In my friend group I’m the only one PIP assessed out of all the autistics in the group, and having to hear how my friend’s mum with chronic pain and chronic depression was refused benefits is heartbreaking. The thing with getting assessed is you always have to talk about worst case scenario, no matter how embarrassing it is to say to a complete stranger. The PIP people cancelled my appointments multiple times, then gave me an early morninb appointment that I struggled to make only for me to learn it’d been cancelled when I got there. Its a piss take.
PIP assessments are a joke... I had mine taken off me when Disability Living Allowance got changed due to not “looking like I need it anymore” I mean have you any ideas how that feels to be told that?? Luckily I had the balls to stand up to them and got the courts involved but It took me 8 months of medical documents, trials and a judge to get back what I was entitled to in the first place
The Wolf Princess thankfully the organisation I’m registered with which is for people with Spina Bifida and Hydrocephalus got heavily involved so DWP didn’t have a leg to stand on
The Wolf Princess thank you and exactly, yes ok I might not be in a wheelchair like some of the more severe cases of spina bifida which ive seen first hand through therapy and treatment, but hydrocephalus isn’t visual its neurological as it affects your brain and how you function so although i might look “fine” to them that doesn’t mean I am
Rob Picken there was something about autism some time again where there were changes that were going to be planned. I had to make a video on it because I felt very cross after hearing about it.
When DLA switched to PIP in my area I was given no notice and my money just stopped. Since then I've applied time after time and have been denied due to "no evidence" despite providing everything they ask for and more. My disabilities stop me from being able to work, drive, and be in mainstream education but I still can't get the PIP support I need!
I have DLA but I’m only 14 and the process is so difficult for a kid and the amount of questions and doubt about my difficulties are so rude. The first paper is so horrible and they count it in the amount of minutes of care you get a day. If you shower for less time then you will get less money due to the fact that they only care about the statistics not the trouble and humiliation you have to go through to get it.
Being asked to prove you can walk and tell them that you can wipe your own backside is humiliating when those are not the areas raised as your disability
At least in the UK you're entitled to get a chance. I'm an American. I was born with an easily correctable knee deformity yet I've never taken a step without pain. With no medical insurance, I resigned myself to suffer. This year, it got too bad to walk. I've seen a specialist (who saw me out of pure charity) who has told me I require at least 2 major surgeries to walk again from the damage it's done. People my age can't get disability here, so I can either starve or exacerbate the problem by working. I go back to work in April, at a job that will not allow wheelchairs. No jobs in my area DO allow wheelchairs. I'll probably cripple myself for life over an issue your government fixes for free. And despite being unable to work, there is no assistance to be had. I'd rather just be dead than American. Even if they're ignorant about it, at least your government tries to help.
Hun I'm so sorry for the nightmare ,your living ,but the part where you said that your works do not allow wheelchairs ,is pure discrimination against disability ,have you got a disability rights bureaux ,as you need someone to fight your corner , that is so wrong ,and yes I'm very grateful for the help ,when we do get it in this country , but when it goes wrong ,like at this moment ,with this government ,it goes horribly wrong which is happening for alot of people in Britain being brutally asessed and left with no income ,!!!
Brilliant speech Alex, The entire PIP system needs an overheal! #It's run by IT companies, yet you have to fill the form in on paper by hand, there's no other way like an online form (it's a new system!).🙄 #The assessors aren't qualified, how is a physio going to assess my mental health or the rare & complex condition I have? #There is no recording of the assessment on audio or video, despite widespread reports of assessors lying. (To call an assessment independent & unbiased is laughable!) #There is no accountability (maybe by design). #Corners are being cut to meet demand; specialiseds/ doctors aren't being contacted, lots of copy & pasting is evident, with no attempt to understand the condition and how it may affect them. #It seems that many PIPs are automatically denied, on the chance that the claimant won't have the energy to fight the decision. I had my first PIP assessment earlier this year and (it was denied). I had another medical assessment the following week (by a doctor this time). Who ended the physical exam early because it was obvious what the results would be. He also offered to cover the Uber home as he could see it would be quite a challenge for me. I thought these were in conjunction with PIP as the first assessor really didn't examine me, but it turned out it was ESA, so the DWP commissioned two separate (but essentially the same) medical tests a week apart, at least one was done by someone who is qualified. This will probably go to a tribunal, which only creates a huge amount of stress, and a big waste of time/ money for everyone involved as I easily qualify - which isn't a great thing. I would happily drop all this and dealing with these 🤬🤬🤬 tomorrow if I could get my life back. Don't take your health for granted, it won't last forever.
I'm so glad that it's not a form online ,not all of us have use or can use computers ,it would be a nightmare for me personally ,but they could do a compromise ,and a choice to people ,if they want to fill it in online ,but not compulsory ,definitely give me a pen and paper anyday lol
A friend who accompanied me for a WCA thought I was exaggerating. Until she saw one, She then described it as dehumanising. Similar with my PIP "assessment". She was more hopeful as the "assessor" came across as rather pleasant. Then my claim was rejected and the report I had to ask for came through. She was furious about the report and supported me to Tribunal. I am very grateful for her help, but she still thinks it was an anomaly, not the design of the system.
She's a very kind person, in her late 70s who has no direct experience of such things. She knows people can be shits, having fostered children in the past. But is trying to get to grips with the idea that systems can be designed to deny (and harm) people. Which is more than many. Not only is she learning, she will do anything she can to help people in need. Give me someone who helps and wants to understand over someone who refuses to even acknowledge blatant cruelty any day!
I have autism and I went for a PIP assessment, and they asked me the question "how does that effect your life?" I don't fucking know, I was born with it. And then they rejected me because half the time I was able to give eye contact, fucking mental
PIP assessment is a very bad joke! Assessor asked me to stand then sit and decided based on that I can walk more than 50 metres, despite explaining the multiple chairs dotted around allowed me to sit so I could get to bed/sofa/kitchen and that even on best of days I struggle to walk the 8 metres to the car (I use powerchair to go out). She also stated I showed no sign of anxiety (not true) therefore do not have panic attacks, failing to take into account that she was in my home with my friend present.
The lies are so frustrating. The "HCPs" who perform the "assessments" only get the job based on their registration. But when they lie and/or otherwise go against their professional training their registration bodies say they were not acting in a professional capacity. There is no justice here.
I have a PIP assessment today but that money means I can stay in school and not have to find a job I'm 16 and I already dread were my future is going out country needs to change and soon
I find SEN and disability assessment experiences so negative,it’s always focusing on what people struggle with or can’t do. Rather than what they can do which I understand but then you wouldn’t have a reason for the support but I do they they should be more balanced.
This article offers a great explanation of the difference between the two words: slate.com/human-interest/2016/08/colored-person-versus-person-of-color-how-does-society-decide-which-racial-terms-are-acceptable.html
If Alex is speaking about the cruelty of the Labour government in power, regarding disability financial payments... don't forget it was Tony Blair as PM which means he was a Tory really...he was great friends with Margaret Thatcher... enough said!
@@seanspawn7805 Exactly. So as a disabled person who has seen so many others fucked by the injustice of the system of course he will speak with passion and bias.
@@archstanton6102 sry mate. you've taken my attempt at a joke seriously. I've been cheated by the system here in Ireland for many years. I genuinely like the team at the last leg. So again apologies if you were genuinely offended.
I have autism and I went for a PIP assessment, and they asked me the question "how does that effect your life?" I don't fucking know, I was born with it. And then they rejected me because half the time I was able to give eye contact, fucking mental
They just rejected me and said I understood how my autism effects me and that shows good cognition, so they don't believe I have it. I'm appealing, but they're refusing to look at my autism report for evidence. Which is a shame because it backs up everything I say I have problems with. You can't win Scine.
Very beautifully said and with such openness and honesty...let's hope a few politicians can take a lesson from you guys in how to be human.
In my friend group I’m the only one PIP assessed out of all the autistics in the group, and having to hear how my friend’s mum with chronic pain and chronic depression was refused benefits is heartbreaking. The thing with getting assessed is you always have to talk about worst case scenario, no matter how embarrassing it is to say to a complete stranger. The PIP people cancelled my appointments multiple times, then gave me an early morninb appointment that I struggled to make only for me to learn it’d been cancelled when I got there. Its a piss take.
PIP assessments are a joke... I had mine taken off me when Disability Living Allowance got changed due to not “looking like I need it anymore” I mean have you any ideas how that feels to be told that?? Luckily I had the balls to stand up to them and got the courts involved but It took me 8 months of medical documents, trials and a judge to get back what I was entitled to in the first place
Rob Picken it’s an awful thing for people to hear.
The Wolf Princess thankfully the organisation I’m registered with which is for people with Spina Bifida and Hydrocephalus got heavily involved so DWP didn’t have a leg to stand on
Rob Picken I’m glad you were able to get though this. People seem to be so insensitive with these things and have no understanding at all.
The Wolf Princess thank you and exactly, yes ok I might not be in a wheelchair like some of the more severe cases of spina bifida which ive seen first hand through therapy and treatment, but hydrocephalus isn’t visual its neurological as it affects your brain and how you function so although i might look “fine” to them that doesn’t mean I am
Rob Picken there was something about autism some time again where there were changes that were going to be planned. I had to make a video on it because I felt very cross after hearing about it.
When DLA switched to PIP in my area I was given no notice and my money just stopped. Since then I've applied time after time and have been denied due to "no evidence" despite providing everything they ask for and more. My disabilities stop me from being able to work, drive, and be in mainstream education but I still can't get the PIP support I need!
That happened to me, not even a letter telling me my payments would be stopping. Best of luck
could 👏🏼 not 👏🏼 agree 👏🏼 more 👏🏼
I have DLA but I’m only 14 and the process is so difficult for a kid and the amount of questions and doubt about my difficulties are so rude. The first paper is so horrible and they count it in the amount of minutes of care you get a day. If you shower for less time then you will get less money due to the fact that they only care about the statistics not the trouble and humiliation you have to go through to get it.
Very well written Molly ,and I'm so sorry honey at your age you have to go through these horrendous struggles xxxxxx
I'm going back through tribunal a year later because of ESA. LAST YEAR I was going to tribunal for PIP AND ESA.
I’ve commented it before and I’ll comment it again. Alex for Disabilities Minister.... #alex4DM
Being asked to prove you can walk and tell them that you can wipe your own backside is humiliating when those are not the areas raised as your disability
It's humiliating when it is affected by your disability!
Remember they don't give a 💩 and they're not interested
Once again Alex is completely eloquent
At least in the UK you're entitled to get a chance. I'm an American. I was born with an easily correctable knee deformity yet I've never taken a step without pain. With no medical insurance, I resigned myself to suffer. This year, it got too bad to walk. I've seen a specialist (who saw me out of pure charity) who has told me I require at least 2 major surgeries to walk again from the damage it's done. People my age can't get disability here, so I can either starve or exacerbate the problem by working.
I go back to work in April, at a job that will not allow wheelchairs. No jobs in my area DO allow wheelchairs. I'll probably cripple myself for life over an issue your government fixes for free. And despite being unable to work, there is no assistance to be had. I'd rather just be dead than American. Even if they're ignorant about it, at least your government tries to help.
Hun I'm so sorry for the nightmare ,your living ,but the part where you said that your works do not allow wheelchairs ,is pure discrimination against disability ,have you got a disability rights bureaux ,as you need someone to fight your corner , that is so wrong ,and yes I'm very grateful for the help ,when we do get it in this country , but when it goes wrong ,like at this moment ,with this government ,it goes horribly wrong which is happening for alot of people in Britain being brutally asessed and left with no income ,!!!
5 years later and nothing has changed
Well said Alex .
ty Alex! You're always amazing!
Brilliant speech Alex,
The entire PIP system needs an overheal!
#It's run by IT companies, yet you have to fill the form in on paper by hand, there's no other way like an online form (it's a new system!).🙄
#The assessors aren't qualified, how is a physio going to assess my mental health or the rare & complex condition I have?
#There is no recording of the assessment on audio or video, despite widespread reports of assessors lying. (To call an assessment independent & unbiased is laughable!)
#There is no accountability (maybe by design).
#Corners are being cut to meet demand; specialiseds/ doctors aren't being contacted, lots of copy & pasting is evident, with no attempt to understand the condition and how it may affect them.
#It seems that many PIPs are automatically denied, on the chance that the claimant won't have the energy to fight the decision.
I had my first PIP assessment earlier this year and (it was denied). I had another medical assessment the following week (by a doctor this time). Who ended the physical exam early because it was obvious what the results would be. He also offered to cover the Uber home as he could see it would be quite a challenge for me. I thought these were in conjunction with PIP as the first assessor really didn't examine me, but it turned out it was ESA, so the DWP commissioned two separate (but essentially the same) medical tests a week apart, at least one was done by someone who is qualified.
This will probably go to a tribunal, which only creates a huge amount of stress, and a big waste of time/ money for everyone involved as I easily qualify - which isn't a great thing. I would happily drop all this and dealing with these 🤬🤬🤬 tomorrow if I could get my life back.
Don't take your health for granted, it won't last forever.
I'm so glad that it's not a form online ,not all of us have use or can use computers ,it would be a nightmare for me personally ,but they could do a compromise ,and a choice to people ,if they want to fill it in online ,but not compulsory ,definitely give me a pen and paper anyday lol
My disability assessment was more like a interogation !
rarecockneyguvnor I was just talked at. Talked over. She tried to trip me up and confuse me. And then I was denied! Shocker!
A friend who accompanied me for a WCA thought I was exaggerating. Until she saw one, She then described it as dehumanising.
Similar with my PIP "assessment". She was more hopeful as the "assessor" came across as rather pleasant.
Then my claim was rejected and the report I had to ask for came through. She was furious about the report and supported me to Tribunal.
I am very grateful for her help, but she still thinks it was an anomaly, not the design of the system.
@@LG-cz6ls she thinks its an anomaly because the truth is too hard for some people to bare.They go through life NOT admitting the truth.
She's a very kind person, in her late 70s who has no direct experience of such things.
She knows people can be shits, having fostered children in the past. But is trying to get to grips with the idea that systems can be designed to deny (and harm) people. Which is more than many.
Not only is she learning, she will do anything she can to help people in need.
Give me someone who helps and wants to understand over someone who refuses to even acknowledge blatant cruelty any day!
@@LG-cz6ls of course at least she care.
I have autism and I went for a PIP assessment, and they asked me the question "how does that effect your life?" I don't fucking know, I was born with it. And then they rejected me because half the time I was able to give eye contact, fucking mental
PIP assessment is a very bad joke! Assessor asked me to stand then sit and decided based on that I can walk more than 50 metres, despite explaining the multiple chairs dotted around allowed me to sit so I could get to bed/sofa/kitchen and that even on best of days I struggle to walk the 8 metres to the car (I use powerchair to go out). She also stated I showed no sign of anxiety (not true) therefore do not have panic attacks, failing to take into account that she was in my home with my friend present.
The lies are so frustrating.
The "HCPs" who perform the "assessments" only get the job based on their registration. But when they lie and/or otherwise go against their professional training their registration bodies say they were not acting in a professional capacity.
There is no justice here.
Rather apt this has appeared in my suggested, I have a reassessment in a couple of days (for my life long disabilities).
I have a PIP assessment today but that money means I can stay in school and not have to find a job I'm 16 and I already dread were my future is going out country needs to change and soon
I'm so sorry its utterly disgusting how you feel but you have a long future and a long way to go they will be gone one day xxx
I find SEN and disability assessment experiences so negative,it’s always focusing on what people struggle with or can’t do. Rather than what they can do which I understand but then you wouldn’t have a reason for the support but I do they they should be more balanced.
I've heard a lot of people say 'people of colour' as a description. How is that allowed yet 'coloured' is offensive?
This article offers a great explanation of the difference between the two words: slate.com/human-interest/2016/08/colored-person-versus-person-of-color-how-does-society-decide-which-racial-terms-are-acceptable.html
Im not gonna lie i have no idea what everyone wants to be called anymore
Fit
The comment about her saying coloured forgot to mention the context of how it was used in a positive way
If Alex is speaking about the cruelty of the Labour government in power, regarding disability financial payments... don't forget it was Tony Blair as PM which means he was a Tory really...he was great friends with Margaret Thatcher... enough said!
First.
Hey Alex man, your a grand lad and everything but on this subject I think you are a bit biased.
If you get robbed are you biased when talking in court at the trial of the burglar?
@@archstanton6102 yeah, course you are.
@@seanspawn7805 Exactly. So as a disabled person who has seen so many others fucked by the injustice of the system of course he will speak with passion and bias.
@@archstanton6102 sry mate. you've taken my attempt at a joke seriously. I've been cheated by the system here in Ireland for many years. I genuinely like the team at the last leg. So again apologies if you were genuinely offended.
@@seanspawn7805 No just a misunderstanding. I thought you were being dismissive of his view.
Good luck in your own battles with the system
Fist
I have autism and I went for a PIP assessment, and they asked me the question "how does that effect your life?" I don't fucking know, I was born with it. And then they rejected me because half the time I was able to give eye contact, fucking mental
They just rejected me and said I understood how my autism effects me and that shows good cognition, so they don't believe I have it. I'm appealing, but they're refusing to look at my autism report for evidence. Which is a shame because it backs up everything I say I have problems with. You can't win Scine.