Thank you for posting this video. As a mother of a child with Low Vision my frustration is mostly with the lack of understanding that there is a spectrum. My daughter has not been identified as having any disease or anomaly and that is hard for people to grasp as well. The label her eye specialists have given is Severe Myopia. Many people assume that "blind" is the stereotypical dark glasses and white cane. Videos like this are beneficial to educate about all types of blindness and vision loss.
It can be extremely frustrating for other people to understand. Unfortunately, low vision and blindness is one of those things that unless someone is going through it themselves, they won’t fully understand. Even then, like it’s mentioned in the video, no two blind people see exactly alike.
Thank you for the very kind words. I mean I’m hoping the video is informative but I wasn’t expecting to read a comment like that. I’ll gladly take it though 😁👍
I am a blind UA-camr as well. I have retinitis pigmentosa, and hope that my videos help others feel a part of this shared journey we experience. Thanks for sharing this collection of others who do the same good work.
The RP club haha. I do find it interesting though that even others with RP don’t have the exact vision that I do. Goes to show how many variations of it there are.
This is such a great video! As a graphic designer, it's so important to understand more about blindness and how to make my work more accessible. Thank you!
Thank you so much for this video. My son is blind and people assume because we say blind he has no vision. Or they assume that because he has some vision he can see fine. Spectrum is the perfect word to describe it.
It’s one of those frustrating things because unless someone is going through it themselves they won’t really understand, but even then they would only understand their specific condition. So yes it can be very frustrating for those who can’t see to understand that blind doesn’t always mean totally blind. Here’s hoping more people become aware of how much of a spectrum blindness really is.
I'm a blind rehabilitation specialist (O&M) and this video is now adopted as a part of my introduction to services for our younger adult participants, who often feel like they are alone and misunderstood, and say that coming to see us for services feels like "giving in" to being blind somehow. Your video helped at least one person feel less alone, more on board with coming here to share his creativity and learn new skills from us. I've wanted to produce materials similar to what you've done: real people, real eyeballs, just the facts, relateable. And you did it! And I'm thrilled. Your video is perfect. Kudos to you and your friends for putting it together.
This seriously made my day. Thank you for sharing your thoughts and thank you for saying that it’s been able to help someone out. I know being partially sighted or blind can be isolating at times and I still have my days every now and then but I’m glad to know that the video can be used so others can feel like they’re not alone.
Hi mam I am sunny I can't see left eye and right eye cause glucoma loss visual field iam from India age 23 iam poor person I don't have my dad I need help for feature pls help me 🙏🙏
On my spectrum, the perfect description is like walking down a path at night with just enough ambient light from the stars or moon to see what's around you, but not in detail. It's that, but a daylight version. Things aren't blurry, they're just shimmery without contrast, only half there, like the forest path at night. I don't know what I have, and frankly, don't care. Vision loss like this tends to be unfixable, so I'll save the money and stress, and just accept it. That's easier for me.
This video made my day. This was so helpful. I have total blindness in my right eye and can only see in the centre of the left eye. No peripheral vision . Thank you
Ahhh i’m so glad this video is finally up! It turned out so great!! You did an amazing job putting this all together, the editing and the background music and everything was perfect! And thanks so much for asking me to be in it! I know I am using a lot of exclamation pointss lol but I’m just really excited because this video is so great!
I counted 5 exclamation marks 😁 I’m very happy that you and everyone else who was in the video liked the finished product. I wasn’t sure how it was going to turn out at first but i think it’s safe to say we all like the finished product 🙂 Thank you for being part of the video Cayla.
Hi! This is an excellent video, it was very interesting listening to everyone’s story and all of the different eye conditions causing visual impairment and blindness. One common theme I’ve heard among most people is foggy or very waxy blurred vision. . I must say, this is possibly one of the best videos I have ever seen! Wow, great job! Also, thank you very much for allowing me to submit a video. Thanks again, Matt
Hey Matt it was awesome to have had you be a part of this. I still laugh a little when you said that the bright light above you is really bright. But seriously I think the video can be very informative not just for those who are sighted but for folks like us as well. It helps us maybe imagine what it could be like to have someone else’s eye condition too.
How can I get all these channels of the speakers. And why don't these speakers get there cataracts fixed I got mine fixed and made one eye blind and other worse is it not recommended
Thanks Casey. This is one of the few videos that I can say I’m very happy with and that even turned out better than I had thought. Thank you so much for being a part of this video 🙂
I hope you keep this video up so I can try to see each of these folks channels. Especially healthy workout and participate as I have more than just visual impairment I deal with Bi Polar and getting out sometimes to do the healthy things I would like may be difficult. Thanks.
Thank you, and I am definitely keeping the video posted. Just letting you know though that a few of the UA-camrs who are in this video might not have posted in a while, but I stil highly recommend checking out what they have posted since it’s great material either way.
@@JuanAlcazar thank you. I wanted to check out the health and fitness guy definitely to loose 😁 a few pounds in my belly. I have recently given up hard drinking and I am getting better day by day week by week. I will refer back to the Video to see their names and look for their pages. One of the people I didn't want to really trust, because it's issues I deal with and it seems like it is a way to spot a fake. Remember the gentleman who said he could see like orbs. I see little balls of light and dark that move at times. I haven't seen any in a while, but it is a bit different. I also deal with Bi Polar, so I just take things and have spoken with my Nurse and she has noted it all.
I wanted to say thank you so much for putting this video together. I am coping with myopic choroidal neovascularization along with blind spots that basically cover my central vision. This is so true blindness is a spectrum and coping and adapting is an individual process.
Thank you, and I really appreciate your comment. I could have talked about blindness being a spectrum by myself, but I thought having more voices talking about their own experiences would make more sense. I’m glad I took this approach because it also makes it a lot more relatable to those who don’t have RP, and have other eye conditions that might share a symptom or two with the ones shared in the video by one of the UA-camrs in the video.
Thank you and I like that mindset. Yeah it can be challenging at times but hey living your life as best as you can is the way to show your eye condition doesn’t keep you from doing what you want.
I’m so glad you and everyone else has liked the video. Also thank you for being part of this collab. I was definitely glad when you said you were interested in the project.
I got diagnosed with retinitis pigmentosa a little over two years ago. (24yrs old) I can still see at the moment, but it is slowly getting worse. My doctor said I should start looking at getting disability. I’m 27yrs old now, and I have noticed changes mostly with light sensitivity. I do not drive at night, and I have to work an 8-5 job or I won’t be able to commute on my own. I also have to have certain type of light bulbs in my house so I can see my surrounding clearly. I also need to have sunglasses with me all the time. Thank you so much for this video as it’s also helping those who aren’t blind, but will probably will be one day like me. This helps with transitions.
I’m glad that the video is helping. I know that transition. Can be difficult, and I remember going through it myself. Sometimes I still happen to have my bad days, but then I realize how many awesome people I have met on my own journey. Here’s hoping that something similar happens with you on your journey, and you meet some awesome people along the way.
I was nervous at first wondering if it was going to work since I was getting everyone’s clips at different times but yeah it turned out better than I thought it would which doesn’t happen many times with my own videos. Thank you for being part of this collab Sam.
Hey thank you for being part of the project Emily. I must say that the finished product ended up being better than what I wanted it to be. Couldn’t have made this video without the rest of you.
Hello Juan, I have just come across this video. What an amazing account of blindness. This video should be watched by a lot of non-blind people in order to reduce their held stereotypes (btw, the strategy you are using in this video is called 'dehomogenising the outgroup' in stigma reduction studies, and I am actually using this video as a case study in my teaching on disability and stigma reduction - get in touch if you want to know more about this 🙂)
It's so neat seeing someone else with aniridia in this! I also have aniridia, and it's extremely rare I see someone even online with it. Incredible video
Thank you. It’s the video I’m proudest of to be honest. I wanted to include several conditions, so I’m glad that you were able to identify with Carrie’s perspective.
Kudos to this video, I enjoyed watching your video on each individual. I am legally blind since I was 19 years old, I have Tunnel Vision on both my eyes. and now I am 49 years I have learned to how to adjust with my vision.
Excellent!!! Thank you! I follow many if these UA-camrs and will follow more ... I have macular degeneration and I wish my family understood how and what I see.. injections aren’t helping ... in fact in many people it makes vision worse. I did have them and on my last one I almost lost my vision entirely... thick fog was all I saw for days ... now I have the gray cloud in my central vision .. thank you for going this video
I’m sorry that your family doesn’t understand and that’s such a frustrating thing sometimes. Are you needing t have frequent injections? That has to be tough and I give much kudos to those who do get injections. I don’t think I’d be able t d it myself if it came to that.
Blind Jedi Vlogs 💜❤️💜❤️💜❤️💜❤️ ❤️💜❤️💜❤️💜❤️💜 My name is Jacqueline Andrews and I was born at 24 weeks early. I know I was born with Retinopathy Of Prematurity and I know I was born with Type 1 Diabetes. It took me over 6 years to figure out where a brain hemorrhage and a stroke come from but I did it. 😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭 I went through a lot of medical abuse and I don't know if Type 1 Diabetes causes boys to smell really really bad but it definitely does for girls. It is apart of renal failure and it sucks as well as the symptom of excessive thirst and the symptom of frequent urination and the bed wetting and the amount of hunger. 😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭
Dude, I can’t believe I’m just now discovering this video. I think I was just getting started when you created this. Let me know if you ever do another updated version. 💜 Blessings ,
This one is probably one of my proudest videos not just because of how many others are on there, but also because it really shows how no two blind people see alike. It’s one thing if I sat in front of the camera and talked about this topic, but I felt the message would come through better if others also shared their stories.
This video came out amazing! Couldn't be any more proud of a better project. Also, I want you to know and all my other friends here on UA-cam that I finally have a diagnosis. I just like Derek and Justin in this video have l h o n I just have a very rare form of the disease. I'm happy to know I'm not alone and your video proved that. We are all so much alike no matter what our conditions maybe.
Vincent Grasso My Visually Impaired Life I’m glad you finally got a definitive answer about your eye condition. At least now you know what’s going on for sure.
@@darquequeen2323 I still have to take some more tests but they know it is l h o n and that at least gives me some hope to some answers. I am happy to know my kids are not going to have to deal with this same issue. Thank you so much for the reply. You have yourself a blessed weekend and week to come.
I’m glad that you finally have a diagnosis. I know it’s not going to magically make us feel better when we’re told but we can rule everything else out now that we have a diagnosis. Thank you so much for being part of this collab Vicent.
This is a really really good video and as myself are living with visual impairment it really breaks down the stereotypes for society and they won’t look at a film with blindness and think well you know you have to wear dark sunglasses or eyes have to look at certain way or why are we not using a cane or how can use a smart phone I think it’s really amazing and I am very passionate about that sort of thing as well myself
Thank you for liking the video. I'm glad that those who have seen it have given such great feedback. It's getting slow but steady views so here's hoping that continues because everyone in this video deserves a bit of exposure for their channels as well.
Thank you for this amazing video ! I'm from Belgium and I have a congenital toxoplasmic chorioretinisis/ocular toxoplasmosis (I don't know if it's the right term, I use Google translate). Discovering all your channel's helped me a lot !
Thank you and m going to have t look up your condition because that’s one I’m not familiar with. I’m glad that seeing other youtubers who are visually impaired or blind has helped you.
Thank you and that’s what I’m hoping happens not just with this video but every other educational video,, article or blog post that any blind/VI person posts.
Hi Juan, I literally love this video. It is so well done and just a touching video. I loved seeing everyone's perspectives. Thank you for putting this together. Corey
Wow good one. Hits home, I"m also a lucky one haha w RP and all the fireworks, night blindness, light sensitivity, foggy...I love most how the ppl on teh vid are positive and smiling.
Haha yeah we’re so lucky 😂 But in all seriousness we do the best we can with the vision we have. Thank you for liking the video and yes I really wanted the video to have a more positive vibe than a sympathetic one.
Amazing job Juan. I love seeing collabs as I have mentioned before and this video is very informative about each condition and how each youtuber see differently. I have posted this on blind awareness. Keep up the great work man :)
Thank you so much for the kind words. Sorry for the late reply but I’m so glad that the video has been getting a lot of praise and good reviews from so many people 🙂 Even better that it’s been relatable for so many as well.
This was an amazing video!! Thank you for putting this together and raising awareness about blindness and visual impairment having a spectrum!! Y’all were awesome!! ☺️
Definitely wanted to raise awareness since it’s been brought up many times before but I thought saying it alone wouldn’t have the same impact than if several individuals said it. Thank you.
Thank you and a shout out to you guys who are O&M specialists because with out your training folks like myself wouldn’t be so confident to get out and about and live our lives, so thank you.
This is a very informative video! Everyone seas differently to their surroundings. Each of us are unique! I am blind since birth. My eye condition is ROP. I can only see light in my right eye. Retina is detached in both eyes.
Thank you for the feedback on the video. I can imagine how different things are for those who were born blind from birth compared to those who lost vision over time. I know a few people who have ROP.
Thank you; I wish I could've included even more conditions but I wanted to keep the video not too long but still be informative. I'm glad you liked it.
JC5 Productions I more than liked it. I have cone dystrophy and find it difficult explaining myself to people who have no concept of what sight loss is.. Most people think blind is blacked out when it isn't. I have no central vision and I am very sensitive to light. I think awareness posts like this are fantastic to help sighted people understand. Keep up the good work
What an excellent video! It was produced so well and I feel like I know all these guys, as I subscribe to every one of these channels. I think you covered all the bases and it was an outstanding production! Well done!
JC5 Productions I think this is an outstanding way to show the general public, the faces of blindness. Each one of these outstanding UA-camrs has a severe site loss and a few of them have the exact same disease. What is so interesting however, is, that that disease, manifests in different ways resulting in different vision. It also is dependent on the stage of progression in each disease. What an outstanding resource video!
Really glad you liked it. I tend to worry the longer a video gets because I keep thinking it’s a bit long but with this one I had to make it this long. It wouldn’t have been able to say everything I wanted it to say if I made it shorter.
Thank you. I know I only was able to include just a handful of conditions but I hope the point gets across that there’s many different eye conditions that cause blindness or visual impairment.
JC5 Productions ROP! I am blind in one eye and I only have central vision in my right eye, with no depth perception at all in that eye. I am unable to drive, play contact sports, see movies in 3D, or see well in the dark, because of my visual impairment.
I will describe this video with one word, WOW. Thank you so much for putting together so amazing video. It is very interesting knowing more and more details of our youtubers who are taking the time to bring awareness to the community. 👍. Today I uploaded my first video for UA-cam, hopefully someday I can collaborate with you. 👍 😀
My biggest struggle is with people's misunderstanding (or rudeness). I'm visually impaired (hate the term legally blind as I'm constantly asked, again misunderstanding, if I had to go to court lol) 20/400 in right and 20/300 left. Also Deaf (wear CI). I can see shapes and movements and light is my bane. Total white blindness outside. Every time I'm out and about people think I'm completely helpless or lying (unless they know me). It's the all or nothing mentality. Most people are kind though. But I do come up against very rude people and even hostility at rare times. I've had people even being super "kind" by grabbing me and walking me across the street. Grab and yank. It's much more difficult when even with my CI I'm still hard of hearing. Esp. outside with all the external noise. So when someone comes up to me to help, even without being asked and I have no clue what their saying, they get rude. Like they see me as Blind (cane and all) so they decide to help (jumping that hurdle to put themselves out there) but when I have difficulty hearing them they just can't quite grasp that a Deaf-Blind man is actually out and about living life. Like I should be in some care home. Then because of their inability to grasp my reality, they get rude. Most people need to be able to understand reality and when confronted with a reality they don't understand, the do the flight or attack reaction. I've grown to just avoid and recluse myself. It's just to much to deal with so I have become a recluse as much as possible. But in most things I'm very blessed and independent (my own home and never need to worry about finances). So much worse off people out there.
I think what you mentioned is a perfect example of how much of a spectrum blindness, or even deafness and disability can be. So many people have that all or nothing mindset about disability that it can be irritating. Granted, it’s difficult for someone to imagine someone else’s world when they don’t experience it, but still it would be good if they had a better idea of what someone with a Disability is going through in the first place.
Awesome Video ... I just can't find the motivation to record video's anymore .. mainly because i don't want to repeat what everyone else is doing or already has done ...i have RP diagnosed at 15 years old and am now 48 and fought tooth and nail to slow the vision loss as best i could ... THC and CBD's have slowed it ,but now less than 1 degree of peripheral in each eye, cataracts (left eye is useless due to the cataract) .. right eye is a pin hole ( with glasses i can still read my monitor) but even that has been getting harder over the last couple of months.. I have stretched my vision well past what the doctors first told me ( by 20 I would be fully blind)
I think that’s pretty incredible to have stretched your vision out by so many years (in this case decades) than what you were originally told. I think you should still post videos since no two people are going to have the exact same experience. What you go through will be unique to yourself so I think it’s worth sharing even if it covers the same general topic.
I have a question. If you have blurry vision, and you can’t see because everything’s blurry, and if you don’t want to wear glasses or contacts, Can you use a blind cane? Because my vision got blurry today and it’s been going on and off. And contacts and glasses don’t work for me, I don’t like putting stuff in my eyes, and glasses overtime will hurt my ears.
In my opinion you can get training to use a cane. There’s either ID canes which you carry around folded up to just let people know you’re visually impaired. Then there’s the regular white cane which does help you in finding obstacles and helps you get around. If you’re continuing to have difficulty seeing then I would get your eyes checked first to see if any of that blurred vision can be somehow corrected with glasses first. Reason I say this is because if the vision can be corrected to 20/200 or better then you might not be able to get cane training since that would not be considered legally blind. I would just check first to make sure everything checks out for you.
I don't use the term "visually impwired". It implies that there's "something wrong with me". I used to think that way when meeting other kids with disabilities... " What's wrong with you?". I'm legally blind. I was born with hydrocephalus in 1965, and in 2012 it zapped both optic nerves; now have 30% vision in both eyes. I used t read with my eyes, and I could finish a 200 as b in 3 days if nobody interrupted me. I now read wth my ears, and I can finish a 6-hour Audible book in 3-4 fays. It's not a superpower, it's an adaptation. My neighbor says I can't read because of my low vision; she's wrong; I typically have 3 books alternating, so if I get bored, I just switch. I've Bern reading for myself since was 3 years old and I still love it. I'm not a superhero. I'm me. And I'm happy with that. :)
I totally agree that it’s not a superpower, but rather an adaptation and being more aware of using the other senses. Yeah, I can understand what you meant about the term “visually impaired”. I do say that I’m legally blind too, but sometimes I just say that I’m simply blind so as to make it as simple as possible. Although using that can also cause problems since some people associate blind with totally blind. I have remaining vision, but I also do use blind every now and then to describe my own vision.
Yes, cataracts are treatable now, but sometimes the recovery process can be lengthy, and some folks may not need to get them removed, or may just not want them removed. Everyone is going to have their own reason to get them or not get them removed. For me, I probably won’t get mine removed because I still have blurred and little to no detailed vision. It’ll just look less foggy and that’s about it.
I'm curious if having a visual impairment makes people nauseous or get headaches. For instance, I can't see any detail at all without my glasses or contacts, I can't even read the top row of writing at the eye doctors without corrective lenses.. so when I try to focus on things I want to see without them I start to feel nauseous and get a headache. I even feel this way sometimes with lenses while trying to read books or type on a computer because they don't make a high enough power to account for what my astigmatism needs. So when visual impairments can't be corrected with lenses, do the people who have them still experience headaches and nausea due to vision impairments or does the brain adapt over time and you don't experience those sorts of side effects anymore?
For me, I can’t stare at screens or be in brightly lit areas for too long. If I am I tend to get migraines. Also if I’m making an effort to try to see things and focus I get migraines faster. This is a huge reason I can’t go to the movies anymore because looking at that screen would strain my eyes where by the end of the movie I’d be coming back home with a migraine. So to answer your question, yes it can happen, but everyone is different. It does happen to me though.
JC5 Productions I haven’t and I’m not sure what those are. I use glasses and contacts but I have to focus my eyes still to see if that makes sense, sometimes its noticeable to me and other not at all.
As a legally blind person myself. You can't tell that they are legally blind because their eyes are perfect looking compared to mine rolling around all the time. I noticed with legally blind UA-camrs they always say people say I don't look blind that's because their eyes look perfect and you won't notice it.
@@JuanAlcazar We learn new things everyday. My eyes move around allot I don't notice they do it other people can tell it. I have low vision my eyes are like a camera zoomed out not focused in on a particular item in a room.
I have detached retina in my right eye as well I can’t see anything blood fuzzy it’s all a blur you’re not even there I have to look at you with my left eye is the only one that works
*"I was born at 24 weeks"* That's less than 6 months, how are you alive? Otherwise, excellent video. I love anything that represents differently abled people. I know and see too many people with disabilities and injuries. They need much more representation.
Since my channel is more video game accessibility-focused, I'll just drop my shit in this comment. Hi. I'm Ryan. I was born 3 months early and got too much oxygen in the incubator which gave me retinopathy of prematurity (and gave the nurse who screwed up a black eye from my mom and paid leave from the hospital.) My eyesight is a stable 20/400 in my right eye (partial retinal detachment) and complete blindness in my left eye (full retinal detachment.) I also have had cataracts which have worsened my up-close vision and a nystagmus which freaks people out but doesn't bug me on a day-to-day. If I had to describe how I see things, I'd describe it as normal for me. That's an aspect of this spectrum that a lot of eye-havers don't get: for some of us, this is normal. From what my wife and roommate have shown me through comparison, my "visual sweet spot" is very VERY small (rendered even smaller by the aforementioned cataract surgery.) To the layman, that means if it's not RIGHT HERE, whatever it is gets progressively fuzzier. No double-vision. No fading. Just increasing levels of fuzz. Like a picture taken out of focus. I also can't see depth. I don't know how to describe that feeling but open flames appear closer than they are and I have problems going down stairs because it's all a flat-looking blur to me. A cane helps. Or familiarity. I'm also photophobic. Sunlight, florescents, things like that. Even with sunglasses, I will often get migraines. So, a sighted person might be wondering, what does total blindness look like. The way I've always described my left eye's vision is an absence. It feels like SOMETHING should be there but there isn't. No black. No white. No light. No dark. NOTHING! Some geeks might appreciate this metaphor. The RGB scale uses numbers in three slots (red, green, blue) to display color. 0,0,0 is black. For this example, 10,10,10 is white and 3,2,1 is dark brown and 10,0,10 is purple. My left eye is cat, the letter A, and the color fuchsia (in other words wholly incomprehensible within the confines of the scale.) I know something should be there. But it isn't. Ever. At all. Period. But since I've always had this specific visual acuity (minus the small chunk taken out with the cataract,) it's my norm. My youtube channel is, aside from a few exceptions, me playing games for the first time to see how accessible and fun they are for someone with vision problems. Generally speaking, I always have ways in mind to make games more accessible for people with disabilities and I've had a few feathers in my cap. I'm not what you'd call good at reviewing but I am very passionate about game devs remembering us and giving us the tools we need to play the games they've made the way we want.
This was a pretty great summary of what you can see and about what you do on your channel. Thanks for sharing that by the way. I’m going to have to take a look at your content.
@@JuanAlcazar It's not good. I know it's not good. I can't beat the "concentrating silence" problem unless I have someone in the chat or on discord to play off of. But I do try. Best example of success are the two Brigador videos I did. I made the first one, the dev saw it, and he taught me how to make it playable for me using devtools. It feels like I'm making a tiny dent when stuff like that happens. Also, my "For the King" review is a prime example of emergent enjoyment. I thought I'd hate that game but ended up loving it and you can hear it in my voice, lol.
Holy shit! My people! Where you guys been? I am total blind and have been trying to find blind people on here... Jack pot. I see nothing and i went blind from TBI ruptured blood vessel in my Occipital Cortex necrotizing it.
I have no perfu vision I have what is called tunnel vision image you can only see straight you can’t see what’s on either side of you and I lost my vision oh my vision in my right eye so now all I see is fog and fuzzy
@@JuanAlcazarpeople truly think everything is black when learning someone has vision issues. In my experiences total blackness is rare. Most people I meet have some vision. It was also nice to hear others have vision fluctuations.
This is one of the reasons why I wanted to make this collab. So others who may have the same or similar conditions can identify with at least one person on here.
Thank you for posting this video. As a mother of a child with Low Vision my frustration is mostly with the lack of understanding that there is a spectrum. My daughter has not been identified as having any disease or anomaly and that is hard for people to grasp as well. The label her eye specialists have given is Severe Myopia. Many people assume that "blind" is the stereotypical dark glasses and white cane. Videos like this are beneficial to educate about all types of blindness and vision loss.
It can be extremely frustrating for other people to understand. Unfortunately, low vision and blindness is one of those things that unless someone is going through it themselves, they won’t fully understand. Even then, like it’s mentioned in the video, no two blind people see exactly alike.
This is, hands-down, the best video I have seen about visual impairment. Everyone needs to see this! Kudos to you!
Thank you for the very kind words. I mean I’m hoping the video is informative but I wasn’t expecting to read a comment like that. I’ll gladly take it though 😁👍
JC5 Productions This video was awesome
@@JuanAlcazar
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Hey Juan can you watch all my videos and make sure to like comment and subscribe.
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@@JuanAlcazar there are subliminals that cure blindness ua-cam.com/video/SHQf_ANIO0Y/v-deo.html
@@JuanAlcazar ua-cam.com/video/-nY2JO7pITs/v-deo.htmlfeature=shared
I am a blind UA-camr as well. I have retinitis pigmentosa, and hope that my videos help others feel a part of this shared journey we experience. Thanks for sharing this collection of others who do the same good work.
The RP club haha. I do find it interesting though that even others with RP don’t have the exact vision that I do. Goes to show how many variations of it there are.
This is such a great video! As a graphic designer, it's so important to understand more about blindness and how to make my work more accessible. Thank you!
Thanks so much for what you said. It's all about making things as accessible as possible. Glad you enjoyed the video.
I am visually impaired, and reading your comment made me so happy. I really wish the world was filled with more graphic designers who think as you do
Thank you for this video! Finally somebody explains it all.
Thank you and I'm glad you liked the video. I really wanted to have many voices explaining sight loss since one person alone can only say so much.
Thank you so much for this video. My son is blind and people assume because we say blind he has no vision. Or they assume that because he has some vision he can see fine. Spectrum is the perfect word to describe it.
It’s one of those frustrating things because unless someone is going through it themselves they won’t really understand, but even then they would only understand their specific condition. So yes it can be very frustrating for those who can’t see to understand that blind doesn’t always mean totally blind. Here’s hoping more people become aware of how much of a spectrum blindness really is.
I'm a blind rehabilitation specialist (O&M) and this video is now adopted as a part of my introduction to services for our younger adult participants, who often feel like they are alone and misunderstood, and say that coming to see us for services feels like "giving in" to being blind somehow. Your video helped at least one person feel less alone, more on board with coming here to share his creativity and learn new skills from us. I've wanted to produce materials similar to what you've done: real people, real eyeballs, just the facts, relateable. And you did it! And I'm thrilled. Your video is perfect. Kudos to you and your friends for putting it together.
This seriously made my day. Thank you for sharing your thoughts and thank you for saying that it’s been able to help someone out. I know being partially sighted or blind can be isolating at times and I still have my days every now and then but I’m glad to know that the video can be used so others can feel like they’re not alone.
Hi mam I am sunny I can't see left eye and right eye cause glucoma loss visual field iam from India age 23 iam poor person I don't have my dad I need help for feature pls help me 🙏🙏
ua-cam.com/video/we2bCtlhk1I/v-deo.htmlsi=TrglQokIFh9a5tOh
youtube: vibravisionusa ; visionextraocular; VEO.
On my spectrum, the perfect description is like walking down a path at night with just enough ambient light from the stars or moon to see what's around you, but not in detail. It's that, but a daylight version. Things aren't blurry, they're just shimmery without contrast, only half there, like the forest path at night. I don't know what I have, and frankly, don't care. Vision loss like this tends to be unfixable, so I'll save the money and stress, and just accept it. That's easier for me.
This video made my day. This was so helpful. I have total blindness in my right eye and can only see in the centre of the left eye. No peripheral vision . Thank you
So glad that the video has been relatable to you and others as well. Glad to know that our own explanations of what we see are helping.
Ahhh i’m so glad this video is finally up! It turned out so great!! You did an amazing job putting this all together, the editing and the background music and everything was perfect! And thanks so much for asking me to be in it! I know I am using a lot of exclamation pointss lol but I’m just really excited because this video is so great!
I counted 5 exclamation marks 😁 I’m very happy that you and everyone else who was in the video liked the finished product. I wasn’t sure how it was going to turn out at first but i think it’s safe to say we all like the finished product 🙂
Thank you for being part of the video Cayla.
Hi! This is an excellent video, it was very interesting listening to everyone’s story and all of the different eye conditions causing visual impairment and blindness. One common theme I’ve heard among most people is foggy or very waxy blurred vision. . I must say, this is possibly one of the best videos I have ever seen! Wow, great job! Also, thank you very much for allowing me to submit a video. Thanks again, Matt
Hey Matt it was awesome to have had you be a part of this. I still laugh a little when you said that the bright light above you is really bright. But seriously I think the video can be very informative not just for those who are sighted but for folks like us as well. It helps us maybe imagine what it could be like to have someone else’s eye condition too.
How can I get all these channels of the speakers. And why don't these speakers get there cataracts fixed I got mine fixed and made one eye blind and other worse is it not recommended
Yay!! This was wonderful! Thank you for doing this!!
Thanks Casey. This is one of the few videos that I can say I’m very happy with and that even turned out better than I had thought. Thank you so much for being a part of this video 🙂
I hope you keep this video up so I can try to see each of these folks channels. Especially healthy workout and participate as I have more than just visual impairment I deal with Bi Polar and getting out sometimes to do the healthy things I would like may be difficult. Thanks.
Thank you, and I am definitely keeping the video posted. Just letting you know though that a few of the UA-camrs who are in this video might not have posted in a while, but I stil highly recommend checking out what they have posted since it’s great material either way.
@@JuanAlcazar thank you. I wanted to check out the health and fitness guy definitely to loose 😁 a few pounds in my belly. I have recently given up hard drinking and I am getting better day by day week by week. I will refer back to the Video to see their names and look for their pages. One of the people I didn't want to really trust, because it's issues I deal with and it seems like it is a way to spot a fake. Remember the gentleman who said he could see like orbs. I see little balls of light and dark that move at times. I haven't seen any in a while, but it is a bit different. I also deal with Bi Polar, so I just take things and have spoken with my Nurse and she has noted it all.
I wanted to say thank you so much for putting this video together. I am coping with myopic choroidal neovascularization along with blind spots that basically cover my central vision. This is so true blindness is a spectrum and coping and adapting is an individual process.
Thank you, and I really appreciate your comment. I could have talked about blindness being a spectrum by myself, but I thought having more voices talking about their own experiences would make more sense. I’m glad I took this approach because it also makes it a lot more relatable to those who don’t have RP, and have other eye conditions that might share a symptom or two with the ones shared in the video by one of the UA-camrs in the video.
Thanks for this! I also have severe issues with my sight however not stop me from living my life to the fullest.
Thank you and I like that mindset. Yeah it can be challenging at times but hey living your life as best as you can is the way to show your eye condition doesn’t keep you from doing what you want.
This was such a great video! Thank you for letting me be a part of it.
I’m so glad you and everyone else has liked the video. Also thank you for being part of this collab. I was definitely glad when you said you were interested in the project.
I got diagnosed with retinitis pigmentosa a little over two years ago. (24yrs old) I can still see at the moment, but it is slowly getting worse. My doctor said I should start looking at getting disability. I’m 27yrs old now, and I have noticed changes mostly with light sensitivity. I do not drive at night, and I have to work an 8-5 job or I won’t be able to commute on my own. I also have to have certain type of light bulbs in my house so I can see my surrounding clearly. I also need to have sunglasses with me all the time. Thank you so much for this video as it’s also helping those who aren’t blind, but will probably will be one day like me. This helps with transitions.
I’m glad that the video is helping. I know that transition. Can be difficult, and I remember going through it myself. Sometimes I still happen to have my bad days, but then I realize how many awesome people I have met on my own journey. Here’s hoping that something similar happens with you on your journey, and you meet some awesome people along the way.
This is amazing and very well put together one! ☺️ Great job and I love that thumbnail!
Glad to have had you onboard this project Carrie. Oh and the thumbnail was a nightmare to put together lol.
The Blind UA-cam All Stars! I love it! 👍🏽
Haha dang it. I should’ve made that the second part of my title instead of Blind UA-camrs 😁
That’s what popped into my head when I saw the thumbnail.
😂
YAAAAY!!! That was awesome man! It turned out great, congratulations!
I was nervous at first wondering if it was going to work since I was getting everyone’s clips at different times but yeah it turned out better than I thought it would which doesn’t happen many times with my own videos. Thank you for being part of this collab Sam.
This video is fantastic! So well executed and informative. You did a great job! Thank you so much for asking me to be involved
Hey thank you for being part of the project Emily. I must say that the finished product ended up being better than what I wanted it to be. Couldn’t have made this video without the rest of you.
Hello Juan, I have just come across this video. What an amazing account of blindness. This video should be watched by a lot of non-blind people in order to reduce their held stereotypes (btw, the strategy you are using in this video is called 'dehomogenising the outgroup' in stigma reduction studies, and I am actually using this video as a case study in my teaching on disability and stigma reduction - get in touch if you want to know more about this 🙂)
It's so neat seeing someone else with aniridia in this! I also have aniridia, and it's extremely rare I see someone even online with it. Incredible video
Thank you. It’s the video I’m proudest of to be honest. I wanted to include several conditions, so I’m glad that you were able to identify with Carrie’s perspective.
Kudos to this video, I enjoyed watching your video on each individual. I am legally blind since I was 19 years old, I have Tunnel Vision on both my eyes. and now I am 49 years I have learned to how to adjust with my vision.
Thank you so much. This is one of the videos that I am the most proud of.
This was so informative thank you!
Im so glad to hear that. Was hoping it would be informative to not just folks who are sighted but even for others who have vision problems.
Excellent!!! Thank you! I follow many if these UA-camrs and will follow more ... I have macular degeneration and I wish my family understood how and what I see.. injections aren’t helping ... in fact in many people it makes vision worse. I did have them and on my last one I almost lost my vision entirely... thick fog was all I saw for days ... now I have the gray cloud in my central vision .. thank you for going this video
I’m sorry that your family doesn’t understand and that’s such a frustrating thing sometimes. Are you needing t have frequent injections? That has to be tough and I give much kudos to those who do get injections. I don’t think I’d be able t d it myself if it came to that.
Way to go JC! Very professional documentary style video my friend. I love your work very inspirational. Stay awesome.
Thank you 🙂 I wasn’t expecting to hear documentary style but that’s awesome to hear to be honest.
Blind Jedi Vlogs
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My name is Jacqueline Andrews and I was born at 24 weeks early. I know I was born with Retinopathy Of Prematurity and I know I was born with Type 1 Diabetes. It took me over 6 years to figure out where a brain hemorrhage and a stroke come from but I did it.
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I went through a lot of medical abuse and I don't know if Type 1 Diabetes causes boys to smell really really bad but it definitely does for girls. It is apart of renal failure and it sucks as well as the symptom of excessive thirst and the symptom of frequent urination and the bed wetting and the amount of hunger.
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Dude, I can’t believe I’m just now discovering this video. I think I was just getting started when you created this. Let me know if you ever do another updated version. 💜 Blessings ,
This one is probably one of my proudest videos not just because of how many others are on there, but also because it really shows how no two blind people see alike. It’s one thing if I sat in front of the camera and talked about this topic, but I felt the message would come through better if others also shared their stories.
Simply amazing! I just want to say great job Juan and everybody in this video.
Hey thank you and thank you so much for watching 😀
This video came out amazing! Couldn't be any more proud of a better project.
Also, I want you to know and all my other friends here on UA-cam that I finally have a diagnosis. I just like Derek and Justin in this video have l h o n
I just have a very rare form of the disease. I'm happy to know I'm not alone and your video proved that. We are all so much alike no matter what our conditions maybe.
Vincent Grasso My Visually Impaired Life I’m glad you finally got a definitive answer about your eye condition. At least now you know what’s going on for sure.
@@darquequeen2323 I still have to take some more tests but they know it is l h o n and that at least gives me some hope to some answers. I am happy to know my kids are not going to have to deal with this same issue.
Thank you so much for the reply. You have yourself a blessed weekend and week to come.
Vincent Grasso My Visually Impaired Life Thanks! And you and your family do the same! 😀👍🏽
I’m glad that you finally have a diagnosis. I know it’s not going to magically make us feel better when we’re told but we can rule everything else out now that we have a diagnosis. Thank you so much for being part of this collab Vicent.
This is a really really good video and as myself are living with visual impairment it really breaks down the stereotypes for society and they won’t look at a film with blindness and think well you know you have to wear dark sunglasses or eyes have to look at certain way or why are we not using a cane or how can use a smart phone I think it’s really amazing and I am very passionate about that sort of thing as well myself
I'm surprised how few views this has, everyone should have basic knowledge about this really interesting topic. Amazing video!
Thank you for liking the video. I'm glad that those who have seen it have given such great feedback. It's getting slow but steady views so here's hoping that continues because everyone in this video deserves a bit of exposure for their channels as well.
Thank you for this amazing video ! I'm from Belgium and I have a congenital toxoplasmic chorioretinisis/ocular toxoplasmosis (I don't know if it's the right term, I use Google translate). Discovering all your channel's helped me a lot !
Thank you and m going to have t look up your condition because that’s one I’m not familiar with. I’m glad that seeing other youtubers who are visually impaired or blind has helped you.
Very well done. Great video for educating everyone about our vision loss
Thank you and that’s what I’m hoping happens not just with this video but every other educational video,, article or blog post that any blind/VI person posts.
Great video love the discussion
Hi Juan, I literally love this video. It is so well done and just a touching video. I loved seeing everyone's perspectives. Thank you for putting this together. Corey
Thanks Corey. I somehow forgot to respond to this sooner 😬 This is one of my videos that I’m the proudest of.
This is really great. Thanks for this!
Thank you so much. Really glad the video was informative.
Wow good one. Hits home, I"m also a lucky one haha w RP and all the fireworks, night blindness, light sensitivity, foggy...I love most how the ppl on teh vid are positive and smiling.
Haha yeah we’re so lucky 😂 But in all seriousness we do the best we can with the vision we have.
Thank you for liking the video and yes I really wanted the video to have a more positive vibe than a sympathetic one.
Such a great video! Thank you for sharing!
Thank you so much.
Great video. Very informative.
Thank you so much. It’s one of the videos I’m proudest of putting out there.
Excellent! Awesome! This was really good. I am in that spectrum with you guys. You all encourage me. Thank you.
I'm glad the video helped.
Amazing job Juan. I love seeing collabs as I have mentioned before and this video is very informative about each condition and how each youtuber see differently. I have posted this on blind awareness. Keep up the great work man :)
Thanks Kyle for sharing. Really hoping others find it informative too.
Very informative. Way to go guys
Thank you. They all did an awesome job in helping me out with this video.
Love this video and all these UA-camrs! Both of my children are VI with LCA, another Leber's from these UA-camrs. Thanks for sharing your stories!
Thank you so much for the kind words. Sorry for the late reply but I’m so glad that the video has been getting a lot of praise and good reviews from so many people 🙂 Even better that it’s been relatable for so many as well.
This was an amazing video!! Thank you for putting this together and raising awareness about blindness and visual impairment having a spectrum!! Y’all were awesome!! ☺️
Definitely wanted to raise awareness since it’s been brought up many times before but I thought saying it alone wouldn’t have the same impact than if several individuals said it. Thank you.
Definitely true! Such a great idea!!
Great video! As an O&M specialist, it's so great to hear all of your stories. Keep up the good work!
Thank you and a shout out to you guys who are O&M specialists because with out your training folks like myself wouldn’t be so confident to get out and about and live our lives, so thank you.
This is a very informative video! Everyone seas differently to their surroundings. Each of us are unique! I am blind since birth. My eye condition is ROP. I can only see light in my right eye. Retina is detached in both eyes.
Thank you for the feedback on the video. I can imagine how different things are for those who were born blind from birth compared to those who lost vision over time. I know a few people who have ROP.
Well done on producing a very informative you tube clip. 😎 inspirational!
Thank you; I wish I could've included even more conditions but I wanted to keep the video not too long but still be informative. I'm glad you liked it.
JC5 Productions I more than liked it. I have cone dystrophy and find it difficult explaining myself to people who have no concept of what sight loss is.. Most people think blind is blacked out when it isn't. I have no central vision and I am very sensitive to light. I think awareness posts like this are fantastic to help sighted people understand. Keep up the good work
What an excellent video! It was produced so well and I feel like I know all these guys, as I subscribe to every one of these channels. I think you covered all the bases and it was an outstanding production! Well done!
Thank you. I’m glad the video turned out better than I thought it was going to turn out. I’m very happy the finished product.
JC5 Productions I think this is an outstanding way to show the general public, the faces of blindness. Each one of these outstanding UA-camrs has a severe site loss and a few of them have the exact same disease. What is so interesting however, is, that that disease, manifests in different ways resulting in different vision. It also is dependent on the stage of progression in each disease. What an outstanding resource video!
Thank you for doing this video.
Hey,, you’re very welcome. I’m very proud of how this one turned out.
Great video! Thank you!
Thank you so much.
So inspiring!!
Thanks.
Such a great video. Thank you.
Thank you for watching. I appreciate it.
Thank you for watching. I appreciate it.
👏🏼👏🏼 kudos to you and the other UA-camrs for putting together this informative video. Blindness is not black and white. Love it.
This video wouldn’t be what it is if it wasn’t for everyone who contributed. Couldn’t have done this one alone.
what a great video! so informative and so well-put together.
Really glad you liked it. I tend to worry the longer a video gets because I keep thinking it’s a bit long but with this one I had to make it this long. It wouldn’t have been able to say everything I wanted it to say if I made it shorter.
very well done and informative, thank you!
Thank you. I know I only was able to include just a handful of conditions but I hope the point gets across that there’s many different eye conditions that cause blindness or visual impairment.
Thanks for this video, as I also am visually impaired!
Hey, you're welcome. What eye condition do you have if I may ask?
JC5 Productions ROP! I am blind in one eye and I only have central vision in my right eye, with no depth perception at all in that eye. I am unable to drive, play contact sports, see movies in 3D, or see well in the dark, because of my visual impairment.
It’s always interesting hearing how unique someone’s experience is with their eye condition.
I will describe this video with one word, WOW. Thank you so much for putting together so amazing video. It is very interesting knowing more and more details of our youtubers who are taking the time to bring awareness to the community. 👍. Today I uploaded my first video for UA-cam, hopefully someday I can collaborate with you. 👍 😀
Awesome to hear that you posted your first UA-cam video. Also thank you for liking the video 🙂
Does anyone have tremor s in their eyes? Like if you look at a fixed object it oscillates. I have optic neuritis, diplopia and nyastagmus (MS).
While I don’t have those symptoms myself, I do know some blind folks who do have Nystagmus.
My biggest struggle is with people's misunderstanding (or rudeness). I'm visually impaired (hate the term legally blind as I'm constantly asked, again misunderstanding, if I had to go to court lol) 20/400 in right and 20/300 left. Also Deaf (wear CI). I can see shapes and movements and light is my bane. Total white blindness outside.
Every time I'm out and about people think I'm completely helpless or lying (unless they know me). It's the all or nothing mentality. Most people are kind though. But I do come up against very rude people and even hostility at rare times. I've had people even being super "kind" by grabbing me and walking me across the street. Grab and yank.
It's much more difficult when even with my CI I'm still hard of hearing. Esp. outside with all the external noise. So when someone comes up to me to help, even without being asked and I have no clue what their saying, they get rude. Like they see me as Blind (cane and all) so they decide to help (jumping that hurdle to put themselves out there) but when I have difficulty hearing them they just can't quite grasp that a Deaf-Blind man is actually out and about living life. Like I should be in some care home. Then because of their inability to grasp my reality, they get rude. Most people need to be able to understand reality and when confronted with a reality they don't understand, the do the flight or attack reaction.
I've grown to just avoid and recluse myself. It's just to much to deal with so I have become a recluse as much as possible. But in most things I'm very blessed and independent (my own home and never need to worry about finances). So much worse off people out there.
I think what you mentioned is a perfect example of how much of a spectrum blindness, or even deafness and disability can be. So many people have that all or nothing mindset about disability that it can be irritating. Granted, it’s difficult for someone to imagine someone else’s world when they don’t experience it, but still it would be good if they had a better idea of what someone with a Disability is going through in the first place.
This is amazing. 😀
Thank you.
Love this ! I have auto immune retinopathy! All I can see is movement up to four feet and it blurry ! That’s all I can see !
Thank you. Have you been able to see like that your whole life or was your vision different in the past?
This is an excellent video, I was also born with ROP, cataracts and detached retina .....a lot in common and people like me who understand
Thank you for liking the video. I’m glad that it’s resonated with so many people.
I really liked this video!
I have retinopathy of prematurely (ROP) and hence have low vision in my right eye (visual acuity of 20/320)
Thank you for liking the video. Glad that it resonated with you. I know a few people who also have ROP.
@@JuanAlcazar oh nice! I would like to have a conversation with more people with ROP!
Awesome Video ... I just can't find the motivation to record video's anymore .. mainly because i don't want to repeat what everyone else is doing or already has done ...i have RP diagnosed at 15 years old and am now 48 and fought tooth and nail to slow the vision loss as best i could ... THC and CBD's have slowed it ,but now less than 1 degree of peripheral in each eye, cataracts (left eye is useless due to the cataract) .. right eye is a pin hole ( with glasses i can still read my monitor) but even that has been getting harder over the last couple of months.. I have stretched my vision well past what the doctors first told me ( by 20 I would be fully blind)
I think that’s pretty incredible to have stretched your vision out by so many years (in this case decades) than what you were originally told.
I think you should still post videos since no two people are going to have the exact same experience. What you go through will be unique to yourself so I think it’s worth sharing even if it covers the same general topic.
I have a question. If you have blurry vision, and you can’t see because everything’s blurry, and if you don’t want to wear glasses or contacts, Can you use a blind cane? Because my vision got blurry today and it’s been going on and off. And contacts and glasses don’t work for me, I don’t like putting stuff in my eyes, and glasses overtime will hurt my ears.
In my opinion you can get training to use a cane. There’s either ID canes which you carry around folded up to just let people know you’re visually impaired. Then there’s the regular white cane which does help you in finding obstacles and helps you get around. If you’re continuing to have difficulty seeing then I would get your eyes checked first to see if any of that blurred vision can be somehow corrected with glasses first. Reason I say this is because if the vision can be corrected to 20/200 or better then you might not be able to get cane training since that would not be considered legally blind. I would just check first to make sure everything checks out for you.
Wonderful video thank you so much
I am also legally blind I have an eye condition Toxoplasmosis
Thank you for watching and for liking the video. This was my favorite video from this year.
yes broth I have rp and a guide dog. I love this shit!!
I don't use the term "visually impwired". It implies that there's "something wrong with me". I used to think that way when meeting other kids with disabilities... " What's wrong with you?".
I'm legally blind. I was born with hydrocephalus in 1965, and in 2012 it zapped both optic nerves; now have 30% vision in both eyes.
I used t read with my eyes, and I could finish a 200 as b in 3 days if nobody interrupted me. I now read wth my ears, and I can finish a 6-hour Audible book in 3-4 fays. It's not a superpower, it's an adaptation. My neighbor says I can't read because of my low vision; she's wrong; I typically have 3 books alternating, so if I get bored, I just switch. I've Bern reading for myself since was 3 years old and I still love it.
I'm not a superhero. I'm me. And I'm happy with that. :)
I totally agree that it’s not a superpower, but rather an adaptation and being more aware of using the other senses. Yeah, I can understand what you meant about the term “visually impaired”. I do say that I’m legally blind too, but sometimes I just say that I’m simply blind so as to make it as simple as possible. Although using that can also cause problems since some people associate blind with totally blind. I have remaining vision, but I also do use blind every now and then to describe my own vision.
This was a great video showcasing how blindness is a spectrum! Thank you for creating this dynamic video! :)
Thank you so much. I am glad that it’s resonating with so many people.
Wow this was a great video I wish I could have contributed
Thank you. Makes me want to see if I could try doing something like this in the future since I'm very proud of this video.
Great video!
Thank you so much.
Why do some of these people have cataracts? Isnt that treatable with a new lens?
Yes, cataracts are treatable now, but sometimes the recovery process can be lengthy, and some folks may not need to get them removed, or may just not want them removed. Everyone is going to have their own reason to get them or not get them removed. For me, I probably won’t get mine removed because I still have blurred and little to no detailed vision. It’ll just look less foggy and that’s about it.
I'm curious if having a visual impairment makes people nauseous or get headaches. For instance, I can't see any detail at all without my glasses or contacts, I can't even read the top row of writing at the eye doctors without corrective lenses.. so when I try to focus on things I want to see without them I start to feel nauseous and get a headache. I even feel this way sometimes with lenses while trying to read books or type on a computer because they don't make a high enough power to account for what my astigmatism needs. So when visual impairments can't be corrected with lenses, do the people who have them still experience headaches and nausea due to vision impairments or does the brain adapt over time and you don't experience those sorts of side effects anymore?
For me, I can’t stare at screens or be in brightly lit areas for too long. If I am I tend to get migraines. Also if I’m making an effort to try to see things and focus I get migraines faster. This is a huge reason I can’t go to the movies anymore because looking at that screen would strain my eyes where by the end of the movie I’d be coming back home with a migraine. So to answer your question, yes it can happen, but everyone is different. It does happen to me though.
JC5 Productions Thank you so much for answering my question! :)
Hoping that helped answer things a bit. Are you looking into using any assistive technology to assist you in reading and watching things onscreen?
Hoping that helped answer things a bit. Have you looked into any assistive technology to help you in reading and possibly viewing things onscreen?
JC5 Productions I haven’t and I’m not sure what those are. I use glasses and contacts but I have to focus my eyes still to see if that makes sense, sometimes its noticeable to me and other not at all.
As a legally blind person myself. You can't tell that they are legally blind because their eyes are perfect looking compared to mine rolling around all the time. I noticed with legally blind UA-camrs they always say people say I don't look blind that's because their eyes look perfect and you won't notice it.
Yeah, that can be the case for some folks. Everyone’s eyes are different, but I do get where you’re coming from.
@@JuanAlcazar We learn new things everyday. My eyes move around allot I don't notice they do it other people can tell it. I have low vision my eyes are like a camera zoomed out not focused in on a particular item in a room.
I really enjoyed this. I’m legally blind and I’m a UA-camr. I have Ocular Albinism.
Thanks for watching. How long have you had Ocular Albinism for?
I was born with it. My vision has been mostly the same my whole life.
Ah ok. I was just asking out of curiosity that’s all.
I have detached retina in my right eye as well I can’t see anything blood fuzzy it’s all a blur you’re not even there I have to look at you with my left eye is the only one that works
💖💖💖
Thank you and I'm glad you liked the video.
Echolocation?
*"I was born at 24 weeks"*
That's less than 6 months, how are you alive?
Otherwise, excellent video. I love anything that represents differently abled people. I know and see too many people with disabilities and injuries. They need much more representation.
great video thanks
Thank you for that 🙂
@@JuanAlcazar maybe ill see you on dave show soon
Dave as in Dave steele?
JC5 Productions yes
So many of us
I was going to make the video alone but I thought the message would be better said by more than one person.
My mom has macular degeneration so this is great
Thank you. I hope this helped.
I have rp and had cataract surgery three years ago I’m 26
I’m considering getting my cataracts removed. How much could you see after they were removed?
I definitely saw clearer colors were much brighter and I could see maybe ten foot further
Since my channel is more video game accessibility-focused, I'll just drop my shit in this comment.
Hi. I'm Ryan. I was born 3 months early and got too much oxygen in the incubator which gave me retinopathy of prematurity (and gave the nurse who screwed up a black eye from my mom and paid leave from the hospital.) My eyesight is a stable 20/400 in my right eye (partial retinal detachment) and complete blindness in my left eye (full retinal detachment.) I also have had cataracts which have worsened my up-close vision and a nystagmus which freaks people out but doesn't bug me on a day-to-day.
If I had to describe how I see things, I'd describe it as normal for me. That's an aspect of this spectrum that a lot of eye-havers don't get: for some of us, this is normal. From what my wife and roommate have shown me through comparison, my "visual sweet spot" is very VERY small (rendered even smaller by the aforementioned cataract surgery.) To the layman, that means if it's not RIGHT HERE, whatever it is gets progressively fuzzier. No double-vision. No fading. Just increasing levels of fuzz. Like a picture taken out of focus. I also can't see depth. I don't know how to describe that feeling but open flames appear closer than they are and I have problems going down stairs because it's all a flat-looking blur to me. A cane helps. Or familiarity. I'm also photophobic. Sunlight, florescents, things like that. Even with sunglasses, I will often get migraines.
So, a sighted person might be wondering, what does total blindness look like. The way I've always described my left eye's vision is an absence. It feels like SOMETHING should be there but there isn't. No black. No white. No light. No dark. NOTHING! Some geeks might appreciate this metaphor. The RGB scale uses numbers in three slots (red, green, blue) to display color. 0,0,0 is black. For this example, 10,10,10 is white and 3,2,1 is dark brown and 10,0,10 is purple. My left eye is cat, the letter A, and the color fuchsia (in other words wholly incomprehensible within the confines of the scale.) I know something should be there. But it isn't. Ever. At all. Period. But since I've always had this specific visual acuity (minus the small chunk taken out with the cataract,) it's my norm.
My youtube channel is, aside from a few exceptions, me playing games for the first time to see how accessible and fun they are for someone with vision problems. Generally speaking, I always have ways in mind to make games more accessible for people with disabilities and I've had a few feathers in my cap. I'm not what you'd call good at reviewing but I am very passionate about game devs remembering us and giving us the tools we need to play the games they've made the way we want.
This was a pretty great summary of what you can see and about what you do on your channel. Thanks for sharing that by the way. I’m going to have to take a look at your content.
@@JuanAlcazar It's not good. I know it's not good. I can't beat the "concentrating silence" problem unless I have someone in the chat or on discord to play off of. But I do try. Best example of success are the two Brigador videos I did. I made the first one, the dev saw it, and he taught me how to make it playable for me using devtools. It feels like I'm making a tiny dent when stuff like that happens.
Also, my "For the King" review is a prime example of emergent enjoyment. I thought I'd hate that game but ended up loving it and you can hear it in my voice, lol.
Holy shit! My people!
Where you guys been? I am total blind and have been trying to find blind people on here...
Jack pot.
I see nothing and i went blind from TBI ruptured blood vessel in my Occipital Cortex necrotizing it.
I have no perfu vision I have what is called tunnel vision image you can only see straight you can’t see what’s on either side of you and I lost my vision oh my vision in my right eye so now all I see is fog and fuzzy
Do you happen to know what eye condition you have by any chance?
@@JuanAlcazar no
Great video. It's not black and white!
Agreed.
@@JuanAlcazarpeople truly think everything is black when learning someone has vision issues. In my experiences total blackness is rare. Most people I meet have some vision. It was also nice to hear others have vision fluctuations.
2:16 OH MY GOD! Literally a splitting image of me. I also have aniridia, glaucoma, and cataracts.
This is one of the reasons why I wanted to make this collab. So others who may have the same or similar conditions can identify with at least one person on here.
I'm a youtuber with glaucoma, aphakia, nystagmus, an microcornea. I have a channel called all about glaucoma
Thanks for letting me know about your channel so I could take a look.
Thanks for letting me know about your channel so I could take a look.
Your welcome
😭😭😭😭😭😭😭😭😭😭😭😭
This was very informative, thank you for this!!!
Glad it was helpful. I really wanted to show how no two blind people see alike.
Great video!
Thank you.