Diagnosed with stage 3 triple negative Jan 22. 🙏 🤲 Did the red devil chemo, surgery then radiation. Praying for everyone reading this. It was terrible but I made it through.
I am going on 16 years since being diagnosed with BC. I spent 2 years between chemo. Double mastectomy, and radiation and the removal of 22 lymph nodes. I live each day to the fullest. Never know what tomorrow may bring
When you are diagnosed with TNBC, the first reaction that most will find is that it equates to a death sentence. This is NOT TRUE! I was diagnosed at 29 yo and now I am 41. I am a 10+ year survivor! You can beat TNBC!!
@@solrodriguez0197 I am a 15 year Triple Negative Breast Cancer survivor. I was diagnosed right after my 26th birthday. I just celebrated my 41st birthday.
Mine has. I will have it every 3 weeks. I just haven’t been staged yet and waiting to get petscan and results. My current plan is subject to change based on those results. I will do taxol/carboplatin with keytruda every 3 weeks. The other once weekly with radiation for 12 weeks then surgery. After that I will do more rounds of chemo, one being the red devil. If all goes as planned preventive chemotherapy for at least a year. This is only if it has not spread.
@@rams5787 going good. Only in left lymph nodes. I’m only on my 6th round of chemo. I still have a long way to go. I’m sorry to hear it’s in your mothers liver. I’m praying for y’all. Had she been in remission?
I was diagnosed with breast cancer on my left breast but the result of the biopsy no findings of her2 was reported. I had a sonogram and a citi scan was done of both breast but it was reported that the right breast had no cancer. Since my mother died of her left breast cancer and my sister just had her left breast removed because she was also diagnosed with breast cancer. After my double mastectomy and had expander placed for later reconstruction I found from my surgeon that I had made the right decision to remove my right breast because when the tissue was tested It turn out that I had her2 cancer on the right breast. My question is after doing my mamo and sonogram I was always told that I had dense breast tissue but nothing else. I just had done a mamo and sonogram in early may 2022 and around September 2022 I felt a lump in the left breast as my sister who had her left breast removed around October 2022. Now I am being referred to two specialist to determine the type of treatment I am to follow. My surgeon already told me that I have to have chemotherapy and also take a special pill for the cancer and also may be radioactive therapy. I had tumor removed from each breast around my late thirty and had requested for my two breast to be removed but no one pay attention and was referred to go for annually check ups. Now I am thinking if I had remove my breast since them I would not be going through all this pain at this age 66yrs. old. What is the percentage of my life to be extended until around my 80? I also had the genetic test done but it came back negative. Now I have nieces that may be at risk later in the future. So I/m praying that my life is extended as much as possible to see my two sons future life and enjoy some of it a a healthy individual.
I have a slight issue with confusion about BRCA, genetics testing and how breast cancer can pop up when results come back negative on carrying a gene. I took the genetics test in 2018 and it showed up negative, that I in fact did not carry the BRCA and that it had skipped me, but yet, here I am at 45, recently diagnosed with triple negative inflammatory breast cancer with infiltrating duct carcinoma and have been told I am stage 3B. This is very confusing and was a complete shatter for myself and my children, to think that I would be ok, but yet here I am dealing with this and having my life turned upside down.
Can that be passed down to the children of the person with TNB cancer? Does anyone know? This doctor is very informative! Love the way he explains everything about TNB cancer 😊👏🏻👏🏻👏🏻👏🏻👏🏻👏🏻👏🏻👏🏻👏🏻👍🏼👍🏼👍🏼👍🏼
My mother was diagnosed with triple-negative breast cancer, did neo-adjuvant chemo, and then had a double mastectomy. The pathology came back clear (full remission), yet her doctors want to "finish the treatment" with two rounds of red chemo. Is that normal and/or recommended? She didn't take well to the first chemo rounds and I am worried.
Thank you for sharing that...I was diagnosed stage 3 tnbc in June 2019. Dec 30th I was told I am in remission! God is good! Starting radiation very soon, already had the chemo and lumpectomy. You give me encourgement that I too will be saying 8 yrs one day. Thank you and may God bless all of the TNBC patients.
I'm triple negative 1 year survivor first treatment is surgery remove my right breast with 7 active lymph node after 1 month I have a 8 session chemotherapy all my hair comes out after 8 session radiation therapy 30 days and I am here continue treatment every month check up of my oncologist doctor I have daily maintenance.. And I TRUST GOD TO HEAL ME 🙏❤
Very imformative! Thank you I've learned a lot about my diagnosis, triple negative breast cancer, my nodes and BRCA came out negative, i had my 2nd cycle of chemo and my tumor shrink from 30 to 17mm. I watched your video about lumpectomy vs mastectomy as well and i am very enlightened. Thank you.
Hang in there. It is a long process. Make sure to visit our entire video based Breast Cancer School for Patients to learn more about your unique situation. www.breastcancercourse.org
I was recently diagnosed. I’m already a 12 year breast cancer survivor but it wasn’t triple negative the first time. Lumpectomy and radiation then. It’s in the same breast this time, triple negative. So I had a mastectomy, bilateral. I’ll start chemotherapy this month. Lymph nodes were clear. I’m nervous but I’m hoping it goes away and never comes back!
It will I am guessing the doctor who did the surgery wasn’t good with his “ margins” which mean cutting an extra 3 inches around the lump, GL you got this.
This is my story almost exactly. I have no genetic markers and no family history but still ended up with TNC. Finishing up the pre- surgery chemo before surgery- pray this or any other cancer comes back!
I was diagnosed stage 4 metastatic only this month and I'll undergo chemotherapy by next week..i hope everything will be fine, i will no longer undergo surgery my oncologist told me coz it's already in my spines🙏🙏🙏
I am so glad it is helpful. Make sure to review everything about surgery, medical oncology and radiation in our organized video courses at the Breast Cancer School for Patients. www.breastcancercourse.org. There is great written content and links about TNBC paired with the same video on our TNBC page here. www.breastcancercourse.org/triple-negative-cancer-2-2/
Good explanation doctor. I have a question if you could please answer .I m one year survivor of this cancer .all of my treatment is successfully done by the grace of God .First chemo then surgery tumor removed then radiation then oral chemo .last week my mammogram report was good.but the thing I can't understand is that my energy level has reduced a lot even though my doc said I m like a normal person but I can't work like before .I am a normal housewife cooking for children sometimes big dinner for guests also but before. I know this is irrelevant question but maybe help many.
My body rejected my chemo treatment so we went straight to surgery and now they say radiation. So confused. I'm brca2 and triple negative invasive ductal carsanoma. Hit me at 45. My tumor in breast did shrink but 7 lymph nodes was removed as well as both breast. What are my chances now to beat this? 4 or the 7 lymph nodes and the breast tumor had active cancer cells. What if they left some cells behind . Sooooo scared, not of dying, I know where I'm going if I die but should I do any more treatment or reconstruction surgery if I can't beat this. Being realistic, not negative. But I would rather live peaceful my last days/years than suffering. Chemo isn't an option for me anymore being it didn't do What I needed and that was rough. Taxol Chemo was worse on me than the red devil. Anyone have any insight or word or wisdom or encouragement for me?
my mom did 6 sessions of chemotherapy side effects were hectic I would request u to do chemotherapy while admitted in hospital to take care of side effects my mom died of side effects
I’m sorry to hear this. I am 45 and was just diagnosed with the same thing as you. Having a petscan on12/14, scared to death because they all seem to think it’s somewhere else too. The lymph node looked abnormal on the breast that is affected but came back normal. The mass is huge. Over 5cm. Depending on scan results I will start on taxol with carboplatin once weekly with Keytruda every 3 weeks and some point radiation.
My daughter was diagnosed with triple negative breast cancer but it was stage 4 before she found out and the doctor said having breast surgery would not be a option she had chemotherapy and she lived only 2 years once she was diagnosed . She was only 38 years she passed away August 15th 2019.
OMG I'm so very sorry for your loss. I've noticed that those, very unfortunate, girls who get breast cancer seem to be young. So young, it's terrible. My own conclusion is that most are not "of age" to have regular mammograms so it's not found until it's progressed too far. Again you have my deepest sympathy.
Besides the pain and the suffering, this disease is so costly, my beautiful daughter is only 38 and she is still working because she wants to fight this horrible disease , her body is so tired that I am afraid she will give up. Mayo clinic is treating her, because she has her work insurance, but sometimes that is not enough. I wish that there would be a Saint Jude hospital or another organization for women that are fighting cancer and the treatment could be free.
@@ilsiarocks3 Hi..ilsiarocks3, Hope you are fine! I have just come to know about this channel and also about you that you are suffering from TNBC. Actually, my mother is also suffering from Metastatic TNBC Can you please share your contact number or Email id. So that we can connect. Thanks in advance.
I am 46 y.o, newly diagnosed TNBC stage 3. had surgery-mastectomy with LD flap and implant on my R breast about 7 weeks ago. My lump size was 4,5 cm, no cancer cell found in any of my 15 lymph nodes, planning to have chemo and my oncologist said the chemo regiment will depend on my PDL-1 result instead of BRCA-1 gene as mentioned in your video. still waiting for my BRCA result. The problem is i have multiples breast cyst on my other breast, and now i am TNBC: do i need other surgery for my other breast and ovaries if my BRCA result positive? What chemo regiment is best for me? The option that offered to me are: tecentriq and abraxane if PDL-poaitive or docetaxil and carboplatin if PDL-1 negative. I'm very sad and feel "some things has gone wrongly" since the begining as i insist to have "core biopsy or lumpectomy" but thw oncologiat refused due to lump size which is more than 3 cm by ultrasound
Hi! Just curious which chemo you did and how you are doing? I'm finishing up taxol, carbo, and keytruda. Supposed to do AC next but really don't want to.
Dr. told me since we caught it early and it’s three point something that if I got a mastectomy I wouldn’t need chemo or radiation. It was not in my lymph nodes. And every time I get checked out. I’m still working on the rest reconstruction today was another operation.
I had TNBC and my first option was mastectomy and after 1 month chimio . I dont have any BRCA1 and BRCA2 mutation . My tumor had 90 % androgen receptor . The tumor was very small (thanks GOD) and lymphs not affected. I took VIDATOX Brown from Cube. It helped me to izolate tumor and not spread.
First time TN 2015 stage1b. Had Cancer removed first then chemo T&C, 4 rounds, then 33 rounds of rads. TN decided to come back 12/22. Did Flap surgery and the tumor grade3 was removed. Was given the opposition if i wanted chemo or not since my 2015 journey was not good. Could my BC receptor score have anything to do why Dr. Fox (U OF P onc ) gave me that option? I choose not to do chemo again.
My sister had the triple negative breast cancer. She had a surgery and later had her Chemo. It is three years now. She just had another scan which says "I'll defined heterogeneous hypoechoic mass with punctate calcification". She has been asked to do biopsy which will take two weeks. Please advice on what to do
Be careful to be safe from cancer eat healthy. Be away from stress as much as you can. I’m a cancer survivor Igot it from chronic stress. If you want to prevent from cancer. Read. This book the cancer prevention diet. Book for Micho Kushi .
Respect sir...my grandma is 85 years old recently she diagnosed with triple negative breast cancer....is it safe to treat her with chemotherapy? We consulted 3 doctors all are afaired to give chemotherapy. Sir can pls give me ur suggestion about her condition.she is medically fit (no DM ,HYPERTENSION, ANY OTHER MEDICAL ISSUES).KINDLY RESPOND THANKING YOU SWARNALATHA FROM INDIA
if recepors are like light switches that turn on the cancer cell to grow faster, why triple negative is dangerous? isn’t it growing less/slower ? what if my results showing triple positive ? Any specific therapy is good for triple positive? thank you very much.
Can't believe I get cure from HVS 1&2, thank you dr edaghoghon make God bless you, Email (caregivercentre75@gmail.com) for direct message on WhatsApp (+2349056731866) or follow his facebook page and share your problem. facebook.com/Dr-Edaghoghon-110658104015388/
@@irene1182 There is a facebook group called Triple Negative Warriors UK, they are a lovely group full of kindness and support. If I can help you in any way just shout Irene. my name is Yvonne. xx
@@charlesmcgee1 I'm sorry to hear she has to do chemo. Yes. Do you have questions? I had surgery, chemo, radiation and reconstruction some years later.
I had triple beg. 8 year survivor. I did not want chemo. I chose lumpectomy and radiation. I only have God to thank. He took me through and gave my treatment team and surgeon the knowledge and tools they needed to take care of me. I grateful. Look to God to order your steps. He is there waiting in times of trouble.
My sister is diagnosed for breast cancer 3 weeks ago on biopsy report the dr said u hv the choice for both lumpectomy or masectomy but now today on MRI report he said u hv no choice now so hv to go for masectomy bcz the tumour actual size is 6 cm nd nt 3 cm plzanyone if can tell wat doesit mean
I did not need chemo. Three months ago I had triple negative breast cancer. It was 3 cm that was a blessing. I did not need chemo or radiation. But I did have a mastectomy to remove both breast. I am still working on reconstruction surgery 31 December I should have my implants. I was told by my oncologist that anything below an 8 cm would not need radiation or chemo.
@@jerrilyncarnesi3742hi! How are you doing now? Cancer free? I hope you are healthy and thriving! I have tnbc. I've done half the chemo, but considering skipping the AC portion.
@@nargeskhoshdel1964 3 receptores are + they have relation with the tumor growth (Triple +) Triple negative is more genetic disorder no influence og the three commun receptors
So here’s the low down. I was diagnosed 3rd October with triple negative breast cancer that is aggressive. After 10 months post chemotherapy, 2 ops to remove the cancer from my right breast I’ve now developed 5 calcium spots on my breast. After having 5 biopsies, ultrasound, a clip insertion and 3 mammograms all in the day after worrying about keloid scarring post surgeries a year ago why the hell did my breast surgeon suggest a lumpectomy? I’m shocked and now after researching that I will be lucky to live 5years!! I wasn’t triple negative hormonal but HER2 which can travel to the organs. Is this video to promote Chemo? I am very worried that after 10 months post chemotherapy, two surgeries and radiation that last Friday resulted in 5 biopsies, 3 mammograms and another clip inserted into my breast that here in the UK I now need to wait another 10 days before the results are released.. maybe my rant is wasted here as more of a plight to sell chemo.. please prove me wrong!
I was diagnosed tnbc before 2 weeks. Before 6 months it had been seen on ultrasound and was 0.5×1.0cm. ( but doctor said it was rather benighne)Last time( 2 weeks ago) it was 1.4×1.9cm. My surgeon said it was 1 degree and before 3days it was removed( mastectomy) I will be given chemotherapy as well. I wonder how high is the possibility is me having metastasis elsewhere in body? ( sorry for my English) Tatjana.
Hi, I am from India, my mother just got diagnosed with this. I hope you’re better. If you would like to talk, please let me know. I know I need all the support I can get.
Anyone want to answer these questions. Where was TNBC discovered? Who or what team, where and what year?? I find it amazing this info is nowhere on the web. TNBC just suddenly appeared like a phantom on the scene? Anyone who can answer those questions, thank you in advance
I believe TNBC was discovered over twenty years ago. My mother in law was diagnosed with it back in 1996 and my Sister in law in 1997 she was young. My Mother In Law passed away but my Sister in law is alive and well. I too was diagnosed in 2014 with TNBC. More research is needed for sure 6 years and still in remission.
My friend has normal right breast. Her left breast Upper Outer Quadrant malignant mass, pathologically proven malignant, but no axillary lymh nodes & no multicentricity; no evidence of FDG-avid nodal or distant mestasis. Her Estrogen, Progestron & Her-2 are all negative. She has completed all tests fr. Ultrasound, Mammogram, Biopsy, MRI, PET Scan & other series of blood/laboratory tests. In her Mammogram & Ultrasonography, mass found about 15x19 mm in diameters; in the MRI, size is bigger & measures 30x21mm. Her Doctor, a Breast Cancer Oncologist, advised/plan for my friend's cure: 1. UPFRONT CHEMO (4 months, every 2 weeks & total of 8 sessions) 2.SURGERY (part of the breast) 3.Radiation (6 weeks) Hence, with this details presented; is it really necessary for my friend to undergo for CHEMO with no 100% guarantee that the mass/tumor will be gone OR is it best if my friend can skip Step 1 w/c is chemo directly have STEP 2 w/c is SURGERY to focus on removing the mass/tumor?
Diagnosed with stage 3 triple negative Jan 22. 🙏 🤲 Did the red devil chemo, surgery then radiation. Praying for everyone reading this. It was terrible but I made it through.
Mam are you all healthy now ?
How are you now? Are you NED?
I am going on 16 years since being diagnosed with BC. I spent 2 years between chemo. Double mastectomy, and radiation and the removal of 22 lymph nodes. I live each day to the fullest. Never know what tomorrow may bring
When you are diagnosed with TNBC, the first reaction that most will find is that it equates to a death sentence. This is NOT TRUE! I was diagnosed at 29 yo and now I am 41. I am a 10+ year survivor! You can beat TNBC!!
I needed to read this, this gives me so much hope!!! 🙏🏻 God bless you always ♥️
Stage mam
@@solrodriguez0197 I am a 15 year Triple Negative Breast Cancer survivor. I was diagnosed right after my 26th birthday. I just celebrated my 41st birthday.
What treatment did you did. My wife she was just diagnostic with this cancer
@@angelrogers3880 hello,where can i find u? Ig username or anything?
Could you make a video on Her2 Positive Triple Positive treatment? Thank You.
Diagnosed on 12/20/2023 stage 2b TNBC ER- PR- HER2 - HAD SURGERY TO REMOVE TUMOR ON 01-28-2024 START CHEMO THERAPY 03-25-2024
Why do you not recommend immunotherapy for triple negative breast cancer?
Mine has. I will have it every 3 weeks. I just haven’t been staged yet and waiting to get petscan and results. My current plan is subject to change based on those results. I will do taxol/carboplatin with keytruda every 3 weeks. The other once weekly with radiation for 12 weeks then surgery. After that I will do more rounds of chemo, one being the red devil. If all goes as planned preventive chemotherapy for at least a year. This is only if it has not spread.
How is it going, my mom has this it is now in liver
@@rams5787 going good. Only in left lymph nodes. I’m only on my 6th round of chemo. I still have a long way to go. I’m sorry to hear it’s in your mothers liver. I’m praying for y’all. Had she been in remission?
I was diagnosed with breast cancer on my left breast but the result of the biopsy no findings of her2 was reported. I had a sonogram and a citi scan was done of both breast but it was reported that the right breast had no cancer. Since my mother died of her left breast cancer and my sister just had her left breast removed because she was also diagnosed with breast cancer. After my double mastectomy and had expander placed for later reconstruction I found from my surgeon that I had made the right decision to remove my right breast because when the tissue was tested It turn out that I had her2 cancer on the right breast. My question is after doing my mamo and sonogram I was always told that I had dense breast tissue but nothing else. I just had done a mamo and sonogram in early may 2022 and around September 2022 I felt a lump in the left breast as my sister who had her left breast removed around October 2022. Now I am being referred to two specialist to determine the type of treatment I am to follow. My surgeon already told me that I have to have chemotherapy and also take a special pill for the cancer and also may be radioactive therapy. I had tumor removed from each breast around my late thirty and had requested for my two breast to be removed but no one pay attention and was referred to go for annually check ups. Now I am thinking if I had remove my breast since them I would not be going through all this pain at this age 66yrs. old. What is the percentage of my life to be extended until around my 80? I also had the genetic test done but it came back negative. Now I have nieces that may be at risk later in the future. So I/m praying that my life is extended as much as possible to see my two sons future life and enjoy some of it a a healthy individual.
I have a slight issue with confusion about BRCA, genetics testing and how breast cancer can pop up when results come back negative on carrying a gene.
I took the genetics test in 2018 and it showed up negative, that I in fact did not carry the BRCA and that it had skipped me, but yet, here I am at 45, recently diagnosed with triple negative inflammatory breast cancer with infiltrating duct carcinoma and have been told I am stage 3B. This is very confusing and was a complete shatter for myself and my children, to think that I would be ok, but yet here I am dealing with this and having my life turned upside down.
What is mushroom type of pre cancerous growth in your milk ducks?
Can that be passed down to the children of the person with TNB cancer? Does anyone know? This doctor is very informative! Love the way he explains everything about TNB cancer 😊👏🏻👏🏻👏🏻👏🏻👏🏻👏🏻👏🏻👏🏻👏🏻👍🏼👍🏼👍🏼👍🏼
My mother was diagnosed with triple-negative breast cancer, did neo-adjuvant chemo, and then had a double mastectomy. The pathology came back clear (full remission), yet her doctors want to "finish the treatment" with two rounds of red chemo. Is that normal and/or recommended? She didn't take well to the first chemo rounds and I am worried.
BRCA, nodes and a full PET scan, also negative.
Yes better do it
I’m an 8 year survivor. Lumpectomy and radiation. All glory to God!
You are too kind. Make sure to visit the Breast Cancer School for Patients for more information. www.breastcancercourse.org. Good luck.
Thank you for sharing that...I was diagnosed stage 3 tnbc in June 2019. Dec 30th I was told I am in remission! God is good! Starting radiation very soon, already had the chemo and lumpectomy. You give me encourgement that I too will be saying 8 yrs one day. Thank you and may God bless all of the TNBC patients.
Sarah- Smile H. Amen. Praying 4 U
Need to discuss with you as my mother has the same. So pls tell me your treatment procedure and daily life. You can mail me in
nayakrinku6@gmail.com
@@Best_Couple007 does your mom has TNBC?
I'm triple negative 1 year survivor first treatment is surgery remove my right breast with 7 active lymph node after 1 month I have a 8 session chemotherapy all my hair comes out after 8 session radiation therapy 30 days and I am here continue treatment every month check up of my oncologist doctor I have daily maintenance.. And I TRUST GOD TO HEAL ME 🙏❤
Hello, how are you now?
Praying for all of you and those in this fight. You're not alone
I'm a 22 year survivor of triple negative breast cancer, found very early, treated with lumpectomy and radiation only.
Hello
Love this doctor he's so calming and helpful with making these serious choices .
He’s horrible. Yells and screams at patients.
Very imformative! Thank you I've learned a lot about my diagnosis, triple negative breast cancer, my nodes and BRCA came out negative, i had my 2nd cycle of chemo and my tumor shrink from 30 to 17mm. I watched your video about lumpectomy vs mastectomy as well and i am very enlightened. Thank you.
Hang in there. It is a long process. Make sure to visit our entire video based Breast Cancer School for Patients to learn more about your unique situation. www.breastcancercourse.org
My wife is fighting TNBC NOW. Thank you!
I was recently diagnosed. I’m already a 12 year breast cancer survivor but it wasn’t triple negative the first time. Lumpectomy and radiation then. It’s in the same breast this time, triple negative. So I had a mastectomy, bilateral. I’ll start chemotherapy this month. Lymph nodes were clear. I’m nervous but I’m hoping it goes away and never comes back!
It will I am guessing the doctor who did the surgery wasn’t good with his “ margins” which mean cutting an extra 3 inches around the lump, GL you got this.
This is my story almost exactly. I have no genetic markers and no family history but still ended up with TNC. Finishing up the pre- surgery chemo before surgery- pray this or any other cancer comes back!
I was diagnosed stage 4 metastatic only this month and I'll undergo chemotherapy by next week..i hope everything will be fine, i will no longer undergo surgery my oncologist told me coz it's already in my spines🙏🙏🙏
God bless you, keep fighting 🙏🏻♥️
Be strong and you can beat this, I'm praying for you.
Be strong madam
Blessed soul
Prayers. I’m also been diagnosed with tnbc and awaiting petscan and results.
I'm 58 years old and was diagnosed with Stage 2b invasive carcinoma Triple Negative Breast Cancer
I am 57 and just received the same stage and diagnosis. Let’s kick this cancer Butt!!!
What a great explanation on the treatment therapies on TNBC. Thank you for taking the time to explain this. I just got dx’d with TNBC.
I am so glad it is helpful. Make sure to review everything about surgery, medical oncology and radiation in our organized video courses at the Breast Cancer School for Patients. www.breastcancercourse.org. There is great written content and links about TNBC paired with the same video on our TNBC page here. www.breastcancercourse.org/triple-negative-cancer-2-2/
I think that I would rather try the Vitamin C and Hormonal Therapy.
Good explanation doctor. I have a question if you could please answer .I m one year survivor of this cancer .all of my treatment is successfully done by the grace of God .First chemo then surgery tumor removed then radiation then oral chemo .last week my mammogram report was good.but the thing I can't understand is that my energy level has reduced a lot even though my doc said I m like a normal person but I can't work like before .I am a normal housewife cooking for children sometimes big dinner for guests also but before. I know this is irrelevant question but maybe help many.
Hello dear, the side effects of chemotherapy take for ever to completely go away. Just keep eating well and it will get better.
I am ER negative...PR negative... Her 2 negative ....my first Neo adj chemo started on 4th July 2022...I am 46 years old
My body rejected my chemo treatment so we went straight to surgery and now they say radiation. So confused. I'm brca2 and triple negative invasive ductal carsanoma. Hit me at 45. My tumor in breast did shrink but 7 lymph nodes was removed as well as both breast. What are my chances now to beat this? 4 or the 7 lymph nodes and the breast tumor had active cancer cells. What if they left some cells behind . Sooooo scared, not of dying, I know where I'm going if I die but should I do any more treatment or reconstruction surgery if I can't beat this. Being realistic, not negative. But I would rather live peaceful my last days/years than suffering. Chemo isn't an option for me anymore being it didn't do What I needed and that was rough. Taxol Chemo was worse on me than the red devil. Anyone have any insight or word or wisdom or encouragement for me?
🙏❤
Maybe there is another treatment such as immunotherapy or radiation. I begin Chemo on Tuesday for Ki-67 TNBC. Keep on fighting!
my mom did 6 sessions of chemotherapy side effects were hectic I would request u to do chemotherapy while admitted in hospital to take care of side effects my mom died of side effects
I’m sorry to hear this. I am 45 and was just diagnosed with the same thing as you. Having a petscan on12/14, scared to death because they all seem to think it’s somewhere else too. The lymph node looked abnormal on the breast that is affected but came back normal. The mass is huge. Over 5cm. Depending on scan results I will start on taxol with carboplatin once weekly with Keytruda every 3 weeks and some point radiation.
I’m still waiting on my gene testing to come back.
My daughter was diagnosed with triple negative breast cancer but it was stage 4 before she found out and the doctor said having breast surgery would not be a option she had chemotherapy and she lived only 2 years once she was diagnosed . She was only 38 years she passed away August 15th 2019.
Im so sorry. May she rest in peace ❤
😇
🙏🏽
Lots of love to your daughter and family.
OMG I'm so very sorry for your loss. I've noticed that those, very unfortunate, girls who get breast cancer seem to be young. So young, it's terrible. My own conclusion is that most are not "of age" to have regular mammograms so it's not found until it's progressed too far. Again you have my deepest sympathy.
Besides the pain and the suffering, this disease is so costly, my beautiful daughter is only 38 and she is still working because she wants to fight this horrible disease , her body is so tired that I am afraid she will give up. Mayo clinic is treating her, because she has her work insurance, but sometimes that is not enough. I wish that there would be a Saint Jude hospital or another organization for women that are fighting cancer and the treatment could be free.
I agree. The cost is ridiculous.
I'm TNBC patient undergoing chemotherapy
After MRM done
But I'm facing lot of problems
My mother also had brca.
sapana naidu love and hugs to you. I go for my report tomorrow. Positive vibes Sapana.
Sapana Naidu, I was TNBC diagnosed in August 1, 2017. Im still fighting with this cancer. The journey is not an easy one, but you must stay positive.
@@ilsiarocks3 Hi..ilsiarocks3, Hope you are fine! I have just come to know about this channel and also about you that you are suffering from TNBC. Actually, my mother is also suffering from Metastatic TNBC Can you please share your contact number or Email id. So that we can connect. Thanks in advance.
@@darpanaggarwal2201 sir my mother is also suffering from tnbc, stage3, so please contact me on 8249893376
I wish he could remove the background music
I am 46 y.o, newly diagnosed TNBC stage 3. had surgery-mastectomy with LD flap and implant on my R breast about 7 weeks ago. My lump size was 4,5 cm, no cancer cell found in any of my 15 lymph nodes, planning to have chemo and my oncologist said the chemo regiment will depend on my PDL-1 result instead of BRCA-1 gene as mentioned in your video. still waiting for my BRCA result. The problem is i have multiples breast cyst on my other breast, and now i am TNBC: do i need other surgery for my other breast and ovaries if my BRCA result positive? What chemo regiment is best for me? The option that offered to me are: tecentriq and abraxane if PDL-poaitive or docetaxil and carboplatin if PDL-1 negative.
I'm very sad and feel "some things has gone wrongly" since the begining as i insist to have "core biopsy or lumpectomy" but thw oncologiat refused due to lump size which is more than 3 cm by ultrasound
Hi! Just curious which chemo you did and how you are doing? I'm finishing up taxol, carbo, and keytruda. Supposed to do AC next but really don't want to.
Is there a group in Portugal for Triple Negative Breat Cancer patients?
Dr. told me since we caught it early and it’s three point something that if I got a mastectomy I wouldn’t need chemo or radiation. It was not in my lymph nodes. And every time I get checked out. I’m still working on the rest reconstruction today was another operation.
CDH1...estrogen + left, triple neg rt. Gastrectomy also done
Why did doctors and pathologist say it’s cancer then second opinion says no , why???
I had TNBC and my first option was mastectomy and after 1 month chimio .
I dont have any BRCA1 and BRCA2 mutation .
My tumor had 90 % androgen receptor .
The tumor was very small (thanks GOD) and lymphs not affected.
I took VIDATOX Brown from Cube. It helped me to izolate tumor and not spread.
First time TN 2015 stage1b. Had Cancer removed first then chemo T&C, 4 rounds, then 33 rounds of rads. TN decided to come back 12/22. Did Flap surgery and the tumor grade3 was removed. Was given the opposition if i wanted chemo or not since my 2015 journey was not good. Could my BC receptor score have anything to do why Dr. Fox (U OF P onc ) gave me that option? I choose not to do chemo again.
I am 44 years old.tnbc..er negative...stage..2a pathalogy (pT2N0)...stage 1st cT2nomo....pr positive...2 doughter....please help me
I am
44 years old....tnbc....2a ...pT2N0 ...8 round chemo...2 daughter...suggest me doc😭
My sister had the triple negative breast cancer. She had a surgery and later had her Chemo. It is three years now. She just had another scan which says "I'll defined heterogeneous hypoechoic mass with punctate calcification". She has been asked to do biopsy which will take two weeks. Please advice on what to do
She is only 28
May all living beings be happy, healthy, and attain nirvana!!!
My wife was recently diagnosed Metaplastic carcinoma grade 3 triple negative please guide me with better treatment
Please lmk what was done
Nice information Sir! Thnku
Make sure to visit our entire video based Breast Cancer School for Patients to learn more about your unique situation. www.breastcancercourse.org
Is this a death sentence.? How many people have been cured of this disease? I have triple neg. BC. Treated with radiation and lumpectomy.
mary mcnabb I had the same treatment. I’m still here from 2011/2012 diagnosis and treatment. God bless you!!!!
@@GospelOutside any tips to survive
Pls bcz I'm scared abt
Gospel Outside Ministries have you have no relapse? What are your diets? Im scared
My mother also had lumpectomy and radiation for stage 2A TNBC.
@@GospelOutside how are you now?
Im not breast cancer patient but im just scared to have it becsuse my both aunties have breast cancer one died anther one survival.
Be careful to be safe from cancer eat healthy. Be away from stress as much as you can. I’m a cancer survivor Igot it from chronic stress. If you want to prevent from cancer. Read. This book the cancer prevention diet. Book for Micho Kushi .
@@MM-vh1bx hi where can i buy one please
My two aunt also had cancer, one still alive the other one died. Live and enjoy your life. Don't think about it.
Respect sir...my grandma is 85 years old recently she diagnosed with triple negative breast cancer....is it safe to treat her with chemotherapy? We consulted 3 doctors all are afaired to give chemotherapy. Sir can pls give me ur suggestion about her condition.she is medically fit (no DM ,HYPERTENSION, ANY OTHER MEDICAL ISSUES).KINDLY RESPOND
THANKING YOU
SWARNALATHA FROM INDIA
With no comorbidities she can be given chemo depending on her stage
How is she now?? Pls replay
if recepors are like light switches that turn on the cancer cell to grow faster, why triple negative is dangerous? isn’t it growing less/slower ? what if my results showing triple positive ? Any specific therapy is good for triple positive? thank you very much.
Hi my friend was just diagnosed with tnbc..k167 12% and genetic testing this week
how is he now?
Can't believe I get cure from HVS 1&2, thank you dr edaghoghon make God bless you, Email (caregivercentre75@gmail.com) for direct message on WhatsApp (+2349056731866) or follow his facebook page and share your problem. facebook.com/Dr-Edaghoghon-110658104015388/
Just started the journey, thank you for all the information, it removed much of the worry. From Von Scotland.
I’m just starting too on the 22nd September ….Scotland also x…good luck
@@irene1182 Hope its going OK for you Irene, its a bit of a journey isn't it.
@@v-mac2263 certainly is…6 weeks ago my life changed. Praying we both get through this journey🙏
@@irene1182 There is a facebook group called Triple Negative Warriors UK, they are a lovely group full of kindness and support. If I can help you in any way just shout Irene. my name is Yvonne. xx
My sister is TNBC patient under going chemotheraphy is it cureable? Completly ?
I had tripple negative. I'm a 10 ur survivor
@@thenormallife1138 can i talk with you my wife tnbc and starting chemo soon
@@charlesmcgee1 I'm sorry to hear she has to do chemo. Yes. Do you have questions? I had surgery, chemo, radiation and reconstruction some years later.
Really. Any tips to survive
I had triple beg. 8 year survivor. I did not want chemo. I chose lumpectomy and radiation. I only have God to thank. He took me through and gave my treatment team and surgeon the knowledge and tools they needed to take care of me. I grateful. Look to God to order your steps. He is there waiting in times of trouble.
My sister is diagnosed for breast cancer 3 weeks ago on biopsy report the dr said u hv the choice for both lumpectomy or masectomy but now today on MRI report he said u hv no choice now so hv to go for masectomy bcz the tumour actual size is 6 cm nd nt 3 cm plzanyone if can tell wat doesit mean
May Allah gives long life to your sister and heal this disease completely too. - aameen!!!!
Chennai) ilirnthu.
So patient with TNBC in all stages needs chemo ? Right even stage 1.
I did not need chemo. Three months ago I had triple negative breast cancer. It was 3 cm that was a blessing. I did not need chemo or radiation. But I did have a mastectomy to remove both breast. I am still working on reconstruction surgery 31 December I should have my implants. I was told by my oncologist that anything below an 8 cm would not need radiation or chemo.
I am 65 years old!
@@jerrilyncarnesi3742 how your doctor said that. My cancer was 5.5cm. And my doctor said it’s large. So you need radtion
@@jerrilyncarnesi3742hi! How are you doing now? Cancer free? I hope you are healthy and thriving! I have tnbc. I've done half the chemo, but considering skipping the AC portion.
@@nd7859mine too. They say it’s huge and this sub type is very aggressive.
how about triple positive?
go and do a party :*) , after you take your drugs .
What is that mine 🧐can you please let me know what is different between triple positive and triple negative
@@nargeskhoshdel1964 3 receptores are + they have relation with the tumor growth
(Triple +)
Triple negative is more genetic disorder no influence og the three commun receptors
So here’s the low down. I was diagnosed 3rd October with triple negative breast cancer that is aggressive. After 10 months post chemotherapy, 2 ops to remove the cancer from my right breast I’ve now developed 5 calcium spots on my breast. After having 5 biopsies, ultrasound, a clip insertion and 3 mammograms all in the day after worrying about keloid scarring post surgeries a year ago why the hell did my breast surgeon suggest a lumpectomy? I’m shocked and now after researching that I will be lucky to live 5years!! I wasn’t triple negative hormonal but HER2 which can travel to the organs. Is this video to promote Chemo? I am very worried that after 10 months post chemotherapy, two surgeries and radiation that last Friday resulted in 5 biopsies, 3 mammograms and another clip inserted into my breast that here in the UK I now need to wait another 10 days before the results are released.. maybe my rant is wasted here as more of a plight to sell chemo.. please prove me wrong!
Btw I was diagnosed in October 2018 with triple negative aggressive breast cancer and my surgeon chose to do a lumpectomy 🤦♀️
I have TNBC, MOST DOCTOR LIKE TAKE SHORT CUT I HAVE STAGE 2, I WILL DO a Masectomy will be my options
I was diagnosed tnbc before 2 weeks. Before 6 months it had been seen on ultrasound and was 0.5×1.0cm. ( but doctor said it was rather benighne)Last time( 2 weeks ago) it was 1.4×1.9cm. My surgeon said it was 1 degree and before 3days it was removed( mastectomy) I will be given chemotherapy as well. I wonder how high is the possibility is me having metastasis elsewhere in body?
( sorry for my English)
Tatjana.
Hi, I am from India, my mother just got diagnosed with this. I hope you’re better. If you would like to talk, please let me know. I know I need all the support I can get.
Hai Manisha Am from Tamilnadu...my mom is suffering the same..I need to talk to you please
Anyone want to answer these questions. Where was TNBC discovered? Who or what team, where and what year?? I find it amazing this info is nowhere on the web. TNBC just suddenly appeared like a phantom on the scene? Anyone who can answer those questions, thank you in advance
I believe TNBC was discovered over twenty years ago. My mother in law was diagnosed with it back in 1996 and my Sister in law in 1997 she was young. My Mother In Law passed away but my Sister in law is alive and well. I too was diagnosed in 2014 with TNBC. More research is needed for sure 6 years and still in remission.
My friend has normal right breast. Her left breast Upper Outer Quadrant malignant mass, pathologically proven malignant, but no axillary lymh nodes & no multicentricity; no evidence of FDG-avid nodal or distant mestasis. Her Estrogen, Progestron & Her-2 are all negative.
She has completed all tests fr. Ultrasound, Mammogram, Biopsy, MRI, PET Scan & other series of blood/laboratory tests.
In her Mammogram & Ultrasonography, mass found about 15x19 mm in diameters; in the MRI, size is bigger & measures 30x21mm.
Her Doctor, a Breast Cancer Oncologist, advised/plan for my friend's cure:
1. UPFRONT CHEMO (4 months, every 2 weeks & total of 8 sessions)
2.SURGERY (part of the breast)
3.Radiation (6 weeks)
Hence, with this details presented; is it really necessary for my friend to undergo for CHEMO with no 100% guarantee that the mass/tumor will be gone OR is it best if my friend can skip Step 1 w/c is chemo directly have STEP 2 w/c is SURGERY to focus on removing the mass/tumor?
Chemo was recommended to be done first. It will stop the cancer in its track. Then proceed with removing lump/breast. Hope this helped.
It’s an aggressive type of cancer. It grows 1% each day. It needs to be treated aggressively. It has high recurrent rates
It’s an aggressive type of cancer. It grows 1% each day. It needs to be treated aggressively. It has high recurrent rates.
Yes hence over year worth of treatments.