I've got LUPUS!?
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I've had lupus since I was 27, and I'm now 72. It is not a death sentence. Just keep on being as healthy and happy as you can, put the diagnosis on the back shelf, and live your life. I learned a very long time ago that life is going to be uncomfortable, and if I keep bringing up illness, people will start to walk away. Life is so much more than my aches and pains from lupus.
What do you take for it.
Dear Justin! Over the years that I’ve been following you, I’ve grown to care for you and your family as well as really admire your courage in coping with the very complex health challenges you all face. At least with a diagnosis, a strategy can be mapped out. You have created a community, and know that this community is behind you. God bless!
You need to see a board certified Rheumatologist, you may not have Lupus but something else, I worked for a great Rheumatologist for 23 years I know they do a lot of other blood test to confirm a diagnosis of diseases so see a board certified Rheumatologist to get the correct diagnosis. It may just be your Lymes disease that’s causing a positive double strand DNA. So keep me posted. I also have a list of doctors maybe in your area (and all of USA) of board certified Rheumatologist.
Agree, I was diagnosed with Lupus 3 times and on further testing by rheumatologist I have Rheumatoid Arthritis
I am 100% totally supportive of the pony club for Lily and Peaches. That is wonderful!!! Oh and the boy thing... horses totally work. 🤣
I agrée. It worked for me!
As someone who was diagnosed with systemic Lupus over 20 years ago I can understand the frustration of finding a way back to healthy. My experience was the meds recommended for standard Lupus treatment were so hard on my system and didnt give enough relief to outweigh the side effects. Gluten, food preservatives, any artificial sweetners are my biggest triggers. So basically the modern American diet. Your gut becomes over sensitive. In my case a range of supplements helps with the chronic fatigue aspect of it. Stress is brutal with Lupus. Coose your battles well, you will pay for them with pain. And an utter surrendering to God, he is the best doctor out there! And I'm with Rebecca, I was diagnosed with Lupus, I do not claim it, It does not define who I am! Trust yourself.
38terra resets the microbiome in the gut
Stress is a major trigger for me too! The nervous system does not do well with Lupus.
I have parathyroid disease so I am on 50k bi weekly
I was diagnosed with Systemic Lupus when I was 27 years old now I’m 60. It is not a death sentence but along with Lupus comes other autoimmune disorders. For me it has not been an easy road but I still give God The Glory for all I can still do, maybe a bit slower but still going lol God Bless I will put you on our prayer chain.
@@HerYarnAddiction i have had Hishemoto Thyroiditis and for last year high parathyroid they say Surgery is the only thing to do for this what has been your experience?
Ivermectin. Black walnut. Could be related to your tick bite and US Army development of Lyme's disease. There are some other treatments but those would be a good start
Good start for a disability claim if nothing else.
Doing a little study on recent results where dewormers have been used for various health conditions is very interesting reading.
@@GetFitEatRightdisability claim for what?
I have Lupus, and a Retired RN. I have thought that every sence you started having problem's. Sorry, prayers are sent, stay strong!
I was diagnosed with lupus at 17,now 46.you have your ups and downs but you are the best advocate for yourself. know your body and what your symptoms are, and what your triggers are. Mental health plays a massive part to lupus flair ups. Sending my thoughts
Lupus is nothing to mess with. On the other hand a close relative of ours lived a long, very active, and prosperous life. She just watched it and did what the doctors said to do.
I was diagnosed with Lupus when I was 33 after years of suffering from thyroid disease and arthritis (from the age of 16)! The problem with connective tissue disease or autoimmune disease is that more than one can be involved. So regular check ups with a rheumatologist is absolutely necessary. Control of the disease is tantamount to a good functioning lifestyle. The carnivore diet has given me a lot of relief.
You are absolutely correct. I also have a mixed connective tissue disorder/autoimmune disease. For me I'm in a gray area where I don't have RA or Lupus but I have all the positive tests and symptoms of an arthritic condition. Rheumatologist basically don't have a name for it but there are a lot of people like me. They are doing more studies to try and figure things out but for now my rheumatologist doesn't think he should take me off my Plaquenil. At some point they may have to change my meds but for now things are keeping my blood tests in line. Unfortunately the cold weather and now dampness I live in is creating a big flare. I have a lot of the same symptoms as Justin has and he very well maybe worse now because of the weather.
Its because you cut out offending foods. The carnivore diet is like taking a pain pill. You need carbs.
Justin, I'm praying for you. Watching your kids grow and all you and Rebekah do, I have fallen in love with your family. You are truly a family that has removed the word "can't" from your vocabulary.
I have known a couple of people who have lupus so I understand that it is a complicated disease. I believe that Rebekah and the doctors can help you find the best way to fight it, if indeed you do have it. I offer prayers for healing, strength and wisdom. Lily's love for horses can only be good for her as we see her apply herself to learning all that she is being taught. Peaches is a lucky horse. Has he got his pony buddy yet?
So good for Lily, and what a lucky horse! It will keep her out of trouble - it did for my youngest daughter.
If Lupus is the case, things are making more sense... I have wondered about this for years. So much of what you've been going through lined up with a couple of my friends who have Lupus but since I'm not a doctor, I'm not sure I ever said anything. It's a difficult diagnosis but knowing that everything you've been dealing with is connected might be a relief. Now you can fight one "enemy" instead if many. I'll say a prayer and you've definitely got this!
God bless brother, you’re in our thoughts and prayers here on the MS Gulf Coast. 🙏🏾🥰
It's good to know, and I'm thankful it's treatable. Still kinda hit me hard for you. I know people who've had it for years. I truly hope your lifestyle will prove of great benefit for managing this. Praying for success and encouragement as you walk through this process.
Justin, I know several people with Lupus. Based on their experience, it is something you can live with, along with everything else I'd suggest (non-medical person here) talking to people who are long-term carnivore diet. Its anti-inflammatory results are well documented and may help you deal with the Lupus symptoms. Best of luck!
Lupus also affects the organs. Praying you get answers. God bless you.
Check out Dr. Brooke Goldner. I was diagnosed with Lupus when she was 16. Now, I believe she's in her early 40's with no Indications of Lupus. She wrote the book Good-Bye Autoimmune disease.
Lilly has come into her own with Peaches the horse! I am so proud of her. I am sorry about that potential diagnosis. You have so much love and support and will navigate through this too. Gentle hugs.
I’m so sorry you’re going through this health issue! I am praying for you and your family - you don’t deserve this! You are such a great father husband mentor!!!!!
Love this family! Down to earth family! Keep praying as a family! Keep your attitude up ! We love ya’ll
I was diagnosed with lupus 27 years ago. The best advice i got from a doctor was, "Learn your own body." I stay better when I stay away from stress, additives to foods, and processed foods. I've tried all the meds out there for Lupus. But for me if a flair comes on I just take Prednisone for a few days, it gets under control and life goes on. It's a pain, but don't give up.
I was diagnosed with MCTD and Fibro around 28, almost ten years ago now. Everything is a balancing act, but make sure to take care of yourself when you need to, but to stay active as well. I'll be thinking of you. It can be hard but I believe you and your family will be able to handle everything that's thrown at you.
God bless you. Prayers your way. Think out side of the box, and consider medical medication along with alternative medications treatments.
Thank goodness for blood tests. I had similar testing done and I feel so much better. It helps having a doctor willing to find the root of your concerns. Wishing you healing and a better feeling of "normal" soon.
I’ was diagnosed with discoid lupus in 2007, since I’m now SLE lupus, stage 4 COPD (years of smoking). And was just in a drug induced coma for weeks but woke up a couple weeks before Xmas. I was a day away from getting a tracheotomy and I have 4 daughters ages 25,24,16 and 9. I’m 44 just turned day after Xmas. God willing I’m getting stronger and hopefully can get on transplant list. I’ll say a prayer that your ANA levels stay in or below discoid level. Love your family and videos. Love from the Berkshires: New England Massachusetts 💯💕I also quit smoking almost 3 years ago now * also it’s your immune system sometimes fighting against you and it’s a genetic thing. And yes it’s your joints that can hurt and be swollen. There’s a lot of fb groups to*
Not genetic they think, it is stress, overwhelming stress, not well controlled.
My best friend has Lupus and she has managed it very well through diet, exercise and rest. She gets very sick if she gets too tired, eats her trigger foods or consumes alcohol. Very manageable, but you really have to take care of yourself. ❤
I was dx with Lupus years ago. First off, no case of lupus is the same that's why doctors have trouble treating the disease. There are similarities but each case is unique. Some people have mild symptoms some have severe cases. The Lupus Foundation of America has lots of good info on their website. Also, reaching out to others with lupus to find things that work for them and what didn't is a good idea. Keep a journal of things that make your symptoms worse. One thing that I struggle with is having photosensitivity. UV light causes me to go into a flare. I love being outside. I had to learn when I've hit my UV limit. Also, learning to listen to my body and stopping to rest and not pushing myself. Still working on that one.
Absolutely right. The Lupus Foundation will give you a good overview so you can make informed decisions.
Sensitivity for sure. I'm learning and always felt better when I had full cover clothes in summer but heat can get me too. Uv also bends and hiding under a canopy doesn't always work. Sometimes I'll be so ready for the day and I open my front door and cnt walk to the car I'm already done like it vaporized everything I had poof gone. I didn't know for a long time really what was happening. I love the outdoors so much tho. I'm praying about moving back north so I can get outside some more, but cold gets me too. I may just need to travel lolol follow the clouds and the 50 degree temps lolol. I'm learning too y I cnt survive road trips anymore too is the uv. I use to travel for work and then for years now I get sick after travel and I just figured I'm older I'm tired or I have stomach issues if my routine changes. But more and more I'm convinced it's uv. In my office too I have old windows and I thought I was having hot flashes for the longest time and after that I'd get sick for few hrs ir days... sitting in front of a south facing window, my favorite spot, is no longer an option so I'm looking into getting film for my windows
I was first diagnosed with SLE when I was 21. I am now 53 years old. I completely understand the struggles that go along with this disease. My advice is make sure that you cover your skin even with light clothing during the summer especially as sunlight can make discoid lupus symptoms kick into gear, but more so the sunlight can cause your Systemic symptoms to increase. Ive just been mowing for the past 3 days and ran myself ragged and Im now paying the price for that with an ongoing headache and ear ache and feel just generally fatigued. It’s a bugger of a disease but we can live our lives we just have to remember to try and manage our stress levels etc to keep it more subdued. Keep smiling Justin and family x Theresa - Australia
I too have been diagnosed with Lupus years ago. I also only take a low dose of plaquinel which has been a good regimen for me with no side effects. I agree holistic methods are beneficial. Best of luck with your health. I am 67 and doing well. Mostly I struggle with chronic fatigue and have had to learn when to rest. That is the best medicine for me.
Praying for this drug. Waiting for my biopsy.
Love you're channel and all that you do. God Bless
I have lupus. It is an autoimmune disease that effects your organs. It is hard to diagnose and often takes years. They call it the wolf because it can and does effect everyone differently. I started loosing my hair and had a butterfly rash on my face. I had these scaley patches all over my body. I was exhausted and the only way I can describe it is, like trying to run through neck deep water, your limbs feel really heavy and I cried for no reason. I didn't want to leave the house. I was 47 when I was diagnosed. Most people with lupus are diagnosed before they are 40.
A few years ago, I finally gave into a friend who knew I had Lupus. This because of all the health issues I was having. (Unimaginable pain throughout my body, my organs acting up and putting me in the hospital for no apparent reason, etc.). Finally, the doctor tested me for Lupus, and it was positive. When I was diagnosed, I listened to my friend who taught me how to cleanse my body from the toxins and about the Autoimmune Protocol Diet. In a few short months, I was healthier than I had ever been. I don't usually like to give others unsolicited advice, but if you look into the AIP DIET and after cleansing, slowly introduce your body to foods you will find all the foods that cause the inflammation and bring on the unwanted effects of Lupus....NO MEDS NEEDED. :) BTW this is what started me on my homesteading journey and to your channel!
Awesome post. Thanks for sharing ❤️
Justin I have a Autoimmune disease called Fibromyalgia and the symptoms are very similar to Lupus. I was tested for multiple things before being diagnosed and Lupus was one of them . I can relate to the pain you are going through. I was diagnosed at 38 and am now 60 . I'm praying that you find a way to treat it and continue to do the amazing things you do. Having the children to help is a blessing. I'm trying to get a homestead going with my fiance and it's tough when I can only do things in stages . I have to take several breaks in order not to overdo it and cause a flare up . My prayers and love to you and your family.
Blessings from Anna in Iowa
Hey Justin,
LUPUS is a Systemic autoimmune conditon that can present in various ways it is inflammatory, and does require management. I was diagnosed just over ayear ago and.am still working on getting things managed. I take Prednisone, and hydroxychloroquine. My rheumatologist is wanting slowly wean off Prednisone as the steroid does cause brittle bones if you take it to long. All the best to you as you work out the best way forward.
I am very interested in seeing your lupus journey as I have followed your pursuit of health from the beginning . I'm convinced we'll have the same diagnosis in the end . God's blessings always.
Randalf just seem like such a great guy! So nice and such a good worker!
I have lupus and the carnivore diet has been a game changer. No flare up’s, and off all meds. Never felt better.
I love watching you vids. Justin you and your whole family are awesome. You always seem so hard working and upbeat. It baffles me as to how someone who eats as healthy as you do and is so physical can have anything wrong. Have you and Rebecca looked into the information about how autoimmunity is linked to having a leaky gut? My daughter has Hashis so we're going on the Paleo diet that stresses healing the leaky gut. I love the book I found 'The Paleo Approach: Reverse Auto Immune and Heal Your Body' by Dr Sarah Ballantyne. It is a wonderful big thick book with the information explained that is easy to follow with good charts on everything. You might check it out. Wishing you guys the best. 😊😊
Bummer, that is not a good thing to hear at all. Thank you Justin and Rhodes family for all that you guys do. It has helped me immensely and one day I hope to be able to put it into practice with a homestead of my own.
I haven't seen the horse before, the little bow on the tail is cute. My morning cup of Joe comes out to being about that same color. Hope it works out and the two of the have a great time taking care of each other.
I have lupus! Lupus effects everyone differently! Get a Rheumatologist if you don't have one! It can affect your internal organs as well as your muscles and joints, it just depends on your body. Keep eating as clean as possible. Low salt, low sugar, low fat!
Love the Rainbow vacuum. We have had one for years and it is by far the best. Love your videos more, the vacuum makes me work. A good 12 gauge keeps the boys away also. God bless your family.
Justin Lupus is si different for everyone diagnosed no one systems are alike
Prayers for you and yours..we love you 😍
Prayers for you and for everyone In the comments who is dealing with health issues. ❤🙏🏼
yeah, I'm not surprised it has been diagnosed as LUPUS. That was the diagnosis that I got after having issues that are very similar to what you have been describing for the past year(s). I was also diagnosed with fibromyalgia. I'm currently in semi-remission, so it's not too bad and I'm lucky that I haven't had any organ involvement. But even so, it has taken time to develop coping strategies that let me live a pretty good life! I have faith you will find a path forward that will be joyous
I can’t believe it took this much time to diagnose lupus
I was diagnosed with Lupus at 27. After 10 years of having it, my advice is going on the lowest dosage of the least side effect prone medicine. For me, thats Plaquinel. Doctors will try to throw the kitchen sink at you, but you never know what your body will find helps if you dont start small over a long period of time. Foods can make our bodies "flare" which acts like a reaction (mine are animal products), so pay attention to yours. Good luck and health ❤
simple way to start would be getting your GUT back in health...that's where autoimmune arises
@Berley_1234 Yes, I already know this, which is why food is mentioned. You mistake the immune systems memory for something that can just be restarted. The inflammation can be tamed, but its muscle memory is strong.
if you want a supplement that helps train your immune system to function better then look up IMMUXAN (betaglucans from Agaricus mushhroom) also a supplement called MODUCARE @@nicolcacola
look up 1,3 -1,6 beta-glucans they retrain the immune system's memory thru DECTIN-1 modulation. IMMUXAN is a product on the market. Also another immune modulator that helps decrease TH1/TH2 imbalances is MODUCARE - Th1/th2 imbalances common in autoimmune@@nicolcacola
I could not function without plaquenil! Was diagnosed in 1999. I also have rheumatoid arthritis and hashimoto's.
My great niece has Lupus, and a friend of ours lost a daughter due to lupus. Best of luck on finding what works for you! Many prayers your way! ❤
Rheumatologist, get one. You have an auto immune problem. So you got an answer to your ailments. 👍❤️👍
Sorry to hear about your diagnosis Justin……
Just a suggestion… please check out Dr. Ardis who became a doctor to cure his sister of Lupus. He mentioned something about parasites one of the major organs that was causing the lupus, He has a podcast, if nothing else it would be worth it to at least get his personal story about it;) Good luck and God bless:)
I’ve had lupus for over 20 years, it seems to be the catch all for anything that doesn’t fit in another auto immune box. It presents differently for each person. Good nutrition and rest are key to management and reducing flares. I take Plaquinel but have had to up my treatment to IV infusions of Saphnelo after COVID and as Benlysta did not work well for me. Your overall routines are healthy and you learn to listen to your body so you minimize flares and don’t advance your lupus. Rest when needed or your body will make you rest for a much longer period. Keep your up with your doctor and lab appointments so any changes can be detected early. Like any chronic disease you learn to adapt. Good luck and stay educated as new information becomes available every year.
A couple years in on horse crazy girls riding (we don’t own, but our older daughter has a pony she’s worked with and ridden in 4-H competitions) and I am now a volunteer in the 4-H horse club. Last summer I ended up building a saddle stand for her to use at the fair since the pony’s owner had all her stands in use. Always more to learn as a horse parent.
Best wishes and prayers. I'm waiting for a biopsy in 2 weeks and hoping for a diagnosis after a long road. Biopsy of skin issues on my foot. But yrs of light and sun and heat intolerance, joint pain, mood swings, anxiety, paranoid episodes, body aches, nerve issues, inflammation everywhere, migraines, I had the occasional enlarged internal organ, have scarring in my abdomen, fatigue for sure, lately sometimes I get confused during flares. Worst has been from light and stress abd lays me out for 4 days. I say it's like I'm on fire or like my brain is on fire. W0orst is the mood and mental health. Due to other diseases I've suffered from I've slowly over decades learning my mental health is actually a symptom of my health I always have inflammation and stomach ptoblems after I cry. I pray for my husband and we have been through so much he does so much to provide and to love me and its never been easy. I'm praying that the biopsy will tell us what we need to know Soni can get treatment because I know that without inflammation I'm pretty good quality of life but every day of this is harder and harder for my body and myself to pull myself up again and again and I'm ready first time ever I'm ready for the drugs no matter what I need help and I putting my hope in the meds praying for the ability to keep on trekking
Ok, I'm not a doctor, but I have seen every episode of House MD twice, so I have confidence in saying it's never lupus.
I sure hope it's not Lupus. Prayers for a different diagnosis. I lost my niece to lupus. There are different types of it, and it affects people differently but I sure hope for you and your family it's something different. Best wishes!
My step Grandma had lupus. It attacked her skin. So sorry to hear this Justin. Is it autoimmune? I think it is and it can attack many different organs. I hope a natural cure or remission is available through the naturopathic medicine people. I know it stopped attacking my Grandma's skin after a year. She did have scarring from it. I hope they can help you! Wow, the wall for Peaches turn out area is built! Nice job Josiah and Jonah! Cool, the boys are air soft battling! I enjoyed the 1980s style house tour. I sure hope you feel better soon Justin. Thanks for this video Rhodes family!
Been dealing with mine naturally for years, its a juggle but possible to stay off rx's. BUT you do need to listen to your body, if you push yourself too much it can take weeks to recover. I dont avoid the sun as others do but I do sweat buckets and stay covered up as much as I can in the summer. Thin long shirts, thin pants, sunhats, et cetera. We homeschool as well so I plan our bookwork for during the hotest point of the day and will also try to tackle inside tasks during that time to help reduce my exposure.
Best advice is not to treat it as a disease but just conforming your life to what will work for you best, inorder for you to thrive. Somedays this means you have to just deligate the workloads out and other days you can crush it, just have to go with the flow.
You need to see a good Rheumatologist with more testing to confirm the Dr of Lupus. I worked for a Rheumatologist for 23 years and you may not has lupus but something else. So see a board certified Rheumatologist.
We treat Lyme at our clinic and most of our Lyme patients have an autoimmune disorder. They seem to go hand in hand. Take a moment to research RGCC SOT. I will see about finding a clinic near you,
Horses will keep a young girl happily occupied, so they won't be boy crazy, BUT, only as long as there are no boys around with their own horses. Boys with horses are the best. In fact, my first ever kiss was while I was in my horse's stall, cleaning it out. I was covered in sawdust. Carl was a young boy who also boarded his horse at that same stable. I still remember his name. Indeed.
My cousin had lupus and one of my friends has it the biggest thing is stay strong, staying strong mentally don't let this sickness get you down oh mess with your head. I'll be praying for you I know the struggle 🙏🙏💪✌✌👍🎅🌻
I have LUPUS too...and RA, Fibromyalgia, Raynald's, diabetes, gout, neuropathy, all and many others I have are auto immunes...telling you this because as a teen with seizures, was diagnosed with LUPUS...had childhood RA, spinal bifida and a right dislocated hip, that leg tied to my neck via umbilical cord...brain nerve damage at birth...I have come a long way! PLEASE if you start taking alot of pills....get your esophagus/endoscopy done on the regular to make sure pills are not getting stuck there and causing issues...I have GERD and what was Barretts Esophagus...now is cancer - which has spread...being put onto oncology, and can no longer work...I guess I can go back to making videos too, keep me busy...thats the thing though Justin, you are doing the right thing! Keep on keeping on! Sending my many prayers! LUPUS has come a long way too, you are in much better hands than those 40-50 years ago...trust me I know these things lol
Oh my goodness! You are a warrior! I'm astounded at what you've accomplished and how you've hung in there.
I just started having gout symptoms for the first time in my life. I recently did a deep dive into the biological and nutritional causes of gout and fatty liver. I heard it said, and I believe it may be true, gout is an inflammatory condition that is exacerbated by blood sugar issues and insulin resistance. I decided to attempt a nutritional approach first before seeing my doctor. I drink two teaspoons of apple cider vinegar in a glass of water, drink more water and take betaine hydrochloride after my meals. Apparently all of these things will help the body to eliminate excess uric acid. Anyway, I see relief of what is probably mild symptoms.
I'm not a doctor, just somebody who's been reading a lot of different material. It is said that gout is linked to insulin resistance and some say that insulin resistance is linked to fatty liver. I may be oversimplifying that but I decided to see for myself. I'm not sure what to think yet but I have non-alcoholic fatty liver and the primary cause of that is said to be excess sucrose and fructose. I don't eat much sucrose but I definitely took in a lot of fructose. It's interesting that the thing that is helping with the pain from gout is also effective at helping to reverse fatty liver disease.
I was suffering fibro too but I found something that has helped remove it almost entirely. I had liw thyroid. I tried every thyroid medication and all of them made me sick and nauseous to my stomach all the time. Some of them didn't really seem to help with the thyroid issue either. I decided to start using iodine supplementation. As a result, once I got close to taking the RDA amount, the low thyroid symptoms that I was suffering disappeared but so also did the fibromyalgia.
Lupus and Lyme disease seem to have a connection.
Justin, I love how calm you are with your test results, I'd be in hysteria. 🙂👍
A horse club for Lilly is the best thing ever
"friends tell me this will stay off her interest in boys. Ok yeah!! We are all about this horse!" LOL, Justin!! She is Good, You are Good. Everything will be all right. you are funny😃
Hey!! I'm learning ALL ABOUT HORSES WITH LILY. I have never seen a house, only in videos and movies... Nice to listen to Lily sharing what she is learning about horses.💕💕💕💕
I have to tell you, i rarely comment on videos, but ive been following your family for quite a while now. I didnt know how much you all crept into my life until i heard you say you finally figured out what you have. It brought a tear to my eye when i heard you say you figured it out, and I'm so happy at least now you know what it is.
I’ve heard an AIP elimination diet for 30 days can help reduce symptoms and recognize some food triggers. Chris Miller, MD was diagnosed with systemic lupus and she has an amazing story on how AIP helped her. She was a guest on the Plantstrong podcast.
when you hook up the chains for the trailer to the truck please cross them
Horses got me through puberty and later menopause go Lilly.
Lupus is complicated, not just connective tissue but systemic tissue. It can affect joints, skin, blood, kidneys and a whole slew of other areas. It absolutely explains your symptoms Justin. I’ve seen complete remission with stem cell transplants. Good luck on your new journey to battle this. I just think how sick you’d be if you didn’t live so wholesomely.
Do a monthly parasite cleanse. Cell Core
Please check out Dr. Brooke Goldner of Goodbye Lupus and Goodbye Autoimmune disease. She and her husband have helped so many people.
I’ve been battling this disease for the past 30 yrs. And the only solution the traditional medicine offers me is to completely wipeout my immune system since I’m allergic to 80% of the medicine on the market. In my case the remedy is worse than the disease so is though. May God guide you to a good solution and be aware of biologics .
Biologics/vaccines over stimulate the immune system and those with immune issues, their bodies don't know how to turn it off.
I hope it is not lupus. Lilly is so happy with her pony life. Happy New Year 🎉🎉
Get the boys to build a saddle rack stand. One for the tack room and one for the trailer.
It's treatable. But for my goddaughter it was diagnosed too late and we lost her within hours. God bless you and keep testing and taking your Lupus meds. We love yall.
Rheumatologist, the detective of medicine! Great for lupus ❤
My rheumatologist helped me get my life back! Thankful everyday for my miracle biologic!
I couldn't agree more. After years of suffering, a Rheumatologist came up with a diagnosis and a successful treatment plan. They're the first place I send people who have long term health issues... not the last.
You remain in our prayers. ❤
Space by the hvac would be great for broom/vac closet
I was diagnosed with the same in 2023. March . It actually scared the devil away from me. People have been known to recover from lupus. Just to let it be and live through it. WITH FAITH I CAN OVERCOME THIS TOO.
Man-o-man, Justin... I got bad news from my acupuncturist a couple years ago regarding inflammation and joint pain. He told me dairy products cause inflamation. I was not willing to give up dairy. NO WAY, Jose'.
However, Sept 2023, I was unable to garden. I decided to give it a try for a month. Unfortunately, it helped tremendously. Now I'm trying more radical things (sos-free starch based diet) and unfortunately, they are also helping restore my health. .
I know it is not popular with this crowd, but there is so much evidence that a plant-based diet low in processed foods is the healthiest, leads to the longest disease-free life. Studies of indigenous people who are hunter-gatherers/some farming shows that most have a diet of mostly vegetarian - nuts, fruits, legumes, root(starchy) and other vegetables with small amounts of wild (lean) meat, and little or no dairy/eggs. They also get a lot of exercise. They have very low rates of many modern day chronic diseases. You can certainly lose a lot of weight on a high fat/low carb diet, which will help with a lot of health stuff, at least for a while, but in the long run, your body is not meant to live on mostly on animal products and fat. There are so many important nutrients contained in fruits and vegetables, many of which are anti-inflammatory. Not to mention the almost total lack of fiber in a high meat/dairy diet which really screws up the microbiome that controls so many processes in our bodies, including inflammation. You can also be a very unhealthy vegetarian/vegan if you are not consuming mostly whole foods. Just saying.
Mediterranean diet!!
Did you try goat milk??
@@rootedreliance9463 I only tried goat milk ice cream, which is sooo delicious! But after my good results with avoiding ALL dairy, I will not go back. It was a difficult few weeks when we made the change because I was raised on a dairy farm (yes, RAW milk!) and my husband is German and wow do we like those great cheeses! Simply put, I'd rather have pain-free mobility than please my taste buds.
Try cutting nightshades and inflammatory foods. I have a friend that is shocked at the difference.
Granted her relief is coming at the cost of a free ranging diet in the south 😅
Hydroxycloriquin is derived from a bark that was used by native Americans Quinine, derived from the bark of cinchona trees, has been historically used by Native Americans for medicinal purposes, particularly to treat fevers and malaria-like symptoms.
The LOML has lupus and she's such a badass in my eyes! She's gotten it managed and some days are still tough on her but she doesn't let it control her life. Diet changes and knowing when she needs to take extra time to recover or fight pain seem to be her biggest benefits
Rebecca has a rainbow!! I've owned mine for 28 years. All 3 of my daughters own one... I'm the only one who bought it new at $1500.00 ... great vacuum.
Happ New Year Fuys🤩 May The Good Lord Bless you all with Health, Love & Prosperity 🕊🙏🏼♥️ Everything is coming together I’m so happy for your Family👏👏👏♥️♥️♥️✌️🦋
I am so sad you are experiencing another health issue. But I am glad you have a diagnosis at last. I am confident you will learn to manage it.
For a definitive diagnosis for lupus, i believe that it requires a lumbar puncture to check your ana. Some rheumatologists say the procedure is unnecessary since rheumatoid arthritis and lupus have similar treatment plans. I feel for you. I went from severe anemia after developing malabsorption issues from Nissen fundoplication surgery for acid reflux. After suffering an anaphylactic reaction to the iron infusion at the infusion center, i was worried about how i was going to treat my severe anemia? My hematologist said don't worry. I was no longer anemic. I now had developed a condition called secretary polycythemia. The same labs revealed that i had a high ra factor & a blood clot disorder antiphosolipid syndrome. There is a fatal version of antiphosolipid syndrome. Most patients have multiple strokes, pulmonary embolisms & heart attacks & have a life expectancy of 5 yrs after diagnosis. The non fatal version can be managed long term with anticoagulation therapy. Likewise, primary polycythemia vera is a rare, aggressive blood cancer. Secondary polycythemia will go away, if the underlying cause is identified & successfully treated. The problem I have is finding a hematologist that is willing to listen and look for the cause. My best advice is find a good rheumatologist. My current dr who has rheumatoid arthritis takes 6,000 iu of vitamin d3 daily. I believe that you also need to take a good quality vitamin c to help absorb the d3. He also prescribed me 200mg of HYDROXYCHLOROQUINE. I am not exactly sure if it is helping the rheumatoid arthritis. It is helping w/ the pain in my right forefinger. I have Heberden's nodule of the dip joint. Hope you find it good rheumatologist. Are you stiol thinking you might have elher's danlos syndrome as well? Hope you & your family have a healthier new year ahead
The bow on Peaches tail ❤
Check the Brighton score for Ehlers-danlos syndrome. It is not a diagnosis but it can attribute to a diagnosis. Lupus is also connected to this syndrome. Not all cases but quite a few. It can explain your fatigue and your need to sleep. Find your triggers. I have the hypermobility type along with neuropathy and dysautonomia. You've got this.
My daughter has Lupus. Joint pain is normal for her. But she keeps going because she has three teenagers. Watch your diet and keep active. You'll make it ! Blessings to you all !!!!!
Amen, Rebecca. I love the "I'm not claiming it" comment. ❤
My daughter has it. There are flare-ups and it can be painful but she gets through it.
I have lupus. I was DX at 28. I’m now 53. It is possible to live a full life with Lupus. I have had to make some adjustments,Mets in things I do and how I do them. Probably the most difficult thing for me is listening to my body and not pushing my body because inevitably of if I do I will go into a flare. If you have any questions please feel free to ask me. Funny thing is what set my lupus off was being bit by a lamb. Well I was shoving a pill down its throat and had my finger to far back when it swallowed. It wasn’t funny then but now I can laugh about it.
Symptoms of Systemic Lupus
Lupus occurs when the immune system, which normally helps protect the body from infection and disease, attacks its own tissues. This attack causes inflammation, and in some cases permanent tissue damage, which can be widespread - affecting the skin, joints, heart, lung, kidneys, circulating blood cells, and brain.
I was diagnosed by 2 doctors with this!
But The 3rd went even deeper. And i didn't have it
But i do have a Immuglobin deficiency and mthfr gene
Ive been Carnivore for 11 months now and No inflammation.
My inflammation waa off the charts
Now my numbers are Beautiful.
Let food be thy medicine ❤
Sorry to hear that. I was diagnosed 15 years ago. Most helpful advice I got was #1 limit your UV exposure, stay inside between 10 am and 4 pm. (Yes, that is depressing but you can do it.) #2 High dosage, high quality multi variety of probiotics.