Peter is so patient with all of her illnesses. He always seems to stay positive and even up lifting. Amazing to watch a young man watch his wife suffer with illness and remain so positive!
I know them. lived with them... it was amazing, and beautiful and humbling. they are both exactly as they seem....full of grace and love for each other every day.
Unfortunately not every spouse/life partner can handle the illness of their spouse/life partner, despite how positive etc the sick spouse/life partner is. It's a rare person who can do that and Peter is one of the rare people.
That's exactly what I am talking about, unconditional love. From your words, ît's obviously there with you and your husband as it is with Mary and Peter. I wish there was peace, harmony and love the world over. I wish I could hélp others like I used and more than I can now. If my husband was in my position I would move heaven and earth for his health and well-being.
Yes, they are beautiful souls. I've seen life partners that were more loving and committed than thœse that are married. As @S. Elizabeth n Milton said " it's more than just because of sticking to vows, though that is important. It's their true unconditional love for each other. This is a spiritual phenomena, not merely frivolous and unrealistic romanticizing." Which obviously is there between herself and husband too.
Peter is so patient with Mary and her illness. It's so amazing to see him caring for her so much. He's also very educated on Cystic Fibrosis. These vlogs make me realize that I'm so blessed to be 100% healthy. I hope that everybody that watches these vlogs that they are blessed. I love you guys.
I have Chrons Disease and for 2 years I have been struggling to keep food in my body. I've recently been on daily probiotics and they work! I'm able to eat meals and not be sick 10 minutes later. I'm hoping I gain weight and keep my weight stable.
Just finding out that I have Cystic Fibrosis 6 days ago now is getting to be very overwhelming doctor wanting me to do all these medications and breathing treatments I don't understand most of it and I don't feel well but I noticed a big change when I stated taking the creon enzines I could finally eat a meal with out pain and feeling sick I celebrated I was so happy 😊😊 and I was relevieved to know why I was sick for so long and now I understand how Mary feels :-( I pray for Mary and Peter every day for there such a blessing in my life ever since I stumbled across there vlogs on utube they become a part of my family and life :-) it's kinda ironic that Mary got CF and I discovered I have it and she has a service dog and I was already training mine so there was a calling there and a purpose there and a meaning a reason !!! Mary and Peter where meant to be apart of my life so I'm so thankful I pray Mary feeding tube helps her and she gains the purpose of it and gains strength to do her yoga and freedom to do what she wants and to feel better :-)
skrilllax fan tecno Found out my son had cf too at age 12. It was a slow process at first, but with patience and support, he has managed. Hang in there, everything will work out. You have done a good job so far!
Hello could you explain more about you not being able to eat and no pain plz I’m sick and I can’t eat my body dnt allow me to anymore 😭😭 I’m searching for answers the doctors dnt kno how to help me
just watched this video for the first time and saw your comment, for some reason it spoke to me (maybe because I recently had a tough diagnosis). I hope you are doing really well!!!! sending you love
Yay Mary! So glad you got a burst of energy and was able to have a productive day. That is a great feeling!! Its so good to hear that your body is starting to tolerate the tube and the feeds better. The beginning can be so rough. PS Your leggings are "out of this world!"
Peter,you're such an amazing loving caring husband to Mary! Mary altho you are cronicly ill, you are a fabulous wife! I'm praying for you! I'm so glad this NJ tube is a little easier for you! I for one just can not get past the gag reflex. 😭 With my RA so severe I to struggle with wanting to do things and my body just won't allow it. Some days all I can do is cry. Some days I do laugh my way thru it! Love you both and of course Olli!
Tracy, I have Osteo and fibromyalgia, among other things, and I know that feeling... and I laugh a LOT because it sure beats crying! (though I'm not immune to tears either...) Prayers for you sweet lady!
Thank you so much! Prayers for you too!! We've all been judged by people before there were visible signs and that is so very hard to get thru! I have lupus And osteoarthritis as well the RA!! I pray for all the people out there in the world whom suffer in silence .
Tracy Fletcher I also have ra, as well as fibromyalgia, fatigue, as well as several other things. we just gotta do what we think we can't do! keep on truckin!
Flew when I couldn't walk last night and had fun fellowship with some of our ladies at church. And today getting a little cleaning done. You go girl!!!
Hey guys , when you have issues like you do it's hard to keep being cheery . I just got told my new kitchen will be in within 4 weeks. Right now my legs won't hold me up and my new kitchen is an indicator for what's coming. I won't have a pantry I'll have pantry draws and I won't have a normal stove /oven it will all be at my wheelchair height. I love you guys and I have an attitude similar to yours. You just have keep going , I used to say keep up the good fight now I say one minute at a time ... Lupus had enlarged my spleen and my pancreas doesn't function and now fatty liver disease . People must think I live on junk food when the opposite is true I can't eat junk food , I live on fruit and veg, I have trouble with food and always have so I am so happy you are getting most of your nutrients through your tube , I do t take up any vitamins from my food and I can't even take extra vitamins . Anyway watching you both inspires me .god bless xoxo
I admire your ability to not act like a sick person. With Fibromyalgia I have to rest a lot, especially with flares. Right now I am going through a health problem which amplifies the Fibro. It's so easy for me to fall into the trap of "being sick". With all the work you do with CF it's amazing you don't let it get you down! And when you listed all the work you got done while feeling good, us Fibromyalgics call that Fibromanic. It's that limited ability you get once in a while to get things done, so you got full on manic and do as much as you can while you can!
I so understand I've got that with Chronic migraines I've had since age 7... toss in PTSD & a few others & I never felt good enough. I found my Peter last year & w/ him, my parents & The Frey Life I'm not wishing to die in my sleep plus finding my way back to God whom I've been very angry at.
I'm so thankful for you guys. My close friend just got diagnosed with CF and I don't know what to do obviously it's not my responsibility but I remembered you guys and I referred for her to look you guys up on UA-cam and she watched you Peter Oliver and she realize that other people have it and she can get through it too. you guys have made it so much easier for her like teaching her stuff about CF and made her feel like she's not alone and I want to thank you for that even though I'm one of the many people saying this in the comments or anywhere thank you and you'll always have a special place in my prayers thoughts and heart ❤️
I might be coming from a slightly different illness, but I'm so thankful for this! I've been suffering with an ED for 10 years now and I've never been on tube feeds, but I hate the stigma around it. I'm prescribed high caloric drinks with my normal meals, and I'm doing it because I WANT TO, because I'm fighting as much as I can! I'm praying for you and Peter, every day, you're such an inspiration!
My husband and I are in a very unique position of being caregivers for each other (him with Cognitive Impairment and me with a connective tissue disorder). We joke that I'm the brains and he's the brawn. We also have 2 special needs kids, so it's a caregiving bonanza in our house. We love your videos for inspiration, yes, but also for just laughing. Come on, overnight in a Dollar Tree, hanging your old port as an ornament? All the little songs? Love it.
You are such an inspiration. I have a chronic stomach condition, which really bogs me down. It's rough when your body doesn't flow with your spirit. Praying for you daily, and I love watching your videos. Even in the bad days, God is still so merciful to give us such great hope! Thank you for being the vessel FOR that hope! ❤
RE: Tegaderm. I use it to hold Fentanyl patches on my abdomen. After I put the patch on, I put on a thin layer (VERY thin!) of barrier cream and let it dry completely then put the Tegaderm on. It stays in place 3 days and corners don't peel up much but no irritation when it comes off. After 3 days of course the glue is largely gummed with dead skin cells so the dressing comes off easier than after 1-2 days anyway!
Rich, it's amazing what they come up with! I had surgery for colon cancer six years ago, and because I'm allergic to adhesives the sterystrips they used across my incision left scars! I had an iProbe installed for a week-long test just a few years ago, and a chemical barrier that was a liquid was applied by my nurse with a brush. It lasted until they took the probe out a week later... I absolutely love the barrier solutions available these days, they WORK! Mary, you should ask about them so maybe you can avoid skin issues... You would have to replace the Tegaderm after a week or so, but I'm sure you could manage it without disturbing the NJ tube, and it would be so much easier that what you're dealing with now! We all care about you guys and want things to be easier for you!
watching your old vlogs while I handle this terrible pain day from physical therapy yesterday to manage my fibromyalgia :) love you guys and I'm sending puppy cuddles from my pup cause you can never have enough puppy cuddles
Debra Bauman no you can't! 🐕🐶 I hope pt helps u n u feel some relief soon!! I have fibro as well as many other chronic pain diseases so I def get it! 💜
Hi Mary and Peter, I'm just starting to catch up on my The Frey Life......... I have been in the hospital with breathing situations. I missed y'all while there. I'm glad I got to hear you explain your current situation, Mary. Thank you and Peter for always explaining it so we can understand it. I'm praying you get stronger and they can find out what kind of bacteria or what all is going on. God be with you as you try each day to gain strength...Here's hoping Ollie is well. I have missed him too. Love your smileMary. God bless all of you.With love, Dana
My husband got a feeding tube in his stomach 2/27/18. He esophagus was compromised by the life saving g radiation he he in 1989. He can't swallow anything anymore. he aspirated to the point of getting pneumonia and collaps ing his left lung. We are Praising God he is still alive. I am grateful for your vlog, and information as we are new to all this and he is 72. I love your positive outlook.
I can´t believe how possitive you are and how well-adjusted to your medical condition, sometimes I complain for basic things and there you are saying it´s no a big deals to have a feeding tube! Thank you for sharing your story, you guys are so inspirational!
I just found y’all yesterday, and I am so glad I did. I have psoriatic arthritis and it’s very painful and just has its ups and downs sometimes but before that I also had a lawnmower accident on Mother’s Day and got half my foot amputated. I love watching your channel and seeing how positive you are with your condition and seeing you grow warms my heart. I am 11 and I’ve had around 20 surgeries but I’m not exactly sure maybe 18 or something but it’s been a roller coaster. Much love from Missouri!💜
The vlog usually appears around 8pm here in the UK and if it's not there I start to get anxious! I have a chronic pain condition and my husband has Parkinson's. Life can be a real challenge but Mary is such an inspiration.
I hope you feel better soon. I know how you feel, my corepack blocked. Went to ER got another one put in. So I came to Cleveland Clinic and they decided it was time for a peg tube. When they put the peg tube in they nicked my bowl 😳😳😳 so long story short... it is 18 days later and I’m am still here with 2 drains one literally butt cheek. They put in a midline. Then decided I needed a pick line so I could still get nutrition while trying all kinds of antibiotics. I love watching your videos because you’re such an open book for all of us. You husband is so supportive and involved and I think there are men/caregivers need to see. And lastly of course I am Mad in love with Harry!! See you at the next video. Heartfelt Thanks for sharing Respectfully yours Kelly Gilbert. In Akron, Ohio
Hi Mary & Peter, I came across The Frey Life channel when I was researching service dogs. I have multiple sclerosis -- 30 years this spring. It's been a roller coaster life for me, but through prayers of so many people and the Grace of Jesus I have lived an incredible life. Your vlogs, your personalities, your relationship, your Faith and your fight to live life fully is inspirational. Thank you for sharing. You are in my prayers.
I have just watched all of your videos from old to new and subscribed! I love them and love watching you all. I especially liked your videos from Edinburgh because that’s where I am from and the hospital you were in is the hospital I go to for treatments and admittances. I’m 17 and suffer with a Chronic Illness and I think that besides both of your personalities and also Oliver’s, one of the reasons why I really like your channel is that you are both very uplifting and positive and a joy to watch. God Bless :) x
Just keep swimming, I'm currently struggling with my gastro system along with chronic illness and it's so helpful to see others understand. Wish uk health service was as good as us in terms of treatment even though we have free NHS we have waiting lists that are months and years long and also don't do treatments the way us do which is so frustrating as I see how it helps you guys but it's not available here. Anyway rant over and I just hope you have a bless day and hope your fuel helps xx
Im chronically ill too and like you say, I am incredibly thankful for the NHS as without it I 100% wouldn't be able to afford any treatment but the waiting times and lack of funding for treatment is a nightmare! Sending hugs xx
I would LOVE a bumper sticker that says "do what you think you can't do". It rings so true and deep for me. I have Ehlers Danlos syndrome and I've been saying that phraseto myself since I heard you say it. I also love "fly when you think you can't walk" because there are so many days I feel like I would love to fly and not hurt. ✨💜✨
Mary I have told you before how much you inspire me, this last week has been a challenge for me but I am using "do what you think you can't do " and fly when you think you can't walk you are such a great example
I've got Type II Diabetes. I had let my diet get wayyyy out of control in 2016, which my bloodwork exposed in Dec. My goal since Jan 1 has been to eat veggies every day and at least 1 serving of beans, which are especially good for Diabetes sufferers, and no more potato chips, candy, etc . I've been doing great! Since Jan 1 I've been making multi-veggie soups using my pressure cooker & immersion blender, so I have 2 to 4 servings of veggie soup a day, and I add some plain cooked beans to my bowl once or twice a day. It's good to snack on fresh veggie soup too. So glad you are feeling better and are able to have hours of good energy!
Glad for your burst of energy. Thanks for clarifying a couple things for me. I always read all the comments & say a prayer at the end for all. You have a great family of followers who adore you & Ollie.
Mary- If you do happen to run into your tube getting clogged, I have a couple of suggestions that have helped us when our son's GJ tube has been clogged. First: sometimes if you pull back on the water syringe and then push it in to flush (do this pull/push back-and-forth several times) the tube will unclog. Second: we have found that flushing with Coke and letting it sit in the tube for a while will unclog the tube as well. We have tried other carbonated beverages that work ok. Coke seems to work best. Also, I noticed in previous vlogs that you didn't squeeze the air out of your pumpset before you closed the bag. Doing that has really helped us to have to deal with fewer flow issues and that pesky alarm. LOL. I hope this helps. I'm glad that you are tolerating this NJ better than the last. Have a great day! Sorry for the long comment. 😊
You are doing AMAZING!! I know it's difficult but the fuel is helping so much, the light is on behind your eyes. Prayers always!! Hugs!! You ARE A WARRIOR MARY FREY!!
As a person with chronic illness I really look up to you. I'm also a young lady and I live with abdominal migraines which cause severe nausea. I spend a lot of time thinking if Mary can do it I can do it. Do what you think you can't do. Thanks again for sharing your life.
Hey! Just an FYI if the dressing gets unbearable I find "experimenting" with different tapes can help A LOT. Obviously your skin isn't going to be 100% when there's tape on it 24/7 but there are tons of tape you can try! Some are similar to tegaderm in that they are transparent but others are white tape which doesn't always look as nice but it's worth it for your skin at times.
maura Grier I find Tegaderm does less damage if I leave it on 3 days then change it because it comes off so easily by then that it doesn't irritate the skin.
you guys are so strong.. it makes me realize how easy I got it and that nothing that I'm going through can ever compete...stay strong and stay positive
You guys are so inspiring 💚 I wake up and feel like total crap... yet I'm still breathing, working, and living life. Thank you lord for another day with my husband and my family. Keep up the great work Mary. I'm praying for you and the Frey life
I know u r miserable a lot of the time...in November of 2017 I contracted a flesh eating bacteria in my foot and had my leg amputated n I also had my spleen removed. I was on a ventilator for 2 weeks n feeding tube for a month n I know how much I hated them...from not having a spleen I have a weaken immune system n get sick pretty often n pretty bad...it makes me happy to see how positive u guys are...bring positive n Greatful is what got me through the Last year ...i pray things very better for u...u have a amazing husband n it makes me happy to see how patient he is...i wish I guys all the best
I want to say thank you. I have a friend (15) who has CF about as bad as Mary. I introduced her to this channel and she has found you guys amazing. She finds Mary inspiring because she is so strong throughout her journey. My friend wasn't well (emotionally) from having CF and you guys made her better. Thank you for inspiring my friend to be more positive about her life. Love you guys!
When u asked where are you at? I felt like I wanted to share that I'm having a hard time with Crohn's disease , I'm struggling rn but watching your videos always strengthen me 💖💖💖
I love how Mary calls it fuel, because the tube looks just like a fuel line for yard equipment (chainsaws, lawnmowers, weed wackers, etc). Yellow and small... so when she says fuel, I always think of gas/oil mixture LOL (yes, you have to mix the oil with the gas in most of those machines...they're not quite like cars, with separate)
You two are such an awesome couple! I received my decal in the mail today and was super excited! I'm going to put it on my laptop! I'm so glad I found you guys. You both have such a positive yet down to earth spirit. Hang in there mary and peter!!
My great granddaughter, Jasmine, just turned 2. She was born at 26 weeks. 1 month ago she had a feeding tube surgically placed in her abdomen. For a while after birth she had the nasal tube. Dr's said she could eat by mouth after the nasal tube. She did, but gained no weight. Turns out she was aspirating into her lungs; one third of each lung is heavily damaged. She will have the feeding tube her entire life, according to the drs. Nothing by mouth, ever. All her meds go through the tube. It's heartbreaking but we're grateful she's coping well, and thank God everyday she's with us. God bless you, Mary and Peter.
If you need a permanent JPeg, you might talk to anesthesia about a regional anesthesia rather than sedation. A spinal or epidural might work for that without the sedation issue. A JPeg might be too high up for that, I am not sure, but worth asking your team...As always, praying for you!
good idea....I had a total hysterectomy with and epidural and only IV sedation...I know the region is different but it was an extensive operation for me and I didn't feel a thing.
We use them for C-Sections and such all the time, but I know in Europe/UK they use epidurals for a lot of abdominal surgeries and it works really well. (I am an OB nurse)....just might be a good option....something to talk about and look into.
TaliyahMC excellent point! we do major surgeries under epidural in uk. however, i think nj placement would require a pretty high thoracic epidural. would not ve good for her lungs either
I thought of that, but would not be "as hard" on her lungs as the recovery would be a lot quicker...there is no easy answer or her docs would have done it already. :(....but was just a possible idea....I am hoping that she can recover enough not to need it. That would be amazing!
I'm working on updating my church website and just having a lazy day with my cat Rory. I'm happy to see that you have more energy now that your body is getting good nutrients. Always happy to see you and Peter and Ollie in your daily vlogs.
I think you two are the most gentle and wonderful people out there. I am not ok with most "god talk" (because of my past) but for some reason I love listening to those parts of your VLog. Maybe it's because you are the opposite of what I am used to when I think of "church people" (sorry, my words aren't the best ones) but I think thats good as it speaks to your ministry. That it can be receieved by someone like myself. Which speaks volumes really. Peter, if I could find someone like you in my life, I would be one lucky person. You both are very gentle souls and I love watching your vlogs. I don't have CF and the medical and mental illnesses I do have pale to CF I think, but I struggle a lot alone. It's hard to have medical and mental issues alone. So theres that I guess. And now I am just rambling. I think I was getting at agreeing that Peter is a rare person to have such an understanding and it shows your love for each other. I think thats what I love about your vlogs. That and it helps me to push onward. Ok, shutting up now.
Hi Mary and Peter. I just started following you guys and I love your channel. I love medical videos. I have Rheumatoid Arthritis since 2017 and I am on two immunosuppressants to include one weekly self-injectable. I am a twin mom so living with chronic illness sucks!!!! When my kids want to play with me there are time I cannot do it and it sucks!!!! Please continue to be well and safe during this pandemic.
I only wanted to share, that I did get my g-tube without general anaesthesia. Because I'm HIGHLY allergic to general anesthetics, we did it with local anesthetic (injection into the abdominal wall) only and it worked. It was - for SURE NOT comfortable - but the risk of general anesthesia compared to this procedure was worth it. MAYBE that't an option for you if you do need a g-tube or j-tube in the future. But for now keep adapting to your fuel. You guys are awesome!!!
I love the Frey life.💜💙 I wish I could me you both someday, if that is ever possible, you both are my inspiration. When I am having a available bad day, I keep singing. Think what you can't think do. I suffer from depression, anxiety disorder and panic disorder. I have been through alot in my 52 years of life, I had a hysterectomy during the birth of the second child. I had open heart surgery to repair a leaky valve at age 44 and 1 year after that I was diagnosed with kidney cancer that was found unexpectedly and couldn't go through the regular surgery since the year before that I had open heart surgery, so they found a Dr. who did it roboticalty and they took 1/2 of my right kidney. I see what you go through and I wish I had your positive attitude. This site is for you and not me sorry, but something I need to vent. After our vacation visiting my parents in FL as we live in CT I will be ordering a few things from your store, I love the purple flowers, since purple is my favorite color. Mary is there anyway you can personally make me a heart picture too? Not sure if that is possible but I would love something that means so much to on me. Thank-you for listening to me. I love you both and Ollie too. God bless you both always. 💜💙🐶
I got my Laugh Every Day decals this weekend and I am so excited to use them. I absolutely love watching your videos. You are so positive regardless of your health and life circumstances! Im so thankful you have decided to vlog your life as I love following your life and praying for you both as you go through the good and the bad!!! God bless!
Mary and Peter are a great couple.They both take care of each other.Peter is positive and Mary to.Its so hard to go through.Mary goes with the flow.I think your fuel is helping Mary.She has been busy with the store and getting orders out.Love watching.Hugs,Margaret from Florida.😀💝
I found myself saying " Do what you think you can't do " the other day. I was carrying in groceries. My asthma is really bad even with all the meds I do and treatments also. I chuckled and thanked God for the Frey Life. Maybe make a wall decal of it, just like the laugh decal. Love you guys, God Bless !!!
Seriously you guys help me and my husband so much. I was diagnosed with a chronic illness about 3 years ago and some times it's hard to listen to my body and you have taught me so much of it's ok some days to just lay low. As for peter you taught my husband how to just be there as a husband he was having a hard time not being able to fix my health. All doing this with god in mind. Thank you for helping me and my husband
I know about serious illness. I had sepsis last September and was diagnosed with a congenital heart defect, and in October I had a tumor the size of a watermelon removed along with a hysterectomy because the tumor was cancer. so far I am almost 1 year cancer free. Heart condition will eventually require surgery. But I feel blessed that I am not going through what you are. I will pray for you.
Cool seeing people do this themselves. I do this as a job for people with disabilities who aren't able to move their limbs etc. The lines get blocked a lot. Water unblocks usually but sometimes we have to use cocacola to unblock them. Seriously.
Hey Mary & Peter! I recently started watching your videos and I absolutely adore you two. I just wanted to say thanks for being such an inspiration and for giving me something positive to look forward to even on the hard days.
Love you guys, Peter, Mary and Ollie 💜 your message of laugh every day is true and so valuable. ( and now when you sing your various songs eg. Fly when you think you can't walk! I find myself singing with you) continue spreading your good messages 🐶❤️
I have only recently stumbled upon your 'vlog' and have watched a few of the older vids and some of the newer ones & I have to agree with "TheTuesday11", regarding Peter. Not every man could do what you do, and I'm not talking about the medical stuff. As I watched the vid about the first lung transplant convo, you sat together talking, she reached out for your hand, for support and comfort and not only did you accommodate that, but you sat intently listening to her and watching her. This appears to be the normal thing to do for you, and of course it's the right thing, but I hope you also realize that most men aren't equipped to do that. I KNOW Mary appreciates that in you, and so do the rest of us. Thank you Peter for being the man you are. I've watched enough to discern that you being the way you are has NOTHING to do with Mary having CF, it's just the kind of man you are. Mary you'll remain in our prayers, thanks for sharing, I'm sure many people will find help and strength in watching. God richly bless you both. (Remember... Cast all your cares....!!!!!)
the chemistry with u two u can tell ur soulmates and I just want to say I'll keep u in my prayers and ur so strong and ur husband is so amazing... u guys r awesome
I don't know if you'll see this or read this but I know how you feel about having headaches all the time and nausea I have a rare condition called functional neurological disorder it's a disorder caused by stress anxiety or traumatic event you can have multiple symptoms I have migraines leg spasms seizures another illnesses also I struggle with multiple health problems and watching you with your positive attitude makes my day
Hi from The Netherlands😊 I think it's absolutely incredible you see the positive side of things! I live with an invisible disability and staying positive helps but it is hard. Respect to you and Peter for being positive!😃
Energetic reasons and gastroporesis from Ehlers-Danlos mean I'm close to NJ right now. Your videos have helped me a lot with planning and knowing what the future will be like. Thank you.
I hope ivig went well today. I start my week of ivig Monday and I'm ready for it. My body is just weak all over because of my Myasthenia Gravis. You both are a huge encouragement to me. I thank the Lord above for you both each day.
Hello from South Florida!! I can somewhat relate to to you, I have rheumatoid arthritis some days are harder than others. I hate having a bad day when there's things to be accomplished. I had a g tube when I was 13 and hooked up to feedings every night for 2 years to help me gain weight. I hope you continue to get better. Sending gentle hugs your way.
I to agree with others comments, you guys are amazing, an inspiration, so sweet, so positive and an absolute pleasure to watch. Thank you for sharing your lives xxx
Hi Mary & Peter! Sometimes when a line doesn't flush easily, it can be helpful to just move your end either up/down or left/right to find the sweet spot. When a feeding tube is clogged, using Coke can help unclog it (it can take awhile but it does eventually work) BUT I hope you never have to use that trick. Hope y'all are having a lovely Saturday! Do whatcha think you can't do :-)
Hi Mary and Peter. Mary, you are so brave. One of my friends have Cystic Fibrosis and she needs a second double lung transplant. Right now, she's fighting to live.
Woo Hoo on all your orders!! I'm glad you got that extra "boost" Mary. :-) I love you guys so much, and I'm sending my hugs, love and support as always. Love and hugs to the 3 of you, see you tomorrow!
I just found your channel and I have to say I absolutely adore you both and your sweet Oliver! Your love radiates through your videos, this is the 3rd one I’ve watched. God Bless you!!!
I truly think you are doing a great service by sharing your journey. It makes people understand what CF means (or that it even exists!) and I'm sure your spirit is going to help people with CF to feel better about their own journeys. Stay strong. You guys are amazing!
Thank you for sharing your life. I appreciate your candor in dealing with C.F. it does my heart good to see that other people have bad days like I do. God Bless you both.
i luv this page, im a 38 yr old new to feeding tube thought it would be a few months is already been a yr. is a learning experience .....thanks for sharing
Peter is so patient with all of her illnesses. He always seems to stay positive and even up lifting. Amazing to watch a young man watch his wife suffer with illness and remain so positive!
I know them. lived with them... it was amazing, and beautiful and humbling. they are both exactly as they seem....full of grace and love for each other every day.
Unfortunately not every spouse/life partner can handle the illness of their spouse/life partner, despite how positive etc the sick spouse/life partner is. It's a rare person who can do that and Peter is one of the rare people.
TheTuesday11 ikr?? Thank god for Peter.
That's exactly what I am talking about, unconditional love. From your words, ît's obviously there with you and your husband as it is with Mary and Peter. I wish there was peace, harmony and love the world over. I wish I could hélp others like I used and more than I can now. If my husband was in my position I would move heaven and earth for his health and well-being.
Yes, they are beautiful souls. I've seen life partners that were more loving and committed than thœse that are married. As @S. Elizabeth n Milton said " it's more than just because of sticking to vows, though that is important. It's their true unconditional love for each other. This is a spiritual phenomena, not merely frivolous and unrealistic romanticizing." Which obviously is there between herself and husband too.
I had to get my tooth filled today, and I kept thinking "Do what you think you can't do" and "if Mary can get a feeding tube, I can do this!"
the way Peter looks at Mary just melts my heart 💗
What a fantastic couple. Mary, you are a inspiration and your husband is a awesome support.
Peter is so patient with Mary and her illness. It's so amazing to see him caring for her so much. He's also very educated on Cystic Fibrosis. These vlogs make me realize that I'm so blessed to be 100% healthy. I hope that everybody that watches these vlogs that they are blessed. I love you guys.
I have Chrons Disease and for 2 years I have been struggling to keep food in my body. I've recently been on daily probiotics and they work! I'm able to eat meals and not be sick 10 minutes later. I'm hoping I gain weight and keep my weight stable.
Just finding out that I have Cystic Fibrosis 6 days ago now is getting to be very overwhelming doctor wanting me to do all these medications and breathing treatments I don't understand most of it and I don't feel well but I noticed a big change when I stated taking the creon enzines I could finally eat a meal with out pain and feeling sick I celebrated I was so happy 😊😊 and I was relevieved to know why I was sick for so long and now I understand how Mary feels :-( I pray for Mary and Peter every day for there such a blessing in my life ever since I stumbled across there vlogs on utube they become a part of my family and life :-) it's kinda ironic that Mary got CF and I discovered I have it and she has a service dog and I was already training mine so there was a calling there and a purpose there and a meaning a reason !!! Mary and Peter where meant to be apart of my life so I'm so thankful I pray Mary feeding tube helps her and she gains the purpose of it and gains strength to do her yoga and freedom to do what she wants and to feel better :-)
skrilllax fan tecno Found out my son had cf too at age 12. It was a slow process at first, but with patience and support, he has managed. Hang in there, everything will work out. You have done a good job so far!
What were your symptoms?
Hello could you explain more about you not being able to eat and no pain plz I’m sick and I can’t eat my body dnt allow me to anymore 😭😭 I’m searching for answers the doctors dnt kno how to help me
just watched this video for the first time and saw your comment, for some reason it spoke to me (maybe because I recently had a tough diagnosis). I hope you are doing really well!!!! sending you love
Your channel has become one of my favorites, I will watch your videos before any others in my feed!
Yay Mary! So glad you got a burst of energy and was able to have a productive day. That is a great feeling!! Its so good to hear that your body is starting to tolerate the tube and the feeds better. The beginning can be so rough.
PS Your leggings are "out of this world!"
Peter,you're such an amazing loving caring husband to Mary! Mary altho you are cronicly ill, you are a fabulous wife! I'm praying for you! I'm so glad this NJ tube is a little easier for you! I for one just can not get past the gag reflex. 😭 With my RA so severe I to struggle with wanting to do things and my body just won't allow it. Some days all I can do is cry. Some days I do laugh my way thru it! Love you both and of course Olli!
Tracy, I have Osteo and fibromyalgia, among other things, and I know that feeling... and I laugh a LOT because it sure beats crying! (though I'm not immune to tears either...) Prayers for you sweet lady!
Thank you so much! Prayers for you too!! We've all been judged by people before there were visible signs and that is so very hard to get thru! I have lupus And osteoarthritis as well the RA!! I pray for all the people out there in the world whom suffer in silence .
Tracy Fletcher I also have ra, as well as fibromyalgia, fatigue, as well as several other things. we just gotta do what we think we can't do! keep on truckin!
Ali , yes fly when we can't walk! Mary comes up with amazing little sayings.
Tracy Fletcher god bless you !
I have an 11 week old phantom standard poodle that is my service dog prospect!! So I'm busy with puppy stuf and private training 😊
Rachel Jay I have a 10 month old black standard sd prospect!
Flew when I couldn't walk last night and had fun fellowship with some of our ladies at church. And today getting a little cleaning done. You go girl!!!
She so pretty and one of the nicest person ever xx
I'm wearing my "Laugh Every Day" shirt today... I paired it with a bright pink shirt. I also got my flower picture all framed and hung on the wall
Hey guys , when you have issues like you do it's hard to keep being cheery . I just got told my new kitchen will be in within 4 weeks. Right now my legs won't hold me up and my new kitchen is an indicator for what's coming. I won't have a pantry I'll have pantry draws and I won't have a normal stove /oven it will all be at my wheelchair height. I love you guys and I have an attitude similar to yours. You just have keep going , I used to say keep up the good fight now I say one minute at a time ... Lupus had enlarged my spleen and my pancreas doesn't function and now fatty liver disease .
People must think I live on junk food when the opposite is true I can't eat junk food , I live on fruit and veg, I have trouble with food and always have so I am so happy you are getting most of your nutrients through your tube , I do t take up any vitamins from my food and I can't even take extra vitamins . Anyway watching you both inspires me .god bless xoxo
Stalwart, Michigan in the Eastern Upper Peninsula... still COLD here!! Snowing today. Praying for a miracle for you Mary!!
I admire your ability to not act like a sick person. With Fibromyalgia I have to rest a lot, especially with flares. Right now I am going through a health problem which amplifies the Fibro. It's so easy for me to fall into the trap of "being sick". With all the work you do with CF it's amazing you don't let it get you down! And when you listed all the work you got done while feeling good, us Fibromyalgics call that Fibromanic. It's that limited ability you get once in a while to get things done, so you got full on manic and do as much as you can while you can!
I so understand I've got that with Chronic migraines I've had since age 7... toss in PTSD & a few others & I never felt good enough. I found my Peter last year & w/ him, my parents & The Frey Life I'm not wishing to die in my sleep plus finding my way back to God whom I've been very angry at.
I'm so thankful for you guys. My close friend just got diagnosed with CF and I don't know what to do obviously it's not my responsibility but I remembered you guys and I referred for her to look you guys up on UA-cam and she watched you Peter Oliver and she realize that other people have it and she can get through it too. you guys have made it so much easier for her like teaching her stuff about CF and made her feel like she's not alone and I want to thank you for that even though I'm one of the many people saying this in the comments or anywhere thank you and you'll always have a special place in my prayers thoughts and heart ❤️
I might be coming from a slightly different illness, but I'm so thankful for this! I've been suffering with an ED for 10 years now and I've never been on tube feeds, but I hate the stigma around it. I'm prescribed high caloric drinks with my normal meals, and I'm doing it because I WANT TO, because I'm fighting as much as I can!
I'm praying for you and Peter, every day, you're such an inspiration!
My husband and I are in a very unique position of being caregivers for each other (him with Cognitive Impairment and me with a connective tissue disorder). We joke that I'm the brains and he's the brawn. We also have 2 special needs kids, so it's a caregiving bonanza in our house. We love your videos for inspiration, yes, but also for just laughing. Come on, overnight in a Dollar Tree, hanging your old port as an ornament? All the little songs? Love it.
You are such an inspiration. I have a chronic stomach condition, which really bogs me down. It's rough when your body doesn't flow with your spirit. Praying for you daily, and I love watching your videos. Even in the bad days, God is still so merciful to give us such great hope! Thank you for being the vessel FOR that hope! ❤
I am in Cincinnati, Ohio. I love your guys videos. The strength, courage , and faith you show is such an inspiration.
RE: Tegaderm. I use it to hold Fentanyl patches on my abdomen. After I put the patch on, I put on a thin layer (VERY thin!) of barrier cream and let it dry completely then put the Tegaderm on. It stays in place 3 days and corners don't peel up much but no irritation when it comes off. After 3 days of course the glue is largely gummed with dead skin cells so the dressing comes off easier than after 1-2 days anyway!
Rich, it's amazing what they come up with! I had surgery for colon cancer six years ago, and because I'm allergic to adhesives the sterystrips they used across my incision left scars! I had an iProbe installed for a week-long test just a few years ago, and a chemical barrier that was a liquid was applied by my nurse with a brush. It lasted until they took the probe out a week later... I absolutely love the barrier solutions available these days, they WORK!
Mary, you should ask about them so maybe you can avoid skin issues... You would have to replace the Tegaderm after a week or so, but I'm sure you could manage it without disturbing the NJ tube, and it would be so much easier that what you're dealing with now!
We all care about you guys and want things to be easier for you!
Rich Boden I also use the tegaderm with my patch it's so helpful.
I'm getting an nj tube on Monday, and these videos make me feel a little less scared, thank you!
watching your old vlogs while I handle this terrible pain day from physical therapy yesterday to manage my fibromyalgia :) love you guys and I'm sending puppy cuddles from my pup cause you can never have enough puppy cuddles
Debra Bauman no you can't! 🐕🐶 I hope pt helps u n u feel some relief soon!! I have fibro as well as many other chronic pain diseases so I def get it! 💜
Hi Mary and Peter, I'm just starting to catch up on my The Frey Life......... I have been in the hospital with breathing situations. I missed y'all while there. I'm glad I got to hear you explain your current situation, Mary. Thank you and Peter for always explaining it so we can understand it. I'm praying you get stronger and they can find out what kind of bacteria or what all is going on. God be with you as you try each day to gain strength...Here's hoping Ollie is well. I have missed him too. Love your smileMary. God bless all of you.With love, Dana
My husband got a feeding tube in his stomach 2/27/18. He esophagus was compromised by the life saving g radiation he he in 1989. He can't swallow anything anymore. he aspirated to the point of getting pneumonia and collaps ing his left lung. We are Praising God he is still alive. I am grateful for your vlog, and information as we are new to all this and he is 72. I love your positive outlook.
I love peter he is so sweet and patient with her illness you can tell he loves her
I can´t believe how possitive you are and how well-adjusted to your medical condition, sometimes I complain for basic things and there you are saying it´s no a big deals to have a feeding tube! Thank you for sharing your story, you guys are so inspirational!
I just found y’all yesterday, and I am so glad I did. I have psoriatic arthritis and it’s very painful and just has its ups and downs sometimes but before that I also had a lawnmower accident on Mother’s Day and got half my foot amputated. I love watching your channel and seeing how positive you are with your condition and seeing you grow warms my heart. I am 11 and I’ve had around 20 surgeries but I’m not exactly sure maybe 18 or something but it’s been a roller coaster. Much love from Missouri!💜
"I'm so grateful" - Mary, you inspire me! Wishing you lots more cooperative body times and sending you warmth to keep for the rough ones. (HUG)
The vlog usually appears around 8pm here in the UK and if it's not there I start to get anxious! I have a chronic pain condition and my husband has Parkinson's. Life can be a real challenge but Mary is such an inspiration.
I hope you feel better soon. I know how you feel, my corepack blocked. Went to ER got another one put in. So I came to Cleveland Clinic and they decided it was time for a peg tube. When they put the peg tube in they nicked my bowl 😳😳😳 so long story short... it is 18 days later and I’m am still here with 2 drains one literally butt cheek. They put in a midline. Then decided I needed a pick line so I could still get nutrition while trying all kinds of antibiotics.
I love watching your videos because you’re such an open book for all of us. You husband is so supportive and involved and I think there are men/caregivers need to see.
And lastly of course I am Mad in love with Harry!!
See you at the next video.
Heartfelt Thanks for sharing
Respectfully yours
Kelly Gilbert. In Akron, Ohio
Hi Mary & Peter, I came across The Frey Life channel when I was researching service dogs. I have multiple sclerosis -- 30 years this spring. It's been a roller coaster life for me, but through prayers of so many people and the Grace of Jesus I have lived an incredible life.
Your vlogs, your personalities, your relationship, your Faith and your fight to live life fully is inspirational. Thank you for sharing.
You are in my prayers.
I have just watched all of your videos from old to new and subscribed! I love them and love watching you all. I especially liked your videos from Edinburgh because that’s where I am from and the hospital you were in is the hospital I go to for treatments and admittances. I’m 17 and suffer with a Chronic Illness and I think that besides both of your personalities and also Oliver’s, one of the reasons why I really like your channel is that you are both very uplifting and positive and a joy to watch. God Bless :) x
Just keep swimming, I'm currently struggling with my gastro system along with chronic illness and it's so helpful to see others understand. Wish uk health service was as good as us in terms of treatment even though we have free NHS we have waiting lists that are months and years long and also don't do treatments the way us do which is so frustrating as I see how it helps you guys but it's not available here. Anyway rant over and I just hope you have a bless day and hope your fuel helps xx
Rolling With Hannah - Life with invisible illness hey I would like you to know I'm here for you as I completely understand wait times in the uk.
Im chronically ill too and like you say, I am incredibly thankful for the NHS as without it I 100% wouldn't be able to afford any treatment but the waiting times and lack of funding for treatment is a nightmare! Sending hugs xx
ahh just checked out your channel! I have EDS and POTS too!!
Vicky R Me too. NJ tube coming soon for gastroporesis. Barium meal next week "yay"....
I'm so glad you are having an easier time with that NJ tube this time! :)
I would LOVE a bumper sticker that says "do what you think you can't do". It rings so true and deep for me. I have Ehlers Danlos syndrome and I've been saying that phraseto myself since I heard you say it. I also love "fly when you think you can't walk" because there are so many days I feel like I would love to fly and not hurt. ✨💜✨
Mary I have told you before how much you inspire me, this last week has been a challenge for me but I am using "do what you think you can't do " and fly when you think you can't walk you are such a great example
We need a recipe for Peter's fried rice. Yes, Yes we do!!
Kat Piotrowski i agree! ☺
you guys are such a cute couple, i can see how much you care for each other!
I've got Type II Diabetes. I had let my diet get wayyyy out of control in 2016, which my bloodwork exposed in Dec. My goal since Jan 1 has been to eat veggies every day and at least 1 serving of beans, which are especially good for Diabetes sufferers, and no more potato chips, candy, etc . I've been doing great! Since Jan 1 I've been making multi-veggie soups using my pressure cooker & immersion blender, so I have 2 to 4 servings of veggie soup a day, and I add some plain cooked beans to my bowl once or twice a day. It's good to snack on fresh veggie soup too.
So glad you are feeling better and are able to have hours of good energy!
I'm so thankful your doing better, I'm continuing to keep you in my prayers, my church is also praying for you!
Glad for your burst of energy. Thanks for clarifying a couple things for me. I always read all the comments & say a prayer at the end for all. You have a great family of followers who adore you & Ollie.
You two are so devoted to one another. I am so happy to have found you.
Mary- If you do happen to run into your tube getting clogged, I have a couple of suggestions that have helped us when our son's GJ tube has been clogged. First: sometimes if you pull back on the water syringe and then push it in to flush (do this pull/push back-and-forth several times) the tube will unclog. Second: we have found that flushing with Coke and letting it sit in the tube for a while will unclog the tube as well. We have tried other carbonated beverages that work ok. Coke seems to work best. Also, I noticed in previous vlogs that you didn't squeeze the air out of your pumpset before you closed the bag. Doing that has really helped us to have to deal with fewer flow issues and that pesky alarm. LOL. I hope this helps. I'm glad that you are tolerating this NJ better than the last. Have a great day! Sorry for the long comment. 😊
You are doing AMAZING!! I know it's difficult but the fuel is helping so much, the light is on behind your eyes. Prayers always!! Hugs!! You ARE A WARRIOR MARY FREY!!
I'm in San Pedro, Belize working at Holy Cross Anglican School for two weeks. It's an amazing place!
As a person with chronic illness I really look up to you. I'm also a young lady and I live with abdominal migraines which cause severe nausea. I spend a lot of time thinking if Mary can do it I can do it. Do what you think you can't do. Thanks again for sharing your life.
Hey! Just an FYI if the dressing gets unbearable I find "experimenting" with different tapes can help A LOT. Obviously your skin isn't going to be 100% when there's tape on it 24/7 but there are tons of tape you can try! Some are similar to tegaderm in that they are transparent but others are white tape which doesn't always look as nice but it's worth it for your skin at times.
maura Grier I find Tegaderm does less damage if I leave it on 3 days then change it because it comes off so easily by then that it doesn't irritate the skin.
So happy to hear that this tube is sitting a little better for you!! you are such a warrior!! 💪💪
you guys are so strong.. it makes me realize how easy I got it and that nothing that I'm going through can ever compete...stay strong and stay positive
You guys are so inspiring 💚 I wake up and feel like total crap... yet I'm still breathing, working, and living life. Thank you lord for another day with my husband and my family. Keep up the great work Mary. I'm praying for you and the Frey life
I know u r miserable a lot of the time...in November of 2017 I contracted a flesh eating bacteria in my foot and had my leg amputated n I also had my spleen removed. I was on a ventilator for 2 weeks n feeding tube for a month n I know how much I hated them...from not having a spleen I have a weaken immune system n get sick pretty often n pretty bad...it makes me happy to see how positive u guys are...bring positive n Greatful is what got me through the Last year ...i pray things very better for u...u have a amazing husband n it makes me happy to see how patient he is...i wish I guys all the best
I want to say thank you.
I have a friend (15) who has CF about as bad as Mary. I introduced her to this channel and she has found you guys amazing. She finds Mary inspiring because she is so strong throughout her journey. My friend wasn't well (emotionally) from having CF and you guys made her better. Thank you for inspiring my friend to be more positive about her life. Love you guys!
When u asked where are you at? I felt like I wanted to share that I'm having a hard time with Crohn's disease , I'm struggling rn but watching your videos always strengthen me 💖💖💖
I love how Mary calls it fuel, because the tube looks just like a fuel line for yard equipment (chainsaws, lawnmowers, weed wackers, etc). Yellow and small... so when she says fuel, I always think of gas/oil mixture LOL (yes, you have to mix the oil with the gas in most of those machines...they're not quite like cars, with separate)
You two are such an awesome couple! I received my decal in the mail today and was super excited! I'm going to put it on my laptop! I'm so glad I found you guys. You both have such a positive yet down to earth spirit. Hang in there mary and peter!!
My great granddaughter, Jasmine, just turned 2. She was born at 26 weeks. 1 month ago she had a feeding tube surgically placed in her abdomen. For a while after birth she had the nasal tube. Dr's said she could eat by mouth after the nasal tube. She did, but gained no weight. Turns out she was aspirating into her lungs; one third of each lung is heavily damaged. She will have the feeding tube her entire life, according to the drs. Nothing by mouth, ever. All her meds go through the tube. It's heartbreaking but we're grateful she's coping well, and thank God everyday she's with us. God bless you, Mary and Peter.
If you need a permanent JPeg, you might talk to anesthesia about a regional anesthesia rather than sedation. A spinal or epidural might work for that without the sedation issue. A JPeg might be too high up for that, I am not sure, but worth asking your team...As always, praying for you!
good idea....I had a total hysterectomy with and epidural and only IV sedation...I know the region is different but it was an extensive operation for me and I didn't feel a thing.
We use them for C-Sections and such all the time, but I know in Europe/UK they use epidurals for a lot of abdominal surgeries and it works really well. (I am an OB nurse)....just might be a good option....something to talk about and look into.
TaliyahMC excellent point! we do major surgeries under epidural in uk. however, i think nj placement would require a pretty high thoracic epidural. would not ve good for her lungs either
I thought of that, but would not be "as hard" on her lungs as the recovery would be a lot quicker...there is no easy answer or her docs would have done it already. :(....but was just a possible idea....I am hoping that she can recover enough not to need it. That would be amazing!
+s VDB I have a Jtube and yes it's higher up, would be hard to use just an epidural for it.
I'm working on updating my church website and just having a lazy day with my cat Rory. I'm happy to see that you have more energy now that your body is getting good nutrients. Always happy to see you and Peter and Ollie in your daily vlogs.
I think you two are the most gentle and wonderful people out there. I am not ok with most "god talk" (because of my past) but for some reason I love listening to those parts of your VLog. Maybe it's because you are the opposite of what I am used to when I think of "church people" (sorry, my words aren't the best ones) but I think thats good as it speaks to your ministry. That it can be receieved by someone like myself. Which speaks volumes really. Peter, if I could find someone like you in my life, I would be one lucky person. You both are very gentle souls and I love watching your vlogs. I don't have CF and the medical and mental illnesses I do have pale to CF I think, but I struggle a lot alone. It's hard to have medical and mental issues alone. So theres that I guess. And now I am just rambling. I think I was getting at agreeing that Peter is a rare person to have such an understanding and it shows your love for each other. I think thats what I love about your vlogs. That and it helps me to push onward. Ok, shutting up now.
Hi Mary and Peter. I just started following you guys and I love your channel. I love medical videos. I have Rheumatoid Arthritis since 2017 and I am on two immunosuppressants to include one weekly self-injectable. I am a twin mom so living with chronic illness sucks!!!! When my kids want to play with me there are time I cannot do it and it sucks!!!! Please continue to be well and safe during this pandemic.
I only wanted to share, that I did get my g-tube without general anaesthesia. Because I'm HIGHLY allergic to general anesthetics, we did it with local anesthetic (injection into the abdominal wall) only and it worked. It was - for SURE NOT comfortable - but the risk of general anesthesia compared to this procedure was worth it. MAYBE that't an option for you if you do need a g-tube or j-tube in the future. But for now keep adapting to your fuel. You guys are awesome!!!
I love the Frey life.💜💙 I wish I could me you both someday, if that is ever possible, you both are my inspiration. When I am having a available bad day, I keep singing. Think what you can't think do. I suffer from depression, anxiety disorder and panic disorder. I have been through alot in my 52 years of life, I had a hysterectomy during the birth of the second child. I had open heart surgery to repair a leaky valve at age 44 and 1 year after that I was diagnosed with kidney cancer that was found unexpectedly and couldn't go through the regular surgery since the year before that I had open heart surgery, so they found a Dr. who did it roboticalty and they took 1/2 of my right kidney. I see what you go through and I wish I had your positive attitude. This site is for you and not me sorry, but something I need to vent. After our vacation visiting my parents in FL as we live in CT I will be ordering a few things from your store, I love the purple flowers, since purple is my favorite color. Mary is there anyway you can personally make me a heart picture too? Not sure if that is possible but I would love something that means so much to on me. Thank-you for listening to me. I love you both and Ollie too. God bless you both always. 💜💙🐶
I just discovered you lovely people today.....im so glad i found your videos!! May God give you the strength to keep pushing on!!
I got my Laugh Every Day decals this weekend and I am so excited to use them. I absolutely love watching your videos. You are so positive regardless of your health and life circumstances! Im so thankful you have decided to vlog your life as I love following your life and praying for you both as you go through the good and the bad!!! God bless!
Mary and Peter are a great couple.They both take care of each other.Peter is positive and Mary to.Its so hard to go through.Mary goes with the flow.I think your fuel is helping Mary.She has been busy with the store and getting orders out.Love watching.Hugs,Margaret from Florida.😀💝
I found myself saying " Do what you think you can't do " the other day. I was carrying in groceries. My asthma is really bad even with all the meds I do and treatments also. I chuckled and thanked God for the Frey Life. Maybe make a wall decal of it, just like the laugh decal. Love you guys, God Bless !!!
Seriously you guys help me and my husband so much. I was diagnosed with a chronic illness about 3 years ago and some times it's hard to listen to my body and you have taught me so much of it's ok some days to just lay low. As for peter you taught my husband how to just be there as a husband he was having a hard time not being able to fix my health. All doing this with god in mind. Thank you for helping me and my husband
I know about serious illness. I had sepsis last September and was diagnosed with a congenital heart defect, and in October I had a tumor the size of a watermelon removed along with a hysterectomy because the tumor was cancer. so far I am almost 1 year cancer free. Heart condition will eventually require surgery. But I feel blessed that I am not going through what you are. I will pray for you.
I hate the 'my mind wants to do things but my body says yep nope not going to happen' days
Cool seeing people do this themselves. I do this as a job for people with disabilities who aren't able to move their limbs etc. The lines get blocked a lot. Water unblocks usually but sometimes we have to use cocacola to unblock them. Seriously.
I'm loving my life in Spearman, Texas!!! Thanks for sharing your life with me! Praying your body gets stronger!!
Hey Mary & Peter! I recently started watching your videos and I absolutely adore you two. I just wanted to say thanks for being such an inspiration and for giving me something positive to look forward to even on the hard days.
The way he looks at her 😻😻😻
Love you guys, Peter, Mary and Ollie 💜 your message of laugh every day is true and so valuable. ( and now when you sing your various songs eg. Fly when you think you can't walk! I find myself singing with you) continue spreading your good messages 🐶❤️
I am so happy you're getting your energy back!! XOXO
I have only recently stumbled upon your 'vlog' and have watched a few of the older vids and some of the newer ones & I have to agree with "TheTuesday11", regarding Peter. Not every man could do what you do, and I'm not talking about the medical stuff. As I watched the vid about the first lung transplant convo, you sat together talking, she reached out for your hand, for support and comfort and not only did you accommodate that, but you sat intently listening to her and watching her. This appears to be the normal thing to do for you, and of course it's the right thing, but I hope you also realize that most men aren't equipped to do that. I KNOW Mary appreciates that in you, and so do the rest of us. Thank you Peter for being the man you are. I've watched enough to discern that you being the way you are has NOTHING to do with Mary having CF, it's just the kind of man you are. Mary you'll remain in our prayers, thanks for sharing, I'm sure many people will find help and strength in watching. God richly bless you both. (Remember... Cast all your cares....!!!!!)
Hey guys. Just watched today's vlog. My wife and I are always happy when you two have a good day. Praying for you both.
the chemistry with u two u can tell ur soulmates and I just want to say I'll keep u in my prayers and ur so strong and ur husband is so amazing... u guys r awesome
I don't know if you'll see this or read this but I know how you feel about having headaches all the time and nausea I have a rare condition called functional neurological disorder it's a disorder caused by stress anxiety or traumatic event you can have multiple symptoms I have migraines leg spasms seizures another illnesses also I struggle with multiple health problems and watching you with your positive attitude makes my day
Hi from The Netherlands😊 I think it's absolutely incredible you see the positive side of things! I live with an invisible disability and staying positive helps but it is hard. Respect to you and Peter for being positive!😃
Energetic reasons and gastroporesis from Ehlers-Danlos mean I'm close to NJ right now. Your videos have helped me a lot with planning and knowing what the future will be like. Thank you.
You and Peter are so sweet glad Your feeling better thank's for the Q&A love Your happy smiles Praying that the tube works God Bless
I hope ivig went well today. I start my week of ivig Monday and I'm ready for it. My body is just weak all over because of my Myasthenia Gravis. You both are a huge encouragement to me. I thank the Lord above for you both each day.
Hello from South Florida!! I can somewhat relate to to you, I have rheumatoid arthritis some days are harder than others. I hate having a bad day when there's things to be accomplished. I had a g tube when I was 13 and hooked up to feedings every night for 2 years to help me gain weight. I hope you continue to get better. Sending gentle hugs your way.
I to agree with others comments, you guys are amazing, an inspiration, so sweet, so positive and an absolute pleasure to watch. Thank you for sharing your lives xxx
Hi Mary & Peter! Sometimes when a line doesn't flush easily, it can be helpful to just move your end either up/down or left/right to find the sweet spot. When a feeding tube is clogged, using Coke can help unclog it (it can take awhile but it does eventually work) BUT I hope you never have to use that trick. Hope y'all are having a lovely Saturday! Do whatcha think you can't do :-)
Mary you are beautiful inside and out! Peter you are so patient and caring! Both of you are amazing and inspire so many of us. 🙏❤
I'm so sorry that Friday wasn't such a good day for you. Hopefully Saturday has been much better xxxxx
Peter would be such a great father, I'm not trying to make you feel bad, but just sayin
Gabby Darty god yes he would..he has sooo much patience
Even so, Mary can’t have kids in her condition and she can’t take care of one either
Hi Mary and Peter. Mary, you are so brave. One of my friends have Cystic Fibrosis and she needs a second double lung transplant. Right now, she's fighting to live.
I'm so happy you're getting you're energy back! I love you guys :)
Woo Hoo on all your orders!! I'm glad you got that extra "boost" Mary. :-) I love you guys so much, and I'm sending my hugs, love and support as always. Love and hugs to the 3 of you, see you tomorrow!
I just found your channel and I have to say I absolutely adore you both and your sweet Oliver! Your love radiates through your videos, this is the 3rd one I’ve watched. God Bless you!!!
I just found the channel also, they are so encouraging and uplifting
I truly think you are doing a great service by sharing your journey. It makes people understand what CF means (or that it even exists!) and I'm sure your spirit is going to help people with CF to feel better about their own journeys. Stay strong. You guys are amazing!
Stay strong!!! Love life!!! Congrats to Peter for being able to stay so patient and Congrats to Mary for staying sooo strong
Thank you for sharing your life. I appreciate your candor in dealing with C.F. it does my heart good to see that other people have bad days like I do. God Bless you both.
i luv this page, im a 38 yr old new to feeding tube thought it would be a few months is already been a yr. is a learning experience .....thanks for sharing