Multiple Sclerosis - New Symptom
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- Опубліковано 14 жов 2024
- I felt the need to record in to my time line what I feel is further decline in my condition. I’ve had weakness in my right leg for a very long time, but my left has always been ok. I’m now experiencing strange sensations in my left leg, and the start of slight weakness. Hopefully it will be short lived.
HI NEIL, I USE A SCOOTER FOR GROCERY SHOPPING. THE STORES SUPPLY THE SCOOTERS. I AM FROM CANADA
I’m so sorry to hear about the new symptom, I can only imagine the fear that comes with a new symptom as like you say, you don’t know what will happen next :/ But you’ve got such a strong spirit and you’re so determined so I know that whatever happens, you’ll find a way to make it work :) And you have an amazing wife from the sounds of things who’ll love you no matter what and help you as much as she can :)
Thanks Georgina, yes new symptoms are scary for sure. Teresa certainly has been my rock for a very long time, almost 30 years now I fact. Glad you enjoyed the video. 😊
Hi Neil, so sorry your not feeling good, I can see it in your eyes, ive nor really been on ive had this chest infection for over 3 months, had 2 lots of antibiotics and no better, I told the consultant that I want off the pregabalin cos I dont even know what their doing and theve put me on another so at the moment im just passing out alot and nobody can wake me so dave and kate and my mum have had afew frights cos they've physically shook me and ive not wokeup,
Anyway gonna try and get some sleep now, look after yaself and love
to Teresa & Molly xxxx
Hi Sue, Happy New Year. Hopefully you’ll be able to kick that chest infection soon. The Pregabalin is a nerve pain killer which means it helps calm symptoms down such as burning skin and tingling etc. I hope you get to the bottom of the passing out issue, sounds scary! Take care. xx
Neil Bradley
I'm more worried about you Neil, just wondered if youve had another Mri scan, my consultant wont diagnose secondary for about a year then I'll have another Mri scan to see if theres been any change, I did ask would I get feeling back in my left hand as its been nearly a year and I just feel constant pressure and sharp pins and needles, I could tell before he answered which was probably not so I was gutted over that cos that came on in my sleep,
The last few vlogs youve done have worried me abit only cos your usually so bright eyed but I know this is worrying the hell out of you, just wish this stuff could be fixed for you but you have Teresa the most beautiful angel 😇
When Dave knows im feeling low he makes me laugh I think it helps him too, ive managed to fool everyone about my depression apart from Dave and the doctors, this one doctor I asked how do you know cos id only been with her 20 mins and she said cos I talked too much lol so I said right im not speaking to you now, we both ended up in stitchs laughing though, Anyway please look after yourself and this goes both ways Mr, you help so many people so if you ever want a rant or just a gab please dont hesitate to Pm me through messenger cos its private on their and the same to Teresa, I do that many stupid things one of them is bound to cheer you up 😁
Take care and hugs to molly xxx
Bless you Sue, I hope the hand does improve for you.. I certainly don’t feel the doctors know everything, sometimes it just needs a bit of extra time. Fingers crossed. Thanks for your kindness, I am feeling quite down with this latest dip causing me even more pain and walking issues. I appreciate your thoughts. Take care. xx
In some ways the fear is worse than the disease don't you think? It is amazing what we can cope with though. I have had severe M.E. for 31 years and basically bed bound for the last 3 though I am doing better at the moment because it is summer here and 9 years ago my beloved (and my carer then) at 57 began to develop dementia. We have no family and don't know people where we live here in Tasmania. Not an easy path. It is dealing with the grief and fear of loss on a continuous basis. But until we are no longer living here on this planet it is what is and there is nothing else to do other than get on with it and make the best of it while being kind to ones self. Some of us just have these lives and we are powerless to do anything else than cope until we can't anymore. So I empathize with your predicament Neil.
What kind of birds are you feeding in your garden? 🌺
Hello Willow, yes absolutely the fear and anxiety play a very big part that is for sure.. I often find myself contemplating the future and don't like what I see. I remember us chatting before about your ME but I didn't realise you'd had it for so long. Awwr, Willo my heart truly does go out to you with regards to your other half having Dementia, that is such a cruel disease. How are you both coping with this now? Not having any family or support must make things very difficult for you, hopefully you are able to stay in touch with people still by the wonders of modern technology (the internet).
We've got all sorts of birds in our garden, in fact I've been chatting to a lovely person called Karin on one of my other videos whereby I've filmed my good buddy "Cedric". He's a very tame Black Bird and I feel he's made a come back this year, his behaviour is exactly the same as the Black Bird last year. We also have Blue tits, Great tits, Long Tailed tits, Sparrows, Starlings, Magpies, Robins, Gold Finches .. to name a few. Oh and not forgetting a resident grey squirrel who likes munching on the kibbled peanuts :) He's a cheeky fella. I love the wild life. Oh by the way I love your video called "The Dusk Ritual" truly amazing!
As always Willo, its lovely to hear from you. Take care of yourself.
Neil.
HI NEIL, I FORGOT TO MENTION I HAD A STAIRLIFT INSTALLED. I HAD 3 BAD FALLS DOW THE STAIRS SO I THOUGHT I SHOULD GET ONE. EASTER SEALS RENTED IT TO ME FOR FREE.
joyce, from canada
I hear your fears and i hve the same symptoms, legs were always strong fr sports and dance and now with PPMS my left leg is weakening and the right has drop foot. i worry about totally llosing mobility or worse. smdh
Hi Renee, and thank you for your message. The fears are very real aren't they. I too worry all the time about the future and what it's going to be like. I try to live just day by day, but its difficult not to think ahead. I too worry about loosing all mobility, you are not alone.
@@NeilBradleyMS i guess all we have left is trying to be positive and hopeful. Easier than done though
I’m 50 and use a walker. Keep exercising and stretching. Massage helps, too. Dulci Hill does UA-cam videos on MS and has a group on Facebook called MS Frontiers. ua-cam.com/video/lbB_7RRQ4bw/v-deo.html This’s her channel.
Hi Carmela, yes I find the exercises and stretching very therapeutic. I actually subscribed to Dulci Hill’s channel quite some time ago and have enjoyed watching a fair few of her videos. Thanks for the comment.
Does stretching help spasticity? I find the holidays always do a number on me as well. I'm also in a very cold climate right now.
Hi Kelly - Well here's the thing, I've been doing a lot of stretches given to me from Physio.. mainly the Hamstrings and it feels good when I'm doing them. But then my legs go (literally) to jelly and I have to hold on for a minute or two for them to recover. I've also been doing an exercise to strengthen my core as I have a lot of weakness in my back. It's early days yet with the stretches, but I intend to keep up with them.
yes, it should. check out vids by a Dr Boster, just saw his vid on this topic
I think like u
Are you on a DMD?
I used to be on Copaxone and I stuck with it for a couple of years but could no longer handle the injection site reactions (they were bad) .. so I stopped! To be honest with you I don't think I've ever been RRMS, my MS is more Progressive and I don't think the DMD did anything for me. I think I would be where I am now with or without the drug.