Fatigue in Inflammatory Bowel Disease (IBD)

Fatigue in IBD ~ featuring the #IBDSuperHeroes team; AJ, Annie, Sahara, Stephen, and Roger.
We talk about how Inflammatory Bowel Disease related fatigue impacts our lives, in the hope that others can feel seen. Here’s what we talked about:
How does fatigue feel for you?
Has fatigue impacted your life enough that you’ve had to change or adapt something?
How do you deal with fatigue?
What’s the worst part about fatigue for you?
Is there anything that you know will exhaust you, but you do it anyway?
The irony is, we were all very fatigued during the making of this video! You may be able to tell!

[@paz1798]

Thanks for posting this! I have struggled with fatigue for ten years, went to my GP and always brushed it off as stress in the workplace. I got so much worse last spring and have hardly been at work since. Thanks to my neurologist who sent me to a specialist I got diagnosed with ulcerative colitis 6 months ago. I had no idea really, but in retrospect all the signs + a massive flare two years back all makes sense now... and I should have given them more attention.
Anyway thanks again for making this video, you all describe EXACTLY my days and I am having so much trouble making others understand what we are going through. Especially the part of being in a dream and just tagging along relates! I have a job where I have to do a lot of meetings and project planning - in the end it just didn't work out any longer. I will most likely lose my job due to this, unfortunately. Waiting for the magical cure! And watching movies I have seen many times before as I can "fly away in my head" and still know what is going on on the TV :)
Subscribed and I will come back to this video when I need a laugh! Although this is not a funny situation you descriptions made me crack up in laughter and it feels good to have someone to relate to.
Final question - I also have cluster headaches, does anyone else have this + IBD?

[@annemarshall5605]

This is so relatable. I don't have IBD (cancer and heart attack) but get fatigue. Listening makes me feel that it isn't just me! Thank you all. X