're doing, but the video might make you feel a little better about it. Good luck!
chronically Jackie I know some places offer a numbing spray. I don't know if all places do. I see alot of reports of people both using it or not getting it. if your nervous or have a bad gag reflex the spray helps stop the reflex. Also some say they feel the tube go in or it's uncomfortable and other say it was no bother at all. I know some people get the spray in both their nose & throat others do either/or. Hope this helps! your very brave and I hope this helps you start improving we are all keeping you in our thoughts!
When I had my NJ tube placed, I was there for 3 days for that. I was there longer for other things, but NJ part was 3 days. It was placed the first day, and then 2 more days to get the formula and rate right.
She said those were too flimsy which was why she had hope for this ice stray. It had some structure(or should have lol) and the bottom was suppposed to make it easier to pop the veggies cubes out of the tray.
I was in the hospital a week for my tube placement, but we also didn't know yet what was causing my issues so if we knew what was wrong it might not have been that long. Hope all goes well 💖
I'm sorry your feeling so bad love I hope things get better soon. With an NJ tube would that effect you if you have an anaphylaxis or Angioedema attack. Judd's a supper human lol
sending you love and positive vibes!!! thank you for sharing so much of your life. sending lots of love from australia. i know it's not a priority now but maybe one day you could get a PO box, would love to send you a postcard :) x
Mary Frey has Cystic fibrosis which causes her to cough a lot which then causes vomiting which then caused her tube to come up. Hers has now been surgically implanted (I believe it's a G J). I hope the tube is the answer. Mary also has trouble digesting food and takes enzymes. Is this something you've tried? Maybe it would help.
Also want to thank everyone for the support and kind words offered on my last vlog! I'm not great at responding to comments when I'm feeling so poorly, but know that we do appreciate them.
P.S. I've watched the Frey Life's NJ experiences - Which is part of the reason I'm nervous about placement. 😅 She was in a lot of pain and puked up both her tubes, and since I vomit so often I'm worried that will happen to me too. But others have gone through with it, so I can as well! 👊
Chronically Jaquie you have to remember, she also has Cystic Fibrosis... that could have also made her throw it up... every procedure is different for every person! We love you!❣️ you can do this👊🏻👍🏻
Chronically Jaquie love from iceland🇮🇸🇮🇸🇮🇸 stay strong❤️❤️
Back in the day before my time in nursing school, the students would practice placing feeding tubes on each other (or on themselves if they were hardcore) in lab. So glad I don't have to do that, but statistically most feeding tube placements go well, so just try to keep that in mind. Maybe it's not your thing, but it helps me before procedures to remind myself of the stats and numbers behind it.
I was just about to suggest watching the Frey Life's experiences. I am sure that she had said that her vomiting was triggered by her coughing and that the tube triggered her gag reflex when it got looser. I thought she coughed so hard that it triggers her vomiting, but as she has super well worked out coughing muscles it might mean they made her more 'powerfully' able to throw up, and in turn throw up her tube from her jejunum upwards. I would recommend that you request a numbing spray for use afterwards as I recall that she had soreness until her throat got used to it (I use the brand 'Difflam' spray or mouthwash when I have a really bad bout of tonsilitis! Difflam contain Benzydamine Hydrochloride, just incase you didn't have the brand where you were, but could look for the equivalent. If you are ok to have that, it might help you!).
(Sorry if my comment sounds abrupt, I have a neurological condition that causes me to have problem finding words, and putting them together in a way that makes sense, and then doesn't sound rude, abrupt, patronising, confusing, etc. I am also trying to work through costochondritis, an anxiety/panic attack, and other non related chest pain).
Chronically Jaquie are any iv anti-nausea and/or something to relax you available for before placement? They might be helpful ❤️❤️❤️
"I've got my ten right here."
Judd is the sweetest guy ever!
I'm so sorry that you're suffering so much right now, I hope the feeding tube helps and that it's not a horrible experience! I'll be praying for you!
Because of your spreading awareness I've been able to get diagnosed with EDS and POTS. I know you don't feel well, so thank you so much for continuing to do these vlogs. I look forward to them everyday.
That is so amazing!!! Praise God!!! Jaquie is amazing!!! Love from a fellow POTSie
I had a feeding tube for 6 months. I promise the placement is not that bad, I used to place it myself! I will be praying for you!
Hi Jaquie, I've had both NGs and NJs placed. Yes the NJ placements are harder and more uncomfortable but they work better in the long run. It takes a few days for your bowels to get used to being fed directly into your jejunum but it's definitely worth getting your body some much needed nutrition and getting your energy levels back up!Maybe ask for a bridal to be placed to which can help prevent the NJ tube coming up when you're sick? I hope everything goes okay! I send my love and prayers to you, Judd and Miss Harlow! 💜💜💜
NJ Placement Tip: Try your best to keep swallowing as they are placing it, it helps the process go quicker! Best of luck to you, you CAN do it!!
Also, for your question about the length of the hospital stay- I stayed 2 nights but as you know it could be different for you. If you have any questions, I'd love to help you through my own experience!
Pack for a week. Make sure you have your shampoos and toiletries. Don't overpack though because if you have to stay longer Judd can switch out you clothes for fresh ones whenever he comes to visit.
Judd: I Got A Ten Right There. WOW Judd is smooth and probably the sweetest guy I ever seen. I glad Jackie got someone like him to help her with all she going through. Hope you feel better Jackie. You guy are one of my favorite vlog channels
If I was you, I would watch Mary Frey! She will show the truth of what the NJ tube placement is like good and bad... I wish you luck!❣️🌸💖
Olivia Midcalf She already does! :)
She mentioned it in a vlog a coulple of weeks (not sure how long) ago. She watches the Frey Life :D
I'm so happy that you and Judd are being pro-active and proceeding with the feeding tube! I know each day is scary, not knowing how your health will be progressing. Both of you are doing every thing right and I know things will begin to turn around for you.
The best of luck in the upcoming week and know that we will be following your progress daily as your on-line support team! Much love to you both.
The admission will be probably be a few days so the doctors can make sure it helps you. :)
I really love your videos, i have a mystery chronic illness and although i do not have the same illnesses as you, lots of things are the same. And it helps me seeing how you cope with it so i can try new things that may work better! Thank you so much for sharing your story and helping people like me! :)
Also you might want to check out a channel called TheFreyLife. They daily vlog like you showing how a chronic illness can effect you, she had a NJ tube as well so maybe it helps to watch those videos and see what its like.
From my experience for direct admit usually they will just take you up to your room after you arrive at the hospital. You doctor will most likely call the hospital before you go there with instructions on what he wants. I hope it all goes well, really enjoy your daily videos.
HUGE sigh of relief when you said you were getting the NJ tube. This is such good news!!! You will find such relief and every day will not be such a struggle anymore.
I'm glad that with the help of the doctor you at least have a proper plan in place now! It sucks that you have to wait until Tuesday, but I'm certain you can make it 'til then. You're strong, you can do this!
I'm sorry to hear your dad wasn't doing okay, but glad to hear he's been discharged. Although of course every situation is different, I understand what it's like to want to be there for him even though you can't. When my dad got cancer I was already chronically ill and even though he never expected me to do anything that my health woouldn't allow me to, I was still upset when I couldn't be there for him or do something to help him. Your dad seems really amazing and I'm glad to hear he understands as well. Hopefully getting the feeding tube will help you improve and allow you to see him soon :) Best of luck!
Jaquie, I'm praying for you. This wave will pass. This tube will help you, I promise. Your dad will be okay. You both have a God watching over you. ❤️
Try running the ice cube trays under some warm water but flip them upside down. Once they have thawed just enough to
release from the mold, put them in a ziplock bag and place in the freezer! Love ya'll and our thoughts and prayers are always with ya'll!
Could you use a little coconut oil or olive oil to lightly grease the ice cube trays before putting in the veggie mixture. I do not know if it would work or not but it is just an idea. I watch your videos everyday but have never commented before. I am continuing to pray for you and will be praying for your dad.
I hope it goes well. I am glad Judd is so supportive. I have gastroparesis too and it can be really tough
feel better! prayers for you and your dad😘
"I got a 10 right there" My god, that IS sweet :3 Great support system you got there Jaquie, good luck, and may your hospital stay go well ;)
As a nurse we have patients come in for NJ placement a lot. It can be a few days up to a few weeks. It's more than just placing it, your body has been without food for awhile and it can be a process to get the feeding part down. There are lots of different formulas that they can use and everyone's body responds differently. I am hoping everything goes well.
“I got a 10 right there.”
Awe Judd. 💚
Jaq, never let this gem go.
The ice cube tray saga continues 😂
Kait Fisher I honestly thought this one was a winner too! until it was in pieces in Judds hands 😂😂😂
You have the worst luck with ice cube trays lol I'm glad you are trying to get in front of things and have a plan Judd is so sweet I'm glad he's looking after you so well xx
Good luck with your journey ahead!
and pack for up to 3 weeks. ive had NJs placed many times and sometimes its been a few days. the longest has been 3 weeks though.
Judd is seriously so funny😂 I love his humor and his facial expressions just make it👍🏻😂😂😂😂
Thinking positive thoughts for you, Judd, and Harlow everyday!
My dad was in the hospital for a few days because the doctors thought it was stroke related. It was scary, but fortunately I was able to visit him everyday. I'm thankful for that. Thankfully it wasn't stroke related though!
I hope you feel better soon Jaq! Hugs and love from your fan in Newfoundland!
I'm so sorry to hear that you're struggling so much! Really hope that the next couple of days are endurable. You're so amazing at accepting the feeding tube. Fight the fear and do it anyway! x
I love how the play/pause button is over Harlow's nose. So cute!!
Also it helps when the tube goes in if you either swallow water (if you can) or dry swallow, and tuck your head, those things make it easier. The first two days were the worst, i gagged on the tube a lot but your body adjusts eventually, and it was pretty painful but you can request a numbing spray or liquid lidocaine to help with the throat pain. But soon you'll adjust completely and forget that you even have something sticking out your nose! 😂 best of luck, i hope this helps get you the nutrition you desperately need! ❤️
thank you for doing these vlogs even though you're not feeling well (to say the least), we really appreciate them
10:25 literally made me tear up it was so damn cute. I can't. I love you guys ❤️
Prayers for you and your dad 🙏🏻
It's great to see you have such a wonderful support system. Some of us are not so lucky. Blessings and love to all of you.
Just want you to know you and Judd, also your family are in our prayers! I'm so happy that your dad is doing better! I know how you feel, we moved to Alaska to AZ and my mom was not doing well and I had surgery and it crushed me to not be able to jump on the plane and go there. But she told me to not cancel my surgery, I did that once before because she was not well. So be strong! Let Judd know we have the same truck and it had the same problems. You can do this you have so many people behind you!! Judd I'm so glad you are there for support! Know you are in our prayers!
so glad you're going to get some proper nutrition. try getting some probiotics like Greek yogurt through your stomach to enable the good bacteria to help your digestion. when I had digestive immobility, everything in my stomach went putrid over night and bloated. when I awoke in the morning, my stomach gurgle a lot and everything rushed through to diarrhea after that. I ate a lot but nothing was absorbed. I know your stomach isn't acting like mine was, but probiotics definitely won't hurt anything. I also took bovine enzymes that digested my food for me until my body kicked in and digested again. I'm sure your gastro doc already considered it if he understands holistic medicine. good luck Tuesday! meanwhile, don't forget to smell the roses. the little things in life are what make it wonderful.
Awesome video,Keep it up!
You're a strong fighter, I'm glad you got good news about your father. My thoughts are with you in your struggles.
Awww that was sweet how Judd said he said he had a ten😊
Bring your own tape!!!! You mentioned you had an allergic reaction to the white tape so bring your own tegaderm!
Wow... it's just so tough: at the beginning of the year, your aengiodema (hope i spelled that right) attacks were taking over your life.. now that you got that handled and haven't needed to use an epi pen in weeks, your gastroparesis is flaring up so bad.... i wouldn't know if i could be as strong as you are. you are amazing!!! i really think the feeding tube is going to solve so many problems. praying for it to go as smooth as possible!
Hi Jaquie! I've had a few NG tubes placed before (not the exact same as an NJ, but close) - I'd pack for a week, just because your team will likely want to monitor you and see how the tube works out for you after the placement. The NG tubes I've had were placed relatively quickly, so I hope that gives you some reassurance. I have Crohn's disease, and only just recently found your videos - I hope this hospitalization helps!!!
Good luck with your admission. I actually had to plan for an admission in April for my EEG.
Walmart carries White ice cube trays, I think they are made from Rubbermaid, they are normally individually wrapped, and they twist pop out. These tend to work very well
Prayers for your dad! ❤️
Hoping this works out for you and that the feeding tube helps you! I know you're scared to have it placed, but if it helps, try to think of it as a few minutes of intense discomfort in exchange for acquiring another tool to help you get healthier
I am so sorry Jaquie, I will be praying for you and your dad to get better!
Even though I can tell you're down and stressed....I just wanted to say you looked so beautiful today! Your hair looks so silky
I'm excited for you! I'm hoping you get some much needed relief and get the nutrition you need.
I'm happy to hear that you're finally going to get real help. I was surprised that they let you go home after two days last time. Plan on at least a week as they'll want to get your rate at a good place before sending you home, especially since you're so underweight now, and need nutrition badly. I wasn't kept inpatient for my NJ placement but was for my GJ, and that was three weeks as I was so sick after the surgery, and could not tolerate my feeds at all, but I don't think you'll be in for more than 7-10 days. Good luck and keep us posted. I'm praying all goes well.
I've had three nj tubes placed and my placement was a little rough but mostly because my GI anatomy is weird it's still totally worth it in the long run! It will help you feel so much better!
Prayers being sent your way! Stay safe out there Judd..
I know you hate fully silicon ice trays, but could you get a small tray (maybe oven tray or a plastic one) to sit the silicon tray on. I do that when I use a silicon oven tray to make Yorkshire puddings, makes putting them in and out the oven so much easier!
thats great that judd could take you. thats a huuuge blessing. just forcus on yorself to feel better. hope everything goes well with your life changes from now on. i hope you will survive until tuesday. thats the only thing i'm afraid of.
thats great that someone would be able to take care of harlow. lol. that ice cube trays is soooo funny.... and harlow is just super happy about eating he doent care thats its in a container still... judd is super smart to bring your walker upstairs. lots of love.
Jaquie you are so cute! Judd: "I've got a 10 right here" Jaquie: "What? Oh! Awww! *kisses Judd*" LOL Made me laugh and made my heart melt! :)) Praying and praying you make it until Tuesday, Jaquie!!!! So much love to you!!!!
savedbygrace I thought so too. now to find a guy that says that to me. lol
Jaquie, honestly praying that you will be okay. I hope your dad is healing well. xxxx
Sending you sooooo much love Jaquie, I know things haven't worked out quite as well as you'd hoped but everything happens for a reason and maybe the feeding tube will be just what you need to get back on track! Hopefully it won't be permanent either you're a real superstar my lovely! ❤️❤️ always in my thoughts ❤️❤️
Really glad to echo others that you aren't waiting around for someone to do something and you're being your own advocate. Sorry you have to...but happy you are! Best!
I'm so sorry you have to go through all of this. I was just diagnosed with gastroparesis and it really sucks. So I can't imagine what you're going through.
Lol! J, I said AWW at the same time u did when Mr. J said he has a 10 right there! That warmed my heart!!! 💜💜✝️✝️
Judd really does make me giggle sometimes... also the hospital trip should just be a few days, maybe up to a week - just to make sure your body is adjusting to the NJ okay and getting used to the feeds
hey, fellow chronically ill person with POTS and a gaggle of other things here, also located in florida (though im near orlando)! im also having major issues and looking at hospitalization, so I'm sending you good vibes
Judd with the quick turnaround on the 10/tan thing! You deserve a banana bag of your own!!
You two are so cute! I hope things start to look up for you soon, sending prayers all the way from Australia 🐶❤️
Wishing you good health during your stay and luck for your tube placement!
10:20 has me laughing! You guys are so cute, I love it.
I said awwww out loud when Judd said he has a ten you guys are so cute
Watching from the hospital ... prayers for you !
Feel better soon will be praying for you ❤️🙏🏼
I don't know how you feel right now but what I do know is that I'm here for you x you can do this 🖤
hey, i've had one of those placed so the best advice is if they let you drink water while you do it, try. its pretty uncomfortable if you have a decent gag reflex. I wouldn't know how long you'd have to stay as i got it after my kidneys were taken out, so i had to stay for a while because of that either way. I would think it will only be a day or two? to make sure that its working properly.
I'm praying for all of you and to have a solution and that you get to feeling better. ❤️
I've had them placed and it's really different for everyone. I don't do well with NJ's, but I also am in intestinal failure thanks to Crohn's disease and short gut syndrome. I am now TPN dependent which is a last resort. I would take extra things just in case and of course have some comforts from your house. Good luck.
Always sending you love and prayer, Jaq. Hope the feeding tube procedure goes well!
Your opening remark broke my heart. I'm so sorry you weren't doing well in this video so you could see your father. :(
Hoping the feeding tube will help! It is heart breaking how much your feeling this.
The channel let's talk IBD has a video about placing a nasal feeding tube. I'm not sure if it's the exact type you're doing, but the video might make you feel a little better about it. Good luck!
Hope everything works out. The best to you and your family.
Keeping you in my prayers ❤️
chronically Jackie I know some places offer a numbing spray. I don't know if all places do. I see alot of reports of people both using it or not getting it. if your nervous or have a bad gag reflex the spray helps stop the reflex. Also some say they feel the tube go in or it's uncomfortable and other say it was no bother at all. I know some people get the spray in both their nose & throat others do either/or.
Hope this helps! your very brave and I hope this helps you start improving we are all keeping you in our thoughts!
When I had my NJ tube placed, I was there for 3 days for that. I was there longer for other things, but NJ part was 3 days. It was placed the first day, and then 2 more days to get the formula and rate right.
I hope everything works out with yoir feeding tube and hospital stay. And what a sweet guy Judd is
Many hugs and prayers sweetie!
Love this mighty warrior. Rest in peace sweet 👼.
keep u in my Prayers and praying for the Drs can so what they can help u.
Stay strong, Jaquie!!!
P.S. I'm sure this has been suggested, but have you tried silicone ice cube trays? Super flexible!
She said those were too flimsy which was why she had hope for this ice stray. It had some structure(or should have lol) and the bottom was suppposed to make it easier to pop the veggies cubes out of the tray.
Brandi *click* Bear! Ah, understood!
I've never had an NJ tube but I have watched Mary from the Frey Life vlog her journey through it! You can check it out ^^
Oh Jacquie I'm so sorry you're doing so poorly! All my love to you and your Dad.
i really hope that you start doing better soon. im sending good thoughts your way.
Prayers coming your way
It depends on how well you handle the feeds for the NJ tube. My stays for placement are usually about a week!
I was in the hospital a week for my tube placement, but we also didn't know yet what was causing my issues so if we knew what was wrong it might not have been that long. Hope all goes well 💖
You should probably only be in a few days :) It's an easy procedure it just depends on how long it takes to get the feed levels right
Sending prayers for you and your dad.
I will also be in the hospital the day after you getting my gj tube surgery 😊
I'm sorry your feeling so bad love I hope things get better soon. With an NJ tube would that effect you if you have an anaphylaxis or Angioedema attack. Judd's a supper human lol
I know somewhat of how you feel my grand dad just beet cancer and I couldnt see him the whole time he lives an hour and a half away
Sending lots of love and support. Hang in there guys!
sending you love and positive vibes!!! thank you for sharing so much of your life. sending lots of love from australia. i know it's not a priority now but maybe one day you could get a PO box, would love to send you a postcard :) x
Mary Frey has Cystic fibrosis which causes her to cough a lot which then causes vomiting which then caused her tube to come up. Hers has now been surgically implanted (I believe it's a G J). I hope the tube is the answer. Mary also has trouble digesting food and takes enzymes. Is this something you've tried? Maybe it would help.