Giving my disabled daughter a bath
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- Опубліковано 18 вер 2024
- How do you give Elin a bath? This question has been asked a few times so I thought I'd answer it. Elin has a bath chair lift that helps me get her into and out of the water without hurting my back. So here it is, finally, the vlog in which I am giving my disabled daughter a bath.
I'm a special needs mum vlogger in the UK with two daughters, one of whom is severely disabled. Elin is a girl with quadriplegic cerebral palsy, she has a feeding tube, is a wheelchair user and as she can't use the toilet independently she is in a nappy / diaper.
Apart from cerebral palsy, Elin has complex medical needs and seizure disorder. She has tonic clonic, or grand mal seizures, partial focal seizures and absence seizures. She is on multiple medications every day, for her spastic muscles, for her reflux disorder and for her epilepsy. Elin is on a blended diet, which we give her through her feeding tube, and I share tips, how to and recipes.
On this channel I share our day to day life, our morning, feeding, medication and bedtime routines, feeding techniques, how Elin communicates, etc. I also showcase the relationship between Elin and her sister Alice, and how they play and interact with each other.
Elin’s medical procedures playlist: bit.ly/2HhKFsE
Tips and tricks playlist: bit.ly/2ugfoy1
Come and join us on other social media platforms:
Instagram: / parentxp
Twitter: / parentxp
Facebook: / parentxp
Website: www.parentxp.org
Vlog filmed on phone and edited with #FilmoraGo
I love it when your mom singing for you elin it doesn't just make you smile it also makes me smile also
Oh good, making people smile is the whole point of this 😃
Who is Alien
Those 2 sisters are adorable 🥰 just came across your channel from Canada !
I work with a student who uses a wheelchair, has seizures and is non verbal like Arlin. She too loves when I sing. I sang some camp songs from my camp counsellor days and she was so happy. Music is magical.
It really is magical!
Elin smile is amazing it looks like she has a lot of fun in the bath
She loves it
Hi Tova and Elin, I am so glad to see that you are all better Elin. I'm glad her chest sounds like she is all over what she had, while in hospital. Miss seeing miss "on the go" Alice.
😃
Grate choice of Shampoo! My favorite son is lavender! Lavender lotion lavender bubble bath.
I love lavender too
❤❤can no one help you bless you
What is the name sweet girls bath chair? I have one much like it, love your channel and your singing voice.
It's a Kanjo, which is adult size. I'd have preferred a paediatric chair but the council wouldn't give us one.
@@ParentXP That’s weird cause I looked at a medical supply store who carries that line and the junior is the only one shown with the pomel.
Her hair didn't glow because it's the wrong song lol. glad Eilins doing better! (sorry if I didn't spell that right, I can barely spell my own Middle name and it's not that hard LOL
Ah, of course 😂
@@ParentXP the right one is
Flower gleam and glow
Let your power shine
Make the clock reverse,
Bring back what once was mine,
What once was mine
I think that's all of it, but I could be wrong.
That looks right, I just didn't think of that. Now how do I edit glowing hair... 😂
Hi
Hi
Threw up 😂😂😂
I might just have to try some lavender shampoo, I think I told you about my little girl how are you getting on with the melatonin?
Yeah you did, how is she? The melatonin is going pretty well, not perfect nights but better.
@@ParentXP they've prescribed piriton for two weeks, if that doesn't reset her internal clock they will consider melatonin but said they don't usually prescribe it. Shockingly we have a sleep clinic here again (it vanished for years). I know my daughter as you know yours and I'm not convinced whatsoever the piriton plan will work but as usual the game of jumping through hoops 🙄
I was thinking about the melatonin today. I occasionally take melatonin and think it's great but it obviously isn't a strong sleeping pill. But I think that the brain damage she has may mean that she doesn't produce signal substances as "normal". I know her body doesn't know how to relax, she's always really tense, her bowels move to slowly, etc, so why not hormones and signal substances?
Hi, sory for askung but can you upload videos of Elin from baby, how she developed from baby till now?
I have hardly any but the little I've got will come during the December so make sure to keep up with the Vlogmas videos.
@@ParentXP I will for sure, thank you so much
How is Ellee
I want to ask you something are u mad at me when u answer my comments because is yes means I should not be asking stupid question if no then that means I should keep asking the question.. can u replied this question if u don't mind or if you are free .
Thank u God bless u
Hiyah. I really don't mind the questions 🙂. There are some things I won't answer but I have no problem with anyone asking questions.
@@ParentXP Thanks
mo😊ji\