The Challenges of Living with Seizures Epilepsy, My Child has Doose Syndrome - Part Two

Anna's son, Soren, has Doose Syndrome which is a seizure disorder characterized by frequent myoclonic and myoclonic-atonic seizures. She has kindly shared their story on the challenges of living with Doose Syndrome.
Missed Part One? Watch it here: • The Challenges of Livi...
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[@michaelkoski6388]

Thank you for sharing. Your tips are very practical and your story comes across very real. We too had a child start school on this diet. We told the administration she had very severe food allergies that would lead to seizures. That seemed to get their attention. It is important to share this with every teacher. Band, PE, home room, etc - as some will use candy or treats as rewards for good behavior, or when celebrating different things.