My Ovarian Cancer Story at age 22 during COVID-19
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- Опубліковано 21 сер 2024
- I'm a 22 year old girl with an extremely rare form of ovarian cancer - germ cell tumor, immature teratoma, grade 3, stage 1A. I'm an anomaly, but am yet another womxn that was in pain and normalized it. I am sharing my story to help other womxn gain the courage to get the doctors to listen. We should not have to live in pain.
Catherine i to had ovarian cancer i was 24 i an 67 now i have been cancer free ever scents
So very happy 😊😊😊😊🙏🏼🙏🏼🙏🏼🙏🏼🙏🏼to hear stay well and safe.🥰🥰🥰🥰🥰🥰🥰🥰🥰
PRAISE THE LORD 🙌🏼🙏💖
Great!
@Layan Izzeddin God doesn't get credit? We humans play a small part.
@Layan Izzeddin I agree but,we should be thanking God..humans can only do so much for one another.
"Are you sure you want to know?" Truly horrendous bedside manner. And when you were asking about the imaging and what it showed, there WAS a doctor there who could have told you. And to be diagnosed with a cyst like that over the phone and not make the ultrasound a priority shows how apathetic doctors have become lately. You are such a bright, well spoken young lady and I wish you the very best. The world of social work needs more people like you.
Did they diagnoze u from the ultrasound ?wht cycts did u have
They want to relieve her Bec they know she must be thinking is it cancer etc.
I had a malignant teratoma at the age of 22 also. I had chemotherapy and surgery and now I’m 56 with two grown children. Best of luck to you. You got this❤️
Hello how are you doing 😊☺️☺️☺️
Hi i have teratoma 3 cm benign,im stress now cause its inflamed my ovary now
Dear madam please tell which stage cancer .my lovely wife had 3c stage I think she long with me
Overy cancer
So many doctors treat women complaining of pain as if they're weak, or faking it, or seeking medicine. Thank you for for telling us not to settle when they dismiss our pain and tell us that it's nothing!
itd getting common young ppl with health issues just last week i got diagnosed with pcos 😭😭 is it possible to get regular periods and still have cycts
I got prescribed DIANE 35, LOCYST , MYOFOLIC SACHET
I GET REGULAR PERIODS NATURALLY BUT MY ULTRASOUND SHOWED CYCTS ON BOTH OVARY
RIGHT OVARY HAS MULTIPLE CYCTS
LEFT OVWRY HEMOGRAPHIC CYSTS
WILL SKIPPING MEDS BE OKAY FOR ME .?
Age 20
Height 5'4
Weight 61kg
I get pain from the cysts 😣😣 Mere periods 4 to 5 days hotte hai lekin un hone kaha hai ki 2nd day of periods se lena hai
Or medically gaslighting you and making you feel you are a hypochondriac. If your doctor dismissed you stop wasting your time. Get a second opinion, third, fourth or .. until you find a doctor that listens to you believes you. Do your own medical research. My mom and I would not be alive if I did not do medical research and be persistent.
Indeed, I doctored for months, IBS is what they kept telling me. Finally I got a diagnosed with ovarian cancer.
I’m scared to death of pain medicine so they can’t accuse me of that
30 years ago this was me I couldn’t have anymore children 😢 but I was blessed to have my son 💙 there is hope 💕💞
Thank you for sharing that little bit of hope with me!
So you've been cancer free for 30years? My friend had an ovarian cancer at the age of 19. I hope for your reply. I wish I could encourage her through this. Thank you.Godbless
@@markkennethmayo9273 that good that you have a son I'm very sorry about that Mark Kenneth you are going to be fine
Thank you for sharing your story in such an honest and detailed way. You are going to be the best social worker and never let people get pushed away. Hope you’re doing well, keep us all updated. I’m rooting for you 💕
This is such a sweet comment!! Thank you so much. It is my dream to pursue a career that involves helping people. I’m doing very well and I will post an update video in the coming weeks ❤️
Wishing you all the best in your career. 🤗🤗🤗🤗👍👍👍👍👍🌹💞💞🌺🥰💞💞💞💞💞🙏🏼🙏🏼🙏🏼🙏🏼🙏🏼
@@CatherineSaoud I lost my first uncle cancer and lost my grandma to cancer and Alzheimer’s
@@annekalunn8567 I am so sorry Anneka. I have lost all my older family on two sides, thankfully have a wonderful family. I hope you have surrounded yourself with love.
Philly Lisa here.God Bless you darling.Hope your doin better now. No offence but these Doctors are morons.Love you❤❤❤❤
Thank you for your story. Advocating for yourself as a patient is so important as you have shown.
Thank you so much!!
I know this was posted 8 mo's ago and I am hoping things are going well for everyone that has gotten this diagnosis. When my daughter was 33, she was diagnosed with clear cell OVCA. Her Doctor brushed it off originally as an ovarian cyst. She insisted that it was something different.. so just as you said..you have to be your own advocate and be persistent with these doctors. My daughter had to have her chemo first,then a total hysterectomy. I am proud to say that after almost 20 years later she remains cancer free. She went back to college..obtained her master's and is a science teacher. Oh and she was also a single parent back then with 3 small kids. I hope for the best for anyone with this nasty disease and that all of you are kicking cancers ass like my daughter. I am forever thankful.
She was a stage what?
@@monicag6715 I'm not sure what stage..sorry. she had clear cell cancer.
6 year survivor, I’m so proud of you for pressing on and sorry for what you had to endure.
Thank you, congrats on 6 years! I can’t wait until I reach that milestone 🦋
It's not luck sweetness it's the Lord saving you! The great thing is if it does come back the doctor can catch it early. I know this because I'm a uterus lining cancer survival. It's been a little over two years and I'm doing great! It's God, not luck! Hang in there! You are doing great!
@@CatherineSaoud hi are fine now
This was in my recommendations. Woah, I was diagnosed with this exact cancer when I was 18. Im 27 now with 3 boys and doing fine. I went through 6 rounds of chemo. I had symptoms like you but you never really think its anything. What made me get checked was the fact that I could feel the tumor when I pressed down on my stomach. I was lucky the cancer stayed only in the tumor. They told me it was rare for it to come back again. I pray it won't. I've never known anyone else, especially so young with this type of cancer. It feels like it a dream when I think back to it. But going through it made my perspective on everything change, in a good way. I wish you the best, you're going to look back at this one day and remember how much stronger it made you. 💗
You have no idea how much hope this gives me. That’s exactly right - I could literally push on my stomach and it was bulging. I pray that I’m able to have children in the future. My oncologist decided to hold off on chemo for the time being. So proud of you for continuing on and thank you for sharing ❤️
@@CatherineSaoud yes this comment! Hope you dont mind but I prayed that you have peace now and children in future if you so desire. Doctors have way scare life out of you keep your mind and heart on positive. YOU GOT THIS ❤
Listen please
This is very painfull .....but my reports are clear and altrasound also...
But my back pain is too much...
My lower belly bulky day by day and also pain...please help me... I am so depressed 😭..
I am telling about myself
I am unmarried age of 28.....
@@aniqamasood2710are you ok? I pray for you to have peace and hope as well. This is scary stuff. May I suggest Epsom salt warm bath to lower stress and therefore helping ease pain. Also breathing techniques such as deep belly breathing helps with pain and calms nerves.(I know it seems like nothing will) Please dont stress about marriage and children. Endless possibilities first you get better ok! Your not alone stay strong! May God wrap Aniga in peace and surround her with right doctors and support and all who need it❤
Thank you for sharing your story ❤ My grandmother died at age 30 from ovarian cancer. This was after she had 4 children. I love hearing real story's and symptoms just in case I end up inheriting it. Hope you are doing well and pray it doesn't come back.
I was told age 19 I had cysts on my ovaries and not to worry....they are NORMAL....same thing you were told. Same tests same things were told to me as well. My stomach got huge as well. The pain is insane ...lower back pain,got bed ridden several times as well. Well the day came they found what I knew was there....They wanted to remove my uterus but did some concurrent tests that found the Cancer had moved...common word matastesize .....Now I'm told they are concerned about a rapid spread and another choice given....live with it until,well you get it ...I'm glad your on top of this and not waited like me....God bless you young lady!
R U still alive ?
i've heard way too many stories of women getting their health issues brushed off then months or years later they find out its cancer and it's usually terminal at that point. when really if the doctor took them serious they could've treated it when it still wasn't as bad. its terrible and the doctors should be held accountable
I have a super rare form of clear cell ovarian cancer which my dr says my endometriosis caused. I’m 24. Keeping you in my prayers! It’s hard finding a new normal in a new normal caused by a pandemic. Stay strong! We will overcome this ♥️🙏🏽
Absolutely! What is normal? Ugh so much change. We can do it!!!
I hope that both of you get well soon early
I’m 16 and preparing for medicine & if I get selected hopefully I seriously will become an oncologist and dedicate my life to study the genetics & anatomy of cancer,
I know in near future a final cure would be made for this particular disease n even if I won’t be able to find one I would work towards it.
I really hope that you both really get well soon and seriously thank u so much for being so so so strong 💖
My prayers are with you and may god bless you!
Please stay safe and remember you are a fighter n you can do it
My heartiest love to you both
I hope you are bit better now 💜
How are you doing? My cousin had this type of cancer. She was 58.
Sending love from a fellow 22 year old cancer survivor. Stage one breast cancer. ❤️
How are you doing 😊☺️👋😊☺️
You are such an articulate and intelligent woman. I am a nurse, I see a lot of young, healthy people who have their lives turned upside down with cancer. Sometimes there is no logical or scientific explanation as to why these things happen. Life is unfair that way sometimes. I am sending you so much positive energy for your healing. So much love to you x
Have you watched the documentery Root cause?
Catherine, I'm a guy, but hearing you tell, your stories, it's like I have ovaries, an I'm hurting with you through this whole process, especially down it that region of my pelvis. I stand with you in solidarity, not because I'm a guy and not a lady, but because feminine cancers run in my family. I am with you every step of the way.
lol
I have no idea why this came up on my home feed but wow...What a brave presentation..so honest and raw and beautiful. As an ER nurse for 15 years I promise you that your story is helping some woman out there watching. Keep praying and keep believing that you are strong and amazing and this is not the end of your journey!
Thank you for sharing your story, I'm 40 years old and I recently been diagnosed with stage-4 cervical cancer that has spread to my lymph nodes, it's videos like this that help me and I'd like to thank you for opening up and sharing
What were your symptoms? How were you diagnosed hope you are doing better 🙏🏼
I hope you’re doing okay now…🫶🏽🤍
Hi! I had similar symptoms to you as well and I was 18, 19 now. Earlier this year I was bloating and had frequent urination and such. We went to the doctors and they kept telling me it was constipation. 3 months in from seeing the doctor my stomach did go down a little but not much. My mom really pushed for an ultrasound. So I eventually got it, in the end they found a cyst of 20cm. It was basically my entire stomach and was pushing in my bladder. I had a laparotomy surgery two weeks ago and I’m recovering from it, good news was it was a mature teratoma! All I gotta say is you really gotta be able to push for things like this. Since symptoms are usually dismissed for something else. This video was in my recommendation and I’m glad it was hope your doing better!
Wow, almost identical stories except my teratoma was immature! My cyst was 21cm, so you definitely feel my pain. I’m so glad you’re doing well and thank you for such a sweet comment!
Hello do you need help ?
@@CatherineSaoud did they write the name of ur cycts in ur ultrasound? In my ultrasound the girls took almost 50mins! My parents were like why is it taking so long cuz they said it only takes only a few minutes? Do u think ur ultrasound was the main way u could figure out the kind of cancer or cycts it was... In my case i was told to take birthcontrol and vitamins myofolic sachets is it possible tht birth control can make the cycts smaller , its getting common young ppl with health issues just last week i got diagnosed with pcos 😭😭 is it possible to get regular periods and still have cycts
I got prescribed DIANE 35, LOCYST , MYOFOLIC SACHET
I GET REGULAR PERIODS NATURALLY BUT MY ULTRASOUND SHOWED CYCTS ON BOTH OVARY
RIGHT OVARY HAS MULTIPLE CYCTS
LEFT OVARY HEMOGRAPHIC CYSTS 2.6x3.2
WILL SKIPPING MEDS BE OKAY FOR ME .?
Age 20
Height 5'4
Weight 61kg
I get pain from the cysts 😣😣 Mere periods 4 to 5 days hotte hai lekin un hone kaha hai ki 2nd day of periods se lena hai
@@aena5995how's ur condition now
"if your body is telling you that you're in pain, if your body has made these changes, there's probably something to be concerned about" YES thank you for this. pain is not normal, it indicates something is wrong. it can be from a "normal" cause like regular menstrual cramps or pain after surgery, of course, etc. but anything chronic or random seemingly without cause should be investigated. women especially are told that our pain is normal when it is often not. it might not just mean cancer (which is rather rare for certain age groups) but could mean endometriosis, ovarian cysts, nerve or muscle pain, etc. so many causes, and I strongly believe that patients women especially should and need to be their own advocates. fight for answers, it could potentially even save your life.
Hi my name is Jaimie. I am from Pittsburgh, PA. I had a ovarian teratoma that was found to be the size of a 22 week old fetus when I was 13 years old. I am now 22. They told me that it was most likely to be my twin!! My friends in school actually named it lol. I had the same exact symptoms as you. Thank goodness you were finally taken seriously! Do not ever feel like you are alone with this! I am now studying to be a imaging tech and graduate in May!
Wow, this is an amazing story! So proud of you for choosing that career path, thank you for the sweet comment!
Yeah, teratoma twin….lol
I had teratoma too it's been 6 month I will my chemo
Can you please tell me about your diet my mum had an overian cancer and I'm soo worried about her please reply me
I can't believe it! I'm going trough an ovarian cancer right now and it's been really hard due to the pandemic. I felt alone and hopeless but hearing your story helped me a lot, thanks for sharing ✨ greetings from México.
This is exactly why I filmed this video. I found virtually no one sharing this type of story. I wanted to provide some comfort for other ovca fighters that there is hope and we can create our own community. Goodluck with treatment, I know you’re gonna knock it out of the park! ❤️
@@CatherineSaoud thank you, it means a lot 💕
Hola Sandra¡ Estoy pasando por lo mismo ahora mismo. Tiempos muy duros y de incertidumbre¡ Mi cirugia sera este proximo miercoles y estoy aterrada¡ Escuhar que no soy la unica mujer pasando.por esto tan dificil me hace sentir un poco menos sola en esto :(
Dios te bendiga y espero.estes muy bien ahora¡ 🙏❤
@@natalynicols8039 hola! Me encuentro mejor, todavía no estoy al cien pero hay un avance. Espero que todo salga bien en tu operación, estas en mis oraciones y te mando los mejores deseos y lo mas importante de todo es que no estas sola ✨
@@sandraarvizu9261 Gracias Sandra¡ Iremos mejorando, creo que la actitud es muy importante ante cosas tan fuertes. A veces trato.de sacar esto de mi cabeza pero todos esos miedos vuelven siempre. Es lindo leer "no estas sola" me dieron unas ganas enormes de llorar. Pero animoooo¡¡¡ Somos y seremos aun mas fuertes¡ Te abrazo con el.corazon¡.
Yea my mom told me not having a period is normal found out i had pcos now at 25 I’m waiting on my biopsy results. Praying your cancer won’t return
So glad you decided to reach out to your doctors. They also told me my symptoms were normal so it never hurts to ask
I am 26 with PCOS praying things are okay with you i will be praying for you
Turn to Jesus He loves you very much, He is the God of miracles, i was ill for a long time, but the doctors couldn't really help me, i don't blame them there was only so much that they could of done for me, Then Jesus gave me a miracle and healed me, God has done amazing things in my life and in the life's of people i know and love, He can do the same for you and yours, When you need Him call on Him, The bible tells us in Romans 10:13 For whosoever shall call upon the name of the Lord shall be saved, He is the God of comfort and will be there for you when you call on Him, God saved someone i love from an illness leading to death, There is nothing impossible to God, Its as simple as accepting Jesus, and Trusting Him for your Salvation, He is the healer of the body and Saviour of our souls, And if you truly seek Him Jesus will answer you, i know this because He answered me when i called out to Him,
@@Blessed1994 Turn to Jesus He loves you very much, He is the God of miracles, i was ill for a long time, but the doctors couldn't really help me, i don't blame them there was only so much that they could of done for me, Then Jesus gave me a miracle and healed me, God has done amazing things in my life and in the life's of people i know and love, He can do the same for you and yours, When you need Him call on Him, The bible tells us in Romans 10:13 For whosoever shall call upon the name of the Lord shall be saved, He is the God of comfort and will be there for you when you call on Him, God saved someone i love from an illness leading to death, There is nothing impossible to God, Its as simple as accepting Jesus, and Trusting Him for your Salvation, He is the healer of the body and Saviour of our souls, And if you truly seek Him Jesus will answer you, i know this because He answered me when i called out to Him,
I started having pain in October 2019, I finally had surgery to remove a 20cm cyst on my right ovary in December 2020. Pain has increased again since February this year, it’s a nightmare trying to be taken seriously when it comes to pain and symptoms. Thanks for making this encouraging video about your own experience 🙏❤️
How did they find the cyst did they do an ultrasound?? Hope you are doing better!
@@Cinthialavesyuu yes they found it by ultrasound but they didn't see how big it was until the surgery. I think they thought it was about 9 cm.
I am doing better thank you :) x
@@YazmynHendrix Thank god you are doing better!! Did you ever have a red with mucus spotting or a yellow discharge when wiping?
Wow. I have not heard of other women with the same situation. I was diagnosed at 12 years old with a rare form of ovarian cancer just like yours. I had very similar signs and symptoms: bloated stomach, abnormal menstrual cycle, pain throughout my entire abdomen, could not stand straight, etc...I actually felt the tumor drop in my stomach during P.E. class when doing push ups. I went in about two months of being in pain hoping it would go away, but I was wrong, and your message says it all....Go get checked and be your biggest advocate!
They couldn't believe the size of my tumor (described similarly as the size of a football).They removed my left ovary and greater omentum, and I went through about 6 months of chemotherapy. It was a journey.
I am now almost 28 years old (so almost 16 years without any issues recurring). I am also a mom of two boys...never thought I would be able to have children, so I feel incredibly blessed. You are incredibly strong for sharing this, I wish you all the love through your journey. xoxo ❤️
Thank you for your testimony! It’s amazing to hear from people like you. It gives me hope that I get to be a mom and don’t necessarily have to suffer recurrence. ❤️
I pray you be healed by God. Can you tell me what were the hardest 3 things with chemo?
Are you fine
Your mom sounds like an angel! There is nothing like having your momma who just makes everything better the minute you hear her voice. Your story is so touching that it made me cry, but I am so relieved that you are okay. Thank you for sharing. Praying for you to have a future full of many blessed years. God is so good!
I don't know my diagnosis yet but I am feeling every single symptom you felt. I'm so confused. Thank you so much for the video!
I’m so glad this was helpful! That was my goal for this video is that if it helps one person, then it makes it worth it. It was a long 2 months of pain waiting for the doctors to figure it out. Hopefully they get answers quickly ❤️
What were your results because I have the same symptoms 😔
I can't believe they messed you around so much before you got an answer. I'm praying for you. You are on your way to recovery! ❤️ I know it ❤️
Wow. I needed this. I have had some weird symptoms, but I always downplay it and say to myself "it's nothing serious". I should really get it checked up. Thank you. Wishes from Sweden.
This is exactly why I made my video. Thank you for the sweet comment and I'm so glad you're working on getting answers!!
Get at CT scan. That found the cancer in me.
Hi, I have Ovarian cancer too, this is my second fight with it, I am currently on Oral chemo and Avastin every 3 weeks, my CA125 came down 100 points so that is encouraging , Good luck to you, prayers for you beautiful
I am 3yrs ovarian cancer survivor.But my tumor marker is 100 now and biopsy results come positive for malignant in liver. I have done mri and cat scan before biopsy which shows cyst without abnormalities.dr was not ready to take out cyst until it cause problems but I forced dr to drainage my cyst and do biospy which come positive we have to force the dr for our life and cancer is nasty disease
What is the oral chemo for this cancer???
Ok....this is amazing....I am watching this video, I hearing you story, and you get to the part where the doctor call you back to tell you the pathology report..I tell myself.....if she says immature terratoma I’m going to die...and you DID. THAT IS EXACTLY WHAT I HAD. STAGE 3. Mine was grade 3 because it ha spread to other places ....I had grueling chemo for about 5 months. I had the tumor marker test like you. The AFP was the most important one to follow...it was hard but I SURVIVED. ~~~~~~~~~~~that was 22 years ago last month!!!!!!❤️❤️❤️❤️❤️🙏🏼🙏🏼🙏🏼🙏🏼🙏🏼🙏🏼🙏🏼 you will be fine🙏🏼🙏🏼🙏🏼🙏🏼❤️❤️❤️
This comment has really given me such a more hopeful outlook on my recent diagnosis with stage 1A grade 3 immature terratoma in December 2020 ❤️ I also just turned 22 early January this year!!
@@jen8433 if you ever need someone to talk to, please let me know...I could write a book....remember, mine was stage 3 grade 3. 23 years ago...no reoccurrences. I am a survivor and you will be too🙏🏼🙏🏼🙏🏼🙏🏼🙏🏼🙏🏼🙏🏼🙏🏼🙏🏼🙏🏼🙏🏼
@@jen8433halw how was u now, am also same situation plz rply
@@corkipollock7617hlw am also same situation plz rply , how u now
Just got diagnosed with cancer at well, in a birthmark. I know it’s not the same but just wanted to send hugs from Denmark 🥰
Cancer sucks no matter what kind. You got this! ❤️
I had melanoma discovered at 20 years old!! No fun, stay strong!
Turn to Jesus He loves you very much, He is the God of miracles, i was ill for a long time, but the doctors couldn't really help me, i don't blame them there was only so much that they could of done for me, Then Jesus gave me a miracle and healed me, God has done amazing things in my life and in the life's of people i know and love, He can do the same for you and yours, When you need Him call on Him, The bible tells us in Romans 10:13 For whosoever shall call upon the name of the Lord shall be saved, He is the God of comfort and will be there for you when you call on Him, God saved someone i love from an illness leading to death, There is nothing impossible to God, Its as simple as accepting Jesus, and Trusting Him for your Salvation, He is the healer of the body and Saviour of our souls, And if you truly seek Him Jesus will answer you, i know this because He answered me when i called out to Him,
Hello there is a secret cure and I know who can help you with the cure.
God bless you 🙏❤
Wow, you are so strong. That line towards the end, "We're only given things that we can handle" really hit me hard. I lost my mom to cancer last July and it's been so hard. You made me realize that although I feel like my world is falling apart, I'm getting through it.
Please come join us at Motherless Daughters💔
I dealt with abdominal pain, thinking it was normal until I finally got a CT scan after a year of pain. Turns out I had an extremely rare teratoma tumor (not a cyst), INSIDE my ovary at 15 years old. Thankfully it was benign, but my reproductive health is something I still worry about. You’re so strong! 🙏🏻 thanks for sharing your story!
Good for you for advocating for yourself. You’re half my age and you did a much better job of advocating for yourself than I did. I’ve been trying to get an appointment with my OBGYN for a year now and they kept trying to schedule me for a telehealth appointment and also charge me full price. I told them over and over again that I needed a pelvic exam, that I didn’t feel right, that I have cramps, and I need a Pap smear. My GP doctor tried to send me to a different doctor who didn’t have any appointments for 3 months. I finally called him again and said that my Mom died of this kind of cancer and I’m not waiting anymore. So I got an appointment with another doctor, finally, and yes, I have a cyst that now needs to be biopsied. I wish I was in Chicago because as badly as you were treated, at least you got to see an actual doctor more quickly. I am worried that in the year that I’ve had to wait my situation got worse.
I feel for you that you’ll have this hanging over you for the rest of your life.
Hi did you have an update?
This is my story
Hi there. My name is Aliyah and I’m 22 years old and a mom to a 2 year old daughter. My mom had cervical cancer, my aunt and grandma breast cancer, and my cousin died of brain tumors at 25 years old . I have been having pain in my stomach for many months, no peorids in 8 months but swollen in my stomach and hard like I’m 3 months pregnant. I also have had white foamy stool and Back pain and always feeling full and going pee. I have begged the doctors to help me but I was in the er until 3am the other night for them to tell me nothing is wrong with me I just have a stomach bug. Could this be true? I also have had a lump in my breast and a cyst on my ovary that my obgyn dismissed I have medicade so I tried to make an appointment with a different doctor and they won’t let me please what do I do I don’t want to ignore this and die while I have a daughter but no doctor seems to care.. I’ve been so reluctant to believe myself because my daughters family on her dads side are all nurses and tell me I’m just crazy and a hypochondriac but I’ve never even thought or said something was wrong with me until after symptoms started
I just got diagnosed with this exact cancer at 24! You are the only person who has documented their experience that I know of, so thank you it’s very helpful. I am stage 2 and I had my surgery about a month ago. I got pathology results back a few days ago, and they got it all out without removing any ovaries, just one Fallopian tube. It was 32cm big! but it was stage 2 so I’ll be starting chemo next week. It’s so weird because I was so relieved when I got the diagnosis because I was expecting a lot worse and this is one of the only ovarian cancers that is considered curable! You are so right about advocating for ourselves, I almost didn’t go to the doctor but thank god I did.
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Hi Laura I please would like an update if you have one
This is my story
Hi there. My name is Aliyah and I’m 22 years old and a mom to a 2 year old daughter. My mom had cervical cancer, my aunt and grandma breast cancer, and my cousin died of brain tumors at 25 years old . I have been having pain in my stomach for many months, no peorids in 8 months but swollen in my stomach and hard like I’m 3 months pregnant. I also have had white foamy stool and Back pain and always feeling full and going pee. I have begged the doctors to help me but I was in the er until 3am the other night for them to tell me nothing is wrong with me I just have a stomach bug. Could this be true? I also have had a lump in my breast and a cyst on my ovary that my obgyn dismissed I have medicade so I tried to make an appointment with a different doctor and they won’t let me please what do I do I don’t want to ignore this and die while I have a daughter but no doctor seems to care.. I’ve been so reluctant to believe myself because my daughters family on her dads side are all nurses and tell me I’m just crazy and a hypochondriac but I’ve never even thought or said something was wrong with me until after symptoms started
You're so inspirational girl! I was diagnosed with melanoma this summer and I was feeling exactly the same as you, shocked that it happened to me. It's so surreal. You're amazing!
You are a very lucky young lady and God and your Angel is with you and saved you! Bless you much love and many prayers! ❤❤
Thank you for educating us on this. I’m a Mom of a grown daughter and my heart goes out to you and your poor mom. I know she must have worried fiercely over you. You are smart and will stay on top of this. Good luck sweetheart.
Thank you for sharing your story. I’m sorry you had to go through so much to get a diagnosis. Good on you for being persistent, it’s easy to let doctors convince you it’s nothing.
Thank you for your sweet comment. The pandemic made it really difficult and not to mention student health just being ill equipped to deal with serious issues. Once I was turned over to the right person, I got the help I needed.
I am so so mad at medical professionals for treating SO many women not like men. I just know that if a man would've had the pain and worry that you had, he would've had a diagnosis way earlier and would've been taken more serious. I'm binge watching ovarian/cervival cancer videos right now to learn how to become a better doctor in terms of the social aspect and l started bawling because l'm so angry at the system and how so many women have to suffer for no damn reason. Thank you for doing this video!
This is one of the main reasons I wanted to share my video with my friends and family! I know how much privilege I hold and if it was that tough for me to be taken seriously, imagine how difficult it is for women of color, lower SES, etc… I am so glad you are taking the time to do your research. I hope more doctors do things like that in the future!
I can't imagine going through all of that during a pandemic. I was just talking to my own family not too long ago about how lucky I was going through my own experience with a rare ovarian cancer when I did and with the team I had. I was fifteen when I was first diagnosed with my own ovarian cancer. I do think that with the right mindset you can make it through it. It's a surreal feeling where it doesn't feel like your life, but is, and there will eventually be days where you almost don't think about it (save for the scars). Keep advocating for yourself. I've had so many doctors over the years who have disregarded my "feelings" on something, even after I had gone through cancer treatments multiple times...The fight gets old, but if you build a strong team to work with you it gets easier. I will keep you in my thoughts as your go through your journey.
Omg I can only imagine the anxiety and yes doctor are very quick to prescribe medication instead of trying to figure out the real problem
This is what is happening to me I have symptoms I never experienced before persistent bloating, frequent need to pee, lower back pain, nausea, sharp pain like a stabbing pain in lower belly but I was told at first I had a UTI they found bacteria in my urine took the antibiotics they didn't work went back they did a Pelvic exam and they said I had Pelvic Inflammatory Disease took antibiotics again wasn't helping at first helped a few days once I finished them I started feeling the bloating feeling again the frequent need to go pee never went away I don't know what to do anymore I am very scared I have a kid and she needs me 😢
What a lovely girl you are and brave. You will be alright and will be protected.
You're such an inspiration for ppl like me who's going thru this horrible experience. God bless you 🙏❤
I work in healthcare and I am in my late 30s it means so much to me to hear your story and that of others that have these experiences so I can advocate myself and my patients.
Randomly stumbled upon your video. Sorry you got ovarian cancer at such a young age. You're doing great advocating cancer for younger women. I always say cancer doesn't discriminate. I am a 5.5 year breast cancer survivor. Diagnosed at the age of 28. The pain and struggle is real. You've got this girl
Thank you, WE got this!
I was listening to your video and looked at my lab results for my biopsy for endometrial cancer.. I am happy to say that it came back negative. I still face surgery to remove a 6.5 cm complex ovarian cyst. Like you my belly was bloated and I had some discomfort. Some nausea, some pain, but no bleeding. I know I'm in the same position as many who were unable to physically see the Dr for months. I sympathize with everyone going through this. God bless and continue to stay healthy.
Is a biopsy just a simple ultrasound report i m confused itd getting common young ppl with health issues just last week i got diagnosed with pcos 😭😭 is it possible to get regular periods and still have cycts , i did get bloating too but its more oike belly fat depsite me having intermittent fasting
I got prescribed DIANE 35, LOCYST , MYOFOLIC SACHET
I GET REGULAR PERIODS NATURALLY BUT MY ULTRASOUND SHOWED CYCTS ON BOTH OVARY
RIGHT OVARY HAS MULTIPLE CYCTS
LEFT OVWRY HEMOGRAPHIC CYSTS
WILL SKIPPING MEDS BE OKAY FOR ME .?
Age 20
Height 5'4
Weight 61kg
I get pain from the cysts 😣😣 Mere periods 4 to 5 days hotte hai lekin un hone kaha hai ki 2nd day of periods se lena hai
@@aena5995 ultrasound takes pictures for diagnostic purposes. A biopsy is a little more invasive, where they remove a tissue sample like endometrial tissue, which they send off to a lab to see if it's benign or cancerous.
Anything that pertains to your condition personally, would be best answered by your physician. 💜💜Good luck
@@maryuma2TheMoon Where are you from if i may ask?
@@jasonbryan9056 Near Delaware
@@maryuma2TheMoon Where are you from if i may ask?
Best of luck to you. What an articulate and lovely young woman you are. I wish you a long and happy future!
Thank you so much!
This post is from 3 years ago 😢 I hope you made it through, young, lovely lady ❤
I admire your strength! I pray that this never comes back! xx
So happy for you that you caught it early! Sticking up for yourself and having good doctors is so so important.
When I first moved to Ireland from the US, I had terribly painful period pain and frequent UTI's. The first doctor I went to only wanted to ask about my sexual activity, and when I told her I had a partner, she insisted over and over in that one appointment that it was my boyfriend that was dirty and not cleaning himself properly, and that I needed to talk to him about improving that because that's why I had recurring UTIs (seriously..).
Needless to say, I immediately went to a new doctor, and she didn't hesitate to order a transvaginal ultrasound and send me to an OBGYN. I had multiple large cysts and a lot of vitamin deficiencies that were really wrecking havoc on my body. Everything ended up being ok and was treatable, but I always knew it wasn't "nothing." Whenever I mention something even minor to my new doctor, her attitude is that she has to "prove" to me that I'm ok. I value and appreciate her so much, and wish everyone could have a doctor like I have now!
One doctor told me that I wasn't wiping correctly after using the bathroom and another told me I was using the wrong soap to clean myself in the shower, lmao!! So glad we didn't fall for those silly answers. I'm proud of you for pushing for answers and finding a new doctor that took you seriously. Thank you for sharing your story!
What an awesome young lady you are. I wish you all the best and a bright future!
It’s so incredibly eerie how identical our stories are.
A friend of mine, her daughter just went through two surgeries in the end of fall/beginning of winter for a cancerous teratoma on her ovary. She’s 15. This is so wild. I’m so happy you’re healing and recovering well 🥰
Did she take the gardisal? Thats young.
I can not believe how everything lined up for you. Thank God. I'm so glad you got the answers you needed fast even though the beginning was a fight. I hope you stay healthy and well for life. 💕
Hello
Wow!! You're so strong and inspiring. I have some lower abdominal pain in Jan 2017. It's wasn't bad. In May it was very bad and when June 2017 rolled around it was unbearable. When the pain went to right leg i couldn't walk. After a few hours it went away. I had my good and bad days too. My parents and i pushed to get that ultrasound earlier cause i couldn't wait a whole month. They told me it a 9cm ovarian cyst and it could be a tumor. I was devastated. I was in surgery June June 21st, 2017. They were wrong. I had a very inflamed Uterus and they had to do a complete hysterectomy. I was 32 years old. It was still a shock being told that in the recovery room. It was a scary thing to think that i may have cancer. Thankfully for me it wasn't the case. I hope your cancer doesn't return. Stay safe. xx
You will be a brilliant social worker. Your demeanor, your intelligence, your dignity and even your articulate presentation along with this trauma mean you will be able to help people in a way others couldnt. Everything happens for a reason. As a mum to a 26 year old my heart broke to bits for you but you have got this Catherine. Later in life write your story .. because this will happen again to some poor lass. Bless you. You are a lovely brave young woman, enjoy each day to the maximum. When youve had a child ..consider getting a total hysterectomy love. Its not worth the risk. God bless darling. 💕🙏🦋🐈
Thank you for sharing your story. You’ve possibly helped someone realize that they need to get checked out and/or have given someone hope♥️
You’re a warrior I’m so proud of you look at you! Fighting with us! Please keep us always updated. Praying for you ❤️🥺
You are an amazing young lady!
I’m a bit lost for words to describe your strength and how much I admire you. I’ve been a nurse for 48 years and don’t think I’ve ever come across someone your age who has the strength and knowledge that you have. I’m sending loves of prayers and love ❤️
This means so much to me, you have no idea. Thank you ❤️
Thank you for sharing this story, you are such a strong person! You gave me the courage to go see my doctor🙏
This is so amazing to hear, you got this!
This was randomly recommended to me and I watched every second. Thank you for sharing your story and I hope more women take uterus and pelvic pain and cramping seriously. I am so glad you are doing better and I wish you the best!! 😊
Thank you so much, this comment means the world to me ❤️
Recommended to me after having months or random cramps and changed periods. Just left my transvaginal US and looking into results. I had HPV when I was 21 so you already know where my mind is going. Waiting for my Pap smear and speaking to MD on results next week.
Hi, just found your video. Although my breast cancer seems to be in remission, my protein marker keeps going up. I get scans every 6 months, and see my oncologist regularly. Cancer is the gift that keeps giving! I am glad you are doing well, stay strong!
Sorry for my language but YOU ARE BLOODY AMAZING! I recently too had a cancer scare and I was so fortunate that I was told it was nothing and just a small mole on my cervix. But the waiting time to be seen during the pandemic was awful and my anxiety was through the roof. But watching what u went though only tells me how strong you really are and I really do hope and pray this does not come back for you and you have a very long and happy life. Please just keep pushing to be seen if ur in doubt of anything.
Thank you for sharing your story. As a cancer patient in remission I must say that my cancer has changed my attitude towards life for the better and although I wish I never had to go through it, in many ways my current life is more meaningful because of it. I wish you all the best!
You’re super strong. I’m also struggling wth ovarian cancer now, my surgery is done but am still in pain ☹️my back pain is so severe , i feel so helpless. am waiting for my reports so that doctor could proceed with chemotherapy 🥺 i want to be cancer free,i never thought I’ll have to see this day.🙃
I'm so sorry that you also have to go through this. No one else can quite understand how vulnerable it is to be in this state where there is basically nothing we can do then just hope our body responds to treatment. I believe in you and your body. If you ever need to talk to someone about this, I'm here! Sending you all the love while you take on this battle!
@@CatherineSaoud thankyou so much catherine. You gave me a hope. I believe I’ll be alright soon and cancer free. I want to live long and fulfill all my dreams ❤️
You are super strong! I'm impressed you tell your story with such a calm voice. Wishing you the best ❤❤
God bless you! You are a strong young woman. Prayers for you.
Jesus is your doctor his your surgeon your hope for your future. He will give you peace . He is the only one who has your back. Turn to Jesus who loves you very much he brought you to this Earth he knows everything about you. I'm thankful for the doctor who listens to you. Jesus put them on your path he is your best teacher to help others. You are very brave and you are not alone . Thank you so much for sharing. Thank God for you many prayers for you and God bless you always 🙏🕊️ .
It was her mum and dad that brought her to this earth. Has this jesus bloke got a degree in medicine? hum..good to know, so should I fall ill, I will go to church and not the hospital!
It is well ,you will be okay
And yes ladies whenever you feel something wrong in your body go get checked, because if it was never there it is not normal, dont let anyone tell you that it is normal if it has not been there
But all in all you will be well
Hi hun , just wanted to say , so pleased you got medical treatment for your condition after waiting so long , I think u are so brave and very strong ! You have helped me to understand more as I have just had biopsy's taken last wk for pelvic pain and bleeding , I'm 68 not young like u but u have given me strength while I'm waiting for the results to come bk so ty so much and I'm sending love and best wishes for the yrs ahead and all you will! Succeed in 🍃💐🍃
Thank you so much for sharing your story. I’m going through testing and scans for ovarian cancer and feeling very nervous right now. I’m having the same and similar symptoms but thankfully have a lovely doctor who started the investigations as I didn’t know anything about ovarian cancer. Thank you for speak out and advocating for yourself and others! You are such a light and I’m so grateful to have come across your story tonight. I’m so sorry you have been going through so much! I’m thinking of you and sending all my love and prayers across the sea~ love Francesca xxxx
Hi do you need help ?
How are you and your results??
I am so glad you got that removed and you were so persistent. I wish you nothing but the best health. I love your positive outlook. I am 53 and I have been through so many ovary cysts and surgery and a ovarian cancer scare when I was in my 30s. It's awful but it does make us a better person...we as humans I believe are here on earth to go through trials and tribulations constantly learning. Take care dear. 🌞❤
Hello Catherine, I’ve had health issues in the past, I would say why me?
Now I understand God has molded me to become a better person.
Everything happens for a reason. Stay true to your faith read the Bible. Pray
You’re blessed ., I like to look at the positive and there are many in your story. Your healthy right now telling your story too many
Hello Delia
Hello...I am Ria from Kolkata, India..now 25yrs old...I too had immature teratoma...20cm in size..I was stage 1 grade 2... I knew something was wrong with me for a long time...my periods were not normal...I felt bloated but still I was unsure what's going on..so I can feel ur journey....it was in my right ovary...despite everything I'm thankful to god for keeping me alive..
halw am also from india . how u noww. am same situation
Hi that’s what they told me in graduate school for sw that all these experiences will make me into a intuitive social worker.... glad you are surviving this 😊
Not sure if I mentioned this in my video, but I'm currently in grad school for SW and my professors said the same exact thing! Thank you for your kind words!
Thank you so much for sharing your story and bringing awareness to this type of cancer. So brave and strong!
Thank you so much for sharing such a personal story. I find that there aren't a lot of these sort of intimate videos online that inform about this disease from people who have personally gone through it. Most of the videos i look up are extremely old/vague symptoms etc, and i appreciate you for shedding light on this. I pray that God heals you physically, mentally and spiritually and emotionally.
So sad yet inspiring at the same time. I recently lost my mum to secondary breast cancer, cancer really doesn’t discriminate age, social status etc… I’m so glad you’re okay, and I hope you live a full and happy life 💖💖💖
yea get those answers! don't ignore your body and push for tests. I would be dying in pain sharp stabs/vomiting/immobilized for a year and it was 1 10cm & 2 5cm cysts thankfully nothing serious but still had to had lapro surgery for it! ended up being cause by endometriosis. would have been a nightmare if they ruptured inside abdomen since they were outside ovaries.
this just came into my recommendations
but thank you so much for sharing ur story, you’re an incredible woman and i wish you the best. much love from the UK ☺️❤️
Thank you!
Severe pain and heavy bleeding is a warning sign. Especially if it comes out of no where. I hope this video reaches alot of women. Our cancers are called silent killers because Drs ignore it until it's too late.
Thank you so much for sharing! You are a brave and inspiring young woman. God Bless🙏🏽
Peace and blessings to you for a healthy recovery.
I’m so sorry to hear you’re going through this! Wishing for your healthy recovery. Thank you so much for sharing! X
I admire your positive attitude and outlook. You are an exceptional young lady. I just had an endometrial biopsy yesterday after having an abnormal abdominal ultrasound, and your video is encouraging to me as I wait for results. Thanks so much for your courage. I wish you all the best in life.💗🌸💖
Hello how are you doing 😊😊😊😊
Hi girl I had germ cell cancer/ yolk sac cancer stage 2 at 16. I’m now 19 and 2 years cancer free you got this girl 🎗🤍🤍
I just realized we had the same symptoms too
15cm tumor on my right ovary too
Thank you!! So glad you are 2 years out ❤️
I had the same grade and stage as you. I had it at 17. The only difference is, I did chemo after the intial surgery. Mine was caused by a genetic mutation. I understand fully what you went through. My doctors wrote me off for many months too. I hope all is well!
This video made me realize I should not think twice to go to the doctor, I am having very similar symtoms as you, one side pain then radiates to the other side and abdominal bloating. Hope you are better and thanks for the detailed and informative video. Hope you the best!
Did u and if yes which one was your result ?
Thank you so much for sharing your story. I also had a 25cm mass that was found in my right ovary with a risk of cancer. It was so tough going through this during this pandemic and not knowing, so many tests and all those months of pain. Mine was benign but I also had one of my ovaries removed as a result. And I have to get tested frequently in the case it ever comes back.
I’m on the road to recovery now and it’s been a long journey, they also had to cut pretty big due to the size, but our scars are our battle scars. You’re so brave and I’m sending you so many prayers 🤍 Never lose your faith because that’s what got me through everything as well. This was on my recommended for a reason, stay strong 🤍
I'm so glad they were able to get it removed and that it was benign! Welcome to the one ovary club, it's interesting over here lol. So proud of your strength and thank you for this beautiful comment and testimony!
I had a horrendous experience with (what luckily DID turn out to be an ovarian cyst when I was 25) but made be very unwell due to its sheer size. It weighed 15kg and was growing up into my chest cavity. When the surgeon removed it my blood pressure plummeted because my body had compensated for it being there. I was in hospital for a month and it was extremely traumatic. To add insult to injury it took my doctors 6 weeks to finally tell me that it wasn't a malignant cell type - as initially they thought it would be. I went through hell and 20 years later i still have medical trauma because of it. Can't have kids as i lost that ovary and it damaged my other one.
Hello Louise
So sorry for you
Yes I agree it's hard to say the word ..I hate giving it power ...much love and positive vibes to u xxx
Omg 22!! You are such a wise soul. I’m watching this video because I’m having some bladder issues. Feels like somethings pressing on it. I can’t stop going P and now my urine has almost stopped. It takes a good minute before it starts coming out. I don’t know what’s going on and I have no medical insurance. Something is seriously wrong.
Have you gone to get checked???
You are sooo mature for your age and I’m so sorry you have had to go through this! It’s honestly my biggest fear l. I hope you’re doing ok now xxx
I'm doing great! Thank you for the sweet comment. I'm going to post an updated video talking about everything that's happened since then!
I randomly got this video recommended. I just want to say YOU ARE AMAZING! You are so right about people getting dealt with what they can handle. You are already something special and the things you will do in this world will only make it a better place.
This is so so sweet, thank you so much 🥺❤️
Good luck to you and in the future!! Always stay positive and never give up on your dreams. Prayers for u ❤❤😉. Your are Brave/Inspirational!!
YOU WILL BE AN AWESOME SOCIAL WORKER!! 😁😀
May Allah grant u for your patience 🙏🏻❤️❤️👍🏽
You...are...as strong as a rock! Thank you for showing this 75 year old how to be bold in life.